Adaptation to poststroke fatigue in stroke survivors and their care partners: a scoping review

References

• Gorelick PB. The global burden of stroke: persistent and disabling. Lancet Neurol. 2019;18(5):417–418.
   PubMed Web of Science ®Google Scholar
• Lerdal A, Lee KA, Bakken LN, et al. The course of fatigue during the first 18 months after first-ever stroke: a longitudinal study. Stroke Res Treat. 2012;2012:126275–126278.
   PubMedGoogle Scholar
• Hinkle JL, Becker KJ, Kim JS, et al. Poststroke fatigue: emerging evidence and approaches to management: a scientific statement for healthcare professionals from the American Heart Association. Stroke. 2017;48(7):e159–e170.
   PubMed Web of Science ®Google Scholar
• Moran GM, Fletcher B, Feltham MG, et al. Fatigue, psychological and cognitive impairment following transient ischaemic attack and minor stroke: a systematic review. Eur J Neurol. 2014;21(10):1258–1267.
   PubMed Web of Science ®Google Scholar
• Egerton T, Hokstad A, Askim T, et al. Prevalence of fatigue in patients 3 months after stroke and association with early motor activity: a prospective study comparing stroke patients with a matched general population cohort. BMC Neurol. 2015;15:181.
   PubMed Web of Science ®Google Scholar
• Lerdal A, Bakken LN, Kouwenhoven SE, et al. Poststroke fatigue—a review. J Pain Symptom Manage. 2009;38(6):928–949.
   PubMed Web of Science ®Google Scholar
• Cumming TB, Packer M, Kramer SF, et al. The prevalence of fatigue after stroke: a systematic review and Meta-analysis. Int J Stroke. 2016;11(9):968–977.
   PubMed Web of Science ®Google Scholar
• Snaphaan L, van der Werf S, de Leeuw F-E. Time course and risk factors of post-stroke fatigue: a prospective cohort study. Eur J Neurol. 2011;18(4):611–617.
   PubMed Web of Science ®Google Scholar
• Schepers VP, Visser-Meily AM, Ketelaar M, et al. Poststroke fatigue: course and its relation to personal and stroke-related factors. Arch Phys Med Rehabil. 2006;87(2):184–188.
   PubMed Web of Science ®Google Scholar
• van de Port IG, Kwakkel G, Schepers VP, et al. Is fatigue an independent factor associated with activities of daily living, instrumental activities of daily living and health-related quality of life in chronic stroke? Cerebrovasc Dis. 2007;23(1):40–45.
   PubMed Web of Science ®Google Scholar
• Glader EL, Stegmayr B, Asplund K. Poststroke fatigue: a 2-year follow-up study of stroke patients in Sweden. Stroke. 2002;33(5):1327–1333.
   PubMed Web of Science ®Google Scholar
• Wu SM, Kutlubaev MA, Chun HYY, et al. Interventions for post-stroke fatigue. Cochrane Database Syst Rev. 2015;(7):1–61.
   Google Scholar
• Johansson B, Bjuhr H, Ronnback L. Mindfulness-based stress reduction (MBSR) improves long-term mental fatigue after stroke or traumatic brain injury. Brain Inj. 2012;26(13–14):1621–1628.
   PubMed Web of Science ®Google Scholar
• Monsen RB, Floyd RL, Brookman JC. Stress-coping-adaptation: concepts for nursing. Nurs Forum. 1992;27(4):27–32.
   PubMedGoogle Scholar
• Anderson RA, Bailey DE Jr., Wu B, et al. Adaptive leadership framework for chronic illness: framing a research agenda for transforming care delivery. Adv Nurs Sci. 2015;38(2):83–95.
   PubMed Web of Science ®Google Scholar
• Eilertsen G, Ormstad H, Kirkevold M. Experiences of poststroke fatigue: qualitative meta-synthesis. J Adv Nurs. 2013;69(3):514–525.
   PubMed Web of Science ®Google Scholar
• Tricco AC, Lillie E, Zarin W, et al. PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med. 2018;169(7):467–473.
   PubMed Web of Science ®Google Scholar
• National Center for Biotechnology Information. Stroke; 2008 [cited 2020 Jun 8]. Available from: https://www.ncbi.nlm.nih.gov/mesh/68020521
   Google Scholar
• Sandelowski M, Barroso J, Voils CI. Using qualitative metasummary to synthesize qualitative and quantitative descriptive findings. Res Nurs Health. 2007;30(1):99–111.
   PubMed Web of Science ®Google Scholar
• Cooper HM, Hedges LV, Valentine JC. The handbook of research synthesis and Meta-analysis. 3rd ed. New York: Russell Sage Foundation; 2019.
   Google Scholar
• Critical Appraisal Skills Programme. CASP qualitative studies checklist: 10 questions to help you make sense of a qualitative research; 2020 [cited 2020 Dec 15]. Available from: https://casp-uk.net/wp-content/uploads/2018/03/CASP-Qualitative-Checklist-2018_fillable_form.pdf
   Google Scholar
• Alenljung M, Ranada ÅL, Liedberg GM. Struggling with everyday life after mild stroke with cognitive impairments – the experiences of working age women. Br J Occup Ther. 2019;82(4):227–234.
   Web of Science ®Google Scholar
• Barbour VL, Mead GE. Fatigue after stroke: the patient's perspective. Stroke Res Treat. 2012;2012:1–6.
   Google Scholar
• Batuecas-Caletrío J, Rodríguez-Martín B. Family and personal coping process after a haemorrhagic stroke, a life-history. Curr Psychol. 2020.
   Google Scholar
• Beaudry L, Fortin S, Rochette A. Adapted dance used in subacute rehabilitation post-stroke: impacts perceived by patients, relatives and rehabilitation therapists. Disabil Rehabil. 2019;23:1–10.
   Google Scholar
• Bhimani R, Horowitz C, Mathiason MA, et al. Are symptoms of spasticity, pain, and fatigue related in people with stroke? Rehabil Nurs. 2022;47(1):31–40.
   PubMed Web of Science ®Google Scholar
• Borch IH, Thrane G, Thornquist E. Modified constraint-induced movement therapy early after stroke: participants’ experiences. Eur J Physiother. 2015;17(4):208–214.
   Web of Science ®Google Scholar
• Clarke DJ, Burton LJ, Tyson SF, et al. Why do stroke survivors not receive recommended amounts of active therapy? Findings from the ReAcT study, a mixed-methods case-study evaluation in eight stroke units. Clin Rehabil. 2018;32(8):1119–1132.
   PubMed Web of Science ®Google Scholar
• Christiansen LK, Rasmussen AM, Mouritzen HS, et al. Quickly home again: patients’ experiences of early discharge after minor stroke. Scand J Caring Sci. 2020;35(4):1187–1195.
   PubMed Web of Science ®Google Scholar
• Connolly T, Mahoney E. Stroke survivors' experiences transitioning from hospital to home. J Clin Nurs. 2018;27(21–22):3979–3987.
   PubMed Web of Science ®Google Scholar
• Donker-Cools B, Schouten MJE, Wind H, et al. Return to work following acquired brain injury: the views of patients and employers. Disabil Rehabil. 2018;40(2):185–191.
   PubMed Web of Science ®Google Scholar
• Donnellan C, Martins A, Conlon A, et al. Mapping patients' experiences after stroke onto a patient-focused intervention framework. Disabil Rehabil. 2013;35(6):483–491.
   PubMed Web of Science ®Google Scholar
• Eilertsen G, Ormstad H, Kirkevold M, et al. Similarities and differences in the experience of fatigue among people living with fibromyalgia, multiple sclerosis, ankylosing spondylitis and stroke. J Clin Nurs. 2015;24(13–14):2023–2034.
   PubMed Web of Science ®Google Scholar
• Glintborg C, Thomsen AS, Hansen TGB. Beyond broken bodies and brains: a mixed methods study of mental health and life transitions after brain injury. Brain Impair. 2018;19(3):215–227.
   Web of Science ®Google Scholar
• Hall J, Morton S, Fitzsimons CF, et al. Factors influencing sedentary behaviours after stroke: findings from qualitative observations and interviews with stroke survivors and their caregivers. BMC Public Health. 2020;20(1):967.
   PubMed Web of Science ®Google Scholar
• Hammerbeck U, Hargreaves M, Hollands KL, et al. Stroke survivors' perceptions of participating in a high repetition arm training trial early after stroke. Disabil Rehabil. 2021;1–8.
   Google Scholar
• Heron N, O’Connor SR, Kee F, et al. Usability and acceptability of a novel secondary prevention initiative targeting physical activity for individuals after a transient ischaemic attack or "minor" stroke: a qualitative study. Int J Environ Res Public Health. 2020;17(23):8788.
   PubMed Web of Science ®Google Scholar
• Kirkevold M, Christensen D, Andersen G, et al. Fatigue after stroke: manifestations and strategies. Disabil Rehabil. 2012;34(8):665–670.
   PubMed Web of Science ®Google Scholar
• Kitzmüller G, Häggström T, Asplund K. Living an unfamiliar body: the significance of the long-term influence of bodily changes on the perception of self after stroke. Med Health Care Philos. 2013;16(1):19–29.
   PubMed Web of Science ®Google Scholar
• Kristensen H, Post A, Poulsen T, et al. Subjective experiences of occupational performance of activities of daily living in patients with mild stroke. Int J Ther Rehabil. 2014;21(3):118–125.
   Google Scholar
• Lehmann I, Baer G, Schuster-Amft C. Experience of an upper limb training program with a non-immersive virtual reality system in patients after stroke: a qualitative study. Physiotherapy. 2020;107:317–326.
   PubMed Web of Science ®Google Scholar
• Lever S, Pryor J. The impact of stroke on female sexuality. Disabil Rehabil. 2017;39(20):2011–2020.
   PubMed Web of Science ®Google Scholar
• Meijering L, Theunissen N, Lettinga AT. Re-engaging with places: understanding bio-geo-graphical disruption and flow in adult brain injury survivors. Soc Sci Med. 2019;231:22–30.
   PubMed Web of Science ®Google Scholar
• McMenamin R, Tierney E, MacFarlane A. Addressing the long-term impacts of aphasia: how far does the conversation partner programme go? Aphasiology. 2015;29(8):889–913.
   Web of Science ®Google Scholar
• Merlo A, Goodman A, McClenaghan BA, et al. Participants' perspectives on the feasibility of a novel, intensive, task-specific intervention for individuals with chronic stroke: a qualitative analysis. Phys Ther. 2013;93(2):147–157.
   PubMed Web of Science ®Google Scholar
• Nagpal A, Hillier S, Milton AG, et al. Perspectives: stroke survivors' views on the design of an early-phase cell therapy trial for patients with chronic ischaemic stroke. Health Expect. 2019;22(5):1069–1077.
   PubMed Web of Science ®Google Scholar
• O'Malley L, Powell R, Hulme S, et al. A qualitative exploration of oral health care among stroke survivors living in the community. Health Expect. 2020;23(5):1086–1095.
   PubMed Web of Science ®Google Scholar
• Pedersen SG, Anke A, Aadal L, et al. Experiences of quality of life the first year after stroke in Denmark and Norway: a qualitative analysis. Int J Qual Stud Health Well-Being. 2019;14(1):1–14.
   Web of Science ®Google Scholar
• Persson HC, Törnbom K, Sunnerhagen KS, et al. Consequences and coping strategies six years after a subarachnoid hemorrhage – a qualitative study. PLOS One. 2017;12(8):e0181006.
   PubMed Web of Science ®Google Scholar
• Skogestad IJ, Kirkevold M, Larsson P, et al. Post-stroke fatigue: an exploratory study with patients and health professionals to develop a patient-reported outcome measure. J Patient Rep Outcomes. 2021;5(1):35–11.
   PubMedGoogle Scholar
• Tistad M, Ytterberg C, Tham K, et al. Poor concurrence between disabilities as described by patients and established assessment tools three months after stroke: a mixed methods approach. J Neurol Sci. 2012;313(1–2):160–166.
   PubMed Web of Science ®Google Scholar
• Tremayne JE, Freeman J, Coppola A. Stroke survivors' experiences and perceptions of post-stroke fatigue education in the subacute phase of stroke. The FASE qualitative study. Br J Occup Ther. 2021;84(2):111–121.
   Web of Science ®Google Scholar
• Vestling M, Ramel E, Iwarsson S. Thoughts and experiences from returning to work after stroke. Work. 2013;45(2):201–211.
   PubMedGoogle Scholar
• Walker GH, Gonzalez-Guarda R, Yang Q, et al. Socio-ecological perspective on factors influencing acute recovery of younger stroke survivors: a mixed methods study. J Adv Nurs. 2021;77(6):2860–2874.
   PubMed Web of Science ®Google Scholar
• White JH, Gray KR, Magin P, et al. Exploring the experience of post-stroke fatigue in community dwelling stroke survivors: a prospective qualitative study. Disabil Rehabil. 2012;34(16):1376–1384.
   PubMed Web of Science ®Google Scholar
• Worthington E, Hawkins L, Lincoln N, et al. The day-to-day experiences of people with fatigue after stroke: results from the Nottingham Fatigue After Stroke Study. Int J Ther Rehabil. 2017;24(10):449–455.
   Google Scholar
• Young CA, Mills RJ, Gibbons C, et al. Poststroke fatigue: the patient perspective. Top Stroke Rehabil. 2013;20(6):478–484.
   PubMed Web of Science ®Google Scholar
• Kitzmüller G, Ervik B. Female spouses’ perceptions of the sexual relationship with stroke-affected partners. Sex Disabil. 2015;33(4):499–512.
   Web of Science ®Google Scholar
• Dobkin BH, Carmichael ST. The specific requirements of neural repair trials for stroke. Neurorehabil Neural Repair. 2016;30(5):470–478.
   PubMed Web of Science ®Google Scholar
• Ch'ng AM, French D, McLean N. Coping with the challenges of recovery from stroke: long term perspectives of stroke support group members. J Health Psychol. 2008;13(8):1136–1146.
   PubMed Web of Science ®Google Scholar
• Wu S, Mead G, Macleod M, et al. Model of understanding fatigue after stroke. Stroke. 2015;46(3):893–898.
   PubMed Web of Science ®Google Scholar
• Intercollegiate Stroke Working Party. National clinical guidelines for stroke. 5th ed. London: Royal College of Physicians; 2016.
   Google Scholar
• Lanctot KL, Lindsay MP, Smith EE, et al. Canadian stroke best practice recommendations: mood, cognition and fatigue following stroke, 6th edition update 2019. Int J Stroke. 2020;15(6):668–688.
   PubMed Web of Science ®Google Scholar
• Scottish Intercollegiate Guidelines Network. Management of patients with stroke: rehabilitation, prevention and management of complications, and discharge planning; 2010 [cited 2022 Jan 29]. Available from: https://collections.nlm.nih.gov/master/borndig/101609293/sign118.pdf
   Google Scholar