88
Views
0
CrossRef citations to date
0
Altmetric
Research Papers

Unravelling dystonic pain; a mixed methods survey to explore the language of dystonic pain and impact on life

, , , ORCID Icon &
Pages 1975-1983 | Received 09 Mar 2021, Accepted 15 May 2022, Published online: 08 Jun 2022

References

  • Albanese A, Bhatia K, Bressman SB, et al. Phenomenology and classification of dystonia: a consensus update. Mov Disord. 2013;28(7):863–873.
  • Sasikumar S, Albanese A, Krauss JK, et al. Implementation of the current dystonia classification from 2013 to 2018. Mov Disord Clin Pract. 2019;6(3):250–253.
  • Albanese A, Di Giovanni M, Lalli S. Dystonia: Diagnosis and management. Eur J Neurol. 2019;26(1):5–17.
  • Kuyper DJ, Parra V, Aerts S, et al. Nonmotor manifestations of dystonia: a systematic review. Mov Disord. 2011;26(7):1206–1217.
  • Comella C, Bhatia K. An international survey of patients with cervical dystonia. J Neurol. 2015;262(4):837–848.
  • Chan J, Brin MF, Fahn S. Idiopathic cervical dystonia: Clinical characteristics. Mov Disord. 1991;6(2):119–126.
  • McCambridge A, Meiring RM, Bradnam LV. Physical activity, sedentary behavior, and barriers to exercise in people living with dystonia. Front Neurol. 2019;10:1121.
  • Avenali M, De Icco R, Tinazzi M, et al. Pain in focal dystonias - A focused review to address an important component of the disease. Parkinsonism Relat Disord. 2018;54:17–24.
  • Werle RW, Takeda SYM, Zonta MB, et al. The physical, social and emotional aspects are the most affected in the quality of life of the patients with cervical dystonia. Arq Neuro-Psiquiatr. 2014;72(6):405–410.
  • Consky ES, Lang AE. Clinical assessment of patients with cervical dystonia. In: Jankovic J, Hallett M, editors. Therapy with Botulinum toxin. New York (NY): Marcel Dekker; 1994. p. 211–237.
  • Melzack R. The McGill pain questionnaire: major properties and scoring methods. Pain. 1975;1(3):277–299.
  • Kutvonen O, Dastidar P, Nurmikko T. Pain in spasmodic torticollis. Pain. 1997;69(3):279–286.
  • Byrne M, Troy A, Bradley LA, et al. Cross-validation of the factor structure of the McGill pain questionnaire. Pain. 1982;13(2):193–201.
  • Kahl C, Cleland JA. Visual analogue scale, numeric pain rating scale and the McGill pain questionnaire: an overview of psychometric properties. Phys Ther Rev. 2005;10(2):123–128.
  • Bouhassira D, Attal N. All in one: is it possible to assess all dimensions of any pain with a simple questionnaire? Pain. 2009;144(1-2):7–8.
  • Munday I, Kneebone I, Newton-John T. The language of chronic pain. Disabil Rehabil. 2021;43(3):354–361.
  • Lascaratou C. The language of pain: Expression or description? The language of pain: Expression or description? Amsterdam: John Benjamins Publishing Company; 2007. xii, 237-xii, 237.
  • Villemure C, Schweinhardt P. Supraspinal pain processing: Distinct roles of emotion and attention. Neuroscientist. 2010;16(3):276–284.
  • Wilson D, Williams M, Butler D. Language and the pain experience. Physiother Res Int. 2009;14(1):56–65.
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.
  • Klein C. Genetics in dystonia. Parkinsonism Relat Disord. 2014;20:S137–S142.
  • Munday I, Newton-John T, Kneebone I. 'Barbed wire wrapped around my feet': Metaphor use in chronic pain. Br J Health Psychol. 2020;25(3):814–830.
  • Mulvey MR, Bennett MI, Liwowsky I, et al. The role of screening tools in diagnosing neuropathic pain. Pain Manag. 2014;4(3):233–243.
  • Hearn JH, Finlay KA, Fine PA. The devil in the corner: a mixed-methods study of metaphor use by those with spinal cord injury-specific neuropathic pain. Br J Health Psychol. 2016;21(4):973–988.
  • Söderberg S, Norberg A. Metaphorical pain language among fibromyalgia patients. Scand J Caring Sci. 1995;9(1):55–59.
  • Bullo S. "I feel like I'm being stabbed by a thousand tiny men": the challenges of communicating endometriosis pain”: Health. 2020;24(5):476–492.
  • Loftus S. Pain and its metaphors: a dialogical approach. J Med Humanit. 2011;32(3):213–230.
  • Wideman TH, Sullivan MJL. Reducing catastrophic thinking associated with pain. Pain Manag. 2011;1(3):249–256.
  • Gallagher L, McAuley J, Moseley GL. A randomized-controlled trial of using a book of metaphors to reconceptualize pain and decrease catastrophizing in people with chronic pain. Clin J Pain. 2013;29(1):20–25.
  • Stewart M, Ryan S-J. Do metaphors have therapeutic value for people in pain? A systematic review. Pain Rehabil J Physiother Pain Assoc. 2020;48:10–23.
  • Fleming BM, Schwab EL, Nouer SS, et al. Prevalence, predictors, and perceived effectiveness of complementary, alternative and integrative medicine in adult-onset primary dystonia. Parkinson Related Disord. 2012;18(8):936–940.
  • Ringqvist Å, et al. Moderate and stable pain reductions as a result of interdisciplinary pain Rehabilitation-A cohort study from the swedish quality registry for pain rehabilitation (SQRP). J Clin Med. 2019;8(6):905.
  • Stewart M, Ryan S-J. Do metaphors have therapeutic value for people in pain? A systematic review. Pain Rehabil J Physiother Pain Assoc. 2019;2020(48):10–23.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.