“How Well” and “How Often” questions for birth brachial plexus injury: a validity and reliability of the pediatric upper extremity motor activity log-revised

References

• Andersen J, Watt J, Olson J, et al. Perinatal brachial plexus palsy. Paediatr Child Health. 2006;11(2):93–100.
   PubMedGoogle Scholar
• van Dijk JG, Pondaag W, Malessy MJ. Obstetric lesions of the brachial plexus. Muscle Nerve. 2001;24(11):1451–1461.
   PubMed Web of Science ®Google Scholar
• Bahm J, Ocampo-Pavez C, Disselhorst-Klug C, et al. Obstetric brachial plexus palsy: treatment strategy, long-term results, and prognosis. Dtsch Arztebl Int. 2009;106(6):83–90.
   PubMedGoogle Scholar
• Al-Qattan MM, El-Sayed AA, Al-Zahrani AY, et al. Narakas classification of obstetric brachial plexus palsy revisited. J Hand Surg Eur Vol. 2009;34(6):788–791.
   PubMedGoogle Scholar
• Brown SH, Wernimont CW, Phillips L, et al. Hand sensorimotor function in older children with neonatal brachial plexus palsy. Pediatr Neurol. 2016;56:42–47.
   PubMed Web of Science ®Google Scholar
• Nikolaou S, Liangjun H, Tuttle LJ, et al. Contribution of denervated muscle to contractures after neonatal brachial plexus injury: not just muscle fibrosis. Muscle Nerve. 2014;49(3):398–404.
   PubMed Web of Science ®Google Scholar
• Partridge C, Edwards S. Obstetric brachial plexus palsy: increasing disability and exacerbation of symptoms with age. Physiother Res Int. 2004;9(4):157–163.
   PubMedGoogle Scholar
• Çelik G, Delioğlu K, Fırat T. The relationship between trunk control and upper extremity function in children with obstetric brachial plexus palsy. Dev Neurorehabil. 2021;24(3):150–158.
   PubMed Web of Science ®Google Scholar
• Anguelova GV, Malessy MJ, Buitenhuis SM, et al. Impaired automatic arm movements in obstetric brachial plexus palsy suggest a Central disorder. J Child Neurol. 2016;31(8):1005–1009.
   PubMed Web of Science ®Google Scholar
• Björkman A, Weibull A, Svensson H, et al. Cerebral reorganization in patients with brachial plexus birth injury and residual shoulder problems. Front Neurol. 2016;7:240.
   PubMed Web of Science ®Google Scholar
• Brown T, Cupido C, Scarfone H, et al. Developmental apraxia arising from neonatal brachial plexus palsy. Neurology. 2000;55(1):24–30.
   PubMed Web of Science ®Google Scholar
• van der Holst M, Geerdink Y, Aarts P, et al. Hand-Use-at-Home questionnaire: validity and reliability in children with neonatal brachial plexus palsy or unilateral cerebral palsy. Clin Rehabil. 2018;32(10):1363–1373.
   PubMed Web of Science ®Google Scholar
• Vaz DV, Mancini MC, do Amaral MF, et al. Clinical changes during an intervention based on constraint-induced movement therapy principles on use of the affected arm of a child with obstetric brachial plexus injury: a case report. Occup Ther Int. 2010;17(4):159–167.
   PubMed Web of Science ®Google Scholar
• Sarac C, Duijnisveld BJ, van der Weide A, et al. Outcome measures used in clinical studies on neonatal brachial plexus palsy: a systematic literature review using the international classification of functioning, disability and health. J Pediatr Rehabil Med. 2015;8(3):167–185.
   PubMedGoogle Scholar
• Duff SV, DeMatteo C. Clinical assessment of the infant and child following perinatal brachial plexus injury. J Hand Ther. 2015;28(2):126–134.
   PubMed Web of Science ®Google Scholar
• Chang KW, Justice D, Chung KC, et al. A systematic review of evaluation methods for neonatal brachial plexus palsy: a review. J Neurosurg Pediatr. 2013;12(4):395–405.
   PubMed Web of Science ®Google Scholar
• Uswatte G, Taub E, Griffin A, et al. The pediatric motor activity log-revised: assessing real-world arm use in children with cerebral palsy. Rehabil Psychol. 2012;57(2):149–158.
   PubMed Web of Science ®Google Scholar
• Günel MK, Seyhan K, Delioğlu K, et al. Validity and reliability of the Turkish version of the pediatric motor activity log-revised (PMAL-R) for 2–17 year old children with hemiparetic cerebral palsy. Disabil Rehabil. 2021;1–8.
   PubMed Web of Science ®Google Scholar
• Wallen M, Stewart K. Upper limb function in everyday life of children with cerebral palsy: description and review of parent report measures. Disabil Rehabil. 2015;37(15):1353–1361.
   PubMed Web of Science ®Google Scholar
• Terwee CB, Mokkink LB, Knol DL, et al. Rating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklist. Qual Life Res. 2012;21(4):651–657.
   PubMed Web of Science ®Google Scholar
• Norman GR, Streiner DL. PDQ statistics. Shelton (CT): PMPH USA; 2003.
   Google Scholar
• Nunally J, Wilson WH. Method and theory for developing measures in evaluation research. Handbook Eval Res. 1975;1:227–288.
   Google Scholar
• Uswatte G, Taub E, Morris D, et al. Reliability and validity of the upper-extremity motor activity log-14 for measuring real-world arm use. Stroke. 2005;36(11):2493–2496.
   PubMed Web of Science ®Google Scholar
• Sokal B, Uswatte G, Vogtle L, et al. Everyday movement and use of the arms: relationship in children with hemiparesis differs from adults. J Pediatr Rehabil Med. 2015;8(3):197–206.
   PubMed Web of Science ®Google Scholar
• Lin KC, Chen HF, Chen CL, et al. Validity, responsiveness, minimal detectable change, and minimal clinically important change of the pediatric motor activity log in children with cerebral palsy. Res Dev Disabil. 2012;33(2):570–577.
   PubMed Web of Science ®Google Scholar
• Matuti G, Santos J, Silva A, et al. Translation and cross cultural adaptation of the pediatric motor activity Log-Revised scale. Arq Neuropsiquiatr. 2016;74(7):555–560.
   PubMed Web of Science ®Google Scholar
• Ho ES, Curtis CG, Clarke HM. The brachial plexus outcome measure: development, internal consistency, and construct validity. J Hand Ther. 2012;25(4):406–416.
   PubMedGoogle Scholar
• Hosbay Z, Ozkan S, Tanriverdi M, et al. Reliability and validity of the brachial plexus outcome measure in children with obstetric brachial plexus palsy. J Hand Ther. 2019;32(3):382–387.
   PubMed Web of Science ®Google Scholar
• Dilbay NK, Günel MK, Aktan T. Reliability and validity of Turkish version of the pediatric outcomes data collection instrument (PODCI) for people with cerebral palsy. Turk J Physiother Rehabil. 2013;24(1):118–126.
   Google Scholar
• Mokkink LB, Terwee CB, Patrick DL, et al. The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. J Clin Epidemiol. 2010;63(7):737–745.
   PubMed Web of Science ®Google Scholar
• Shrout PE, Fleiss JL. Intraclass correlations: uses in assessing rater reliability. Psychol Bull. 1979;86(2):420–428.
   PubMed Web of Science ®Google Scholar
• Prinsen CA, Mokkink LB, Bouter LM, et al. COSMIN guideline for systematic reviews of patient-reported outcome measures. Qual Life Res. 2018;27(5):1147–1157.
   PubMed Web of Science ®Google Scholar
• Cohen J. Statistical power analysis for the behavioral sciences. Abingdon: Routledge; 2013.
   Google Scholar
• Krumlinde-Sundholm L, Holmefur M, Kottorp A, et al. The assisting hand assessment: current evidence of validity, reliability, and responsiveness to change. Dev Med Child Neurol. 2007;49(4):259–264.
   PubMed Web of Science ®Google Scholar
• Sköld A, Hermansson LN, Krumlinde-Sundholm L, et al. Development and evidence of validity for the children’s hand-use experience Questionnaire (CHEQ)). Dev Med Child Neurol. 2011;53(5):436–442.
   PubMed Web of Science ®Google Scholar
• Öksüz Ç, Alemdaroglu I, Kilinç M, et al. Reliability and validity of the Turkish version of ABILHAND-Kids' questionnaire in a group of patients with neuromuscular disorders. Physiother Theory Pract. 2017;33(10):780–787.
   PubMed Web of Science ®Google Scholar
• Ho ES, Curtis CG, Clarke HM. Pediatric evaluation of disability inventory: its application to children with obstetric brachial plexus palsy. J Hand Surg Am. 2006;31(2):197–202.
   PubMedGoogle Scholar
• Uswatte G, Taub E. Implications of the learned nonuse formulation for measuring rehabilitation outcomes: lessons from constraint-induced movement therapy. Rehabil Psychol. 2005;50(1):34–42.
   Web of Science ®Google Scholar
• Taub E, Ramey SL, DeLuca S, et al. Efficacy of constraint-induced movement therapy for children with cerebral palsy with asymmetric motor impairment. Pediatrics. 2004;113(2):305–312.
   PubMed Web of Science ®Google Scholar
• Bleyenheuft Y, Ebner-Karestinos D, Surana B, et al. Intensive upper- and lower-extremity training for children with bilateral cerebral palsy: a quasi-randomized trial. Dev Med Child Neurol. 2017;59(6):625–633.
   PubMed Web of Science ®Google Scholar
• Eren B, Saygı EK, Tokgöz D, et al. Modified constraint-induced movement therapy during hospitalization in children with perinatal brachial plexus palsy: a randomized controlled trial. J Hand Ther. 2020;33(3):418–425.
   PubMed Web of Science ®Google Scholar
• Zielinski IM, Delft R, Voorman JM, et al. The effects of modified constraint-induced movement therapy combined with intensive bimanual training in children with brachial plexus birth injury: a retrospective data base study. Disabil Rehabil. 2021;43(16):2275–2284.
   PubMed Web of Science ®Google Scholar
• Delioglu K, Üzümcügil A, Öztürk E, et al. Activity and participation in preschool children with different injury types of obstetric brachial plexus paralysis. Turk J Physiother Rehabil. 2021;32(1):51–59.
   Google Scholar