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Assessment Procedures

Development and validation of caregiver stress and support scale for caregivers of individuals with disabilities in Singapore

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Pages 8450-8462 | Received 29 Jan 2021, Accepted 24 Nov 2021, Published online: 14 Dec 2021

References

  • International Alliance of Carer Organizations. Global state of care. 2015. Available from: https://internationalcarers.org/carer-facts/global-carer-stats/
  • World Health Organization. WHO global disability action plan 2014-2021. 2015. Available from: https://apps.who.int/iris/bitstream/handle/10665/199544/9789241509619_eng.pdf;jsessionid=0E90A099325A45A2DDC26EFDEA9D7360?sequence=1
  • Murphy NA, Christian B, Caplin DA, et al. The health of caregivers for children with disabilities: caregiver perspectives. Child Care Health Dev. 2007;33(2):180–187.
  • American Psychiatric Association. Diagnostic and statistical manual of mental disorders. (5th ed.). Washington (DC): American Psychiatric Publishing; 2013.
  • Isa S,N, I Ishak I, Rahman AA, et al. Health and quality of life among the caregivers of children with disabilities: a review of literature. Asian J Psychiatr. 2016;23:71–77.
  • Lazarus R, Folkman S. Stress, appraisal, and coping. New York: Springer. 1984.
  • Nolan MR, Grant G, Ellis NC. Stress is in the eye of the beholder: reconceptualizing the measurement of carer burden. J Adv Nurs. 1990;15(5):544–555.
  • Vitaliano PP, Zhang J, Scanlan JM. Is caregiving hazardous to one's physical health? A meta-analysis. Psychol Bull. 2003;129(6):946–972.
  • Pinquart M, Sörensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging. 2003;18(2):250–267.
  • Lavelle TA, Weinstein MC, Newhouse JP, et al. Economic burden of childhood autism spectrum disorders. Pediatrics. 2014;133(3):e520–9.
  • Smith GR, Williamson GM, Miller LS, et al. Depression and quality of informal care: a longitudinal investigation of caregiving stressors. Psychol Aging. 2011;26(3):584–591.
  • Bakker AB, Demerouti E. Job demands-resources theory: taking stock and looking forward. J Occup Health Psychol. 2017;22(3):273–285.
  • Markus HR, Kitayama S. Culture and the self: Implications for cognition, emotion, and motivation. Psychol Rev. 1991;98(2):224–253.
  • Kim HS, Sherman DK, Ko D, et al. Pursuit of happiness and pursuit of harmony: culture, relationships, and social support seeking. Pers Soc Psychol Bull. 2006;32(12):1595–1607.
  • Taylor SE, Welch WT, Kim HS, et al. Cultural differences in the impact of social support on psychological and biological stress responses. Psychol Sci. 2007;18(9):831–837.
  • Kim HS, Sherman DK, Taylor SE. Culture and social support. Am Psychol. 2008;63(6):518–526.
  • Koren E, Gueta K, Bergman YS. The relationship between meaning in life, attitudes towards disability, and psychological well-being: Findings from ultra-orthodox Jewish women in Israel. Paper presented at the biennial meeting of the International Association of Cross-Cultural Psychology, Nagoya, Japan. 2016. Jul-Aug.
  • Ravindran N, Myers BJ. Beliefs and practices regarding autism in Indian families now settled abroad: an internet survey. Focus Autism Other Dev Disabl. 2013;28(1):44–53.
  • Jegatheesan B, Miller PJ, Fowler SA. Autism from a religious perspective. A study of parental beliefs in South Asian Muslim Immigrant Families. Focus Autism Other Dev Disabl. 2010;25(2):98–109.
  • Zechella AN, Raval VV. Parenting children with intellectual and developmental disabilities in Asian Indian families in the United States. J Child Fam Stud. 2016;25(4):1295–1309.
  • Armstrong J, Ager A. Perspectives of disability in Afghanistan and their implications for rehabilitation services. Int J of Rehabil Res. 2005;28:87–92.
  • Lam L, Mackenzie AE. Coping with a child with down syndrome: the experiences of mothers in Hong Kong. Qual Health Res. 2002;12(2):223–237.
  • Ministry of Health. Speech by Mr. Gan Kim Yong, Minister for Health, at Singapore Palliative Care Conference at Singapore Polytechnic Convention Centre. [cited 2014 Jun 28]. Available from: https://www.moh.gov.sg/content/moh_web/home/pressRoom/speeches_d/2014/speech-by-mr-gan-kim-yong-minister-for-health-at-singapore-pal.html
  • Ow R, Lang FJ. Permanency planning: families of children with intellectual disability. Asia Pac J Social Work Dev. 2000;10(2):73–85.
  • Ng HY, Griva K, Lim HA, et al. The burden of filial piety: a qualitative study on caregiving motivations amongst family caregivers of patients with cancer in Singapore. Psychol Health. 2016;31(11):1293–1310.
  • Penkunas MJ, Chan AW, Wong CH, et al. The role of a multicomponent home-health intervention in reducing caregiver stress in Singapore: a qualitative study. J Gerontol Series B: Psy Sci & Soc Sci. 2016;73(2):314–325.
  • Tan SB, Williams AF, Morris ME. Experiences of caregivers of people with Parkinson's disease in Singapore: a qualitative analysis. J Clin Nurs. 2012;21(15-16):2235–2246.
  • Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20(6):649–655.
  • Abidin RR. Parenting stress index (PSI). Charlottesville (VA): Pediatric Psychology Press. 1990.
  • Epstein-Lubow G, Gaudiano BA, Hinckley M, et al. Evidence for the validity of the American Medical Association's caregiver self-assessment questionnaire as a screening measure for depression. J Am Geriatr Soc. 2010;58(2):387–388.
  • Carver CS, Scheier MF, Weintraub JK. Assessing coping strategies: a theoretically based approach. J Pers Soc Psy. 1989;56(2):267–283.
  • Sherbourne CD, Stewart AL. The MOS social support survey. Soc Sci Med. 1991;32(6):705–714.
  • Zimet GD, Dahlem NW, Zimet SG, et al. The multidimensional scale of perceived social support. J Pers Assess. 1988;52(1):30–41.
  • Mushquash CJ, Bova DL. Cross-cultural assessment and measurement issues. J Dev Disabil. 2007;13(1):53–65.
  • DeVellis RF. Scale development: theory and applications. (4th ed.). Thousand Oaks (CA): Sage; 2016.
  • Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–1288.
  • Van De Vijver FJR, Hambleton RK. Translating tests: some practical guidelines. Euro Psy. 1996;1(2):89–99.
  • Zwick WR, Velicer WF. Comparison of five rules for determining the number of components to retain. Psychol Bull. 1986;99(3):432–442.
  • O’Connor BP. SPSS and SAS programs for determining the number of components using parallel analysis and Velicer’s MAP test. Beh Res Meth. 2000;32(3):396–402.
  • Clark LA, Watson D. Constructing validity: basic issues in objective scale development. Psychol Assess. 1995;7(3):309–319.
  • Widaman KF. Best practices in quantitative methods for developmentalists: III. Missing data: what to do with or without them. Monographs Soc Res Child Dev. 2006;71(3):42–64.
  • Henson RK, Roberts JK. Exploratory factor analysis reporting practices in published research: Common errors and some comment on improved practice. Educ Psychol Measurement. 2006;66(3):393–416.
  • Floyd FJ, Widaman KF. Factor analysis in the development and refinement of clinical assessment instruments. Psychol Assess. 1995;7(3):286–299.
  • Heun R, Burkart M, Maier W, et al. Internal and external validity of the WHO well-being scale in the elderly general population. Acta Psychiatr Scand. 1999;99(3):171–178.
  • Radloff LS. The CES-D scale a self-report depression scale for research in the general population. App Psychol Meas. 1977;1(3):385–401.
  • Seng BK, Luo N, Ng WY, et al. Validity and reliability of the zarit burden interview in assessing caregiving burden. Ann Acad Med Singap. 2010;39(10):758–763.
  • Moser A, Stuck AE, Silliman RA, et al. The eight-item modified medical outcomes study social support survey: psychometric evaluation showed excellent performance. J Clin Epidemiol. 2012;65(10):1107–1116.
  • Arbuckle JL. Amos 23.0 user’s guide. Chicago: IBM SPSS; 2014.
  • Byrne BM. Adaptation of assessment scales in cross-national research: issues, guidelines, and caveats. Int Persp Psy: Res, Prac, Consult. 2016;5(1):51–65.
  • Bentler PM. Comparative fit indexes in structural models. Psychol Bull. 1990;107(2):238–246.
  • MacCallum RC, Browne MW, Sugawara HM. Power analysis and determination of sample size for covariance structure modeling. Psychol Methods. 1996;1(2):130–149.
  • Hu L, Bentler PM. Fit indices in covariance structure modelling: sensitivity to unparameterized model misspecification. Psychol Methods. 1998;3(4):424–453.
  • Kenny DA, McCoach DB. Effect of the number of variables on measures of fit in structural equation modeling. Struc Equ Modeling. 2003;10(3):333–351.
  • Hooper D, Coughlan J, Mullen M. Structural equation modelling: guidelines for determining model fit. Electr J Busin Res Methods. 2008;6(1):53–60.
  • Nunnally JC, Bernstein IH. Psychometric theory. New York: McGraw Hill; 1978.
  • Kaplan D. Structural equation modeling: Foundations and extentions. (2nd ed.). Newbury Park (CA): Sage; 2009.
  • World Health Organization. Use of wellbeing measures in primary health care: the Dep-Care project health for all. Target 12. E60246. Geneva: WHO. 1998.
  • Power R, Muhit M, Heanoy E, et al. Depression, anxiety and stress among caregivers of adolescents with cerebral palsy in rural Bangladesh. Disabil Rehabil. 2021;43(15):2123–2130.
  • Mbugua MN, Kuria MW, Ndetei DM. The prevalence of depression among family caregivers of children with intellectual disability in a rural setting in Kenya. Int J Family Med. 2011;2011:534513.
  • Skok A, Harvey D, Reddihough D. Perceived stress, perceived social support, and wellbeing among mothers of school-aged children with cerebral palsy. J Intellect Dev Disabil. 2006;31(1):53–57.
  • Lecavalier L, Leone S, Wiltz J. The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. J Intellect Disabil Res. 2006;50(Pt 3):172–183.
  • Yip JSK, Soo PE, Jay CYJ. 25 Years of educational reform. In: Yip JSK and Wong KS, editor Evolution of educational excellence: 25 years of education in the republic of Singapore. Singapore: Longman; 1990. p. 1–25.
  • Hatton C, Azmi S, Caine A, et al. Informal carers of adolescents and adults with learning difficulties from the South Asian communities: family circumstances, service support and carer stress. Brit J Soc Work. 1998;28(6):821–837.
  • Hubert J. Family carers’ views of services for people with learning disabilities from black and minority ethnic groups: a qualitative study of 30 families in a South Londonborough. Disabil Soc. 2006;21(3):259–272.

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