Rehabilitation goals described by patients with rheumatic and musculoskeletal diseases: content and attainment during the first year after rehabilitation

References

• Murray CJ, Vos T, Lozano R, et al. Disability-adjusted life years (DALYs) for 291 diseases and injuries in 21 regions, 1990–2010: a systematic analysis for the global burden of disease study 2010. Lancet. 2012;380(9859):2197–2223.
   PubMed Web of Science ®Google Scholar
• van der Heijde D, Daikh DI, Betteridge N, et al. Common language description of the term rheumatic and musculoskeletal diseases (RMDs) for use in communication with the lay public, healthcare providers and other stakeholders endorsed by the European league against rheumatism (EULAR) and the American College of Rheumatology (ACR). Ann Rheum Dis. 2018;77(6):829–832.
   PubMed Web of Science ®Google Scholar
• EUMUSC.NET. Musculoskeletal health in Europe report v5.0. [cited 2019 May 28]. Available from: http://eumusc.net/publications.cfm
   Google Scholar
• Krishnan E, Lingala B, Bruce B, et al. Disability in rheumatoid arthritis in the era of biological treatments. Ann Rheum Dis. 2012;71(2):213–218.
   PubMed Web of Science ®Google Scholar
• Macfarlane GJ, Kronisch C, Dean LE, et al. EULAR revised recommendations for the management of fibromyalgia. Ann Rheum Dis. 2017;76(2):318–328.
   PubMed Web of Science ®Google Scholar
• Kolasinski SL, Neogi T, Hochberg MC, et al. 2019 American College of Rheumatology/arthritis foundation guideline for the management of osteoarthritis of the hand, hip, and knee. Arthritis Rheumatol. 2020;72(2):220–233.
   PubMed Web of Science ®Google Scholar
• Klokkerud M, Hagen KB, Lochting I, et al. Does the content really matter? A study comparing structure, process, and outcome of team rehabilitation for patients with inflammatory arthritis in two different clinical settings. Scand J Rheumatol. 2012;41(1):20–28.
   PubMed Web of Science ®Google Scholar
• Vlieland TPMV, vdEC, da Silva JAP. Rehabilitation in rheumatic diseases. In: Bijlsma JWJ, editor. EULAR textbook on rheumatic diseases. 1st ed. London: BMJ Group; 2012. p. 1183–1198.
   Google Scholar
• Geenen RF. Psycho-social approaches in rheumatic diseases. In: Bijlsma JWJ, editor. EULAR textbook on rheumatic diseases. 1st ed. London (UK): BMJ Group; 2012. p. 139–162.
   Google Scholar
• McCuish WJ, Bearne LM. Do inpatient multidisciplinary rehabilitation programmes improve health status in people with long-term musculoskeletal conditions? A service evaluation. Musculoskelet Care. 2014;12(4):244–250.
   PubMedGoogle Scholar
• de Ridder D, Geenen R, Kuijer R, et al. Psychological adjustment to chronic disease. Lancet. 2008;372(9634):246–255.
   PubMed Web of Science ®Google Scholar
• Iversen MD, Hammond A, Betteridge N. Self-management of rheumatic diseases: state of the art and future perspectives. Ann Rheum Dis. 2010;69(6):955–963.
   PubMed Web of Science ®Google Scholar
• Dures E, Hewlett S. Cognitive-behavioural approaches to self-management in rheumatic disease. Nat Rev Rheumatol. 2012;8(9):553–559.
   PubMed Web of Science ®Google Scholar
• Knittle K, De Gucht V, Maes S. Lifestyle- and behaviour-change interventions in musculoskeletal conditions. Best Pract Res Clin Rheumatol. 2012;26(3):293–304.
   PubMed Web of Science ®Google Scholar
• WHO. Rehabilitation. [cited 2016 Jan 22]. Available from: http://www.who.int/topics/rehabilitation/en/
   Google Scholar
• Wade DT, de Jong BA. Recent advances in rehabilitation. BMJ. 2000;320(7246):1385–1388.
   PubMed Web of Science ®Google Scholar
• Steiner WA, Ryser L, Huber E, et al. Use of the ICF model as a clinical problem-solving tool in physical therapy and rehabilitation medicine. Phys Ther. 2002;82(11):1098–1107.
   PubMed Web of Science ®Google Scholar
• Klokkerud M, Hagen KB, Kjeken I, et al. Development of a framework identifying domains and elements of importance for arthritis rehabilitation. J Rehabil Med. 2012;44(5):406–413.
   PubMed Web of Science ®Google Scholar
• Johansen I, Klokkerud M, Anke A, et al. A quality indicator set for use in rehabilitation team care of people with rheumatic and musculoskeletal diseases; development and pilot testing. BMC Health Serv Res. 2019;19(1):265.
   PubMedGoogle Scholar
• Siegert RJ, Taylor WJ. Theoretical aspects of goal-setting and motivation in rehabilitation. Disabil Rehabil. 2004;26(1):1–8.
   PubMed Web of Science ®Google Scholar
• MWA B. Oxford handbook of rehabilitation medicine. United States (NY): Oxford University Press; 2005.
   Google Scholar
• Playford ED, Siegert R, Levack W, et al. Areas of consensus and controversy about goal setting in rehabilitation: a conference report. Clin Rehabil. 2009;23(4):334–344.
   PubMed Web of Science ®Google Scholar
• Wade DT. Goal setting in rehabilitation: an overview of what, why and how. Clin Rehabil. 2009;23(4):291–295.
   PubMed Web of Science ®Google Scholar
• Schut HA, Stam HJ. Goals in rehabilitation teamwork. Disabil Rehabil. 1994;16(4):223–226.
   PubMed Web of Science ®Google Scholar
• Bovend’Eerdt TJ, Botell RE, Wade DT. Writing SMART rehabilitation goals and achieving goal attainment scaling: a practical guide. Clin Rehabil. 2009;23(4):352–361.
   PubMed Web of Science ®Google Scholar
• Dekker J, de Groot V, Ter Steeg AM, et al. Setting meaningful goals in rehabilitation: rationale and practical tool. Clin Rehabil. 2020;34(1):3–12.
   PubMed Web of Science ®Google Scholar
• Sugavanam T, Mead G, Bulley C, et al. The effects and experiences of goal setting in stroke rehabilitation – a systematic review. Disabil Rehabil. 2013;35(3):177–190.
   PubMed Web of Science ®Google Scholar
• Plewnia A, Bengel J, Körner M. Patient-centeredness and its impact on patient satisfaction and treatment outcomes in medical rehabilitation. Patient Educ Couns. 2016;99(12):2063–2070.
   PubMed Web of Science ®Google Scholar
• Law M, Baptiste S, Mills J. Client-centred practice: what does it mean and does it make a difference? Can J Occup Ther. 1995;62(5):250–257.
   PubMedGoogle Scholar
• Cameron LJ, Somerville LM, Naismith CE, et al. A qualitative investigation into the patient-centered goal-setting practices of allied health clinicians working in rehabilitation. Clin Rehabil. 2018;32(6):827–840.
   PubMed Web of Science ®Google Scholar
• Levack WM, Weatherall M, Hay-Smith JC, et al. Goal setting and strategies to enhance goal pursuit in adult rehabilitation: summary of a cochrane systematic review and meta-analysis. Eur J Phys Rehabil Med. 2016;52(3):400–416.
   PubMed Web of Science ®Google Scholar
• Rose A, Rosewilliam S, Soundy A. Shared decision making within goal setting in rehabilitation settings: a systematic review. Patient Educ Couns. 2017;100(1):65–75.
   PubMed Web of Science ®Google Scholar
• Yun D, Choi J. Person-centered rehabilitation care and outcomes: a systematic literature review. Int J Nurs Stud. 2019;93:74–83.
   PubMed Web of Science ®Google Scholar
• Westaway MD, Stratford PW, Binkley JM. The patient-specific functional scale: validation of its use in persons with neck dysfunction. The. J Orthop Sports Phys Ther. 1998;27(5):331–338.
   PubMed Web of Science ®Google Scholar
• Moseng TT, Holm I. Pasient-Spesifikk Funksjonsskala. Et nyttig verktøy for fysioterpaeuter i primaerhelsetjenesten. Nor J Physiother. 2013;2:20–26.
   Google Scholar
• WHO. International Classification of Functioning, Disability and Health (ICF): World Health Organization. 2018 [cited 2018 Mar 2]. Available from: http://www.who.int/classification/icf/en/.2018
   Google Scholar
• Cieza A, Brockow T, Ewert T, et al. Linking health-status measurements to the international classification of functioning, disability and health. J Rehabil Med. 2002;34(5):205–210.
   PubMed Web of Science ®Google Scholar
• Cieza A, Geyh S, Chatterji S, et al. ICF linking rules: an update based on lessons learned. J Rehabil Med. 2005;37(4):212–218.
   PubMed Web of Science ®Google Scholar
• Cieza A, Fayed N, Bickenbach J, et al. Refinements of the ICF linking rules to strengthen their potential for establishing comparability of health information. Disabil Rehabil. 2019;41(5):510–574.
   Web of Science ®Google Scholar
• Meesters J, Hagel S, Klokkerud M, et al. Goal-setting in multidisciplinary team care for patients with rheumatoid arthritis: an international multi-center evaluation of the contents using the international classification of functioning, disability and health as a reference. J Rehabil Med. 2013;45(9):888–899.
   PubMed Web of Science ®Google Scholar
• Berdal G, Sand-Svartrud A-L, Bø I, et al. Aiming for a healthier life: a qualitative content analysis of rehabilitation goals in patients with rheumatic diseases. Disabil Rehabil. 2018;40(7):765–778.
   PubMed Web of Science ®Google Scholar
• Hamnes B, Berdal G, Bø I, et al. Patients’ experiences with goal pursuit after discharge from rheumatology rehabilitation: a qualitative study. Musculoskeletal Care. 2021;19(3):249–258.
   PubMed Web of Science ®Google Scholar
• Avina-Zubieta JA, Choi HK, Sadatsafavi M, et al. Risk of cardiovascular mortality in patients with rheumatoid arthritis: a meta-analysis of observational studies. Arthritis Rheum. 2008;59(12):1690–1697.
   PubMed Web of Science ®Google Scholar
• Mathieu S, Pereira B, Soubrier M. Cardiovascular events in ankylosing spondylitis: an updated meta-analysis. Semin Arthritis Rheum. 2015;44(5):551–555.
   PubMed Web of Science ®Google Scholar
• Polachek A, Touma Z, Anderson M, et al. Risk of cardiovascular morbidity in patients with psoriatic arthritis: a meta-analysis of observational studies. Arthritis Care Res. 2017;69(1):67–74.
   PubMed Web of Science ®Google Scholar
• Agca R, Heslinga SC, Rollefstad S, et al. EULAR recommendations for cardiovascular disease risk management in patients with rheumatoid arthritis and other forms of inflammatory joint disorders: 2015/2016 update. Ann Rheum Dis. 2017;76(1):17–28.
   PubMed Web of Science ®Google Scholar
• Rausch Osthoff AK, Juhl CB, Knittle K, et al. Effects of exercise and physical activity promotion: meta-analysis informing the 2018 EULAR recommendations for physical activity in people with rheumatoid arthritis, spondyloarthritis and hip/knee osteoarthritis. RMD Open. 2018;4(2):e000713.
   PubMed Web of Science ®Google Scholar
• Rausch Osthoff AK, Niedermann K, Braun J, et al. 2018 EULAR recommendations for physical activity in people with inflammatory arthritis and osteoarthritis. Ann Rheum Dis. 2018;77(9):1251–1260.
   PubMed Web of Science ®Google Scholar
• Liff MH, Hoff M, Fremo T, et al. Cardiorespiratory fitness in patients with rheumatoid arthritis is associated with the patient global assessment but not with objective measurements of disease activity. RMD Open. 2019;5(1):e000912.
   PubMed Web of Science ®Google Scholar
• Dohrn IM, Kwak L, Oja P, et al. Replacing sedentary time with physical activity: a 15-year follow-up of mortality in a national cohort. Clin Epidemiol. 2018;10:179–186.
   PubMed Web of Science ®Google Scholar
• Statistics Norway. Arbeidskraftundersøkelsen: Statistisk Sentralbyrå. 2021. Available from: https://www.ssb.no/arbeid-og-lonn/sysselsetting/statistikk/arbeidskraftundersokelsen.
   Google Scholar
• Statistics Norway. Tidsbruksundersøkelsen: Statistisk Sentralbyrå. 2021. Available from: https://www.ssb.no/kultur-og-fritid/tids-og-mediebruk/statistikk/tidsbruksundersokelsen.
   Google Scholar
• Kjeken I, Bø I, Rønningen A, et al. A three-week multidisciplinary in-patient rehabilitation programme had positive long-term effects in patients with ankylosing spondylitis: randomized controlled trial. J Rehabil Med. 2013;45(3):260–267.
   PubMed Web of Science ®Google Scholar
• Bearne LM, Byrne AM, Segrave H, et al. Multidisciplinary team care for people with rheumatoid arthritis: a systematic review and meta-analysis. Rheumatol Int. 2016;36(3):311–324.
   PubMed Web of Science ®Google Scholar
• Uhlig T, Bjørneboe O, Krøll F, et al. Involvement of the multidisciplinary team and outcomes in inpatient rehabilitation among patients with inflammatory rheumatic disease. BMC Musculoskelet Disord. 2016;17:18.
   PubMed Web of Science ®Google Scholar
• Berdal G, Bø I, Dager TN, et al. Structured goal planning and supportive telephone followup in rheumatology care: results from a pragmatic stepped-wedge cluster-randomized trial. Arthritis Care Res. 2018;70(11):1576–1586.
   Web of Science ®Google Scholar
• Cott CA. Client-centred rehabilitation: client perspectives. Disabil Rehabil. 2004;26(24):1411–1422.
   PubMed Web of Science ®Google Scholar
• Berdal G, Smedslund G, Dagfinrud H, et al. Design and effects of supportive followup interventions in clinical care of patients with rheumatic diseases: a systematic review with meta-analysis. Arthritis Care Res. 2015;67(2):240–254.
   Web of Science ®Google Scholar
• Valaas HK, Hildeskår J, Hagland AS, et al. Follow-up care and adherence to self-management activities in rehabilitation for patients with rheumatic and musculoskeletal diseases – results from a multicentre cohort study. Disabil Rehabil [Submitted article]. 2021.
   Web of Science ®Google Scholar
• Waddell G, Burton K, Aylward M. Work and common health problems. J Insurance Med. 2007;39(2):109–120.
   PubMedGoogle Scholar
• Hammond A, O’Brien R, Woodbridge S, et al. Job retention vocational rehabilitation for employed people with inflammatory arthritis (WORK-IA): a feasibility randomized controlled trial. BMC Musculoskelet Disord. 2017;18(1):315.
   PubMedGoogle Scholar
• Boonen AV, Butink M, Webers C, et al. Points to consider when supporting persons with rheumatic and musculoskeletal diseases to participate in healthy and sustainable paid work. Ann Rheum Dis. 2021;80(Suppl 1):101.
   Google Scholar
• Fayed N, Cieza A, Edmond Bickenbach J. Linking health and health-related information to the ICF: a systematic review of the literature from 2001 to 2008. Disabil Rehabil. 2011;33(21–22):1941–1951.
   PubMed Web of Science ®Google Scholar
• Garfield S, Clifford S, Eliasson L, et al. Suitability of measures of self-reported medication adherence for routine clinical use: a systematic review. BMC Med Res Methodol. 2011;11:149.
   PubMed Web of Science ®Google Scholar
• Sallis JF, Saelens BE. Assessment of physical activity by self-report: status, limitations, and future directions. Res Q Exerc Sport. 2000;71 (Suppl 2):1–14.
   PubMed Web of Science ®Google Scholar
• ICF Illustration Library. English version. Available from: http://icfillustration.com/icfil_eng/top.html
   Google Scholar