Effects of a coach-guided videoconferencing acceptance and commitment therapy intervention combined with psychoeducation on distressed individuals living with spinal cord injury: a preliminary mixed-methods study

References

• Kirchberger I, Biering-Sørensen F, Charlifue S, et al. Identification of the most common problems in functioning of individuals with spinal cord injury using the international classification of functioning, disability and health. Spinal Cord. 2010;48(3):221–229.
   PubMed Web of Science ®Google Scholar
• Kraft R, Dorstyn D. Psychosocial correlates of depression following spinal injury: a systematic review. J Spinal Cord Med. 2015;38(5):571–583.
   PubMed Web of Science ®Google Scholar
• Van Leeuwen CMC, Edelaar-Peeters Y, Peter C, et al. Psychological factors and mental health in persons with spinal cord injury: an exploration of change or stability. J Rehabil Med. 2015;47(6):531–537.
   PubMed Web of Science ®Google Scholar
• Lim S-W, Shiue Y-L, Ho C-H, et al. Anxiety and depression in patients with traumatic spinal cord injury: a nationwide population-based cohort study. PLoS One. 2017;12(1):14.
   Web of Science ®Google Scholar
• Peterson MD, Kamdar N, Chiodo A, et al. Psychological morbidity and chronic disease among adults with traumatic spinal cord injuries: a longitudinal cohort study of privately insured beneficiaries. Mayo Clin Proc. 2020;95(5):920–928.
   PubMed Web of Science ®Google Scholar
• Livneh H, Martz E. Coping strategies and resources as predictors of psychosocial adaptation among people with spinal cord injury. Rehabil Psychol. 2014;59(3):329–339.
   PubMed Web of Science ®Google Scholar
• Cadel L, DeLuca C, Hitzig SL, et al. Self-management of pain and depression in adults with spinal cord injury: a scoping review. J Spinal Cord Med. 2020;43(3):280–297.
   PubMed Web of Science ®Google Scholar
• Li Y, Bressington D, Chien WT. Systematic review of psychosocial interventions for people with spinal cord injury during inpatient rehabilitation: implications for evidence-based practice. Worldviews Evid Based Nurs. 2017;14(6):499–506.
   PubMed Web of Science ®Google Scholar
• Perkes SJ, Bowman J, Penkala S. Psychological therapies for the management of co-morbid depression following a spinal cord injury: a systematic review. J Health Psychol. 2014;19(12):1597–1612.
   PubMed Web of Science ®Google Scholar
• Aaby A, Ravn SL, Kasch H, et al. The associations of acceptance with quality of life and mental health following spinal cord injury: a systematic review. Spinal Cord. 2020;58(2):130–148.
   PubMed Web of Science ®Google Scholar
• Baer RA, Krietemeyer J. Overview of mindfulness- and acceptance-based treatment approaches. In: Baer RA, editor. Mindfulness-based treatment approaches: a clinician’s guide to evidence base and applications. San Diego (CA): Elsevier; 2006. p. 3–27.
   Google Scholar
• Skinner TC, Roberton T, Allison GT, et al. Experiential avoidance, mindfulness and depression in spinal cord injuries: a preliminary study. Aust J Rehabil Couns. 2010;16(1):27–35.
   Google Scholar
• Hearn JH, Cross A. Mindfulness for pain, depression, anxiety, and quality of life in people with spinal cord injury: a systematic review. BMC Neurol. 2020;20(1):32.
   PubMed Web of Science ®Google Scholar
• Hearn JH, Finlay KA. Internet-delivered mindfulness for people with depression and chronic pain following spinal cord injury: a randomized, controlled feasibility trial. Spinal Cord. 2018;56(8):750–761.
   PubMed Web of Science ®Google Scholar
• Dindo L, Liew J, Arch J. Acceptance and commitment therapy: a transdiagnostic behavioral intervention for mental health and medical conditions. Neurotherapeutics. 2017;14(3):546–553.
   PubMed Web of Science ®Google Scholar
• Hayes SC, Pistorello J, Levin ME. Acceptance and commitment therapy as a unified model of behavior change. Couns Psychol. 2012;40(7):976–1002.
   Web of Science ®Google Scholar
• Bai Z, Luo S, Zhang L, et al. Acceptance and commitment therapy (ACT) to reduce depression: a systematic review and meta-analysis. J Affect Disord. 2020;260:728–737.
   PubMed Web of Science ®Google Scholar
• Han A, Yuen HK, Lee HY, et al. Effects of acceptance and commitment therapy on process measures of family caregivers: a systematic review and meta-analysis. J Contextual Behav Sci. 2020;18:201–213.
   Web of Science ®Google Scholar
• Han A, Yuen HK, Jenkins J. Acceptance and commitment therapy for family caregivers: a systematic review and Meta-analysis. J Health Psychol. 2021;26(1):82–102.
   PubMed Web of Science ®Google Scholar
• Han A, Yuen HK, Jenkins J, et al. Acceptance and commitment therapy (ACT) guided online for distressed caregivers of persons living with dementia. Clin Gerontol. 2021. DOI:10.1080/07317115.2021.1908475
   Web of Science ®Google Scholar
• Han A, Wilroy JD. Acceptance and commitment therapy for individuals with neurological disorders: a meta-analysis. Forthcoming.
   Google Scholar
• Han A, Yuen HK, Wilroy JD. Exploring associations of psychological inflexibility with depressive symptoms, anxiety, and stress in individuals living with a spinal cord injury: a cross-sectional study. Rehabil. Psychol. 2022. Forthcoming.
   PubMed Web of Science ®Google Scholar
• Khanjani MS, Kazemi J, Younesi J, et al. The effect of acceptance and commitment therapy on psychological flexibility and emotional regulation in patients with spinal cord injuries: a randomized controlled trial. Iran J Psychiatry Behav Sci. 2021;15(2):e105378.
   Web of Science ®Google Scholar
• Huang G, Lin BL, Hu JH, et al. Effect of acceptance and commitment therapy on rehabilitation patients with spinal cord injury. Contemp Clin Trials Commun. 2021; 24:100778.
   PubMed Web of Science ®Google Scholar
• Thompson EM, Destree L, Albertella L, et al. Internet-based acceptance and commitment therapy: a transdiagnostic systematic review and meta-analysis for mental health outcomes. Behav Ther. 2021;52(2):492–507.
   PubMed Web of Science ®Google Scholar
• Creswell JW, Plano Clark VL. Designing and conducting mixed methods research. 3rd ed. Thousand Oaks (CA): Sage Publications, Inc; 2018.
   Google Scholar
• Smith J, Flowers P, Larkin M. Interpretative phenomenological analysis: theory, method, and research. London (UK): Sage Publications; 2009.
   Google Scholar
• Antony MM, Bieling PJ, Cox BJ, et al. Psychometric properties of the 42-item and 21-item versions of the depression anxiety stress scales in clinical groups and a community sample. Psychol. Assess. 1998;10(2):176–181.
   Web of Science ®Google Scholar
• Whitehead AL, Julious SA, Cooper CL, et al. Estimating the sample size for a pilot randomised trial to minimise the overall trial sample size for the external pilot and main trial for a continuous outcome variable. Stat Methods Med Res. 2016;25(3):1057–1073.
   PubMed Web of Science ®Google Scholar
• Harris R. ACT made simple: an easy-to-read primer on acceptance and commitment therapy. 2nd ed. Oakland (CA): New Harbinger Publications, Inc; 2019.
   Google Scholar
• Henry JD, Crawford JR. The short-form version of the depression anxiety stress scales (DASS-21): construct validity and normative data in a large non-clinical sample. Br J Clin Psychol. 2005;44(Pt 2):227–239.
   PubMed Web of Science ®Google Scholar
• Mitchell MC, Burns NR, Dorstyn DS. Screening for depression and anxiety in spinal cord injury with DASS-21. Spinal Cord. 2008;46(8):547–551.
   PubMed Web of Science ®Google Scholar
• Rogić Vidaković M, Šimić N, Poljičanin A, et al. Psychometric properties of the croatian version of the depression, anxiety, and stress scale-21 and multiple sclerosis impact scale-29 in multiple sclerosis patients. Mult Scler Relat Disord. 2021;50:102850.
   PubMed Web of Science ®Google Scholar
• Skevington SM, Lotfy M, O’Connell KA. The world health organization’s WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group. Qual Life Res. 2004;13(2):299–310.
   PubMed Web of Science ®Google Scholar
• Lin CY, Hwang JS, Wang WC, et al. Psychometric evaluation of the WHOQOL-BREF, Taiwan version, across five kinds of Taiwanese cancer survivors: rasch analysis and confirmatory factor analysis. J Formos Med Assoc. 2019;118(1 Pt 2):215–222.
   PubMed Web of Science ®Google Scholar
• Salvador-De La Barrera S, Mora-Boga R, Ferreiro-Velasco ME, et al. A validity study of the Spanish-World health organization quality of life short version instrument in persons with traumatic spinal cord injury. Spinal Cord. 2018;56(10):971–979.
   PubMed Web of Science ®Google Scholar
• Kalpakjian CZ, Tulsky DS, Kisala PA, et al. Measuring grief and loss after spinal cord injury: development, validation and psychometric characteristics of the SCI-QOL grief and loss item bank and short form. J Spinal Cord Med. 2015;38(3):347–355.
   PubMed Web of Science ®Google Scholar
• Victorson D, Tulsky DS, Kisala PA, et al. Measuring resilience after spinal cord injury: development, validation and psychometric characteristics of the SCI-QOL resilience item bank and short form. J Spinal Cord Med. 2015;38(3):366–376.
   PubMed Web of Science ®Google Scholar
• Raes F, Pommier E, Neff KD, et al. Construction and factorial validation of a short form of the self-compassion scale. Clin Psychol Psychother. 2011;18(3):250–255.
   PubMed Web of Science ®Google Scholar
• Castilho P, Pinto-Gouveia J, Duarte J. Evaluating the multifactor structure of the long and short versions of the self-compassion scale in a clinical sample. J Clin Psychol. 2015;71(9):856–870.
   PubMed Web of Science ®Google Scholar
• Goldberg B, Brintnell ES, Goldberg J. The relationship between engagement in meaningful activities and quality of life in persons disabled by mental illness. Occup Ther Ment Health. 2002;18(2):17–44.
   Google Scholar
• Eakman AM. Convergent validity of the engagement in meaningful activities survey in a college sample. OTJR. 2010;31(1):23–32.
   Web of Science ®Google Scholar
• Bond FW, Hayes SC, Baer RA, et al. Preliminary psychometric properties of the acceptance and action Questionnaire-II: a revised measure of psychological inflexibility and experiential avoidance. Behav Ther. 2011;42(4):676–688.
   PubMed Web of Science ®Google Scholar
• Eisenbeck N, Szabó-Bartha A. Validation of the Hungarian version of the acceptance and action Questionnaire-II (AAQ-II). J Contextual Behav Sci. 2018;9:80–87.
   Web of Science ®Google Scholar
• Gillanders DT, Bolderston H, Bond FW, et al. The development and initial validation of the cognitive fusion questionnaire. Behav Ther. 2014;45(1):83–101.
   PubMed Web of Science ®Google Scholar
• Brown KW, Ryan RM. The benefits of being present: mindfulness and its role in psychological well-being. J Pers Soc Psychol. 2003;84(4):822–848.
   PubMed Web of Science ®Google Scholar
• Cebolla A, Luciano JV, DeMarzo MP, et al. Psychometric properties of the Spanish version of the mindful attention awareness scale (MAAS) in patients with fibromyalgia. Health Qual Life Outcomes. 2013;11(1):6.
   PubMedGoogle Scholar
• Brooke J. SUS – a quick and dirty usability scale. In: Jordan PW, Thomas B, Weerdmeester BA, et al., editors. Usability evaluation in Industry. Oxfordshire (UK): Taylor & Francis; 1986. p. 189–194.
   Google Scholar
• Sauro J, Lewis JR. Quantifying the user experience: practical statistics for user research. Waltham (MA): Morgan Kaufmann; 2012.
   Google Scholar
• Orfanou K, Tselios N, Katsanos C. Perceived usability evaluation of learning management systems: empirical evaluation of the system usability scale. Int Rev Res Open Dis. 2015;16:227–246.
   Google Scholar
• Rothman KJ. No adjustments are needed for multiple comparisons. Epidemiology. 1990;1(1):43–46.
   PubMedGoogle Scholar
• Fritz CO, Morris PE, Richler JJ. Effect size estimates: current use, calculations, and interpretation. J Exp Psychol Gen. 2012;141(1):2–18.
   PubMed Web of Science ®Google Scholar
• Coolican H. Research methods and statistics in psychology. London (UK): Hodder; 2009.
   Google Scholar
• Creswell JW. Qualitative inquiry and research design: choosing among five approaches, 2nd ed. London (UK): Sage Publications, Inc; 2007.
   Google Scholar
• Nowell LS, Norris JM, White DE, et al. Thematic analysis: striving to meet the trustworthiness criteria. Int. J. Qual. Methods. 2017;16(1):160940691773384.
   Web of Science ®Google Scholar
• Carter N, Bryant-Lukosius D, DiCenso A, et al. The use of triangulation in qualitative research. Oncol Nurs Forum. 2014;41(5):545–547.
   PubMed Web of Science ®Google Scholar
• Giovannetti AM, Quintas R, Tramacere I, et al. A resilience group training program for people with multiple sclerosis: results of a pilot single-blind randomized controlled trial and nested qualitative study. PLoS One. 2020;15(4):e0231380.
   PubMed Web of Science ®Google Scholar
• Luciano JV, Guallar JA, Aguado J, et al. Effectiveness of group acceptance and commitment therapy for fibromyalgia: a 6-month randomized controlled trial (EFFIGACT study). Pain. 2014;155(4):693–702.
   PubMed Web of Science ®Google Scholar
• Majumdar S, Morris R. Brief group-based acceptance and commitment therapy for stroke survivors. Br J Clin Psychol. 2019;58(1):70–90.
   PubMed Web of Science ®Google Scholar
• Sander AM, Clark AN, Arciniegas DB, et al. A randomized controlled trial of acceptance and commitment therapy for psychological distress among persons with traumatic brain injury. Neuropsychol Rehabil. 2020;2020:1–25.
   Google Scholar
• Chong YY, Chien WT, Cheng HY, et al. Can psychological flexibility and prosociality mitigate illness perceptions toward COVID-19 on mental health? A cross-sectional study among Hong Kong adults. Glob. Health. 2021;17(1):43.
   PubMed Web of Science ®Google Scholar
• Jansen JE, Haahr UH, Lyse HG, et al. Psychological flexibility as a buffer against caregiver distress in families with psychosis. Front Psychol. 2017;8(1625):1625.
   PubMedGoogle Scholar
• Leonidou C, Panayiotou G, Bati A, et al. Coping with psychosomatic symptoms: the buffering role of psychological flexibility and impact on quality of life. J Health Psychol. 2019;24(2):175–187.
   PubMed Web of Science ®Google Scholar
• Baer RA, Huss DB. Mindfulness- and acceptance-based therapy. In: Lebow JL, editor. Twenty-first century psychotherapies: contemporary approaches to theory and practice New Jersey. Hoboken (NJ): John Wiley & Sons, Inc; 2008. p. 123–166.
   Google Scholar
• Yadavaia JE, Hayes SC, Vilardaga R. Using acceptance and commitment therapy to increase self-compassion: a randomized controlled trial. J Contextual Behav Sci. 2014;3(4):248–257.
   PubMedGoogle Scholar
• Migliorini CE, New PW, Tonge BJ. Comparison of depression, anxiety and stress in persons with traumatic and non-traumatic post-acute spinal cord injury. Spinal Cord. 2009;47(11):783–788.
   PubMed Web of Science ®Google Scholar
• Schönenberg M, Reimitz M, Jusyte A, et al. Depression, posttraumatic stress, and risk factors following spinal cord injury. Int J Behav Med. 2014;21(1):169–176.
   PubMed Web of Science ®Google Scholar