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Research Papers

Access, use and satisfaction with physiotherapy services among adults with cerebral palsy living in the United Kingdom and Ireland

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Pages 2160-2168 | Received 07 Jan 2022, Accepted 06 Jun 2022, Published online: 04 Jul 2022

References

  • Colver A, Fairhurst C, Pharoah POD. Cerebral palsy. Lancet. 2014;383(9924):1240–1249.
  • Novak I, Morgan C, Adde L, et al. Early, accurate diagnosis and early intervention in cerebral palsy: advances in diagnosis and treatment. JAMA Pediatr. 2017;171(9):897–907.
  • Noten S, Troenosemito LAA, Limsakul C, et al. Development of an ICF core set for adults with cerebral palsy: capturing their perspective on functioning. Dev Med Child Neurol. 2021;63(7):846–852.
  • Nieuwenhuijsen C, van der Slot WMA, Dallmeijer AJ, et al. Physical fitness, everyday physical activity, and fatigue in ambulatory adults with bilateral spastic cerebral palsy. Scand J Med Sci Sports. 2011;21(4):535–542.
  • Ryan JM, Peterson MD, Matthews A, et al. Noncommunicable disease among adults with cerebral palsy: a matched cohort study. Neurology. 2019;93(14):e1385–e1396.
  • Ryan JM, Allen E, Gormley J, et al. The risk, burden, and management of non-communicable diseases in cerebral palsy: a scoping review. Dev Med Child Neurol. 2018;60(8):753–764.
  • HAAK P, LENSKI M, HIDECKER MJC, et al. Cerebral palsy and aging. Dev Med Child Neurol. 2009;51:16–23.
  • Opheim A, Jahnsen R, Olsson E, et al. Walking function, pain, and fatigue in adults with cerebral palsy: a 7-year follow-up study. Dev Med Child Neurol. 2009;51(5):381–388.
  • van der Slot WMA, Nieuwenhuijsen C, Van Den Berg-Emons RJG, et al. Chronic pain, fatigue, and depressive symptoms in adults with spastic bilateral cerebral palsy. Dev Med Child Neurol. 2012;54(9):836–842.
  • Bottos M, Feliciangeli A, Sciuto L, et al. Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol. 2001;43(8):516–528.
  • Morgan P, McGinley J. Performance of adults with cerebral palsy related to falls, balance and function: a preliminary report. Dev Neurorehabil. 2013;16(2):113–120.
  • Ryan JM, Cameron MH, Liverani S, et al. Incidence of falls among adults with cerebral palsy: a cohort study using primary care data. Dev Med Child Neurol. 2020;62(4):477–482.
  • Thorpe D, Gannotti M, Peterson MD, et al. Musculoskeletal diagnoses, comorbidities, and physical and occupational therapy use among older adults with and without cerebral palsy. Disabil Health J. 2021;14(4):101109.
  • Parkes J, Donnelly M, Dolk H, et al. Use of physiotherapy and alternatives by children with cerebral palsy: a population study. Child Care Health Dev. 2002;28(6):469–477.
  • Manikandan M, Kerr C, Lavelle G, et al. Health service use among adults with cerebral palsy: a mixed-methods systematic review. Dev Med Child Neurol. 2022;64(4):429–446 .
  • Redmond R, Parrish M. Variables influencing physiotherapy adherence among young adults with cerebral palsy. Qual Health Res. 2008;18(11):1501–1510.
  • Horsman M, Suto M, Dudgeon B, et al. Growing older with cerebral palsy: insiders’ perspectives. Pediatr Phys Ther. 2010;22(3):296–303.
  • Jahnsen R, Villien L, Aamodt G, et al. Physiotherapy and physical activity – experiences of adults with cerebral palsy, with implications for children. Adv Physiother. 2003;5:21–32.
  • Park MW, Kim WS, Bang MS, et al. Needs for medical and rehabilitation services in adults with cerebral palsy in Korea. Ann Rehabil Med. 2018;42(3):465–472.
  • Nieuwenhuijsen C, van der Laar Y, Donkervoort M, et al. Unmet needs and health care utilization in young adults with cerebral palsy. Disabil Rehabil. 2008;30(17):1254–1262.
  • Sandström K, Samuelsson K, Öberg B. Prerequisites for carrying out physiotherapy and physical activity – experiences from adults with cerebral palsy. Disabil Rehabil. 2009;31(3):161–169.
  • Morgan P, Pogrebnoy D, McDonald R. Health service experiences to address mobility decline in ambulant adults ageing with cerebral palsy. J Intellect Dev Disabil. 2014;39(3):282–289.
  • Moll LR, Cott CA. The paradox of normalization through rehabilitation: growing up and growing older with cerebral palsy. Disabil Rehabil. 2013;35(15):1276–1283.
  • Andersson C, Mattsson E. Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion. Dev Med Child Neurol. 2001;43(2):76–82.
  • Cornec G, Drewnowski G, Desguerre I, et al. Determinants of satisfaction with motor rehabilitation in people with cerebral palsy: a national survey in France (ESPaCe). Ann Phys Rehabil Med. 2018;61:e58–9.
  • Barker K. Commission on the future of health and social care in England. London: The King's Fund; 2014. Available from: https://www.kingsfund.org.uk/projects/commission-future-health-and-social-care-england
  • Health Service Executive. Disability Services – Community and Social Care. Available from: https://www.hse.ie/eng/services/list/4/disability/
  • NICE. Cerebral Palsy in adults. National Institute for Health and Care Excellence (NICE); 2019 [cited 2020 Oct 7]. Available from: https://www.nice.org.uk/guidance/ng119
  • Department of Health. The national policy and strategy for the provision of neuro-rehabilitation services in Ireland 2011–2015; 2011 [cited 2020 Oct 6]. Available from: https://www.nai.ie/assets/58/0158D3D2-A34E-F708-15C6DBD7BA7D9126_document/NeuroRehab_Services1.pdf
  • Health Service Executive. National strategy & policy for the provision of neuro-rehabilitation services in Ireland. 2019 [cited 2020 Oct 6]. Available from: https://www.hse.ie/eng/services/list/4/disability/neurorehabilitation/national-strategy-policy-for-the-provision-of-neuro-rehabilitation-services-in-ireland.pdf
  • Eysenbach G. Improving the quality of web surveys: the checklist for reporting results of internet E-Surveys (CHERRIES). J Med Internet Res. 2004;6(3):e34.
  • von Elm E, Altman DG, Egger M, et al. The strengthening the reporting of observational studies in epidemiology (STROBE) statement: guidelines for reporting observational studies. Ann Intern Med. 2007;147(8):573–577.
  • Burns KEA, Kho ME. How to assess a survey report: a guide for readers and peer reviewers. CMAJ. 2015;187(6):E198–E205.
  • Beattie P, Dowda M, Turner C, et al. Longitudinal continuity of care is associated with high patient satisfaction with physical therapy. Phys Ther. 2005;85(10):1046–1052.
  • Fonteyn EMR, Keus SHJ, Verstappen CCP, et al. Physiotherapy in degenerative cerebellar ataxias: utilisation, patient satisfaction, and professional expertise. Cerebellum. 2013;12(6):841–847.
  • Hills R, Kitchen S. Satisfaction with outpatient physiotherapy: a survey comparing the views of patients with acute and chronic musculoskeletal conditions. Physiother Theory Pract. 2007;23(1):21–36.
  • Greig A, Bainbridge L, Bedard-Gautrais C, et al. An evaluation of patient-centred care elements that influence patient satisfaction in physiotherapy practice: a systematic review. Physiotherapy. 2015;101:e104.
  • Usuba K, Oddson B, Gauthier A, et al. Leisure-Time physical activity in adults with cerebral palsy. Disabil Health J. 2015;8(4):611–618.
  • Jonsson U, Eek MN, Sunnerhagen KS, et al. Changes in walking ability, intellectual disability, and epilepsy in adults with cerebral palsy over 50 years: a population-based follow-up study. Dev Med Child Neurol. 2021;63(7):839–845.
  • Krupp LB, LaRocca NG, Muir-Nash J, et al. The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Arch Neurol. 1989;46(10):1121–1123.
  • Manikandan M, Casey C, Doyle A, et al. Use of health services and unmet needs among adults with cerebral palsy in Ireland. Develop Med Child Neuro. 2022. DOI:10.1111/dmcn.15233
  • Sandström K. The lived body – experiences from adults with cerebral palsy. Clin Rehabil. 2007;21(5):432–441.
  • Smith SE, Gannotti M, Hurvitz EA, et al. Adults with cerebral palsy require ongoing neurologic care: a systematic review. Ann Neurol. 2021;89(5):860–871.
  • Jahnsen R, Villien L, Aamodt G, et al. Musculoskeletal pain in adults with cerebral palsy compared with the general population. J Rehabil Med. 2004;36(2):78–84.
  • Gannotti M, Frumberg D, et al. Clinical therapy services for adults with cerebral palsy. In: Miller F, Bachrach S, Lennon N, editors. Cerebral palsy. Cham: Springer International Publishing; 2020. p. 1–24.
  • Reid SM, Meehan EM, Arnup SJ, et al. Intellectual disability in cerebral palsy: a population-based retrospective study. Dev Med Child Neurol. 2018;60(7):687–694.
  • Hidecker MJC, Paneth N, Rosenbaum PL, et al. Developing and validating the communication function classification system for individuals with cerebral palsy. Dev Med Child Neurol. 2011;53(8):704–710.