281
Views
0
CrossRef citations to date
0
Altmetric
Research Articles

The experience of self-managing from the perspective of persons with lower limb loss, prosthetists, and physical therapists

ORCID Icon, , ORCID Icon &
Pages 3284-3292 | Received 25 Feb 2021, Accepted 04 Sep 2022, Published online: 19 Sep 2022

References

  • Talbot LA, Brede E, Metter EJ. Psychological and physical health in military amputees during rehabilitation: secondary analysis of a randomized controlled trial. Mil Med. 2017;182(5):e1619–e1624.
  • Gailey R, Allen K, Castles J, et al. Review of secondary physical conditions associated with lower-limb amputation and long-term prosthesis use. J Rehabil Res Dev. 2008;45(1):15–29.
  • Hachisuka K, Nakamura T, Ohmine S, et al. Hygiene problems of residual limb and silicone liners in transtibial amputees wearing the total surface bearing socket. Arch Phys Med Rehabil. 2001;82(9):1286–1290.
  • Lee DJ, Veneri DA. Development and acceptability testing of decision trees for self-management of prosthetic socket fit in adults with lower limb amputation. Disabil Rehabil. 2018;40(9):1066–1071.
  • Lee DJ, Veneri DA, Goodworth AD. Self-management problem-solving tools for lower-limb prosthesis wearers: mobile app usability and acceptability study. J Prosthet Orthot. 2019;31(1):33–42.
  • Lee DJ, Wininger M, Mahler D, et al. Taxonomy of clinical encounters during the first 90 days post-delivery of an initial lower limb prosthesis. Prosthet Orthot Int. 2018;42(5):490–497.
  • Audulv Å, Asplund K, Norbergh K-G. Who’s in charge? The role of responsibility attribution in self-management among people with chronic illness. Patient Educ Couns. 2010;81(1):94–100.
  • Buelow JM, Johnson J. Self-Management of epilepsy. Dis Manag Health Outcomes. 2000;8(6):327–336.
  • Clark M. Diabetes self-management education: a review of published studies. Prim Care Diabetes. 2008;2(3):113–120.
  • DiMatteo MR, Haskard KB, Williams SL. Health beliefs, disease severity, and patient adherence: a meta-analysis. Med Care. 2007;45(6):521–528.
  • Clark CM, Lee DA. Prevention and treatment of the complications of diabetes mellitus. N Engl J Med. 1995;332(18):1210–1217.
  • Wegener ST, Mackenzie EJ, Ephraim P, et al. Self-management improves outcomes in persons with limb loss. Arch Phys Med Rehabil. 2009;90(3):373–380.
  • Wegener ST, Hofkamp SE, Ehde DM. Interventions for psychological issues in amputation: a team approach. In: Psychoprosthetics. Gallagher P, Desmond D, MacLachlan M, editors. New York(NY): Springer; 2008. p. 91–105.
  • Turner AP, Wegener ST, Williams RM, et al. Self-management to improve function after amputation: a randomized controlled trial of the VETPALS intervention. Arch Phys Med Rehabil. 2021;102(7):1274–1282.
  • Rodriguez KM. Intrinsic and extrinsic factors affecting patient engagement in diabetes self-management: perspectives of a certified diabetes educator. Clin Ther. 2013;35(2):170–178.
  • O'Brien BC, Harris IB, Beckman TJ, et al. Standards for reporting qualitative research: a synthesis of recommendations. Acad Med. 2014;89(9):1245–1251.
  • Mason M. Sample size and saturation in PhD studies using qualitative interviews. 2010;11(3)Mason M. Sample Size and Saturation in PhD Studies Using Qualitative Interviews. FQS [Internet]. 2010 Aug. 24 [cited 2022 Sep. 9];11(3). Available from: https://www.qualitative-research.net/index.php/fqs/article/view/1428
  • Smulowitz S. Constant comparison. In: The international encyclopedia of communication research methods. Jorg Matthes, Christine S. Davis, Robert F. Potter, editors. Location: Hoboken, NJ John Wiley & Sons, Inc; 2017.
  • O'Neill B, Moran K, Gillespie A. Scaffolding rehabilitation behaviour using a voice-mediated assistive technology for cognition. Neuropsychol Rehabil. 2010;20(4):509–527.
  • Pham DT, Fortin F, Thibaudeau MF. The role of the health belief model in amputees’ Self-Evaluation of adherence to diabetes self-care behaviors. Diabetes Educ. 1996;22(2):126–132.
  • Kelly RB, Zyzanski SJ, Alemagno SA. Prediction of motivation and behavior change following health promotion: role of health beliefs, social support, and self-efficacy. Soc Sci Med. 1991;32(3):311–320.
  • Edelstein JE. Motivating elderly patients with recent amputations. Top Geriatr Rehabil. 2005;21(2):116–122.
  • Shapiro DA, Barkham M, Rees A, et al. Effects of treatment duration and severity of depression on the effectiveness of cognitive-behavioral and psychodynamic-interpersonal psychotherapy. J Consult Clin Psychol. 1994;62(3):522–534.
  • Fulton JJ, Marcus DK, Merkey T. Irrational health beliefs and health anxiety. J Clin Psychol. 2011;67(6):527–538.
  • Esquenazi A, DiGiacomo R. Rehabilitation after amputation. J Am Podiatr Med Assoc. 2001;91(1):13–22.
  • Coletta EM. Care of the elderly patient with lower extremity amputation. J Am Board Fam Pract. 2000;13(1):23–34.
  • Kivelä K, Elo S, Kyngäs H, et al. The effects of health coaching on adult patients with chronic diseases: a systematic review. Patient Educ Couns. 2014;97(2):147–157.
  • Bodenheimer T, Lorig K, Holman H, et al. Patient self-management of chronic disease in primary care. JAMA. 2002;288(19):2469–2475.
  • Jerant AF, von Friederichs-Fitzwater MM, Moore M. Patients’ perceived barriers to active self-management of chronic conditions. Patient Educ Couns. 2005;57(3):300–307.
  • Nagelkerk J, Reick K, Meengs L. Perceived barriers and effective strategies to diabetes self-management. J Adv Nurs. 2006;54(2):151–158.
  • Funnell MM, Anderson RM. Empowerment and self-management of diabetes. 2004;22(3):123–127.
  • Gold DT, McClung B. Approaches to patient education: emphasizing the long-term value of compliance and persistence. Am J Med. 2006;119(4 Suppl 1):S32–S37.
  • Horne G, Abramowicz J. The management of healing problems in the dysvascular amputee. Prosthet Orthot Int. 1982;6(1):38–40.
  • Jensen JS, Mandrup-Poulsen T, Krasnik M. Wound healing complications following major amputations of the lower limb. Prosthet Orthot Int. 1982;6(2):105–107.
  • Goldberg T, Goldberg S, Pollak J. Postoperative management of lower extremity amputation. Phys Med Rehabil Clin N Am. 2000;11(3):559–568, vi.
  • Lee DJ, Costello MC. The effect of cognitive impairment on prosthesis use in older adults who underwent amputation due to vascular-related etiology: a systematic review of the literature. Prosthet Orthot Int. 2018;42(2):144–152.
  • Fletcher DD, Andrews KL, Butters MA, et al. Rehabilitation of the geriatric vascular amputee patient: a population-based study. Arch Phys Med Rehabil. 2001;82(6):776–779.
  • Ruggiano N, Whiteman K, Shtompel N. If I don’t like the way I feel with a certain drug, I’ll tell them. J Appl Gerontol. 2016;35(4):401–420.
  • Allen M, Iezzoni LI, Huang A, et al. Improving patient-clinician communication about chronic conditions: description of an internet-based nurse E-coach intervention. Nurs Res. 2008;57(2):107–112.
  • Kaplan SH, Greenfield S, Ware JE. Assessing the effects of physician-patient interactions on the outcomes of chronic disease. Med Care. 1989;27(3 Suppl):S110–S127.
  • Besley J, Kayes NM, McPherson KM. Assessing therapeutic relationships in physiotherapy: literature review. N Z J Physiother. 2011;39(2):81–91.
  • Charles C, Gafni A, Whelan T. Decision-making in the physician–patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med. 1999;49(5):651–661.
  • Yetzer EA, Kauffman G, Sopp F, et al. Development of a patient education program for new amputees. Rehabil Nurs. 1994;19(6):355–358.
  • Pantera E, Pourtier-Piotte C, Bensoussan L, et al. Patient education after amputation: systematic review and experts’ opinions. Ann Phys Rehabil Med. 2014;57(3):143–158.
  • Cole-Lewis HJ, Smaldone AM, Davidson PR, et al. Participatory approach to the development of a knowledge base for problem-solving in diabetes self-management. Int J Med Inform. 2016;85(1):96–103.
  • Alatawi YM, Kavookjian J, Ekong G, et al. The association between health beliefs and medication adherence among patients with type 2 diabetes. Res Social Adm Pharm. 2016;12(6):914–925.
  • Tanenbaum ML, Leventhal H, Breland JY, et al. Successful self-management among non-insulin-treated adults with type 2 diabetes: a self-regulation perspective. Diabet Med. 2015;32(11):1504–1512.
  • Simmons L, Baker NJ, Schaefer J, et al. Activation of patients for successful Self-Management. J Ambul Care Manage. 2009;32(1):16–23.
  • Deakin T, McShane CE, Cade JE, Williams RD. Group based training for self-management strategies in people with type 2 diabetes mellitus. Cochrane Database Syst Rev. 2005;(2):CD003417. doi:10.1002/14651858.CD003417.
  • Bracher A, Knechtle B, Gnädinger M, et al. Fluid intake and changes in limb volumes in male ultra-marathoners: does fluid overload lead to peripheral oedema? Eur J Appl Physiol. 2012;112(3):991–1003.
  • Gholizadeh H, Lemaire ED, Eshraghi A. The evidence-base for elevated vacuum in lower limb prosthetics: literature review and professional feedback. Clin Biomech. 2016;37:108–116.
  • Cagle JC, D'Silva KJ, Hafner BJ, et al. Amputee socks: sock thickness changes with normal use. Prosthet Orthot Int. 2016;40(3):329–335.
  • Cagle JC, Yu AJ, Ciol MA, et al. Amputee socks: thickness of multiple socks. Prosthet Orthot Int. 2014;38(5):405–412.
  • Sanders JE, Fatone S. Residual limb volume change: systematic review of measurement and management. J Rehabil Res Dev. 2011;48(8):949–986.
  • Locock L, Brown JB. All in the same boat’? Patient and carer attitudes to peer support and social comparison in motor neurone disease (MND). Soc Sci Med. 2010;71(8):1498–1505.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.