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Research Papers

Families’ and professionals’ perspectives of building and maintaining engagement in telepractice early intervention for young children with communication disability

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Pages 1165-1177 | Received 22 Jun 2021, Accepted 12 Mar 2022, Published online: 29 Mar 2022

References

  • Hebbeler K, Spiker D, Bailey D, International S, et al. Early intervention for infants and toddlers with disabilities and their families: Participants, services, and outcomes. Final report of the national early intervention longitudinal study (NEILS). Menlo Park, CA; 2007.
  • Law J, Garrett Z, Nye C. The efficacy of treatment for children with developmental speech and language delay/disorder: a meta-analysis. J Speech Lang Hear Res. 2004;47(4):924–943.
  • Gavidia-Payne S, Meddis K, Mahar N. Correlates of child and family outcomes in an australian community-based early childhood intervention program. J Intellect Develop Disab. 2015;40(1):57–67.
  • Australian Government. National disability insurance scheme act. Canberra: Social Services, Treasury; 2013. (Compilation No. 15).
  • US Department of Education. Individuals with Disabilities Education Improvement Act, PL 108-446, 20 U.S.C §§ 1400 et seq. 2004.
  • Britto PR, Lye SJ, Proulx K, Early Childhood Development Interventions Review Group, for the Lancet Early Childhood Development Series Steering Committee, et al. Nurturing care: Promoting early childhood development. Lancet. 2017;389(10064):91–102.
  • Engle PL, Fernald LCH, Alderman H, et al. Strategies for reducing inequalities and improving developmental outcomes for young children in low-income and Middle-income countries. The Lancet. 2011;378(9799):1339–1353.
  • Cason J, Behl D, Ringwalt S. Overview of states' use of telehealth for the delivery of early intervention (IDEA part C) services. Int J Telerehabil. 2012;4(2):39–46.
  • Lai FYX, Serraglio C, Martin JA. Examining potential barriers to early intervention access in australian hearing impaired children. Int J Pediatr Otorhinolaryngol. 2014;78(3):507–512.
  • Cole B, Pickard K, Stredler-Brown A. Report on the use of telehealth in early intervention in Colorado: Strengths and challenges with telehealth as a service delivery method. Int J Telerehabil. 2019;11(1):33–40.
  • Khan F, Owolabi MO, Amatya B, et al. Challenges and barriers for implementation of the world health organization global disability action plan in low- and middle- income countries . J Rehabil Med. 2018;50(4):367–376.
  • Arefadib N, Moore TG. Reporting the health and development of children in rural and remote Australia. Victoria: The Centre for Community Child Health at the Royal Children’s Hospital and the Murdoch Children’s Research Institute; 2017.
  • Constantinescu G, Waite M, Dornan D, et al. A pilot study of telepractice delivery for teaching listening and spoken language to children with hearing loss. J Telemed Telecare. 2014;20(3):135–140.
  • Ingersoll B, Wainer A, Berger N, et al. Comparison of a self-directed and therapist-assisted telehealth parent-mediated intervention for children with ASD: a pilot RCT. J Autism Dev Disord. 2016;46(7):2275–2284.
  • Lee S. The treatment efficacy of multiple opposition phonological approach via telepractice for two children with severe phonological disorders in rural areas of west Texas in the USA. Child Lang Teach Ther. 2018;34(1):63–78.
  • Keen D. Parents, families, and partnerships: Issues and considerations. Inter J Disab Develop Educ Parent Family Professional Relation. 2007;54(3):339–349.
  • Division for Early Childhood. DEC recommended practices in early intervention/early childhood special education 2014. http://www.dec-sped.org/recommendedpractices.
  • Dempsey I, Keen D. A review of processes and outcomes in family-centered services for children with a disability. Topics Early Childhood Spec Educ. 2008;28(1):42–52.
  • Melvin K, Meyer C, Scarinci N. What does “engagement” mean in early speech pathology intervention? A qualitative systematised review. Disabil Rehabil. 2020;42(18):2665–2678.
  • Stredler-Brown A. Examination of coaching behaviors used by providers when delivering early intervention via telehealth to families of children who are deaf or hard of hearing. Perspect ASHA Sigs. 2017;2(9):25–42.
  • Ebert KD, Kohnert K. Common factors in speech-language treatment: an exploratory study of effective clinicians. J Commun Disord. 2010;43(2):133–147.
  • Ebert KD. Parent perspectives on the clinician-client relationship in speech-language treatment for children. J Commun Disord. 2018;73:25–33.
  • Law J, Levickis P, Rodríguez-Ortiz IR, et al. Working with the parents and families of children with developmental language disorders: an international perspective. J Commun Disord. 2019;82:1–12.
  • Ellis ML, Weiss B, Han S, et al. The influence of parental factors on therapist adherence in multi-systemic therapy. J Abnorm Child Psychol. 2010;38(6):857–868.
  • D'Arrigo R, Copley JA, Poulsen AA, et al. Parent engagement and disengagement in paediatric settings: an occupational therapy perspective. Disabil Rehabil. 2020;42(20):2882–2893.
  • Blaiser KM, Behl D, Callow-Heusser C, et al. Measuring costs and outcomes of tele-intervention when serving families of children who are deaf/hard-of-hearing. Int J Telerehabil. 2013;5(2):3–10.
  • Akamoglu Y, Meadan H, Pearson JN, et al. Getting connected: Speech and language pathologists’ perceptions of building rapport via telepractice. J Dev Phys Disabil. 2018;30(4):569–585.
  • Yang HW, Burke M, Isaacs S, et al. Family perspectives toward using telehealth in early intervention. J Dev Phys Disabil. 2021;33(2):197–216.
  • Retamal-Walter F, Waite M, Scarinci N. Exploring engagement in telepractice early intervention for young children with communication disabilities and their families: a qualitative systematic review. Disabil Rehabil: Assist. Technol. 2022. DOI:10.1080/17483107.2022.2048098
  • McCarthy M, Leigh G, Arthur-Kelly M. Comparison of caregiver engagement in telepractice and in-person family-centered early intervention. J Deaf Stud Deaf Educ. 2020;25(1):33–42.
  • McCarthy M, Leigh G, Arthur-Kelly M. Practitioners' self-assessment of family-centered practice in telepractice versus in-person early intervention. J Deaf Stud Deaf Educ. 2021;26(1):46–57.
  • Hines M, Lincoln M, Ramsden R, et al. Speech pathologists' perspectives on transitioning to telepractice: What factors promote acceptance? J Telemed Telecare. 2015;21(8):469–473.
  • Freckmann A, Hines M, Lincoln M. Clinicians' perspectives of therapeutic alliance in face-to-face and telepractice speech-language pathology sessions. Int J Speech Lang Pathol. 2017;19(3):287–296.
  • Colorafi KJ, Evans B. Qualitative descriptive methods in health science research. Health Environ Res Design J. 2016;9(4):16–25.
  • Sandelowski M. What's in a name? Qualitative description revisited. Res Nurs Health. 2010;33(1):77–84.
  • Lincoln Y, Guba E. Naturalistic inquiry. New York (NY): Sage; 1985.
  • Patton MQ. Qualitative research & evaluation methods: Integrating theory and practice. 4th ed. Thousand Oaks (CA): SAGE Publications, Inc.; 2015.
  • Pessoa ASG, Harper E, Santos IS, et al. Using reflexive interviewing to foster deep understanding of research participants’ perspectives. Int J Qual Methods. 2019;18:160940691882502–160940691882509.
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.
  • Guest G, Bunce A, Johnson L. How many interviews are enough? An experiment with data saturation and variability. Field Methods. 2006;18(1):59–82.
  • Retamal-Walter F, Waite M, Scarinci N. Identifying critical behaviours for building engagement in telepractice early intervention: An international e-Delphi study. Int J Lang Commun Disor. DOI:10.1111/1460-6984.12714
  • Melvin K, Meyer C, Scarinci N. Exploring the complexity of how families are engaged in early speech-language pathology intervention using video-reflexive ethnography. Int J Lang Commun Disord. 2021;56(2):360–373.
  • Watts Pappas N, McAllister L, McLeod S. Parental beliefs and experiences regarding involvement in intervention for their child with speech sound disorder. Child Lang Teach Ther. 2016;32(2):223–239.
  • Davies KE, Marshall J, Brown LJ, et al. Co-working: Parents’ conception of roles in supporting their children’s speech and language development. Child Lang Teach Ther. 2017;33(2):171–185.
  • Behl DD, Blaiser K, Cook G, et al. A multisite study evaluating the benefits of early intervention via telepractice. Infants Young Children. 2017;30(2):147–161.
  • Woodman AC, Demers L, Crossman MK, et al. Part C early intervention dosage and growth in adaptive skills from early childhood through adolescence. Early Childhood Res Q. 2018;43:73–82.
  • Hamren K, Quigley S. Implementing coaching in a natural environment through distance technologies. Volta Rev. 2012;112(3):403–407.
  • King A, Hoppe RB. "Best practice" for patient-centered communication: a narrative review” . J Grad Med Educ. 2013;5(3):385–393.
  • Barr C. Getting ready to be a patient- and family-centered clinician. In: Meyer C, Scarinci N, Hickson L, editors. Patient and Family-Centered Speech-Language pathology and audiology. New York: Thieme; 2019. p. 22–43.
  • McBride BA, Curtiss SJ, Uchima K, et al. Father involvement in early intervention: Exploring the gap between service providers’ perceptions and practices. J Early Interv. 2017;39(2):71–87.

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