1,870
Views
3
CrossRef citations to date
0
Altmetric
Research Papers

Attainment of personal goals in the first year of intrathecal baclofen treatment in dyskinetic cerebral palsy: a prospective cohort study

ORCID Icon, , ORCID Icon, , , ORCID Icon & show all
Pages 1315-1322 | Received 24 Aug 2021, Accepted 20 Mar 2022, Published online: 06 Apr 2022

References

  • Rosenbaum P, Paneth N, Leviton A, et al. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol Suppl. 2007;109(Suppl.):8–14.
  • Graham HK, Rosenbaum P, Paneth N, et al. Cerebral palsy. Nat Rev Dis Primers. 2016;2:15082.
  • Himmelmann K, Uvebrant P. The panorama of cerebral palsy in Sweden part XII shows that patterns changed in the birth years 2007–2010. Acta Paediatr. 2018;107(3):462–468.
  • Krägeloh-Mann I, Petruch U, Weber PM. SCPE reference and training manual (R&TM); 2005. Available from: http://www.scpenetwork.eu
  • Monbaliu E, Himmelman K, Lin JP, et al. Clinical presentation and management of dyskinetic cerebral palsy. Lancet Neurol. 2017;16(9):741–749.
  • Himmelmann K, Hagberg G, Wiklund LM, et al. Dyskinetic cerebral palsy: a population-based study of children born between 1991 and 1998. Dev Med Child Neurol. 2007;49(4):246–251.
  • Himmelmann K, McManus V, Hagberg G, et al. Dyskinetic cerebral palsy in Europe: trends in prevalence and severity. Arch Dis Child. 2009;94(12):921–926.
  • Bonouvrie LA, Becher JG, Vles JSH, et al. The effect of Intrathecal baclofen in DYSkinetic cerebral palsy: the IDYS trial. Ann Neurol. 2019;86(1):79–90.
  • Campbell WM, McLaughlin JF, Grant GA, et al. Long-term safety and efficacy of continuous intrathecal baclofen. Dev Med Child Neurol. 2007;44(10):660–665.
  • Liew PY, Stewart K, Khan D, et al. Intrathecal baclofen therapy in children: an analysis of individualized goals. Dev Med Child Neurol. 2018;60(4):367–373.
  • Fehlings D, Brown L, Harvey A, et al. Pharmacological and neurosurgical interventions for managing dystonia in cerebral palsy: a systematic review. Dev Med Child Neurol. 2018;60(4):356–366.
  • Eliasson AC, Krumlinde-Sundholm L, Rösblad B, et al. The Manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol. 2006;48(7):549–554.
  • Geytenbeek JJ, Mokkink LB, Knol DL, et al. Reliability and validity of the C-BiLLT: a new instrument to assess comprehension of spoken language in young children with cerebral palsy and complex communication needs. Augment Altern Commun. 2014;30(3):252–266.
  • Bonouvrié LA, Becher JG, Vles JSH, et al. Intrathecal baclofen treatment in dystonic cerebral palsy: a randomized clinical trial: the IDYS trial. BMC Pediatr. 2013;13:175–183.
  • Cioni G, Di Paoo MC, Bertuccelli B, et al. MRI findings and sensorimotor development in infants with bilateral spastic cerebral palsy. Brain Dev. 1997;19(4):245–253.
  • Turner-Stokes L. Goal Attainment Scaling (GAS) in rehabilitation: a practical guide. Clin Rehabil. 2009;23(4):362–370.
  • Kakooza-Mwesige A, Andrews C, Peterson S, et al. Prevalence of cerebral palsy in Uganda: a population-based study. Lancet Glob Health. 2017;5(12):e1275–e1282.
  • Barry MJ, VanSwearingen JM, Albright AL. Reliability and responsiveness of the Barry-Albright Dystonia Scale. Dev Med Child Neurol. 1999;41(6):404–411.
  • Monbaliu E, Ortibus E, de Cat J, et al. The Dyskinesia Impairment Scale: a new instrument to measure dystonia and choreoathetosis in dyskinetic cerebral palsy. Dev Med Child Neurol. 2012;54(3):278–283.
  • Becher JG, Doorenbosch CA, Folmer K, et al. Handbook standard physical examination in children with Central motor paresis [Handleiding standaard lichamelijk onderzoek bij kinderen met een centraal motorische parese] (Dutch). Houten: Springer Media B.V.; 2011.
  • Scholtes VA, Dallmeijer AJ, Becher JG. The spasticity test: a clinical instrument to measure spasticity in children with cerebral palsy. The effectiveness of multilevel botulinum toxin type A and comprehensive rehabilitation in children with cerebral palsy. Amsterdam (The Netherlands): VU University Medical Center; 2007. p. 65–86.
  • Hoving MA, van Kranen-Mastenbroek VHJM, van Raak EPM, et al. Placebo controlled utility and feasibility study of the H-reflex and flexor reflex in spastic children treated with intrathecal baclofen. Clin Neurophysiol. 2006;117(7):1508–1517.
  • Feldman AB, Haley SM, Coryell J. Concurrent and construct validity of the Pediatric Evaluation of Disability Inventory. Phys Ther. 1990;70(10):602–610.
  • Chervin RD, Weatherly RA, Garetz SL, et al. Pediatric Sleep Questionnaire: prediction of sleep apnea and outcomes. Arch Otolaryngol Head Neck Surg. 2007;133(3):216–222.
  • Albright AL, Barry MJ, Shagron DH, et al. Intrathecal baclofen for generalized dystonia. Dev Med Child Neurol. 2001;43:652–657.
  • Bonouvrie L, Becher J, Soudant D, et al. The effect of intrathecal baclofen treatment on activities of daily life in children and young adults with cerebral palsy and progressive neurological disorders. Eur J Paediatr Neurol. 2016;20(4):538–544.
  • Motta F, Stignani C, Antonello CE. Effects of intrathecal baclofen on dystonia in children with cerebral palsy and the use of functional scales. J Pediatr Orthop. 2008;28:213–217.
  • Woon K, Tsegaye M, Vloeberghs M. The role of intrathecal baclofen in the management of primary and secondary dystonia in children. Br J Neurosurg. 2007;21(4):355–358.
  • Tedroff K, Gyllensvärd M, Löwing K. Prevalence, identification, and interference of pain in young children with cerebral palsy: a population-based study. Disabil Rehabil. 2019;43(9):1292–1298.
  • Penner M, Xie WY, Binepal N, et al. Characteristics of pain in children and youth with cerebral palsy. Pediatrics. 2013;132(2):e407–e413.
  • McKinnon CT, Meehan EM, Harvey AR, et al. Prevalence and characteristics of pain in children and young adults with cerebral palsy: a systematic review. Dev Med Child Neurol. 2019;61(3):305–314.
  • Westbom L, Rimstedt A, Nordmark E. Assessments of pain in children and adolescents with cerebral palsy: a retrospective population-based registry study. Dev Med Child Neurol. 2017;59(8):858–869.
  • Motta F, Buonaguro V, Stignani C. The use of intrathecal baclofen pump implants in children and adolescents: safety and complications in 200 consecutive cases. J Neurosurg. 2007;107(1 Suppl.):32–35.
  • Ward A, Hayden S, Dexter M, et al. Continuous intrathecal baclofen for children with spasticity and/or dystonia: goal attainment and complications associated with treatment. J Paediatr Child Health. 2009;45:720–726.
  • Murphy NA, Nicole Irwin MC, Hoff C. Intrathecal baclofen therapy in children with cerebral palsy: efficacy and complications. Arch Phys Med Rehabil. 2002;83:1721–1725.
  • Jesus A, Stevenson RD. Optimizing nutrition and bone health in children with cerebral palsy. Phys Med Rehabil Clin N Am. 2020;31(1):25–37.