The experience of traumatic brain injury in a culturally and linguistically diverse sample in Australia

References

• Dewan MC, Rattani A, Gupta S, et al. Estimating the global incidence of traumatic brain injury. J Neurosurg. 2019;130(4):1080–1097.
   Web of Science ®Google Scholar
• Rabinowitz AR, Levin HS. Cognitive sequelae of traumatic brain injury. Psychiatr Clin North Am. 2014;37(1):1–11.
   PubMed Web of Science ®Google Scholar
• Sabaz M, Simpson GK, Walker AJ, et al. Prevalence, comorbidities, and correlates of challenging behavior among community-dwelling adults with severe traumatic brain injury: a multicenter study. J Head Trauma Rehabil. 2014;29(2):19–30.
   PubMed Web of Science ®Google Scholar
• Diaz AP, Schwarzbold ML, Thais ME, et al. Psychiatric disorders and health-related quality of life after severe traumatic brain injury: a prospective study. J Neurotrauma. 2012;29(6):1029–1037.
   PubMed Web of Science ®Google Scholar
• Ponsford JL, Sinclair KL. Sleep and fatigue following traumatic brain injury. Psychiatr Clin North Am. 2014;37(1):77–89.
   PubMed Web of Science ®Google Scholar
• Pavlovic D, Pekic S, Stojanovic M, et al. Traumatic brain injury: neuropathological, neurocognitive and neurobehavioral sequelae. Pituitary. 2019;22(3):270–282.
   PubMed Web of Science ®Google Scholar
• Wilson BA. Brain injury: recovery and rehabilitation. Wiley Interdiscip Rev Cogn Sci. 2010;1(1):108–118.
   PubMed Web of Science ®Google Scholar
• Dhandapani S, Manju D, Sharma B, et al. Prognostic significance of age in traumatic brain injury. J Neurosci Rural Pract. 2012;3(2):131–135.
   PubMedGoogle Scholar
• Wood RL, Rutterford NA. Demographic and cognitive predictors of long-term psychosocial outcome following traumatic brain injury. J Int Neuropsychol Soc. 2006;12(3):350–358.
   PubMed Web of Science ®Google Scholar
• Levin HS, Temkin NR, Barber J, et al. Association of sex and age with mild traumatic brain injury–related symptoms: a TRACK-TBI study. JAMA Netw Open. 2021;4(4):e213046.
   PubMed Web of Science ®Google Scholar
• Seagly KS, O’Neil RL, Hanks RA. Pre-injury psychosocial and demographic predictors of long-term functional outcomes post-TBI. Brain Inj. 2018;32(1):78–83.
   PubMed Web of Science ®Google Scholar
• Fraser EE, Downing MG, Biernacki K, et al. Cognitive reserve and age predict cognitive recovery after mild to severe traumatic brain injury. J Neurotrauma. 2019;36(19):2753–2761.
   PubMed Web of Science ®Google Scholar
• Ritter J, Dawson J, Singh RK. Functional recovery after brain injury: independent predictors of psychosocial outcome one year after TBI. Clin Neurol Neurosurg. 2021;203. DOI:10.1016/j.clineuro.2021.106561
   Web of Science ®Google Scholar
• Ponsford J, Downing M, Pechlivanidis H. The impact of cultural background on outcome following traumatic brain injury. Neuropsychol Rehabil. 2020;30(1):85–100.
   PubMed Web of Science ®Google Scholar
• Saltapidas H, Ponsford J. The influence of cultural background on motivation for and participation in rehabilitation and outcome following traumatic brain injury. J Head Trauma Rehabil. 2007;22(2):132–139.
   PubMed Web of Science ®Google Scholar
• Cultural diversity in Australia, 2016. Australia: Australian Bureau of Statistics 2017. (No. 2071.0).
   Google Scholar
• Clark A, Gilbert A, Rao D, et al. Excuse me, do any of you ladies speak english?’ perspectives of refugee women living in South Australia: barriers to accessing primary health care and achieving the quality use of medicines. Aust J Prim Health. 2014;20(1):92–97.
   PubMed Web of Science ®Google Scholar
• Hadgkiss EJ, Renzaho AMN. The physical health status, service utilisation and barriers to accessing care for asylum seekers residing in the community: a systematic review of the literature. Aust Health Rev. 2014;38(2):142–159.
   PubMed Web of Science ®Google Scholar
• Hannah C, Le Q. Factors affecting access to healthcare services by intermarried Filipino women in rural Tasmania: a qualitative study. Rural Remote Health. 2012;12(4)
   PubMed Web of Science ®Google Scholar
• Taylor J, Haintz GL. Influence of the social determinants of health on access to healthcare services among refugees in Australia. Aust J Prim Health. 2018;24(1):14–28.
   PubMed Web of Science ®Google Scholar
• Mead N, Roland M. Understanding why some ethnic minority patients evaluate medical care more negatively than white patients: a cross sectional analysis of a routine patient survey in English general practices. BMJ Open. 2009;339(sep16 3):b3450–b3450.
   Google Scholar
• Vaughn LM, Jacquez F, Bakar RC. Cultural health attributions, beliefs, and practices: effects on healthcare and medical education. Med Educ. 2009;2(1):64–74.
   Google Scholar
• Banja J. Ethics, values, and world culture: the impact on rehabilitation. Disabil Rehabil. 1996;18(6):279–284.
   PubMed Web of Science ®Google Scholar
• Durie M. Understanding health and illness: research at the interface between science and indigenous knowledge. Int J Epidemiol. 2004;33(5):1138–1143.
   PubMed Web of Science ®Google Scholar
• Reynolds S. Disability culture in West Africa: qualitative research indicating barriers and progress in the Greater Accra region of Ghana. Occup Ther Int. 2010;17(4):198–207.
   PubMed Web of Science ®Google Scholar
• Sanders D, Kydd R, Morunga E, et al. Differences in patients’ perceptions of schizophrenia between Māori and New Zealand Europeans. Aust N Z J Psychiatry. 2011;45(6):483–488.
   PubMed Web of Science ®Google Scholar
• Stanhope V. Culture, control, and family involvement: a comparison of psychosocial rehabilitation in India and the United States. Psychiatr Rehabil J. 2002;25(3):273–280.
   PubMed Web of Science ®Google Scholar
• Arango-Lasprilla JC, Rosenthal M, Deluca J, et al. Traumatic brain injury and functional outcomes: does minority status matter? Brain Inj. 2007;21(7):701–708.
   PubMed Web of Science ®Google Scholar
• Arango-Lasprilla JC, Kreutzer JS. Racial and ethnic disparities in functional, psychosocial, and neurobehavioral outcomes after brain injury. J Head Trauma Rehabil. 2010;25(2):128–136.
   PubMed Web of Science ®Google Scholar
• Perrin PB, Krch D, Sutter M, et al. Racial/ethnic disparities in mental health over the first 2 years after traumatic brain injury: a model systems study. Arch Phys Med Rehabil. 2014;95(12):2288–2295.
   PubMed Web of Science ®Google Scholar
• Tung EL, Hampton DA, Kolak M, et al. Race/ethnicity and geographic access to urban trauma care. JAMA Netw Open. 2019;2(3):e190138.
   PubMed Web of Science ®Google Scholar
• Saltapidas H, Ponsford J. The influence of cultural background on experiences and beliefs about traumatic brain injury and their association with outcome. Brain Impair. 2008;9(1):1–13.
   Web of Science ®Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.
   Google Scholar
• Lloyd V, Gatherer A, Kalsy S. Conducting qualitative interview research with people with expressive language difficulties. Qual Health Res. 2006;16(10):1386–1404.
   PubMed Web of Science ®Google Scholar
• Mbakile-Mahlanza L, Manderson L, Ponsford J. Cultural beliefs about TBI in Botswana. Neuropsychol Rehabil. 2017;27(1):38–59.
   PubMed Web of Science ®Google Scholar
• Mbakile-Mahlanza L, Manderson L, Downing M, et al. Family caregiving of individuals with traumatic brain injury in Botswana. Disabil Rehabil. 2017;39(6):559–567.
   PubMed Web of Science ®Google Scholar
• Mbakile-Mahlanza L, Manderson L, Ponsford J. The experience of traumatic brain injury in Botswana. Neuropsychol Rehabil. 2015;25(6):936–958.
   PubMed Web of Science ®Google Scholar
• Simpson G, Mohr R, Redman A. Cultural variations in the understanding of traumatic brain injury and brain injury rehabilitation. Brain Inj. 2000;14(2):125–140.
   PubMed Web of Science ®Google Scholar
• Pozzato I, Tate RL, Rosenkoetter U, et al. Epidemiology of hospitalised traumatic brain injury in the state of New South Wales, Australia: a population-based study. Aust N Z J Public Health. 2019;43(4):382–388.
   PubMed Web of Science ®Google Scholar
• Gentles SJ, Charles C, Ploeg J, et al. Sampling in qualitative research: insights from an overview of the methods literature. Qual Rep. 2015;20(11):1772–1789.
   Web of Science ®Google Scholar
• Robinson OC. Sampling in interview-based qualitative research: a theoretical and practical guide. Qual Res Psychol. 2014;11(1):25–41.
   Web of Science ®Google Scholar
• Braun V, Clarke V. Reflecting on reflexive thematic analysis. Qual Res Sport Exerc Health. 2019;11(4):589–597.
   Web of Science ®Google Scholar
• Danermark B, Ekström M, Karlsson JC. Explaining society: critical realism in the social sciences. 2nd ed. London (UK): Routledge; 2019.
   Google Scholar
• NVivo. Version 12. Melbourne: QSR International Pty Ltd. 2018.
   Google Scholar
• Braun V, Clarke V. To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales. Qual Res Sport Exerc Health. 2021;13(2):201–216.
   Web of Science ®Google Scholar
• Malterud K, Siersma VD, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2016;26(13):1753–1760.
   PubMed Web of Science ®Google Scholar
• O’Reilly M, Parker N. ‘Unsatisfactory saturation’: a critical exploration of the notion of saturated sample sizes in qualitative research. Qual Res. 2013;13(2):190–197.
   Web of Science ®Google Scholar
• Glintborg C, Thomsen AS, Hansen TGB. Beyond broken bodies and brains: a mixed methods study of mental health and life transitions after brain injury. Brain Impair. 2018;19(3):215–227.
   Web of Science ®Google Scholar
• Hurst FG, Ownsworth T, Beadle E, et al. Domain-specific deficits in self-awareness and relationship to psychosocial outcomes after severe traumatic brain injury. Disabil Rehabil. 2020;42(5):651–659.
   PubMed Web of Science ®Google Scholar
• Ljungqvist J. Somatic consequences. In: Sundstrøm T, Grände PO, Luoto T, Rosenlund C, Undén J, Wester KG, editors. Management of severe traumatic brain injury: evidence, tricks, and pitfalls. Cham: Springer; 2020. p. 569–573.
   Google Scholar
• Glintborg C, Hansen TGB. Bio-psycho-social effects of a coordinated neurorehabilitation programme: a naturalistic mixed methods study. NeuroRehabilitation. 2016;38(2):99–113.
   PubMed Web of Science ®Google Scholar
• Grossmann I, Na J. Research in culture and psychology: past lessons and future challenges. Wiley Interdiscip Rev Cogn Sci. 2014;5(1):1–14.
   PubMed Web of Science ®Google Scholar
• Ryan RM, La Guardia JG, Solky-Butzel J, et al. On the interpersonal regulation of emotions: emotional reliance across gender, relationships, and cultures. Pers Relats. 2005;12(1):145–163.
   Web of Science ®Google Scholar
• Cavallo MM, Saucedo C. Traumatic brain injury in families from culturally diverse populations. J Head Trauma Rehabil. 1995;10(2):66–77.
   Web of Science ®Google Scholar
• Downing M, Hicks A, Braaf S, et al. Factors facilitating recovery following severe traumatic brain injury: a qualitative study. Neuropsychol Rehabil. 2021;31(6):889–913.
   PubMed Web of Science ®Google Scholar
• Lequerica A, Krch D. Issues of cultural diversity in acquired brain injury (ABI) rehabilitation. NeuroRehabilit. 2014;34(4):645–653.
   PubMed Web of Science ®Google Scholar
• Niemeier J, Arango-Lasprilla JC. Toward improved rehabilitation services for ethnically diverse survivors of traumatic brain injury. J Head Trauma Rehabil. 2007;22(2):75–84.
   PubMed Web of Science ®Google Scholar
• Lewis A, Bethea J, Hurley J. Integrating cultural competency in rehabilitation curricula in the new millennium: keeping it simple. Disabil Rehabil. 2009;31(14):1161–1169.
   PubMed Web of Science ®Google Scholar
• Matteliano MA, Stone JH. Cultural competence education in university rehabilitation programs. J Cult Divers. 2014;21(3):112–118.
   PubMedGoogle Scholar
• Dikengil A, Jones G, Byrne MB. Orientation of foreign language interpreters working with brain-injured patients. J Cogn Rehabil. 1993;11(4):10–14.
   Google Scholar
• Ali NK, Ferguson RP, Mitha S, et al. Do medical trainees feel confident communicating with low health literacy patients? J Community Hosp Intern Med Perspect. 2014;4(2). DOI:10.3402/jchimp.v4.22893
   PubMedGoogle Scholar
• Howard T, Jacobson KL, Kripalani S. Doctor talk: physicians’ use of clear verbal communication. J Health Commun. 2013;18(8):991–1001.
   PubMed Web of Science ®Google Scholar
• Yin HS, Jay M, Maness L, et al. Health literacy: an educationally sensitive patient outcome. J Gen Intern Med. 2015;30(9):1363–1368.
   PubMed Web of Science ®Google Scholar
• MacLeod S, Musich S, Gulyas S, et al. The impact of inadequate health literacy on patient satisfaction, healthcare utilization, and expenditures among older adults. Geriatr Nurs. 2017;38(4):334–341.
   PubMed Web of Science ®Google Scholar
• Chamberlain DJ. The experience of surviving traumatic brain injury. J Adv Nurs. 2006;54(4):407–417.
   PubMed Web of Science ®Google Scholar
• Lefebvre H, Cloutier G, Levert MJ. Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Inj. 2008;22(7-8):535–543.
   PubMed Web of Science ®Google Scholar
• Powell T, Gilson R, Collin C. TBI 13 years on: factors associated with post-traumatic growth. Disabil Rehabil. 2012;34(17):1461–1467.
   PubMed Web of Science ®Google Scholar
• Abrahamson V, Jensen J, Springett K, et al. Experiences of patients with traumatic brain injury and their carers during transition from in-patient rehabilitation to the community: a qualitative study. Disabil Rehabil. 2017;39(17):1683–1694.
   PubMed Web of Science ®Google Scholar
• McPherson K, Fadyl J, Theadom A, et al. Living life after traumatic brain injury: phase 1 of a longitudinal qualitative study. J Head Trauma Rehabil. 2018;33(1):44–52.
   PubMed Web of Science ®Google Scholar
• Strandberg T. Adults with acquired traumatic brain injury: experiences of a changeover process and consequences in everyday life. Soc Work Health Care. 2009;48(3):276–297.
   PubMed Web of Science ®Google Scholar
• Armstrong E, Coffin J, McAllister M, et al. ‘I’ve got to row the boat on my own, more or less’: aboriginal Australian experiences of traumatic brain injury. Brain Impair. 2019;20(2):120–136.
   Web of Science ®Google Scholar
• Hines M, Brunner M, Poon S, et al. Tribes and tribulations: interdisciplinary eHealth in providing services for people with a traumatic brain injury (TBI). BMC Health Serv Res. 2017;17(1). DOI:10.1186/s12913-017-2721-2
   Google Scholar
• Weisbrot D, Breen KJ. A no-fault compensation system for medical injury is long overdue. Med J Aust. 2012;197(5):296–298.
   PubMed Web of Science ®Google Scholar
• Bastos JL, Harnois CE, Paradies YC. Health care barriers, racism, and intersectionality in Australia. Soc Sci Med. 2018;199:209–218.
   PubMed Web of Science ®Google Scholar