Anticipating the outcomes: how young adults with developmental disabilities and co-occurring mental health conditions make decisions about disclosure of their mental health conditions at work

References

• Bush KL, Tasse MJ. Employment and choice-making for adults with intellectual disability, autism, and down syndrome. Res Dev Disabil. 2017;65:23–34.
   PubMed Web of Science ®Google Scholar
• Hiersteiner D, Butterworth J, Bershadsky J, et al. Working in the community: the status and outcomes of people with intellectual and developmental disabilities in integrated employment—update 3. Cambridge (MA): Human Services Research Institute; 2018.
   Google Scholar
• Dewa CS, McDaid D, Ettner SL. An international perspective on worker mental health problems: who bears the burden and how are costs addressed? Can J Psychiatry. 2007;52(6):346–356.
   PubMed Web of Science ®Google Scholar
• Mavranezouli I, Megnin-Viggars O, Cheema N, et al. The cost-effectiveness of supported employment for adults with autism in the United Kingdom. Autism. 2014;18(8):975–984.
   PubMed Web of Science ®Google Scholar
• Akkerman A, Janssen CGC, Kef S, et al. Job satisfaction of people with intellectual disabilities in integrated and sheltered employment: an exploration of the literature. J Policy Pract Intellect Disabil. 2016;13(3):205–216.
   Web of Science ®Google Scholar
• Southward JD, Kyzar K. Predictors of competitive employment for students with intellectual and/or developmental disabilities. Educ Train Autism Dev Disabil. 2017;52:26–37.
   Web of Science ®Google Scholar
• NADD. Including individuals with intellectual/developmental disabilities and co-occurring mental illness: challenges that must be addressed by health care reform; 2013. Available from: http://thenadd.org/wp-content/uploads/2013/10/NADD-Poisition-Statement-on-letterhead1.pdf
   Google Scholar
• Zheng S, Adams R, Taylor JL, et al. Depression in independent young adults on the autism spectrum: demographic characteristics, service use, and barriers. Autism. 2021;25(7):1960–1972.
   PubMed Web of Science ®Google Scholar
• Hollocks MJ, Lerh JW, Magiati I, et al. Anxiety and depression in adults with autism spectrum disorder: a systematic review and meta-analysis. Psychol Med. 2019;49(4):559–572.
   PubMed Web of Science ®Google Scholar
• Schwartz AE, Rogers ES, Russinova Z. Predictors of community-based employment for young adults with intellectual disability and co-occurring mental health conditions. Disabil Rehabil. 2021. DOI:10.1080/09638288.2021.1907457
   PubMed Web of Science ®Google Scholar
• Brouwers EPM, Joosen MCW, van Zelst C, et al. To disclose or not to disclose: a multi-stakeholder focus group study on mental health issues in the work environment. J Occup Rehabil. 2020;30(1):84–92.
   PubMed Web of Science ®Google Scholar
• MacDonald-Wilson K, Russinova Z, Rogers ES, et al. Disclosure of mental health disabilities in the workplace. In: Schultz IZ, Rogers ES, editors. Handbook of job accommodation and retention in mental health. New York (NY): Springer; 2010. p. 191–217.
   Google Scholar
• Lindsay S, Cagliostro E, Carafa G. A systematic review of workplace disclosure and accommodation requests among youth and young adults with disabilities. Disabil Rehabil. 2018;40(25):2971–2986.
   PubMed Web of Science ®Google Scholar
• Lindsay S, Cagliostro E, Leck J, et al. Disability disclosure and workplace accommodations among youth with disabilities. Disabil Rehabil. 2019;41(16):1914–1924.
   PubMed Web of Science ®Google Scholar
• von Schrader S, Malzer V, Bruyère S. Perspectives on disability disclosure: the importance of employer practices and workplace climate. Employ Response Rights J. 2014;26(4):237–255.
   Google Scholar
• Gallios C, Ogay T, Giles H. Communication accommodation theory: a look back and a look ahead. In: Gudykunst WB, editor. Theorizing about intercultural communication. Thousand Oaks (CA): SAGE Publications; 2005. p. 121–148.
   Google Scholar
• Burgess S, Cimera RE. Employment outcomes of transition-aged adults with autism spectrum disorders: a state of the States report. Am J Intellect Dev Disabil. 2014;119(1):64–83.
   PubMedGoogle Scholar
• Simonsen ML, Neubert DA. Transitioning youth with intellectual and other developmental disabilities: predicting community employment outcomes. Career Dev Transit Except Indiv. 2013;36(3):188–198.
   Google Scholar
• Fraker T, Rangarajan A. The social security administration’s youth transition demonstration projects. J Vocat Rehabil. 2009;30(3):223–240.
   Google Scholar
• Chan W, Smith LE, Hong J, et al. Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability. Autism. 2018;22(7):794–803.
   PubMed Web of Science ®Google Scholar
• SRI. Employment. National longitudinal transition study of special education students; 2011.
   Google Scholar
• SRI. NLTS2 Wave 5. Parent/young adult survey employment of young adult (combined young adult and parent items) table 209 [Internet]; 2009 [cited 2019 Sep 19]. Available from: https://nlts2.sri.com/data_tables/tables/14/np5T4g_L4gfrm.html
   Google Scholar
• Fraker T, Cobb J, Hemmeter J, et al. Three-year effects of the youth transition demonstration projects. Soc Sec Bull. 2018;78(3).
   Google Scholar
• Zafar N, Rotenberg M, Rudnick A. A systematic review of work accommodations for people with mental disorders. Work. 2019;64(3):461–475.
   PubMedGoogle Scholar
• Romualdez AM, Heasman B, Walker Z, et al. “People might understand me better”: diagnostic disclosure experiences of autistic individuals in the workplace. Autism Adulthood. 2021;3(2):157–167.
   Google Scholar
• Maxwell JA. Qualitative research design: an interactive approach. 3rd ed. Thousand Oaks (CA): SAGE Publications; 2013.
   Google Scholar
• Walmsey J, Johnson K. Inclusive research with people with learning disabilities. London; New York (NY): Jessica Kingsley Publishers; 2003.
   Google Scholar
• Interview with Boston University Research Team. (No. 30). [Audio podcast episode]. In: Mental Health Crossroads Podcast. [cited 2021 Oct 12]. Available from: https://mhddcenter.podbean.com/e/ep-30-interview-with-boston-university-research-team/,
   Google Scholar
• Constantino JN, Strom S, Bunis M, et al. Toward actionable practice parameters for “dual diagnosis”: principles of assessment and management for co-occurring psychiatric and intellectual/developmental disability. Curr Psychiatry Rep. 2020;22(2):9.
   PubMed Web of Science ®Google Scholar
• Whittle EL, Fisher KR, Reppermund S, et al. Barriers and enablers to accessing mental health services for people with intellectual disability: a scoping review. J Mental Health Res Intellect Disabil. 2018;11(1):69–102.
   Web of Science ®Google Scholar
• Schwartz AE, Durkin B. “Team is everything”: reflections on trust, logistics, and methodological choices in collaborative interviewing. Br J Learn Disabil. 2020;48(2):115–123.
   Web of Science ®Google Scholar
• Charmaz K. Constructing grounded theory. 2nd ed. Thousand Oaks (CA): SAGE Publications; 2014.
   Google Scholar
• Schwartz AE, Kramer JM, Rogers ES, et al. Stakeholder-driven approach to developing a peer-mentoring intervention for young adults with intellectual/developmental disabilities and co-occurring mental health conditions. J Appl Res Intellect Disabil. 2020;33(5):992–1004.
   PubMed Web of Science ®Google Scholar
• Equal Employment Opportunity Commission. Small employers and reasonable accommodation; Rehabilitation Act, 29 CFR Part 1630 [Internet]. Equal Employment Opportunity Commission; 1999 [cited 2021 Dec 15]. Available from: https://www.eeoc.gov/laws/guidance/small-employers-and-reasonable-accommodation
   Google Scholar
• Harris D, Davis J. The experiences of three Black African male mathematics teachers in a same race and gender peer mentoring program. JME. 2018;12(2):172–100.
   Google Scholar
• Hayes E, Balcazar F. Peer-mentoring and disability: current applications and future directions. In: Kroll T, editor. Focus on disability: trends in research and application. New York (NY): Nova Science Publishers, Inc.; 2008. p. 89–108.
   Google Scholar
• Gignac M, Jetha A, Ginis K, et al. Does it matter what your reasons are when deciding to disclose (or not disclose) a disability at work? The association of workers' approach and avoidance goals with perceived positive and negative workplace outcomes. J Occup Rehabil. 2021;31(3):638–651.
   PubMed Web of Science ®Google Scholar
• Lindsay S, Cagliostro E, Leck J, et al. Employers’ perspectives of including young people with disabilities in the workforce, disability disclosure and providing accommodations. JVR. 2019;50(2):141–156.
   Google Scholar
• Coupland N, Coupland J, Giles H, et al. Accommodating the elderly: invoking and extending a theory. Lang Soc. 1988;17(1):1–41.
   Web of Science ®Google Scholar