1,309
Views
0
CrossRef citations to date
0
Altmetric
Research Articles

Sexual function and sexual satisfaction following spinal cord injury: an interpretative phenomenological analysis of partner experiences

ORCID Icon, ORCID Icon & ORCID Icon
Pages 86-95 | Received 01 May 2022, Accepted 25 Nov 2022, Published online: 28 Dec 2022

References

  • World Health Organization. World health statistics 2018: monitoring health for the SDGs. 2018. [Online]. http://apps.who.int/iris/bitstream/handle/10665/272596/9789241565585-eng.pdf?ua=1
  • Hess J, Hough S. Impact of spinal cord injury on sexuality: broad-based clinical practice intervention and practical application. J Spinal Cord Med. 2012;35(4):211–218.
  • Chan RC, Lee PW, Lieh-Mak F. Coping with spinal cord injury: personal and marital adjustment in the Hong Kong chinese setting. Spinal Cord. 2000;38(11):687–696.
  • Earle S, O’Dell L, Davies A, et al. Views and experiences of sex, sexuality and relationships following spinal cord injury: a systematic review and narrative synthesis of the qualitative literature. Sex Disabil. 2020;38(4):567–595.
  • Fritz HA, Dillaway H, Lysack CL. Don’t think paralysis takes away your womanhood: sexual intimacy after spinal cord injury. Am. J. Occup. Ther. 2015;69(2):10.
  • Dickson A, O'Brien G, Ward R, et al. The impact of assuming the primary caregiver role following traumatic spinal cord injury: an interpretative phenomenological analysis of the spouse’s experience. Psychol Health. 2010;25(9):1101–1120.
  • Ledbetter AM, Carr K, Lynn G. When a romantic partner has a spinal cord injury: caregiving tasks and resilience as moderators of support quality on psychosocial distress and relational closeness. J. Soc. Pers. Relatsh. 2020;37(8-9):2551–2577.
  • Angel S, Buus N. The experience of being a partner to a spinal cord injured person: a phenomenological-hermeneutic study. Int J Qual Stud Health Well-Being. 2011;6(4).
  • Reitz A, Tobe V, Knapp PA, et al. Impact of spinal cord injury on sexual health and quality of life. Int J Impot Res. 2004;16(2):167–174.
  • Phelps J, Albo M, Dunn K, et al. Spinal cord injury and sexuality in married or partnered men: activities, function, needs, and predictors of sexual adjustment. Arch Sex Behav. 2001;30(6):591–602.
  • Kreuter M, Sullivan M, Siösteen A. Sexual adjustment after spinal cord injury (SCI) focusing on partner experiences. Spinal Cord. 1994;32(4):225–235.
  • Fisher TL, Laud PW, Byfield MG, et al. Sexual health after spinal cord injury: a longitudinal study. Arch Phys Med Rehabil. 2002;83(8):1043–1051.
  • New PW, Seddon M, Redpath C, et al. Recommendations for spinal rehabilitation professionals regarding sexual education needs and preferences of people with spinal cord dysfunction: a mixed-methods study. Spinal Cord. 2016;54(12):1203–1209.
  • Smith JA. Reflecting on the development of interpretative phenomenological analysis and its contribution to qualitative research in psychology. Qual Res Psychol. 2004;1(1):39–54.
  • Smith JA, Osborn M. Interpretative phenomenological analysis as a useful methodology for research on the lived experience of pain. Br J Pain. 2015;9(1):41–42.
  • Smith JA, Flowers P, Larkin M. Interpretative phenomenological analysis: theory, method and research. 2nd ed. London: Thousand Oaks: SAGE Publications Ltd; 2021.
  • Allen R, Wiles J. A rose by any other name: participants choosing research pseudonyms. Qual Res Psychol. 2015;13:1–17.
  • Barrett OEC, Mattacola E, Finlay KA. “You feel a bit unsexy sometimes”: the psychosocial impact of a spinal cord injury on sexual function and sexual satisfaction. Spinal Cord. 2022;10:1–6.
  • Barrett OEC, Ho AK, Finlay KA. Supporting sexual functioning and satisfaction during rehabilitation after spinal cord injury: barriers and facilitators identified by healthcare professionals. JRM. 2022;54:jrm00298.
  • Meier A, Allen G. Intimate relationship development during the transition to adulthood: differences by social class. N Directions Child Adolescent Devel. 2008;2008(119):25–39.
  • Jeyathevan G, Cameron JI, Craven BC, et al. Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients. BMC Neurol. 2019;19(1):117.
  • Elliott S, Jeyathevan G, Hocaloski S, et al. Conception and development of sexual health indicators to advance the quality of spinal cord injury rehabilitation: SCI-High project. J Spinal Cord Med. 2019;42(sup1):68–84.
  • Alexander MS, Aisen CM, Alexander SM, et al. Sexual concerns after spinal cord injury: an update on management. Neuro Rehabilitation. 2017;41(2):343–357.
  • Pietkiewicz I, Smith J. A practical guide to using interpretative phenomenological analysis in qualitative research psychology. CPPJ. 2014;20:7–14.
  • Hammell KW. Spinal cord injury rehabilitation. Dordrecht (Netherlands): Springer; 2013.
  • Elliott S, Hocaloski S, Carlson M. A multidisciplinary approach to sexual and fertility rehabilitation: the sexual rehabilitation framework. Top Spinal Cord Inj Rehabil. 2017;23(1):49–56.
  • Rabchevsky AG, Kitzman PH. Latest approaches for the treatment of spasticity and autonomic dysreflexia in chronic spinal cord injury. Neurotherapeutics. 2011;8(2):274–282.
  • Nas K, Yazmalar L, Şah V, et al. Rehabilitation of spinal cord injuries. World J Orthop. 2015;6(1):8–16.
  • Isaksson G, Josephsson S, Lexell J, et al. Men’s experiences of giving and taking social support after their wife’s spinal cord injury. Scand J Occup Ther. 2008;15(4):236–246.
  • Mattioli D, Walters L, Cannon EJ. Focusing on the caregiver: compassion fatigue awareness and understanding. MedSurg Nursing. 2018;27(5):323–329.
  • Karp D. The burden of sympathy: how families cope with mental illness. Oxford (UK): Oxford University Press; 2000.
  • Kraft R, Dorstyn D. Psychosocial correlates of depression following spinal injury: a systematic review. J Spinal Cord Med. 2015;38(5):571–583.
  • Milligan MS, Neufeldt AH. Postinjury marriage to men with spinal cord injuries: women’s perspectives on making a commitment. Sex Disability. 1998;16(2):117–132.
  • DeSanto-Madeya S. Adaptation to spinal cord injury for families post-injury. Nurs Sci Q. 2009;22(1):57–66.
  • Esmail S, Esmail Y, Munro B. Sexuality and disability: the role of health care professionals in providing options and alternatives for couples. Sex Disability. 2001;19(4):267–282.