The implementation of systematic monitoring of cognition in children with cerebral palsy in Sweden and Norway

References

• Rosenbaum P, Paneth N, Leviton A, et al. A report: the definition and classification of cerebral palsy april 2006. Dev Med Child Neurol Suppl. 2007;109(Suppl 109):8–14.
   PubMedGoogle Scholar
• Stadskleiv K. Cognitive functioning in children with cerebral palsy. Dev Med Child Neurol. 2020;62(3):283–289.
   PubMed Web of Science ®Google Scholar
• Pakula AT, Braun KVN, Yeargin-Allsopp M. Cerebral palsy: classification and epidemiology. Phys Med Rehabil Clin N Am. 2009;20(3):425–452.
   PubMed Web of Science ®Google Scholar
• Himmelmann K, Beckung E, Hagberg G, et al. Gross and fine motor function and accompanying impairments in cerebral palsy. Dev Med Child Neurol. 2006;48(6):417–423.
   PubMed Web of Science ®Google Scholar
• Påhlman M, Gillberg C, Himmelmann K. One‐third of school‐aged children with cerebral palsy have neuropsychiatric impairments in a population‐based study. Acta Paediatr. 2019;108(11):2048–2055.
   PubMed Web of Science ®Google Scholar
• Sigurdardottir S, Eiriksdottir A, Gunnarsdottir E, et al. Cognitive profile in young icelandic children with cerebral palsy. Dev Med Child Neurol. 2008;50(5):357–362.
   PubMed Web of Science ®Google Scholar
• Hollung SJ, Vik T, Lydersen S, et al. Decreasing prevalence and severity of cerebral palsy in Norway among children born 1999 to 2010 concomitant with improvements in perinatal health. Eur J Paediatr Neurol. 2018;22(5):814–821.
   PubMed Web of Science ®Google Scholar
• Stadskleiv K, Jahnsen R, Andersen GL, et al. Neuropsychological profiles of children with cerebral palsy. Dev Neurorehabil. 2018;21(2):108–120.
   PubMed Web of Science ®Google Scholar
• Bøttcher L, Stadskleiv K, Berntsen T, et al. Systematic cognitive monitoring of children with cerebral palsy–the development of an assessment and follow-up protocol. Scand J Disab Res. 2016;18(4):304–315.
   Web of Science ®Google Scholar
• Wechsler D. Wechsler preschool and primary scale of intelligence. 4th ed. Swedish version. Bromma: Pearson Assessment; 2014.
   Google Scholar
• Wechsler D. Wechsler preschool and primary scale of intelligence. 4th ed. Norwegian version. Bromma: Pearson Assessment; 2015.
   Google Scholar
• Wechsler D. Wechsler intelligence scale for children. 5th ed. Norwegian version. Bromma: Pearson Assessment; 2017.
   Google Scholar
• Wechsler D. Wechsler intelligence scale for children. 5th ed. Swedish version. Bromma: Pearson Assessment; 2016.
   Google Scholar
• Beery KE, Beery NA. The Beery-Buktenica developmental test of Visual-Motor integration. London: Pearson Assessment; 2010.
   Google Scholar
• Gioia GA, Isquith PK, Guy SC, et al. Behavior rating inventory of executive function. 2nd ed. Norwegian version Stockholm. Sweden: Hogrefe; 2018.
   Google Scholar
• Gioia GA, Isquith PK, Guy SC, et al. Behaviour rating inventory of executive function. 2nd ed. Swedish version. Stockholm, Sweden: Hogrefe; 2017.
   Google Scholar
• Sparrow SS, Cicchetti DV, Balla DA. Vindeland adaptive behavior scales. 2nd ed. Swedish version. Bromma, Sweden: Pearson Assessment; 2012.
   Google Scholar
• Sparrow SS, Cicchetti DV, Balla DA. Vineland adaptive behaviour scales. 2nd ed. Norwegian version. Bromma, Sweden: Pearson Assessment; 2012.
   Google Scholar
• Brøndbo PH, Egeland J. Måleegenskaper ved den norske versjonen av wechsler intelligence scale for children, fifth edition (WISC-V) [measurement characteristics of the norwegian version of wechsler intelligence scale for children, fifth edition (WISC-V)]. Psyk Test Barn. 2019;5:1–11.
   Google Scholar
• Heyerdahl S, Eikeseth S. Måleegenskaper ved den norske versjonen av vineland adaptive behavior scales [measurement characteristics of the norwegian version of vineland adaptive behavior scales]. Psyk Test Barn. 2014;2:1–11.
   Google Scholar
• Køhn K, Halvorsen M. Måleegenskaper ved den norske versjonen av behavior rating inventory of executive function (BRIEF), lærerversjon [measurement characteristics of the norwegian version of behavior rating inventory of executive function (BRIEF), teacher form]. Psyk Test Barn. 2020;5(1):1–11.
   Google Scholar
• Sørensen L, Hysing M. Måleegenskaper ved den norske versjonen av Behavior Rating Inventory of Executive Function (BRIEF), foreldreversjon [Measurement characteristics of the Norwegian verson of Behaviour Rating Inventory of Executive Function (BRIEF), parent form] 2014. p. 1–10.
   Google Scholar
• Visser L, Ruiter SA, van der Meulen BF, et al. Accommodating the Bayley-III for motor and/or visual impairment: a comparative pilot study. Pediatr Phys Ther. 2014;26(1):57–67.
   PubMed Web of Science ®Google Scholar
• Alriksson-Schmidt A, Arner M, Westbom L, et al. A combined surveillance program and quality register improves management of childhood disability. Disabil Rehabil. 2017;39(8):830–836.
   PubMed Web of Science ®Google Scholar
• CPUP Uppföljningsprogram för cerebral parese. Årsrapport 2020 [Annual report 2020]. 2020.
   Google Scholar
• Andersen GL, Hollung SJ, Klevberg GL, et al. Norsk kvalitets- og oppfølgingsregister for cerebral parese Årsrapport for 2020 med forbedringstiltak [Norwegian Quality and Surveillance Registry for Cerebral Palsy Annual Report for 2020 with improvement measures] 2021.
   Google Scholar
• Andersen GL, Irgens LM, Haagaas I, et al. Cerebral palsy in Norway: prevalence, subtypes and severity. Eur J Paediatr Neurol. 2008;12(1):4–13.
   PubMed Web of Science ®Google Scholar
• Alriksson-Schmidt AI. CPCog update online webinar. The cerebral palsy follow-up programme (CPUP), Sweden and NorCP. Norway; 2021.
   Google Scholar
• Jahnsen R, Elkjaer S, Myklebust G. Cerebral Parese Oppfølgingsprogram. Årsrapport. Status 31.12.2013 [Cerebral Palsy Follow-up Program. Yearly report. Status December 31st, 2013]. Oslo University Hospital; 2014. https://oslo-universitetssykehus.no/avdelinger/Documents/CPOP%20arsrapport%202013.pdf
   Google Scholar
• Andersen GL, Hollung SJ, Vik T. Cerebral pareseregisteret i Norge: Årsrapport for 2018 med forbedringstiltak [The Norwegian Cerebral palsy registry: Annual report for 2018 with improvement measures] 2019.
   Google Scholar
• Alriksson-Schmidt AI, Jeglinsky I, Jonsdottir G, et al. Living life with cerebral palsy? A description of the social safety nets for individuals with cerebral palsy in the nordic countries. Scand J Public Health. 2021;49(6):653–665.
   PubMed Web of Science ®Google Scholar
• Sherwell S, Reid SM, Reddihough DS, et al. Measuring intellectual ability in children with cerebral palsy: Can we do better? Res Dev Disabil. 2014;35(10):2558–2567.
   PubMed Web of Science ®Google Scholar
• Stadskleiv K, Andersen GL, Hollung SJ. Kvalitetsforbedringsprosjekt: Økt andel barn med cerebral parese som tilbys kognitiv utredning [Quality improvement project: Increased number of children with cerebral palsy offered cognitive assessment]. Nasjonalt Servicemiljø for Medisinske Kvalitetsregistre 2020.
   Google Scholar
• Palisano R, Rosenbaum P, Walter S, et al. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol. 1997;39(4):214–223.
   PubMed Web of Science ®Google Scholar
• Institute for Healthcare Improvement. The breakthrough series: IHI's collaborative model for achieving breaktrhough improvement. Boston (MA): Institute for Healthcare Improvement; 2003.
   Google Scholar
• Kilo CM. A framework for collaborative improvement: lessons from the institute for healthcare improvement's breakthrough series. Qual Manag Health Care. 1998;6(4):1–13.
   PubMedGoogle Scholar
• Peny-Dahlstrand M, Gosman-Hedström G, Krumlinde-Sundholm L. Are there cross-cultural differences of ADL ability in children measured with the assessment of motor and process skills (AMPS)? Scand J Occup Ther. 2012;19(1):26–32.
   PubMed Web of Science ®Google Scholar
• Holm S, Liss P-E, Norheim OF. Access to health care in the scandinavian countries: ethical aspects. Health Care Anal. 1999;7(4):321–330.
   PubMed Web of Science ®Google Scholar
• Kurmanaviciute R, Stadskleiv K. Assessment of verbal comprehension and non-verbal reasoning when standard response mode is challenging: a comparison of different response modes and an exploration of their clinical usefulness. Cogent Psychology. 2017;4(1):1275416.
   Web of Science ®Google Scholar
• Geytenbeek JJM, Vermeulen RJ, Becher JG, et al. Comprehension of spoken language in non‐speaking children with severe cerebral palsy: an explorative study on associations with motor type and disabilities. Dev Med Child Neurol. 2015;57(3):294–300.
   PubMed Web of Science ®Google Scholar
• Ballester-Plané J, Laporta-Hoyos O, Macaya A, et al. Cognitive functioning in dyskinetic cerebral palsy: Its relation to motor function, communication and epilepsy. Eur J Paediatr Neurol. 2018;22(1):102–112.
   PubMed Web of Science ®Google Scholar
• Reid SM, Meehan EM, Arnup SJ, et al. Intellectual disability in cerebral palsy: a population-based retrospective study. Dev Med Child Neurol. 2018;60(7):687–694.
   PubMed Web of Science ®Google Scholar
• Ego A, Lidzba K, Brovedani P, et al. Visual–perceptual impairment in children with cerebral palsy: a systematic review. Dev Med Child Neurol. 2015;57:46–51.
   PubMed Web of Science ®Google Scholar
• Levine SC, Kraus R, Alexander E, et al. IQ decline following early unilateral brain injury: a longitudinal study. Brain Cogn. 2005;59(2):114–123.
   PubMed Web of Science ®Google Scholar
• Pirila S, van der Meere J, Korhonen P, et al. A retrospective neurocognitive study in children with spastic diplegia. Dev Neuropsychol. 2004;26(3):679–690.
   PubMed Web of Science ®Google Scholar
• Amini M, Saneii SH, Pashmdarfard M. Factors affecting social participation of iranian children with cerebral palsy. Occup Ther Health Care. 2018;32(3):290–305.
   PubMed Web of Science ®Google Scholar
• Vila-Nova F, Oliveira R, Cordovil R. Participation in leisure activities by portuguese children with cerebral palsy. Percept Mot Skills. 2020;127(6):1051–1067.
   PubMed Web of Science ®Google Scholar
• Bult MK, Verschuren O, Jongmans MJ, et al. What influences participation in leisure activities of children and youth with physical disabilities? A systematic review. Res Dev Disabil. 2011;32(5):1521–1529.
   PubMed Web of Science ®Google Scholar
• Bjorgaas HM, Elgen IB, Hysing M. Trajectories of psychiatric disorders in a cohort of children with cerebral palsy across four years. Disabil Health J. 2021;14(1):100992.
   PubMed Web of Science ®Google Scholar
• Bjorgaas HM, Hysing M, Elgen IB. Psychiatric disorders among children with cerebral palsy at school starting age. Res Dev Disabil. 2012;33(4):1287–1293.
   PubMed Web of Science ®Google Scholar
• Downs J, Blackmore AM, Epstein A, Cerebral Palsy Mental Health Group, et al. The prevalence of mental health disorders and symptoms in children and adolescents with cerebral palsy: a systematic review and Meta-analysis. Dev Med Child Neurol. 2018;60(1):30–38.
   PubMed Web of Science ®Google Scholar