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Perspectives in Rehabilitation

Patient engagement as a core element of translating clinical evidence into practice- application of the COM-B model behaviour change model

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Pages 4517-4526 | Received 01 Mar 2022, Accepted 27 Nov 2022, Published online: 08 Dec 2022

References

  • Australia’s health 2018. Australia’s health series no. 16. AUS 221 [Internet]. Canberra: AIHW; 2018.
  • OECD. Health at a Glance 2019; OECD indicators. Paris: OECD Publishing; 2019.
  • Moses H, 3rd, Matheson DH, Dorsey ER, et al. The anatomy of health care in the United States. JAMA. 2013;310(18):1947–1963.
  • Arredondo A, Aviles R. Costs and epidemiological changes of chronic diseases: implications and challenges for health systems. PLoS One. 2015;10(3):e0118611.
  • Chapel JM, Ritchey MD, Zhang D, et al. Prevalence and medical costs of chronic diseases among adult medicaid beneficiaries. Am J Prev Med. 2017;53(6s2):S143–s154.
  • Richard P, Walker R, Alexandre P. The burden of out of pocket costs and medical debt faced by households with chronic health conditions in the United States. PLoS One. 2018;13(6):e0199598.
  • Fraser I, Encinosa W, Glied S. Improving efficiency and value in health care: introduction. Health Serv Res. 2008;43(5 Pt 2):1781–1786.
  • Rowe AK, Rowe SY, Peters DH, et al. Effectiveness of strategies to improve health-care provider practices in low-income and Middle-income countries: a systematic review. Lancet Glob Health. 2018;6(11):e1163–e1175.
  • Grimshaw J, Eccles M, Lavis J, et al. Knowledge translation of research findings. Implement Sci. 2012;7(1):50.
  • Urquhart R, Cornelissen E, Lal S, et al. Trainees’ self-reported challenges in knowledge translation practice and research. BMC Health Serv Res. 2014;14(S2):P129–P129.
  • Heneghan C, Goldacre B, Mahtani KR. Why clinical trial outcomes fail to translate into benefits for patients. Trials. 2017;18(1):122.
  • Suárez-Gonzalo L, Catalá-López F. Knowledge translation strategies to improve health care. Medicina Clínica. 2018;151(6):239–241.
  • Mercieca-Bebber R, King MT, Calvert MJ, et al. The importance of patient-reported outcomes in clinical trials and strategies for future optimization. Patient Relat Outcome Meas. 2018;9:353–367.
  • Cruz Rivera S, Kyte DG, Aiyegbusi OL, et al. The impact of patient-reported outcome (PRO) data from clinical trials: a systematic review and critical analysis. Health Qual Life Outcomes. 2019;17(1):156.
  • Bull C, Byrnes J, Hettiarachchi R, et al. A systematic review of the validity and reliability of patient-reported experience measures. Health Serv Res. 2019;54(5):1023–1035.
  • Hyde AJ, May BH, Xue CC, et al. Variation in placebo effect sizes in clinical trials of oral interventions for management of the behavioral and psychological symptoms of dementia (BPSD): a systematic review and meta-analysis. Am J Geriatr Psychiatry. 2017;25(9):994–1008.
  • Rosenberg PB, Drye LT, Porsteinsson AP, et al. Change in agitation in Alzheimer’s disease in the placebo arm of a nine-week controlled trial. Int Psychogeriatr. 2015;27(12):2059–2067.
  • Kaptchuk TJ, Kelley JM, Conboy LA, et al. Components of placebo effect: randomised controlled trial in patients with irritable bowel syndrome. BMJ. 2008;336(7651):999–1003.
  • Kovacs Burns K, Bellows M, Eigenseher C, et al. Practical’ resources to support patient and family engagement in healthcare decisions: a scoping review. BMC Health Serv Res. 2014;14:175.
  • Krist AH, Tong ST, Aycock RA, et al. Engaging patients in decision-making and behavior change to promote prevention. Stud Health Technol Inform. 2017;240:284–302.
  • Price A, Albarqouni L, Kirkpatrick J, et al. Patient and public involvement in the design of clinical trials: an overview of systematic reviews. J Eval Clin Pract. 2018;24(1):240–253.
  • Lacombe D, O’Morain C, Casadei B, et al. Moving forward from drug-centred to patient-centred research: a white paper initiated by EORTC and developed together with the BioMed alliance members. Eur Respir J. 2019;53(2):1801870.
  • Ross S, Grant A, Counsell C, et al. Barriers to participation in randomised controlled trials: a systematic review. J Clin Epidemiol. 1999;52(12):1143–1156.
  • Nappo SA, Iafrate GB, Sanchez ZM. Motives for participating in a clinical research trial: a pilot study in Brazil. BMC Public Health. 2013;13:19–19.
  • Soule MC, Beale EE, Suarez L, et al. Understanding motivations to participate in an observational research study: Why do patients Enroll? Social Work in Health Care. 2016;55(3):231–246.
  • Stunkel L, Grady C. More than the money: a review of the literature examining healthy volunteer motivations. Contemp Clin Trials. 2011;32(3):342–352.
  • Jacobs ML, Brindis DC, Hughes ED, et al. Measuring consumer engagement: a review of tools and findings. J Healthc Qual. 2018;40(3):139–146.
  • Graffigna G, Barello S, Libreri C, et al. How to engage type-2 diabetic patients in their own health management: implications for clinical practice. BMC Public Health. 2014;14:648.
  • Graffigna G, Barello S. Spotlight on the patient health engagement model (PHE model): a psychosocial theory to understand people’s meaningful engagement in their own health care. Patient Prefer Adherence. 2018;12:1261–1271.
  • Domecq JP, Prutsky G, Elraiyah T, et al. Patient engagement in research: a systematic review. BMC Health Serv Res. 2014;14:89.
  • Forsythe LP, Carman KL, Szydlowski V, et al. Patient engagement in research: early findings from the patient-centered outcomes research institute. Health Aff. 2019;38(3):359–367.
  • Campbell M, Fitzpatrick R, Haines A, et al. Framework for design and evaluation of complex interventions to improve health. BMJ. 2000;321(7262):694–696.
  • Craig P, Dieppe P, Macintyre S, et al. Developing and evaluating complex interventions: the new medical research council guidance. BMJ. 2008;337:a1655.
  • Skivington K, Matthews L, Simpson SA, et al. A new framework for developing and evaluating complex interventions: update of medical research council guidance. BMJ. 2021;374:n2061.
  • Quilty B, Tucker M, Campbell R, et al. Physiotherapy, including quadriceps exercises and patellar taping, for knee osteoarthritis with predominant patello-femoral joint involvement: randomized controlled trial. J Rheumatol. 2003;30(6):1311–1317.
  • Kruizinga MD, Stuurman FE, Groeneveld GJ, et al. The future of clinical trial design: the transition from hard endpoints to Value-Based endpoints. Handb Exp Pharmacol. 2019;260:371–397.
  • Campbell R, Evans M, Tucker M, et al. Why don’t patients do their exercises? Understanding non-compliance with physiotherapy in patients with osteoarthritis of the knee. J Epidemiol Community Health. 2001;55(2):132–138.
  • Bachmann C, Oesch P, Bachmann S. Recommendations for improving adherence to Home-Based exercise: a systematic review. Phys Med Rehab Kuror. 2018;28(01):20–31.
  • Bright FA, Kayes NM, Worrall L, et al. A conceptual review of engagement in healthcare and rehabilitation. Disabil Rehabil. 2015;37(8):643–654.
  • Fenton JJ, Jerant AF, Bertakis KD, et al. The cost of satisfaction: a national study of patient satisfaction, health care utilization, expenditures, and mortality. Arch Intern Med. 2012;172(5):405–411.
  • Hibbard JH, Greene J. What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs. Health Aff. 2013;32(2):207–214.
  • Higgins T, Larson E, Schnall R. Unraveling the meaning of patient engagement: a concept analysis. Patient Educ Couns. 2017;100(1):30–36.
  • Michie S, Johnston M. Behavior change techniques. In: Gellman MD, Turner JR, editors. Encyclopedia of behavioral medicine. New York, NY: Springer New York; 2013. p. 182–187.
  • Michie S, van Stralen MM, West R. The behaviour change wheel: a new method for characterising and designing behaviour change interventions. Implement Sci. 2011;6:42.
  • Morris RL, Hill KD, Ackerman IN, et al. A mixed methods process evaluation of a person-centred falls prevention program. BMC Health Serv Res. 2019;19(1):906.
  • Simmons LA, Wolever RQ, Bechard EM, et al. Patient engagement as a risk factor in personalized health care: a systematic review of the literature on chronic disease. Genome Med. 2014;6(2):16.
  • Hibbard JH. Patient activation and the use of information to support informed health decisions. Patient Educ Couns. 2017;100(1):5–7.
  • Agency for Clinical Innovation. Patient Experience and Consumer Engagement: A Framework for Action; 2015.
  • Batterham R, Osborne R, Mcphee C, et al. Consumer enablement: an Evidence Check rapid review brokered by the Sax Institute (www.saxinstitute.org.au) for the Agency for Clinical Innovation www.saxinstitute.org.au. 2016. Available from. https://www.saxinstitute.org.au/publications/consumer-enablement/.
  • Moore AP, Rivas CA, Stanton-Fay S, et al. Designing the healthy eating and active lifestyles for diabetes (HEAL-D) self-management and support programme for UK African and caribbean communities: a culturally tailored, complex intervention under-pinned by behaviour change theory. BMC Public Health. 2019;19(1):1146.
  • Zheng Z, Gibson S, Helme RD, et al. Effects of electroacupuncture on opioid consumption in patients with chronic musculoskeletal pain: a multicenter randomized controlled trial. Pain Med. 2019;20(2):397–410.
  • Muhwava LS, Murphy K, Zarowsky C, et al. Experiences of lifestyle change among women with gestational diabetes mellitus (GDM): a behavioural diagnosis using the COM-B model in a low-income setting. PLoS One. 2019;14(11):e0225431.
  • Zheng Z, Paterson C, Ledgerwood K, et al. Chaos to hope: a narrative of healing. Pain Med. 2013;14(12):1826–1838.
  • Johnston KN, Young M, Grimmer KA, et al. Barriers to, and facilitators for, referral to pulmonary rehabilitation in COPD patients from the perspective of Australian general practitioners: a qualitative study. Prim Care Respir J. 2013;22(3):319–324.
  • Omachi TA, Sarkar U, Yelin EH, et al. Lower health literacy is associated with poorer health status and outcomes in chronic obstructive pulmonary disease. J Gen Intern Med. 2013;28(1):74–81.
  • Collado-Mateo D, Lavín-Pérez AM, Peñacoba C, et al. Key factors associated with adherence to physical exercise in patients with chronic diseases and older adults: an umbrella review. Int J Environ Res Public Health. 2021;18(4):2023.
  • Smith K, Lang C, Wingham J, et al. Process evaluation of a randomised pilot trial of home-based rehabilitation compared to usual care in patients with heart failure with preserved ejection fraction and their caregiver’s. Pilot Feasibility Stud. 2021;7(1):11.
  • Christakou A, Lavallee D. Rehabilitation from sports injuries: from theory to practice. Perspect Public Health. 2009;129(3):120–126.
  • McNamara RJ, Dale M, McKeough ZJ. Innovative strategies to improve the reach and engagement in pulmonary rehabilitation. J Thorac Dis. 2019;11(Suppl 17):S2192–s2199.
  • Lee WW, Choi KC, Yum RW, et al. Effectiveness of motivational interviewing on lifestyle modification and health outcomes of clients at risk or diagnosed with cardiovascular diseases: a systematic review. Int J Nurs Stud. 2016;53:331–341.
  • Skolasky RL, Mackenzie EJ, Wegener ST, et al. Patient activation and adherence to physical therapy in persons undergoing spine surgery. Spine. 2008;33(21):E784–91.
  • Skolasky RL, Maggard AM, Li D, et al. Health behavior change counseling in surgery for degenerative lumbar spinal stenosis. Part I: improvement in rehabilitation engagement and functional outcomes. Arch Phys Med Rehabil. 2015;96(7):1200–1207.
  • Ormel HL, van der Schoot GGF, Sluiter WJ, et al. Predictors of adherence to exercise interventions during and after cancer treatment: a systematic review. Psychooncology. 2018;27(3):713–724.
  • Rhodes RE, Fiala B. Building motivation and sustainability into the prescription and recommendations for physical activity and exercise therapy: the evidence. Physiother Theory Pract. 2009;25(5–6):424–441.
  • Boxall AM, Barclay L, Sayers A, et al. Managing chronic obstructive pulmonary disease in the community: a randomized controlled trial of home-based pulmonary rehabilitation for elderly housebound patients. J Cardiopulm Rehabil. 2005;25(6):378–385.
  • Holland AE, Mahal A, Hill CJ, et al. Home-based rehabilitation for COPD using minimal resources: a randomised, controlled equivalence trial. Thorax. 2017;72(1):57–65.
  • Nolan CM, Kaliaraju D, Jones SE, et al. Home versus outpatient pulmonary rehabilitation in COPD: a propensity-matched cohort study. Thorax. 2019;74(10):996–998.
  • Lahham A, McDonald CF, Mahal A, et al. Home-based pulmonary rehabilitation for people with COPD: a qualitative study reporting the patient perspective. Chron Respir Dis. 2018;15(2):123–130.
  • Jack K, McLean SM, Moffett JK, et al. Barriers to treatment adherence in physiotherapy outpatient clinics: a systematic review. Man Ther. 2010;15(3):220–228.
  • Alfonsson S, Olsson E, Hursti T. Motivation and treatment credibility predicts dropout, treatment adherence, and clinical outcomes in an Internet-Based cognitive behavioral relaxation program: a randomized controlled trial. J Med Internet Res. 2016;18(3):e52.
  • Karyotaki E, Kleiboer A, Smit F, et al. Predictors of treatment dropout in self-guided web-based interventions for depression: an ‘individual patient data’ meta-analysis. Psychol Med. 2015;45(13):2717–2726.
  • Teo JL, Zheng Z, Bird SR. Identifying the factors affecting ‘patient engagement’ in exercise rehabilitation. BMC Sports Sci Med Rehabil. 2022;14(1):18.
  • Health P. Experience based co-design: a toolkit for Australia; 2017. Available from https://ahha.asn.au/experience-based-co-design-toolkit.
  • Williams S, Turner AM, Beadle H. Experience-based co-design to improve a pulmonary rehabilitation programme. Int J Health Care Qual Assur. 2019;32(5):778–787.

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