A collaborative approach to designing an online nutrition education program for people with multiple sclerosis

References

• MS Research Australia. Modifiable lifestyle factors and MS: a guide for health professionals. MS Research Australia. [cited 2021 Apr 20]. https://msra.org.au/modifiable-lifestyle-guide-2020/health-professionals/guide/.
   Google Scholar
• Evans E, Levasseur V, Cross AH, et al. An overview of the current state of evidence for the role of specific diets in multiple sclerosis. Mult Scler Relat Disord. 2019;36:101393–101396.
   PubMed Web of Science ®Google Scholar
• Russell RD, Black LJ, Sherriff JL, et al. Dietary responses to a multiple sclerosis diagnosis: a qualitative study. Eur J Clin Nutr. 2019;73(4):601–608.
   PubMed Web of Science ®Google Scholar
• Russell RD, Black LJ, Begley A. Navigating dietary advice for multiple sclerosis. Health Expect. 2021;24(3):853–862.
   PubMed Web of Science ®Google Scholar
• Beckett JM, Bird M-L, Pittaway JK, et al. Diet and multiple sclerosis: scoping review of web-based recommendations. Interact J Med Res. 2019;8(1):e10050-e10050.
   Web of Science ®Google Scholar
• Marrie RA, Salter AR, Tyry T, et al. Preferred sources of health information in persons with multiple sclerosis: degree of trust and information sought. J Med Internet Res. 2013;15(4):e67.
   PubMed Web of Science ®Google Scholar
• Marck CH, Probst Y, Chen J, et al. Dietary patterns and associations with health outcomes in Australian people with multiple sclerosis. Eur J Clin Nutr. 2021;75(10):1506–1514.
   PubMed Web of Science ®Google Scholar
• Russell RD, Black LJ, Begley A. Nutrition education programs for adults with neurological diseases are lacking: a scoping review. Nutrients. 2022;14(8):1577.
   PubMed Web of Science ®Google Scholar
• Contento I, Balch G, Bronner Y, et al. The effectiveness of nutrition education and implications for nutrition education policy, programs, and research: a review of research. J Nutr Educ, Vol. 1995;27(6):275.
   Google Scholar
• Tay BSJ, Cox DN, Brinkworth GD, et al. Co-design practices in diet and nutrition research: an integrative review. Nutrients. 2021;13(10):3593.
   PubMed Web of Science ®Google Scholar
• McGill B, Corbett L, Grunseit AC, et al. Co-produce, co-design, co-create, or co-construct - who does it and how is it done in chronic disease prevention? A scoping review. Healthcare. 2022;10(4):647.
   Web of Science ®Google Scholar
• Agency for Clinical Innovation. Patient experience and consumer engagement – a guide to build co-design capability. [cited 2022 May 4]. https://aci.health.nsw.gov.au/__data/assets/pdf_file/0013/502240/Guide-Build-Codesign-Capability.pdf.
   Google Scholar
• Michie S, Richardson M, Johnston M, et al. The behavior change technique taxonomy (v1) of 93 hierarchically clustered techniques: building an international consensus for the reporting of behavior change interventions. Ann Behav Med. 2013;46(1):81–95.
   PubMed Web of Science ®Google Scholar
• Baker S, Auld G, Ammerman A, et al. Identification of a framework for best practices in nutrition education for low-income audiences. J Nutr Educ Behav. 2020;52(5):546–552.
   PubMed Web of Science ®Google Scholar
• Collins D, editor. Cognitive interviewing practice. London: SAGE, 2015.
   Google Scholar
• Russell RD, Black LJ, Pham NM, et al. The effectiveness of emotional wellness programs on mental health outcomes for adults with multiple sclerosis: a systematic review and meta-analysis. Mult Scler Relat Disord. 2020;44:102171.
   PubMed Web of Science ®Google Scholar
• Russell RD, Black LJ, Begley A. The unresolved role of the neurologist in providing dietary advice to people with multiple sclerosis. Mult Scler Relat Disord. 2020;44:102304.
   PubMed Web of Science ®Google Scholar
• Deci EL, Ryan RM. Self-determination theory: a macrotheory of human motivation, development, and health. Can Psychol. 2008;49(3):182–185.
   Web of Science ®Google Scholar
• Grech LB, Borland R. Using CEOS theory to inform the development of behaviour change implementation and maintenance initiatives for people with multiple sclerosis. Curr Psychol. 2021. DOI:10.1007/s12144-021-02095-7
   Web of Science ®Google Scholar
• Zoellner J, Harris JE. Mixed-methods research in nutrition and dietetics. J Acad Nutr Diet. 2017;117(5):683–697.
   PubMed Web of Science ®Google Scholar
• Riemann-Lorenz K, Eilers M, Schulz K-H, et al. Dietary interventions in multiple sclerosis: development and pilot-testing of an evidence based patient education program. PLoS One. 2016;11(10):e0165246.
   PubMed Web of Science ®Google Scholar
• Fitzgerald KC, Tyry T, Salter A, et al. A survey of dietary characteristics in a large population of people with multiple sclerosis. Mult Scler Relat Disord. 2018;22:12–18.
   PubMed Web of Science ®Google Scholar
• Farinotti M, Vacchi L, Simi S, et al. Dietary interventions for multiple sclerosis. Cochrane Database Syst Rev. 2020;5(5):CD004192–48.
   PubMedGoogle Scholar
• Bagur MJ, Murcia MA, Jiménez-Monreal AM, et al. Influence of diet in multiple sclerosis: a systematic review. Adv Nutr. 2017;8(3):463–472.
   PubMed Web of Science ®Google Scholar
• Pommerich UM, Brincks J, Christensen ME. Is there an effect of dietary intake on MS-related fatigue? – a systematic literature review. Mult Scler Relat Disord. 2018;25:282–291.
   PubMed Web of Science ®Google Scholar
• Katz Sand I. The role of diet in multiple sclerosis: mechanistic connections and current evidence. Curr Nutr Rep. 2018;7(3):150–160.
   PubMedGoogle Scholar
• Mische LJ, Mowry EM. The evidence for dietary interventions and nutritional supplements as treatment options in multiple sclerosis: a review. Curr Treat Options Neurol. 2018;20(4):8.
   PubMed Web of Science ®Google Scholar
• Craig P, Dieppe P, Macintyre S, et al. Developing and evaluating complex interventions: the new medical research council guidance. BMJ, Vol. 2008;337(7676):a1655–983.
   PubMedGoogle Scholar
• Drum CE, Peterson JJ, Culley C, et al. Guidelines and criteria for the implementation of community-based health promotion programs for individuals with disabilities. Am J Health Promot. 2009;24(2):93–101, ii.
   PubMed Web of Science ®Google Scholar
• Whatnall MC, Patterson AJ, Ashton LM, et al. Effectiveness of brief nutrition interventions on dietary behaviours in adults: a systematic review. Appetite. 2018;120:335–347.
   PubMed Web of Science ®Google Scholar
• Plow MA, Moore S, Husni ME, et al. A systematic review of behavioural techniques used in nutrition and weight loss interventions among adults with mobility-impairing neurological and musculoskeletal conditions. Obes Rev. 2014;15(12):945–956.
   PubMed Web of Science ®Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357.
   PubMed Web of Science ®Google Scholar
• Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107–115.
   PubMed Web of Science ®Google Scholar
• Silveira SL, Richardson EV, Motl RW. Desired resources for changing diet among persons with multiple sclerosis: qualitative inquiry informing future dietary interventions. Int J MS Care. 2022;24(4):175–183.
   PubMedGoogle Scholar
• Haase R, Schultheiss T, Kempcke R, et al. Use and acceptance of electronic communication by patients with multiple sclerosis: a multicenter questionnaire study. J Med Internet Res. 2012;14(5):e135-e135.
   Web of Science ®Google Scholar
• Marrie RA, Leung S, Tyry T, et al. Use of eHealth and mHealth technology by persons with multiple sclerosis. Mult Scler Relat Disord. 2019;27:13–19.
   PubMedGoogle Scholar
• Goverover Y, Stern BZ, Hurst A, et al. Internet-based technology in multiple sclerosis: exploring perceived use and skills and actual performance. Neuropsychology. 2021;35(1):69–77.
   PubMed Web of Science ®Google Scholar
• Scholz M, Haase R, Schriefer D, et al. Electronic health interventions in the case of multiple sclerosis: from theory to practice. Brain Sci. 2021;11(2):180.
   PubMed Web of Science ®Google Scholar
• Slattery P, Saeri AK, Bragge P. Research co-design in health: a rapid overview of reviews. Health Res Policy Syst. 2020;18(1):17.
   PubMed Web of Science ®Google Scholar
• Qu X, Walsh EI, Cherbuin N, et al. Mapping the literature on diet and multiple sclerosis: a data-driven approach. Nutrients. 2022;14(22):4820.
   PubMed Web of Science ®Google Scholar
• Sesel A-L, Sharpe L, Beadnall HN, et al. Development of a web-based mindfulness program for people with multiple sclerosis: qualitative co-design study. J Med Internet Res. 2021;23(3):e19309-e19309.
   Web of Science ®Google Scholar
• Hale LA, Smith C, Mulligan H, et al. “Tell me what you want, what you really really want…”: asking people with multiple sclerosis about enhancing their participation in physical activity. Disabil Rehabil. 2012;34(22):1887–1893.
   PubMed Web of Science ®Google Scholar
• Soundy A, Benson J, Dawes H, et al. Understanding hope in patients with multiple sclerosis. Physiotherapy. 2012;98(4):344–350.
   PubMed Web of Science ®Google Scholar
• Fitzgibbon M, Gans KM, Evans WD, et al. Communicating healthy eating: lessons learned and future directions. J Nutr Educ Behav. 2007;39(2 Suppl):S63–S71.
   PubMed Web of Science ®Google Scholar
• Khandpur N, De Morais Sato P, Neto JRG, et al. Developing and refining behaviour-change messages based on the Brazilian dietary guidelines: use of a sequential, mixed-methods approach. Nutr J. 2020;19(1):66.
   PubMed Web of Science ®Google Scholar
• Taylor KL, Hadgkiss EJ, Jelinek GA, et al. Lifestyle factors, demographics and medications associated with depression risk in an international sample of people with multiple sclerosis. BMC Psychiatry, Vol. 2014;14(1):327.
   PubMedGoogle Scholar