158
Views
0
CrossRef citations to date
0
Altmetric
Assessment Procedures

Measuring global activity performance in children with cerebral palsy in West Africa: validation of an adapted version of the ACTIVLIM-CP questionnaire

ORCID Icon, , , &
Pages 170-179 | Received 18 Oct 2021, Accepted 26 Nov 2022, Published online: 10 Dec 2022

References

  • Kakooza-Mwesige A, Andrews C, Peterson S, et al. Prevalence of cerebral palsy in Uganda: a population-based study. Lancet Glob Health. 2017;5(12):e1275–e1282.
  • Duke R, Torty C, Nwachukwu K, et al. Clinical features and aetiology of cerebral palsy in children from Cross River state, Nigeria. Arch Dis Child. 2020;105(7):625–630.
  • Donald KA, Kakooza AM, Wammanda RD, et al. Pediatric cerebral palsy in Africa: where are we? J Child Neurol. 2015;30(8):963–971.
  • Wright FV, Majnemer A. The concept of a toolbox of outcome measures for children with cerebral palsy: why, what, and how to use? J Child Neurol. 2014;29(8):1055–1065.
  • Novak I, McIntyre S, Morgan C, et al. A systematic review of interventions for children with cerebral palsy: state of the evidence. Dev Med Child Neurol. 2013;55(10):885–910.
  • Sogbossi ES, Sotindjo Adon S, Adjagodo L, et al. Efficacy of hand-arm bimanual intensive therapy including lower extremities (HABIT-ILE) in young children with bilateral cerebral palsy (GMFCS III-IV) in a low and middle-income country: protocol of a randomised controlled trial. BMJ Open. 2021;11(10):e050958.
  • Sogbossi ES, Houekpetodji D, Kpadonou TG, et al. Mothers’ perception of cerebral palsy in a low-income country of west africa: a cross-sectional study. Disabil Rehabil. 2021 May;15:1–8.
  • WHO. The international classification of functioning, disability and health, children and youth version: ICF-CY. Geneva: WHO; 2007.
  • Arnould C, Penta M, Renders A, et al. ABILHAND-Kids: a measure of manual ability in children with cerebral palsy. Neurology. 2004;63(6):1045–1052.
  • Bleyenheuft Y, Paradis J, Renders A, et al. ACTIVLIM-CP a new Rasch-built measure of global activity performance for children with cerebral palsy. Res Dev Disabil. 2017;60:285–294.
  • Vandervelde L, Van den Bergh PY, Goemans N, et al. ACTIVLIM: a Rasch-built measure of activity limitations in children and adults with neuromuscular disorders. Neuromuscul Disord. 2007;17(6):459–469.
  • Batcho CS, Tennant A, Thonnard JL. ACTIVLIM-Stroke: a crosscultural Rasch-built scale of activity limitations in patients with stroke. Stroke. 2012;43(3):815–823.
  • Paradis J, Arnould C, Thonnard JL, et al. Responsiveness of the ACTIVLIM-CP questionnaire: measuring global activity performance in children with cerebral palsy. Dev Med Child Neurol. 2018;60(11):1178–1185.
  • Beaton DE, Bombardier C, Guillemin F, et al. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 2000;25(24):3186–3191.
  • Sogbossi ES, Thonnard JL, Batcho CS. Assessing locomotion ability in west african stroke patients: validation of ABILOCO-Benin scale. Arch Phys Med Rehabil. 2014;95(8):1470–1476.e3.
  • Kakooza-Mwesige A, Tumwine JK, Forssberg H, et al. The Uganda version of the pediatric evaluation of disability inventory (PEDI). part I: cross-cultural adaptation. Child Care Health Dev. 2018;44(4):552–561.
  • Hasiuk MB, Arnould C, Kushnir AD, et al. Cross-cultural adaptation and validation of the Ukrainian version of the ABILHAND-Kids questionnaire. Disabil Rehabil. 2021;43(4):576–585.
  • Niama Natta DD, Batcho CS, Stoquart GG, et al. Evaluation of manual ability in stroke patients in Benin: cultural adaptation and Rasch validation of the ABILHAND-Stroke questionnaire. Eur J Phys Rehabil Med. 2019;55(1):19–28.
  • Paradis J, Arnould C, Bleyenheuft Y. Normative values and discriminative ability across functional levels of ACTIVLIM-CP, a measure of global activity performance for children with cerebral palsy. Disabil Rehabil. 2020;42(19):2790–2796.
  • Caty GD, Arnould C, Thonnard JL, et al. ABILOCO-Kids: a Rasch-built 10-item questionnaire for assessing locomotion ability in children with cerebral palsy. J Rehabil Med. 2008;40(10):823–830.
  • Bleyenheuft Y, Gordon AM, Rameckers E, et al. Measuring changes of manual ability with ABILHAND-Kids following intensive training for children with unilateral cerebral palsy. Dev Med Child Neurol. 2017;59(5):505–511.
  • Palisano RJ, Rosenbaum P, Bartlett D, et al. Content validity of the expanded and revised gross motor function classification system. Dev Med Child Neurol. 2008;50(10):744–750.
  • Eliasson A-C, Krumlinde-Sundholm L, Rösblad B, et al. The manual ability classification system (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol. 2006;48(7):549–554.
  • Araneda R, Ebner-Karestinos D, Paradis J, et al. Reliability and responsiveness of the Jebsen-Taylor test of hand function and the box and block test for children with cerebral palsy. Dev Med Child Neurol. 2019;61(10):1182–1188.
  • McDowell BC, Kerr C, Parkes J, et al. Validity of a 1 minute walk test for children with cerebral palsy. Dev Med Child Neurol. 2005;47(11):744–748.
  • Williams EN, Carroll SG, Reddihough DS, et al. Investigation of the timed 'up & go’ test in children. Dev Med Child Neurol. 2005;47(8):518–524. 2005/08//
  • Arnould C, Vandervelde L, Batcho CS, et al. Can manual ability be measured with a generic ABILHAND scale? A cross-sectional study conducted on six diagnostic groups. BMJ Open. 2012;2(6):e001807.
  • Andrich D, Marais I. A course in Rasch measurement theory. Measuring in the educational, social and health sciences. Cham: Springer; 2019. p. 41–53.
  • Tennant A, Conaghan PG. The Rasch measurement model in rheumatology: what is it and why use it? When should it be applied, and what should one look for in a Rasch paper? Arthritis Rheum. 2007;57(8):1358–1362.
  • Wright B. Model selection: rating scale or partial credit. Rasch Measurement Transactions. 1999;12(3):641–642.
  • Andrich D, Sheridan B, Luo G. Interpreting RUMM2020: part II. Polytomous data. 3rd ed. Perth (WA): RUMM Laboratory Pty Ltd.; 2005.
  • Terwee CB, Bot SD, de Boer MR, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60(1):34–42.
  • Penta M, Arnould C, Decruynaere C. Développer et interpréter une échelle de mesure: applications du modèle de Rasch. Brussels: Editions Mardaga; 2005.
  • Fisher WP, Jr Elbaum B, Coulter A. Reliability, precision, and measurement in the context of data from ability tests, surveys, and assessments. J Phys: conf Ser. 2010;238:012036. editors IOP Publishing.
  • Linacre J. Sample size and item calibration stability. Rasch Mes Trans. 1994;7:328.
  • Sogbossi ES, Houekpetodji D, Kpadonou TG, et al. A cross-sectional study of the clinical profile of children with cerebral palsy in Benin, a west african low-income country. J Child Neurol. 2019;34(13):842–850.
  • Wright B. Local dependency, correlations and principal components. Rasch Measurement Transactions. 1996;10(3):509–511.
  • Haley SM. Pediatric evaluation of disability inventory (PEDI): version 1.0: development, standardization and administration manual. Boston (MA): New England Medical Center Hospital; 1992.
  • Arnould C, Penta M, Thonnard JL. Hand impairments and their relationship with manual ability in children with cerebral palsy. J Rehabil Med. 2007;39(9):708–714.
  • Vandervelde L, Van den Bergh PY, Renders A, et al. Relationships between motor impairments and activity limitations in patients with neuromuscular disorders. J Neurol Neurosurg Psychiatry. 2009;80(3):326–332.
  • Arnould C, Bleyenheuft Y, Thonnard JL. Hand functioning in children with cerebral palsy. Front Neurol. 2014;5:48.
  • Sogbossi ES, Kakpossa C, Niama-Natta DD, et al. Comparison between self-reported and observed locomotion ability scores in patients with stroke: a cross-sectional study. Int J Rehabil Res. 2018;41(4):358–363.
  • Tennant A, Badley E, Sullivan M. Investigating the proxy effect and the saliency principle in household based postal questionnaires. J Epidemiol Community Health. 1991;45(4):312–316.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.