Experiences of postmenopausal osteoporosis: a narrative review

References

• Kanis JA, McCloskey EV, Johansson H, et al. European guidance for the diagnosis and management of osteoporosis in postmenopausal women. Osteoporos Int. 2013;24(1):23–57.
   PubMed Web of Science ®Google Scholar
• Reginster JY, Burlet N. Osteoporosis: a still increasing prevalence. Bone. 2006;38(2 Suppl 1)(Suppl 1):S4–S9.
   PubMed Web of Science ®Google Scholar
• Peck WA. Consensus development conference: diagnosis, prophylaxis and treatment of osteoporosis. Am J Med. 1993;94(6):646–650.
   PubMed Web of Science ®Google Scholar
• National Library of Medicine. Osteoporosis: assessing the risk of fragility fracture. London: National Institute for Health and Care Excellence (NICE); 2017 (NICE Clinical Guidelines, No. 146) Available from: https://www.ncbi.nlm.nih.gov/books/NBK554920/
   Google Scholar
• Sambrook P, Cooper C. Osteoporosis. Lancet. 2006;367(9527):2010–2018.
   PubMed Web of Science ®Google Scholar
• Dai H, Jia G, Liu K. Health-related quality of life and related factors among elderly people in Jinzhou, China: a cross sectional study. J Public Health. 2015;129(6):667–673.
   Google Scholar
• Cortet B, Blotman F, Debiais F, et al. Management of osteoporosis and associated quality of life in postmenopausal women. BMC Musculoskelet Disord. 2011;12(7):7.
   PubMedGoogle Scholar
• O’Neill TW. Looking back: developments in our understanding of the occurrence, aetiology and prognosis of osteoporosis over the last 50 years. Rheumatology (Oxford). 2005;44(4)(Suppl 4):iv33–iv35.
   PubMedGoogle Scholar
• Center JR, Nguyen TV, Schneider D, et al. Mortality after all major types of osteoporotic fracture in men and women: an observational study. Lancet. 1999;353(9156):878–882.
   PubMed Web of Science ®Google Scholar
• Scaf-Klomp W, van Sonderen E, Sanderman R, et al. Recovery of physical function after limb injuries in independent older people living at home. Age Ageing. 2001;30(3):213–219.
   PubMed Web of Science ®Google Scholar
• Nguyen TV, Sambrook PN, Kelly PJ, et al. Prediction of osteoporotic fractures bypostural instability and bone density. BMJ. 1993;307(6912):1111–1115.
   PubMedGoogle Scholar
• Gold DT, Shipp KM, Lyles KW. Managing patients with complications of osteoporosis. Endocrinol Metab Clin North Am. 1998;27(2):485–496.
   PubMed Web of Science ®Google Scholar
• McIntosh I, Wright S. Exploring what the notion of ‘lived experience’ offers for social policy analysis. J Soc Policy. 2019;48(3):449–467.
   Web of Science ®Google Scholar
• Green BN, Johnson CD, Adams A. Writing narrative literature reviews for peer-reviewed journals: secrets of the trade. J Chiropr Med. 2006;5(3):101–117.
   PubMed Web of Science ®Google Scholar
• Moher D, Liberati A, Tetzlaff J, et al. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009;6(7):e1000097.
   PubMed Web of Science ®Google Scholar
• Lockwood C, Porrit K, Munn Z, et al. Chapter 2: Systematic reviews of qualitative evidence. JBI, JBI Rev Manual. Adelaide: 2017.
   Google Scholar
• Hannes K, Lockwood C, Pearson A. A comparative analysis of three online appraisal instruments’ ability to assess validity in qualitative research. Qual Health Res. 2010;20(12):1736–1743.
   PubMed Web of Science ®Google Scholar
• Lincoln YS, Guba E. Naturalistic inquiry. Beverly Hills, CA: SAGE; 1985.
   Google Scholar
• Munn Z, Porritt K, Lockwood C, et al. Establishing confidence in the output of qualitative research synthesis: the ConQual approach. BMC Med Res Methodol. 2014;14(1):1–7.
   PubMedGoogle Scholar
• Klopper R, Lubbe S, Rugbeer H. The matrix method of literature review. Alternation. 2007;14(1):262276.
   Google Scholar
• Nilsson C, Lindberg B, Juuso P, et al. Experiences of striving to maintain daily life among women with osteoporosis. Int J Qual Stud Health Well-Being. 2019;14(1):1647402.
   PubMed Web of Science ®Google Scholar
• Jakobsen PR, Hermann AP, Søndergaard J, et al. Left in limbo – experiences and needs among postmenopausal women newly diagnosed with osteoporosis without preceding osteoporotic fractures: a qualitative study. Post Reprod Health. 2018;24(1):26–33.
   PubMedGoogle Scholar
• Hansen CA, Abrahamsen B, Konradsen H, et al. Women’s lived experiences of learning to live with osteoporosis: a longitudinal qualitative study. BMC Womens Health. 2017;17(1):17.
   PubMedGoogle Scholar
• Alami S, Hervouet L, Poiraudeau S, et al. “Barriers to effective postmenopausal osteoporosis treatment: a qualitative study of patients” and practitioners’ views. PLoS One. 2016;11(6):1–16.
   Web of Science ®Google Scholar
• Hansen CA, Konradsen H, Abrahamsen B, et al. Women’s experiences of their osteoporosis diagnosis at the time of diagnosis and 6 months later: a phenomenological hermeneutic study. Int J Qual Stud Health Well Being. 2014;9(22438). DOI: 10.3402/qhw.v9.22438
   PubMedGoogle Scholar
• Nielsen D, Huniche L, Brixen K, et al. Handling knowledge on osteoporosis – a qualitative study. Scand J Caring Sci. 2013;27(3):516–524.
   PubMed Web of Science ®Google Scholar
• Salter CI, Howe A, McDaid L, et al. Risk, significance and bio-medicalisation of a new population: older women’s experience of osteoporosis screening. Soc Sci Med. 2011;73(6):808–815.
   PubMed Web of Science ®Google Scholar
• Lau E, Papaioannou A, Dolovich L, et al. “Patients” adherence to osteoporosis therapy: exploring the perceptions of postmenopausal women. Can Fam Physician. 2008;54(3):394–402.
   PubMed Web of Science ®Google Scholar
• Hjalmarson HV, Strandmark M, Klässbo M. Healthy risk awareness motivates fracture prevention behaviour: a grounded theory study of women with osteoporosis. Int J Qual Stud Health Well Being. 2007;2(4):236–245.
   Google Scholar
• Reventlow SD, Hvas L, Malterud K. Making the invisible body visible. Bone scans, osteoporosis and women’s bodily experiences. Soc Sci Med. 2006;62(11):2720–2731.
   PubMed Web of Science ®Google Scholar
• Unson CG, Siccion E, Gaztambide J, et al. Non-adherence and osteoporosis treatment preferences of older women: a qualitative study. J Womens Health. 2003;12(10):1037–1045.
   Web of Science ®Google Scholar
• Svensson HK, Olofsson EH, Karlsson J, et al. A painful, never ending story: older women’s experiences of living with an osteoporotic vertebral compression fracture. Osteoporos Int. 2016;27(5):1729–1736.
   PubMed Web of Science ®Google Scholar
• Hallberg I, Ek AK, Toss G, et al. A striving for independence: a qualitative study of women living with vertebral fracture. BioMed Cent Nurs. 2010;9(7):1–10.
   Google Scholar
• Paier GS. Specter of the crone: the experience of vertebral fracture. ANS Adv Nurs Sci. 1996;18(3):27–36.
   PubMed Web of Science ®Google Scholar
• Sale JEM, Gignac MA, Hawker G, et al. Decision to take osteoporosis medication in patients who have had a fracture and are ‘high’ risk for future fracture: a qualitative study. BMC Musculoskelet Disord. 2011;12(92):92.
   PubMedGoogle Scholar
• Hallrup L, Albertsson D, Bengtsson Tops A, et al. Elderly women’s experiences of living with fall risk in a fragile body: a reflective lifeworld approach. Health Soc Care Community. 2009;17(4):379–387.
   PubMed Web of Science ®Google Scholar
• Reventlow SD. Perceived risk of osteoporosis: restricted physical activities? Qualitative interview study with women in their sixties. Scand J Prim Health Care. 2007;25(3):160–165.
   PubMed Web of Science ®Google Scholar
• Górczewska B, Jakubowska-Pietkiewicz E. Is acceptance of disease and life satisfaction of women with postmenopausal osteoporosis dependent on BMI? Psychiatr Pol. 2021;210:1–12.
   Google Scholar
• Janiszewska M, Barańska A, Jędrych T, et al. The impact of selected factors on acceptance of illness and life satisfaction among female residents of rural areas treated for osteoporosis. Ann Agric Environ Med. 2019;26(4):592–599.
   PubMed Web of Science ®Google Scholar
• Munch S, Shapiro S. The silent thief: osteoporosis and women’s health care across the life span. Health Soc Work. 2006;31(1):44–53.
   PubMed Web of Science ®Google Scholar
• Besser SJ, Anderson JE, Weinman J. How do osteoporosis patients perceive their illness and treatment? Implications for clinical practice. Arch Osteoporos. 2012;7(1):115–124.
   PubMedGoogle Scholar
• Nielsen DS, Huniche L, Brixen K, et al. Handling osteoporosis: the importance of patient education and knowledge - a qualitative study. Bone. 2010;47:S212.
   PubMedGoogle Scholar
• Billington EO, Feasel AL, Kline GA. At odds about the odds: women’s choices to accept osteoporosis medications do not closely agree with physician-set treatment thresholds. J Gen Intern Med. 2020;35(1):276–282.
   PubMed Web of Science ®Google Scholar
• Horne R, Chapman SC, Parham R, et al. “Understanding patients” adherence-related beliefs about medicines prescribed for long-term conditions: a meta-analytic review of the Necessity-Concerns framework. PLoS One. 2013;8(12):e80633.
   PubMed Web of Science ®Google Scholar
• Verbeek J, Sengers MJ, Riemens L, et al. Patient expectations of treatment for back pain: a systematic review of qualitative and quantitative studies. Spine (Phila Pa 1976). 2004;29(20):2309–2318.
   PubMed Web of Science ®Google Scholar
• Paolucci T, Saraceni VM, Piccinini G. Management of chronic pain in osteoporosis: challenges and solutions. J Pain Res. 2016;9:177–186.
   PubMed Web of Science ®Google Scholar
• Carr AJ, Thompson PW, Cooper C. Factors associated with adherence and persistence to bisphosphonate therapy in osteoporosis: a cross-sectional survey. Osteoporos Int. 2006;17(11):1638–1644.
   PubMed Web of Science ®Google Scholar
• Naik-Panvelkar P, Norman S, Elgebaly Z, et al. Osteoporosis management in Australian general practice: an analysis of current osteoporosis treatment patterns and gaps in practice. BMC Fam Pract. 2020;21(1):32.
   PubMed Web of Science ®Google Scholar
• Anderson LM, Scrimshaw SC, Fullilove MT, et al. Culturally competent healthcare systems: a systematic review. Am J Prev Med. 2003;24(3 Suppl):68–79.
   PubMed Web of Science ®Google Scholar
• McQuaid EL, Landier W. Cultural issues in medication adherence: disparities and directions. J Gen Intern Med. 2018;33(2):200–206.
   PubMed Web of Science ®Google Scholar
• Clarke S. Cultural congruent care: a reflection on patient outcome. J Health Care Commun. 2017;2(4):1–3.
   Google Scholar
• Curtis E, Jones R, Tipene-Leach D, et al. Why cultural safety rather than cultural competency is required to achieve health equity: a literature review and recommended definition. Int J Equity Health. 2019;18(1):174.
   PubMed Web of Science ®Google Scholar
• Raybould G, Babatunde O, Evans AL, et al. Expressed information needs of patients with osteoporosis and/or fragility fractures: a systematic review. Arch Osteoporos. 2018;13(1):1–16.
   Web of Science ®Google Scholar
• Schillinger D, Grumbach K, Piette J, et al. Association of health literacy with diabetes outcomes. J Am Med Assoc. 2002;288(4):475–482.
   PubMed Web of Science ®Google Scholar
• Huas D, Debiais F, Blotman F, et al. Compliance and treatment satisfaction of postmenopausal women treated for osteoporosis. BMC Womens Health. 2010;10(10):26–28.
   PubMedGoogle Scholar
• Turner L. Is cultural sensitivity sometimes insensitive? Can Fam Physician. 2005;51(4):478–480. 483.
   PubMedGoogle Scholar
• Camacho PM, Petak SM, Binkley N, et al. American Association of Clinical Endocrinologists/American College of Endocrinology clinical practice guidelines for the diagnosis and treatment of postmenopausal osteoporosis-2020 update. Endocr Pract. 2020;26(Suppl 1):1–46.
   PubMed Web of Science ®Google Scholar