635
Views
0
CrossRef citations to date
0
Altmetric
Perspective in Rehabilitation

Improving communication access in psychoeducational interventions for people with complex communication needs: a scoping review and stakeholder consultation

ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Pages 3388-3406 | Received 08 Mar 2022, Accepted 18 Sep 2022, Published online: 29 Sep 2022

References

  • Australian Institute of Health and Welfare (AIHW). People with disability in Australia: in brief (cat. no. DIS 72). Canberra (ACT): AIHW; 2020.
  • Beukelman D, Mirenda P. Augmentative and alternative communication: supporting children and adults with complex communication needs. 4th ed. Baltimore (MA): Paul H. Brookes Pub.; 2013.
  • Taylor S, Wilson E, Murfitt K, et al. Social exclusion by retailers of people with complex communication needs. J Dev Phys Disabil. 2021;33(6):909–930.
  • Light J, McNaughton D, Beukelman D, et al. Challenges and opportunities in augmentative and alternative communication: research and technology development to enhance communication and participation for individuals with complex communication needs. Augment Altern Commun. 2019;35(1):1–12.
  • Ripat J, Verdonck M, Gacek C, et al. A qualitative metasynthesis of the meaning of speech-generating devices for people with complex communication needs. Augment Altern Commun. 2019;35(2):69–79.
  • Watson E, Raghavendra P, Crocker R. Mental health matters: a pilot study exploring the experiences and perspectives of individuals with complex communication needs. Augment Altern Commun. 2021;37(2):102–112.
  • Collier B, McGhie-Richmond D, Odette F, et al. Reducing the risk of sexual abuse for people who use augmentative and alternative communication. Augment Altern Commun. 2006;22(1):62–75.
  • Johnson H, Yee R. Perceptions of frontline staff to training and communication tools to support adults with intellectual disabilities to report abuse and neglect: “something to work with”. Res Pract Intellect Dev Disabil. 2020;7(1):75–86.
  • Balandin S, Berg N, Waller A. Assessing the loneliness of older people with cerebral palsy. Disabil Rehabil. 2006;28(8):469–479.
  • Petroutsou A, Hassiotis A, Afia A. Loneliness in people with intellectual and developmental disorders across the lifespan: a systematic review of prevalence and interventions. J Appl Res Intellect Disabil. 2018;31(5):643–658.
  • Hagiliassis N, Gulbenkoglu H, Di Marco M, et al. The anger management project: a group intervention for anger in people with physical and multiple disabilities. J Intellect Dev Disabil. 2005;30(2):86–96.
  • Dark L, Balandin S, Clemson L. Communicating about loss: experiences of older Australian adults with cerebral palsy and complex communication needs. Commn Disord Q. 2011;32(3):176–189.
  • Northcott S, Simpson A, Moss B, et al. How do speech-and-language therapists address the psychosocial well-being of people with aphasia? Results of a UK online survey. Int J Lang Commun Disord. 2017;52(3):356–373.
  • Buonaguro EF, Bertelli MO. COVID-19 and intellectual disability/autism spectrum disorder with high and very high support needs: issues of physical and mental vulnerability. Adv Ment Health Intellect Disabil. 2021;15(1):8–19.
  • Rosencrans M, Arango P, Sabat C, et al. The impact of the COVID-19 pandemic on the health, wellbeing, and access to services of people with intellectual and developmental disabilities. Res Dev Disabil. 2021;114:103985.
  • Lake J, Jachyra P, Volpe T, et al. The wellbeing and mental health care experiences of adults with intellectual and developmental disabilities during COVID-19. J Ment Health Res Intellect Disabil. 2021;14(3):285–300.
  • Whittle EL, Fisher KR, Reppermund S, et al. Barriers and enablers to accessing mental health services for people with intellectual disability: a scoping review. J Ment Health Res Intellect Disabil. 2018;11(1):69–102.
  • Holub A, Horne-Moyer L, Abar B. Mental health considerations in developmental disabilities: associated issues, impacts, and solutions. Fam Soc. 2018;99(1):11–15.
  • Brolan CE, Boyle FM, Dean JH, et al. Health advocacy: a vital step in attaining human rights for adults with intellectual disability. J Intellect Disabil Res. 2012;56(11):1087–1097.
  • Donley M, Chan J, Webber L. Disability support workers’ knowledge and education needs about psychotropic medication. Br J Learn Disabil. 2012;40(4):286–291.
  • Rose N, O'Brien A, Rose J. Investigating staff knowledge and attitudes towards working with adults with learning disabilities and mental health difficulties. Adv Ment Health Intellect Disabil. 2007;1(3):52–59.
  • Sarkhel S, Singh OP, Arora M. Clinical practice guidelines for psychoeducation in psychiatric disorders general principles of psychoeducation. Indian J Psychiatry. 2020;62(Suppl. 2):S319–S323.
  • Zhao S, Sampson S, Xia J. Psychoeducation (brief) for people with serious mental illness. Cochrane Database Syst Rev. 2015;(4):CD010823.
  • Brady P, Kangas M, McGill K. “Family matters”: a systematic review of the evidence for family psychoeducation for major depressive disorder. J Marital Fam Ther. 2017;43(2):245–263.
  • Dagnan D, Jackson I, Eastlake L. A systematic review of cognitive behavioural therapy for anxiety in adults with intellectual disabilities. J Intellect Disabil Res. 2018;62(11):974–991.
  • Walklet E, Muse K, Meyrick J, et al. Do psychosocial interventions improve quality of life and wellbeing in adults with neuromuscular disorders? A systematic review and narrative synthesis. J Neuromuscul Dis. 2016;3(3):347–362.
  • Parr S, Pound C, Hewitt A. Communication access to health and social services. Top Lang Disord. 2006;26(3):189–198.
  • Solarsh B, Johnson H. Developing communication access standards to maximize community inclusion for people with communication support needs. Top Lang Disord. 2017;37(1):52–66.
  • Committee on the Rights of Persons with Disabilities. Convention on the rights of persons with disabilities and optional protocol. Geneva (Switzerland): United Nations; 2006.
  • Hemsley B, Balandin S. A metasynthesis of patient-provider communication in hospital for patients with severe communication disabilities: informing new translational research. Augment Altern Commun. 2014;30(4):329–343.
  • Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32.
  • Colquhoun HL, Levac D, O'Brien KK, et al. Scoping reviews: time for clarity in definition, methods, and reporting. J Clin Epidemiol. 2014;67(12):1291–1294.
  • Levac D, Colquhoun HL, O’Brien KK. Scoping studies: advancing the methodology. Implement Sci. 2010;5(1):69.
  • Daudt HM, van Mossel C, Scott S. Enhancing the scoping study methodology: a large, inter-professional team’s experience with Arksey and O’Malley’s framework. BMC Med Res Methodol. 2013;13(1):48.
  • Schlosser RW, Koul R, Costello J. Asking well-built questions for evidence-based practice in augmentative and alternative communication. J Commun Disord. 2007;40(3):225–238.
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.
  • Douds F, McKechanie A, Simpson Y, et al. “Staying well”: a psychoeducational group for people with an intellectual disability, co-morbid mental illness and offending behaviour. J Intellect Disabil Offending Behav. 2014;5(1):54–59.
  • Couchman G, Mcmahon G, Kelly A, et al. A new kind of normal: qualitative accounts of multifamily group therapy for acquired brain injury. Neuropsychol Rehabil. 2014;24(6):809–832.
  • Aoun SM, Chochinov HM, Kristjanson LJ. Dignity therapy for people with motor neuron disease and their family caregivers: a feasibility study. J Palliat Med. 2015;18(1):31–37.
  • Averill AJ, Kasarskis EJ, Segerstrom SC. Expressive disclosure to improve well-being in patients with amyotrophic lateral sclerosis: a randomised, controlled trial. Psychol Health. 2013;28(6):701–713.
  • Boso M, Emanuele E, Minazzi V, et al. Effect of long-term interactive music therapy on behavior profile and musical skills in young adults with severe autism. J Altern Complement Med. 2007;13(7):709–712.
  • Cambridge P. A rights approach to supporting the sexual fetish of a man with learning disability: method, process and applied learning. Br J Learn Disabil. 2013;41(4):259–265.
  • Chapman RA, Shedlack KJ, France J. Stop-Think-Relax: an adapted self-control training strategy for individuals with mental retardation and coexisting psychiatric illness. Cogn Behav Pract. 2006;13(3):205–214.
  • Cravero C, Guinchat V, Barete S, et al. Cornelia de Lange and Ehlers-Danlos: comorbidity of two rare syndromes. BMJ Case Rep. 2016.
  • Crawford JD. Individual psychotherapy with the nonvocal patient: a unique application of communication devices. Rehabil Psychol. 1987;32(2):93–98.
  • Crowley V, Rose J, Smith J, et al. Psycho-educational groups for people with a dual diagnosis of psychosis and mild intellectual disability: a preliminary study. J Intellect Disabil. 2008;12(1):25–39.
  • Douglass S, Palmer K, O'Connor C. Experiences of running an anxiety management group for people with a learning disability using a cognitive behavioral intervention. Br J Learn Disabil. 2007;35(4):245–252.
  • Fernando K, Medlicott L. My shield will protect me against the ANTS: treatment of PTSD in a client with an intellectual disability. J Intellect Dev Disabil. 2009;34(2):187–192.
  • Hsieh M-Y, Ponsford J, Wong D, et al. A cognitive behaviour therapy programme for anxiety following moderate-severe traumatic brain injury: two case studies. Brain Inj. 2012;26(2):126–138.
  • Kay JJ, Clegg JA, Emck C, et al. The feasibility of psychomotor therapy in acute mental health services for adults with intellectual disability. J Intellect Dev Disabil. 2016;41(1):54–60.
  • Kreutzer JS, Marwitz JH, Sima AP, et al. Efficacy of the resilience and adjustment intervention after traumatic brain injury: a randomized controlled trial. Brain Inj. 2018;32(8):963–971.
  • Magai C, Cohen CI, Gomberg D. Impact of training dementia caregivers in sensitivity to nonverbal emotion signals. Int Psychogeriatr. 2002;14(1):25–38.
  • McClean B, Grey IM, McCracken M. An evaluation of positive behavioural support for people with very severe challenging behaviours in community-based settings. J Intellect Disabil. 2007;11(3):281–301.
  • Palmieri A, Kleinbub JR, Calvo V, et al. Efficacy of hypnosis-based treatment in amyotrophic lateral sclerosis: a pilot study. Front Psychol. 2012;3:465.
  • Summers SJ, Witts P. Psychological intervention for people with learning disabilities who have experienced bereavement: a case study illustration. Br J Learn Disabil. 2003;31(1):37–41.
  • Walker AJ, Nott MT, Doyle M, et al. Brain injury effectiveness of a group anger management programme after severe traumatic brain injury effectiveness of a group anger management programme after severe traumatic brain injury. Brain Inj. 2010;24(3):517–524.
  • Wark S. Counselling support for people with intellectual disabilities: the use of narrative therapy. Aust J Rehabil Couns. 2012;18(1):37–49.
  • Webber L, Harkness T. Supporting people with high complex needs in the disability sector. InPsych [Internet]; 2016 [cited 2022 Feb 25]; highlights [about 5 screens]. Available from https://psychology.org.au/inpsych/2016/june/webber
  • Willner P. Brief cognitive therapy of nightmares and post-traumatic ruminations in a man with a learning dis. Br J Clin Psychol. 2004;43(Pt 4):459–464.
  • Neale J, Parkman T, Strang J. Challenges in delivering personalised support to people with multiple and complex needs: qualitative study. J Interprof Care. 2019;33(6):734–743.
  • Rillotta F, Alexander J. Roles and responsibilities of developmental educators: disability professionals supporting Australians with disability. Int J Disabil Dev Educ. 2020.
  • SA Health. Mental health services plan 2020–2025 (FIS: 19032.2). Adelaide (Australia): Department of Health and Wellbeing, Government of South Australia; 2019.
  • Ivey A, Ivey M, Zalaquett C. Chapter 5. Questions: opening communication. In: Intentional interviewing and counseling: facilitation client development in a multicultural society. 8th ed. Belmont (CA): Cengage Learning; 2014. p. 117–137.
  • Hagiliassis N, Di Marco M, Gulbenkoglu H, et al. Beyond speech alone: guidelines for practitioners providing counselling services to clients with disabilities and complex communication needs. Melbourne (Australia): Scope Vic. Ltd. & Centre for Developmental Disability Victoria Health; 2006.
  • Pennington L, Marshall J, Goldbart J. Describing participants in AAC research and their communicative environments: guidelines for research and practice. Disabil Rehabil. 2007;29(7):521–535.
  • Marshall J, Goldbart J, Pickstone C, et al. Application of systematic reviews in speech-and-language therapy. Int J Lang Commun Disord. 2011;46(3):261–272.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.