An intervention to improve the self-efficacy of key workers to support parental wellbeing at an early childhood intervention service in Australia: a stepped wedged randomized cluster trial

References

• Gilson KM, Davis E, Johnson S, et al. Mental health care needs and preferences for mothers of children with a disability. Child Care Health Dev. 2018;44(3):384–391. May 1
   PubMed Web of Science ®Google Scholar
• Yamaoka Y, Tamiya N, Moriyama Y, et al. Mental health of parents as caregivers of children with disabilities: Based on japanese nationwide survey. Lin H, editor. PLoS One. 2015;10(12):e0145200. Dec 21
   PubMed Web of Science ®Google Scholar
• Narramore N. Meeting the emotional needs of parents who have a child with complex needs. J Children Young People Nurs. 2008;2(3):103–107.
   Google Scholar
• Falk NH, Norris K, Quinn MG. The factors predicting stress, anxiety and depression in the parents of children with autism. J Autism Dev Disord. 2014;44(12):3185–3203.
   PubMed Web of Science ®Google Scholar
• Bourke-Taylor H, Howie L, Law M, et al. Self-reported mental health of mothers with a school-aged child with a disability in Victoria: a mixed method study. J Paediatr Child Health. 2012;48(2):153–159.
   PubMed Web of Science ®Google Scholar
• Byrne MB, Hurley DA, Daly L, et al. Health status of caregivers of children with cerebral palsy. Child Care Health Devel. 2010;36(5):696–702. Sep 1
   PubMed Web of Science ®Google Scholar
• Ware ME, Kosinski M, Dewey JE. How to score version 2 of the SF-36 health survey (standard & acute forms). Lincoln (RI): Quality Metric Incorporated; 2001.
   Google Scholar
• Ryan C, Quinlan E. Whoever shouts the loudest: listening to parents of children with disabilities. J Appl Res Intellect Disabil. 2018;31:203–214.
   PubMed Web of Science ®Google Scholar
• Early Childhood Intervention Australia. Best practice in early childhood intervention: National guidelines. Sydney: Early Childhood Intervention Australia; 2016.
   Google Scholar
• Dunst CJ, Trivette CM, Hamby DW. Meta-analysis of family-centered helpgiving practices research. Ment Retard Dev Disabil Res Rev. 2007;13(4):370–378.
   PubMedGoogle Scholar
• Trivette CM, Dunst CJ, Hamby DW. Influences of Family-Systems intervention practices on Parent-Child interactions and child development. Top Early Childhood Spec Educ. 2010;30(1):3–19.
   Web of Science ®Google Scholar
• Rosenbaum PL, King SM, Cadman DT. Measuring processes of caregiving to physically disabled children and their families. I: Identifying relevant components of care. Dev Med Child Neurol. 1992;34(2):103–114.
   PubMed Web of Science ®Google Scholar
• Gilson KM, Johnson S, Davis E, et al. Supporting the mental health of mothers of children with a disability: Health professional perceptions of need, role, and challenges. Child Care Health Dev. 2018;44(5):721–729. Sep 1
   PubMed Web of Science ®Google Scholar
• Council of Australian Governments. National disability strategy 2010-2020. Canberra (ACT): Council of Australian Governments; 2010.
   Google Scholar
• Brien J, Page J, Berman J. Enabling the exercise of choice and control: how early childhood intervention professionals may support families and young children with a disability to exercise choice and control in the context of the national disability insurance scheme. Austr J Early Childhood. 2017;42(2):37–44.
   Web of Science ®Google Scholar
• National Disability Insurance Agency. NDIS price guide 2019-20. Vol. 1.3. Australia: National Disability Insurance Agency; 2019.
   Google Scholar
• Joint Standing Committee on the National Disability Insurance Scheme. Progress report 2019. Canberra (Australia): Joint Standing Committee on the National Disability Insurance Scheme; 2019.
   Google Scholar
• Gavidia-Payne S. Implementation of Australiaʼs national disability insurance scheme: experiences of families and young children with disabilities. Infants Young Children. 2020;33(3):184–194.
   Web of Science ®Google Scholar
• Boaden N, Purcal C, Fisher K, et al. Transition experience of families with young children in the Australian national disability insurance scheme (NDIS). Austr Soc Work. 2021;74(3):294–306.
   Web of Science ®Google Scholar
• Purcal C, Hill T, Meltzer A, et al. Implementation of the NDIS in the early childhood intervention sector in NSW: final report (SPRC report 2/18). Sydney (Australia): Social Policy Research Centre, UNSW; 2018.
   Google Scholar
• Bailey DB, Hebbeler K, Spiker D, et al. Thirty-Six-Month outcomes for families of children who have disabilities and participated in early intervention. Pediatrics. 2005;116(6):1346–1352.
   PubMed Web of Science ®Google Scholar
• Gavidia-Payne S, Meddis K, Mahar N. Correlates of child and family outcomes in an Australian community-based early childhood intervention program. J Intellectual Developmental Disab. 2015;40(1):57–67.
   Web of Science ®Google Scholar
• Young D, Gibbs L, Gilson K, et al. Understanding key worker experiences at an Australian early childhood intervention service. Health Soc Care Community. 2021;29(6):1–10.
   PubMed Web of Science ®Google Scholar
• Young D, Davis E, Gilson KM, et al. Developing a new service model for children with a disability: What do parents want? J Intellect Disab Res. 2016;60(7):765.
   Web of Science ®Google Scholar
• Davis E, Young D, Gilson KM, et al. A capacity building program to improve the Self-Efficacy of key workers to support the Well-Being of parents of a child with a disability accessing an early childhood intervention service: Protocol for a Stepped-Wedge design trial. JMIR Res Protoc. 2019;8(4):e12531.
   PubMed Web of Science ®Google Scholar
• Hussey MA, Hughes JP. Design and analysis of stepped wedge cluster randomized trials. Contemp Clin Trials. 2007; Feb 128(2):182–191.
   PubMed Web of Science ®Google Scholar
• Hemming K, Taljaard M, McKenzie JE, et al. Reporting of stepped wedge cluster randomised trials: extension of the CONSORT 2010 statement with explanation and elaboration. BMJ. 2018;363:k1614–26.
   PubMedGoogle Scholar
• Harris PA, Taylor R, Thielke R, et al. Research electronic data capture (REDCap)—a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2009;42(2):377–381.
   PubMed Web of Science ®Google Scholar
• Bandura A. Guide for constructing self-efficacy scales. In: Pajares F, Urdan T, editors. Self-efficacy beliefs of adolescents [internet]. Greenwich (CT): Information Age Publishing; 2006. p. 307–337. https://www.uky.edu/∼eushe2/Bandura/BanduraGuide2006.pdf
   Google Scholar
• Stewart-Brown S. The Short Warwick-Edinburgh Mental Well-being Scale (SWEMWBS). NHS Health Scotland, University of Warwick and University of Edinburgh; 2008.
   Google Scholar
• Warr P. The measurement of wellbeing and other aspects of mental health. J Occup Psychol. 1990;63(3):193–210.
   Web of Science ®Google Scholar
• Warr P, Bindl UK, Parker SK, et al. Four-quadrant investigation of job-related affects and behaviours. Euro J Work Organiz Psychol. 2014;23(3):342–363.
   Web of Science ®Google Scholar
• Warr P. IWP multi-affect indicator. Institute of Work Psychology, University of Sheffield; 2016.
   Google Scholar
• Warr P. Work, happiness, and unhappiness. New York (NY): Routledge; 2007.
   Google Scholar
• Eisenberger R, Stinglhamber F, Vandenberghe C, et al. Perceived supervisor support: contributions to perceived organizational support and employee retention. J Appl Psychol. 2002;87(3):565–573.
   PubMed Web of Science ®Google Scholar
• Eisenberger R, Huntington R, Hutchison S, et al. Perceived organizational support. J Appl Psychol. 1986;71(3):500–507.
   Web of Science ®Google Scholar
• Kessler RC, Ames M, Hymel PA, et al. Using the world health organization health and work performance questionnaire (HPQ) to evaluate the indirect workplace costs of illness. J Occup Environ Med. 2004;46(6 Suppl):S23–S37.
   PubMed Web of Science ®Google Scholar
• Kessler RC, Barber C, Beck A, et al. The world health organization health and work performance questionnaire (HPQ). J Occup Environ Med. 2003;45(2):156–174. Feb
   PubMed Web of Science ®Google Scholar
• Soane E, Shantz A, Alfes K, et al. The association of meaningfulness, Well-Being, and engagement with absenteeism: a moderated mediation model. Hum Resour Manage. 2013;52(3):441–456.
   Web of Science ®Google Scholar
• VSN International. Genstat for windows. Hemel Hempstead: VSN International; 2018.
   Google Scholar
• StataCorp. Stata statistical software: Release 16. College Station (TX): StataCorp LLC; 2019.
   Google Scholar
• Laletas S, Reupert A, Goodyear M, et al. Pathways of care: targeting the early childhood sector for early intervention. Advances in Mental Health. 2015;13(2):139–152. 3
   Web of Science ®Google Scholar
• Moore T. The nature and role of relationships in early childhood intervention services. In: Second conference of the international society on early intervention. Zagreb (Croatia): International Society on Early Intervention; 2007.
   Google Scholar
• Sloper P, Greco V, Beecham J, et al. Key worker services for disabled children: what characteristics of services lead to better outcomes for children and families? Child Care Health Dev. 2006;32(2):147–157.
   PubMed Web of Science ®Google Scholar
• Bourke-Taylor H, Pallant J, Law M, et al. Predicting mental health among mothers of school-aged children with developmental disabilities: the relative contribution of child, maternal and environmental factors. Res Dev Disabil. 2012;33(6):1732–1740.
   PubMed Web of Science ®Google Scholar
• Moore T. Rethinking early childhood intervention services: Implications for policy and practice. In: Pauline McGregor memorial address presented at the 10th biennial national conference of early childhood intervention Australia, and the 1st Asia-Pacific early childhood intervention conference. Perth (Western Australia): Murdoch Childrens Research Institute and The Royal Children’s Hospital Centre for Community Child Health; 2012.
   Google Scholar
• Adams D, Handley L, Heald M, et al. A comparison of two methods for recruiting children with an intellectual disability. J Appl Res Intellect Disabil. 2017;30(4):696–704.
   PubMed Web of Science ®Google Scholar