Rethinking early intervention rehabilitation services for children with motor difficulties: engaging stakeholders in the conceptualization of telerehabilitation primary care

References

• Blank R, Smits-Engelsman B, Polatajko H, et al. European academy for childhood disability (EACD): recommendations on the definition, diagnosis and intervention of developmental coordination disorder (long version). Dev Med Child Neurol. 2012;54(1):54–93.
   PubMed Web of Science ®Google Scholar
• Novak I, McIntyre S, Morgan C, et al. A systematic review of interventions for children with cerebral palsy: state of the evidence. Dev Med Child Neurol. 2013;55(10):885–910.
   PubMed Web of Science ®Google Scholar
• Larroque B, Ancel P-Y, Marret S, Marchand L, et al. Neurodevelopmental disabilities and special care of 5-year-old children born before 33 weeks of gestation (the EPIPAGE study): a longitudinal cohort study. The Lancet. 2008;371(9615):813–820.
   PubMed Web of Science ®Google Scholar
• Miller AR, Armstrong RW, Masse LC, et al. Waiting for child developmental and rehabilitation services: an overview of issues and needs. Dev Med Child Neurol. 2008;50(11):815–821.
   PubMed Web of Science ®Google Scholar
• Missiuna C, Polatajko HJ, Pollock N. Strategic management of children with developmental coordination disorder. In Developmental coordination disorder and its consequences. Toronto: University of Toronto Press; 2015.
   Google Scholar
• Missiuna C, Cairney J, Pollock N, et al. Psychological distress in children with developmental coordination disorder and attention-deficit hyperactivity disorder. Res Dev Disabil. 2014;35(5):1198–1207.
   PubMed Web of Science ®Google Scholar
• Alonso Soriano C, Hill EL, Crane L. Surveying parental experiences of receiving a diagnosis of developmental coordination disorder (DCD). Res Dev Disabil. 2015;43:11–20.
   PubMed Web of Science ®Google Scholar
• Battini R, Sgandurra G, Olivieri I, et al. Psychometric properties of movement Disorder-Childhood rating scale. Dev Med Child Neurol. 2016;58(Supplement 6):23.
   Google Scholar
• Underwood K, Frankel EB. The developmental systems approach to early intervention in Canada. Infants Young Child. 2012;25(4):286–296.
   Web of Science ®Google Scholar
• Underwood K. Mapping the early intervention system in Ontario, Canada. Int J Spec Educ. 2012;27(2):126–135.
   Google Scholar
• Missiuna C, Moll S, Law M, et al. Mysteries and mazes: parents’ experiences of children with developmental coordination disorder. Can J Occup Ther. 2006;73(1):7–17.
   PubMedGoogle Scholar
• Spittle A, Treyvaud K. The role of early developmental intervention to influence neurobehavioral outcomes of children born preterm. Semin Perinatol. 2016;40(8):542–548.
   PubMed Web of Science ®Google Scholar
• Blauw-Hospers CH, Dirks T, Hulshof LJ, et al. Pediatric physical therapy in infancy: from nightmare to dream? A two-arm randomized trial. Phys Ther. 2011;91(9):1323–1338.
   PubMed Web of Science ®Google Scholar
• Morgan C, Darrah J, Gordon AM, et al. Effectiveness of motor interventions in infants with cerebral palsy: a systematic review. Dev Med Child Neurol. 2016;58(9):900–909.
   PubMed Web of Science ®Google Scholar
• Simeonsson RJ, Cooper DH, Scheiner AP. A review and analysis of the effectiveness of early intervention programs. Pediatrics. 1982;69(5):635–641.
   PubMed Web of Science ®Google Scholar
• Ziviani J, Feeney R, Rodger S, et al. Systematic review of early intervention programmes for children from birth to nine years who have a physical disability. Aust Occup Ther J. 2010;57(4):210–223.
   PubMed Web of Science ®Google Scholar
• McConachie H, Diggle T. Parent implemented early intervention for young children with autism spectrum disorder: a systematic review. J Eval Clin Pract. 2007;13(1):120–129.
   PubMed Web of Science ®Google Scholar
• Bisgaier J, Levinson D, Cutts DB, et al. Access to autism evaluation appointments with developmental-behavioral and neurodevelopmental subspecialists. Arch Pediatr Adolesc Med. 2011;165(7):673–674.
   PubMedGoogle Scholar
• Kogan MD, Strickland BB, Blumberg SJ, et al. A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics. 2008;122(6):e1149–e1158.
   PubMed Web of Science ®Google Scholar
• Russell TG. Physical rehabilitation using telemedicine. J Telemed Telecare. 2007;13(5):217–220.
   PubMed Web of Science ®Google Scholar
• Camden C, Pratte G, Fallon F, et al. Diversity of practices in telerehabilitation for children with disabilities and effective intervention characteristics: results from a systematic review. Disabil Rehabil. 2020;42(24):3424–3413.
   PubMed Web of Science ®Google Scholar
• Little LM, Wallisch A, Pope E, et al. Acceptability and cost comparison of a telehealth intervention for families of children with autism. Infants Young Child. 2018;31(4):275–286.
   Web of Science ®Google Scholar
• Camden C, Couture M, Pratte G, et al. Recruitment, use, and satisfaction with a web platform supporting families of children with suspected or diagnosed developmental coordination disorder: a randomized feasibility trial. Dev Neurorehabil. 2019;22(7):470–478.
   PubMed Web of Science ®Google Scholar
• Pratte G, Couture M, Morin M, et al. Evaluation of a web platform aiming to support parents having a child with developmental coordination disorder: brief report. Dev Neurorehabil. 2020;23(1):64–67.
   PubMed Web of Science ®Google Scholar
• Gray CS, Gravesande J, Hans PK, et al. Using exploratory trials to identify relevant contexts and mechanisms in complex electronic health interventions: evaluating the electronic Patient-Reported outcome tool. JMIR Form Res. 2019;3(1):e11950.
   PubMedGoogle Scholar
• Craig P, Dieppe P, Macintyre S, et al. Developing and evaluating complex interventions: the new medical research council guidance. BMJ. 2008;337:a1655.
   PubMed Web of Science ®Google Scholar
• Hart T. Treatment definition in complex rehabilitation interventions. Neuropsychol Rehabil. 2009;19(6):824–840.
   PubMed Web of Science ®Google Scholar
• Rogers PJ. Using programme theory to evaluate complicated and complex aspects of interventions. Evaluation. 2008;14(1):29–48.
   Google Scholar
• Goodman RM. Bridging the gap in effective program implementation: from concept to application. J Community Psychol. 2000;28(3):309–321.
   Web of Science ®Google Scholar
• Owen N, Glanz K, Sallis JF, et al. Evidence-based approaches to dissemination and diffusion of physical activity interventions. Am J Prev Med. 2006;31(4 Suppl):S35–S44.
   PubMed Web of Science ®Google Scholar
• Hawe P. Lessons from complex interventions to improve health. Annu Rev Public Health. 2015;36:307–323.
   PubMed Web of Science ®Google Scholar
• O'Cathain A, Croot L, Duncan E, et al. Guidance on how to develop complex interventions to improve health and healthcare. BMJ Open. 2019;9(8):e029954.
   PubMed Web of Science ®Google Scholar
• Hurtubise K, Brousselle A, Camden C. Using collaborative logic analysis evaluation to test the program theory of an intensive interdisciplinary pain treatment for youth with pain-related disability. Paediatric and Neo Pain. 2020;2(4):113–130.
   Google Scholar
• Ziviani J, Darlington Y, Feeney R, et al. From policy to practice: a program logic approach to describing the implementation of early intervention services for children with physical disability. Eval Program Plann. 2011;34(1):60–68.
   PubMed Web of Science ®Google Scholar
• Abimbola S, Li C, Mitchell M, Everett M, et al. On the same page: co-designing the logic model of a telehealth service for children in rural and remote Australia. Digit Health. 2019;5:2055207619826468.
   Web of Science ®Google Scholar
• Camden C, Poncet F. Recherche-action participative: nouvelles perspectives. Guide Pratique de Recherche en Réadaptation. 2014;2014:383.
   Google Scholar
• Camden C, Rivard L, Pollock N, et al. Knowledge to practice in developmental coordination disorder: impact of an evidence-based online module on physical therapists’ self-reported knowledge, skills, and practice. Phys Occup Ther Pediatr. 2015;35(2):195–210.
   PubMed Web of Science ®Google Scholar
• Boyd RN, Mitchell LE, James ST, et al. Move it to improve it (Mitii): study protocol of a randomised controlled trial of a novel web-based multimodal training program for children and adolescents with cerebral palsy. BMJ Open. 2013;3(4):53.
   Web of Science ®Google Scholar
• Camden C, Swaine B, Tetreault S, et al. SWOT analysis of a pediatric rehabilitation programme: a participatory evaluation fostering quality improvement. Disabil Rehabil. 2009;31(16):1373–1381.
   PubMed Web of Science ®Google Scholar
• Nickols F, Ledgerwood R. The goals grid as a tool for strategic planning. Consulting to Management. 2006;17(1):36.
   Google Scholar
• Braun V, Clarke V. Reflecting on reflexive thematic analysis. Qual Res Sport Exerc Health. 2019;11(4):589–597.
   Web of Science ®Google Scholar
• Tracy SJ, Hinrichs MM. Big tent criteria for qualitative quality. Int Encyclopedia Commun Res Methods. 2017;2017:1–10.
   Google Scholar
• Braun V, Clarke V. To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales. Qual Res Sport Exerc Health. 2021;13(2):201–216.
   Web of Science ®Google Scholar
• Meyrick J. What is good qualitative research? A first step towards a comprehensive approach to judging rigour/quality. J Health Psychol. 2006;11(5):799–808.
   PubMed Web of Science ®Google Scholar
• Tuval-Mashiach R. Raising the curtain: the importance of transparency in qualitative research. Qual Psychol. 2017;4(2):126–138.
   Google Scholar
• Regmi K, Naidoo J, Pilkington P. Understanding the processes of translation and transliteration in qualitative research. Int J Qual Methods. 2010;9(1):16–26.
   Web of Science ®Google Scholar
• King G, Williams L, Hahn Goldberg S. Family-oriented services in pediatric rehabilitation: a scoping review and framework to promote parent and family wellness. Child: Care Health Dev. 2017;43(3):334–347.
   PubMed Web of Science ®Google Scholar
• Boucher A. Ergonomie web: pour des sites web efficaces. Paris: Editions Eyrolles; 2011.
   Google Scholar
• Pratte G, Hurtubise K, Rivard L, et al. Developing a web platform to support a community of practice: a mixed methods study in pediatric Physiotherapy. J Contin Educ Health Prof. 2018;38(1):19–24.
   PubMed Web of Science ®Google Scholar
• Van Duyne DK, Landay JA, Hong JI. The design of sites: patterns for creating winning web sites. Upper Saddle Rive: Prentice Hall Professional; 2007.
   Google Scholar
• King G, Chiarello L. Family-centered care for children with cerebral palsy: conceptual and practical considerations to advance care and practice. J Child Neurol. 2014;29(8):1046–1054.
   PubMed Web of Science ®Google Scholar
• Ogourtsova T, O’Donnell M, Majnemer A. Coach, care coordinator, navigator or keyworker? review of emergent terms in childhood disability. Phys Occup Ther Pediatr. 2019;39(2):119–123.
   PubMed Web of Science ®Google Scholar
• Akhbari Ziegler S, Hadders-Algra M. Coaching approaches in early intervention and paediatric rehabilitation. Dev Med Child Neurol. 2020;62(5):569–574.
   PubMed Web of Science ®Google Scholar
• Schwellnus H, King G, Thompson L. Client-centred coaching in the paediatric health professions: a critical scoping review. Disabil Rehabil. 2015;37(15):1305–1315.
   PubMed Web of Science ®Google Scholar
• Dunn W, Cox J, Foster L, et al. Impact of a contextual intervention on child participation and parent competence among children with autism spectrum disorders: a pretest-posttest repeated-measures design. Am J Occup Ther. 2012;66(5):520–528.
   PubMed Web of Science ®Google Scholar
• Foster L, Dunn W, Lawson LM. Coaching mothers of children with autism: a qualitative study for occupational therapy practice. Phys Occup Ther Pediatr. 2013;33(2):253–263.
   PubMed Web of Science ®Google Scholar
• Taylor-Powell E, Henert E. Developing a logic model: teaching and training guide. Benefits. 2008;3:22.
   Google Scholar
• Afifi RA, Makhoul J, El Hajj T, et al. Developing a logic model for youth mental health: participatory research with a refugee community in Beirut. Health Policy Plan. 2011;26(6):508–517.
   PubMed Web of Science ®Google Scholar
• Maini R, Mounier-Jack S, Borghi J. How to and how not to develop a theory of change to evaluate a complex intervention: reflections on an experience in the democratic republic of Congo. BMJ Glob Health. 2018;3(1):e000617.
   PubMed Web of Science ®Google Scholar
• Damschroder LJ, Aron DC, Keith RE, et al. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci. 2009;4(1):50–15.
   PubMed Web of Science ®Google Scholar
• Michie S, Van Stralen MM, West R. The behaviour change wheel: a new method for characterising and designing behaviour change interventions. Implement Sci. 2011;6(1):42.
   PubMed Web of Science ®Google Scholar
• Ross J, Stevenson F, Lau R, et al. Factors that influence the implementation of e-health: a systematic review of systematic reviews (an update). Implement Sci. 2016;11(1):146.
   PubMed Web of Science ®Google Scholar
• Granja C, Janssen W, Johansen MA. Factors determining the success and failure of eHealth interventions: systematic review of the literature. J Med Internet Res. 2018;20(5):e10235.
   PubMed Web of Science ®Google Scholar
• Janssen MMHP, Hendriks JCM, Geurts ACH, et al. Variables associated with upper extremity function in patients with duchenne muscular dystrophy. J Neurol. 2016;263(9):1810–1818.
   PubMed Web of Science ®Google Scholar
• Camden C, Silva M. Pediatric teleheath: opportunities created by the COVID-19 and suggestions to sustain its use to support families of children with disabilities. Phys Occup Ther Pediatr. 2021;41(1):1–17.
   PubMed Web of Science ®Google Scholar