References
- Bero, L.A. , R. Grilli , J.M. Grimshaw , E. Harvey , A.D. Oxman , and M.A. Thomson . 1998. “Closing the Gap Between Research and Practice: An Overview of Systematic Reviews of Interventions to Promote the Implementation of Research Findings. The Cochrane Effective Practice and Organization of Care Review Group.” British Medical Journal 317 (7156): 465–468.
- Blumer, H. 1969. Symbolic Interactionism: Perspective and Method . Englewood Cliffs, NJ: Prentice Hall.
- Boote, J. 2011. “Patient and Public Involvement in Health and Social Care Research: A Bibliography.” https://www.clahrc-ndl.nihr.ac.uk/documents/ppi/08-boote-2011-ppi-bibliography.pdf.
- Brett, J. , S. Staniszewska , C. Mockford , S. Herron-Marx , J. Hughes , C. Tysall , and R. Suleman . 2012. “Mapping the Impact of Patient and Public Involvement on Health and Social Care Research: A Systematic Review.” Health Expectations 17 (5): 637–650. doi: https://doi.org/10.1111/j.1369-7625.2012.00795.x.https://doi.org/10.1111/hex.2014.17.issue-5
- Cacari-Stone, L. , N. Wallerstein , A.P. Garcia , and M. Minkler . 2014. “The Promise of Community-based Participatory Research for Health Equity: A Conceptual Model for Bridging Evidence With Policy.” American Journal of Public Health 104 (9): 1615–1623.https://doi.org/10.2105/AJPH.2014.301961
- Canadian Institutes of Health Research (CIHR). “Citizen Engagement Framework.” Accessed April 4, 2016. https://www.cihr-irsc.gc.ca/e/41753.html
- Cook, T. 2012. “Where Participatory Approaches Meet Pragmatism in Funded (Health) Research: The Challenge of Finding Meaningful Spaces.” Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 13 (1): Art. 18.
- Cornwall, A. 2008. “Unpacking ‘Participation’: Models, Meanings and Practices.” Community Development Journal 43 (3): 269–283.https://doi.org/10.1093/cdj/bsn010
- Cornwall, A. , and R. Jewkes . 1995. “What is Participatory Research?” Social Science & Medicine 41 (12): 1667–1676.https://doi.org/10.1016/0277-9536(95)00127-S
- Drahota, A. , R.D. Meza , B. Brikho , M. Naaf , J.A. Estabillo , E.D. Gomez , S.F. Vejnoska , S. Dufek , A C Stahmer , and G.A. Aarons . 2016. “Community-academic Partnerships: A Systematic Review of the State of the Literature and Recommendations for Future Research.” Article first published online: March 14 2016. Accessed April 4, 2016. https://onlinelibrary.wiley.com/doi/10.1111/1468-0009.12184/abstract. doi:https://doi.org/10.1111/1468-0009.12184.
- Eisner, E.W. 1998. “The Primacy of Experience and the Politics of Method.” Educational Researcher 17 (5): 15–20.
- Greenhalgh, T. , and N. Fahy . 2015. “Research Impact in the Community-based Health Sciences: An Analysis of 162 Case Studies from the 2014 UK Research Excellence.” Framework 13 (232): 1–12.
- Greenhalgh, T. , C. Jackson , S. Shaw , and T. Janamian . 2016. “Achieving Research Impact Through Co-creation in Community-Based Health Services: Literature Review and Case Study.” The Milbank Quarterly 94 (2): 392–429.https://doi.org/10.1111/1468-0009.12197
- Haines, A. , and A. Donald . 1998. “Looking Forward: Getting Research Findings Into Practice: Making Better Use of Research Findings.” BMJ. 317: 72.https://doi.org/10.1136/bmj.317.7150.72
- HEFCE, SFC, HEFCW, DELNI . 2012. Assessment Framework and Guidance on Submissions (02.2011 updated version). Accessed April 4, 2016. www.ref.ac.uk/media/ref/content/pub/assessmentframeworkandguidanceonsubmissions/GOS%20including%20addendum.pdf
- INVOLVE . 2010. The Invonet Bibliographies of Public Involvement in NHS, Public Health and Social Care Research . NHS National Institute for Health Research.
- INVOLVE What is Public Involvement in Research? Accessed April 4, 2016. https://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2
- Jagosh, J. , A.C. Macaulay , P. Pluye , J. Salsberg , P.L. Bush , J. Henderson , E. Sirett , et al. 2012. “Uncovering the Benefits of Participatory Research: Implications of a Realist Review for Health Research and Practice.” Milbank Quarterly 90 (2): 311–346.https://doi.org/10.1111/milq.2012.90.issue-2
- Liamputtong, P. 2014. “Experiential Learning.” In Sage Encyclopedia of Action Research , edited by David Coughlan and Mary Brydon-Miller , 324. Sage.
- Martin, G.P. 2008. “‘Ordinary People Only’: Knowledge, Representativeness and the Publics of Public Participation in Healthcare.” Sociology of Health and Illness 30 (1): 35–54.https://doi.org/10.1111/shil.2008.30.issue-1
- McTaggart, R. 1997. “Guiding Principles for Participatory Action Research.” In Participatory Action Research: International Contexts and Consequences , edited by Robin McTaggart , 25–43. New York : Albany.
- Minkler, M. , and N. Wallerstein . 2003. Community Based Participatory Research for Health . San Francisco, CA: Jossey-Bass.
- National Health & Medical Research Council and Consumers Health Forum of Australia (NH&MRC) . Statement on Consumer and Community Participation in Health and Medical Research. Published 2001. Accessed April 4, 2016. https://www.nhmrc.gov.au/_files_nhmrc/publications/attachments/r22.pdf
- National Institute for Health Research. (NIHR) Patient and Public Awareness . Accessed April 4, 2016. https://www.nihr.ac.uk/awareness/Pages/default.aspx
- National Institutes of Health. (NIH) Director’s Council of Public representatives . https://www.nih.gov/about/copr/index.htm Accessed April 4, 2016.
- Pain, R. , K. Askins , S. Banks , T. Cook , G. Crawford , L. Crookes , S. Darby , et al. 2016. Mapping Alternative Impact: Alternative Approaches to Impact from Co-produced Research . Durham: Centre for Social Justice and Community Action, Durham University.
- Patient Protection and Affordable Care Act: Detailed Summary . Accessed April 4, 2016. https://www.dpc.senate.gov/healthreformbill/healthbill04.pdf
- Patient-Centered Outcomes Research Institute (PCORI) . Accessed April 4, 2016. https://www.pcori.org/about-us/what-we-do/what-drives-our-work
- Ramaswamy, V. , and K. Ozcan . 2014. The Co-creation Paradigm . Redwood City, CA: Stanford University Press.
- Reason, P. , and H. Bradbury , eds. 2008. The Sage Handbook of Action Research: Participative Inquiry and Practice. 2nd ed. Sage, CA.
- Reed, M. 2016. The Research Impact Handbook . Fast Track Impact. Aberdeenshire.
- Research Council UK Pathways to Impact. Accessed April 4, 2016. https://www.rcuk.ac.uk/innovation/impacts
- Staley, K , S.A. Buckland , H. Hayes , and M. Tarpey . 2014. “‘The Missing Links’: Understanding How Context and Mechanism Influence the Impact of Public Involvement in Research.” Health Expectations 17 (6): 755–764. doi:https://doi.org/10.1111/hex.12017.
- Swantz, M.L. 2008. “Participatory Action Research as Practice.” In The Sage Handbook of Action Research: Participative Inquiry and Practice . 2nd ed., edited by Peter Reason and Hilary Bradbury , 31–48. London: Sage.
- Thomson, P. 2015. Action Research with/Against Impact Educational Action Research 23 (3): 309–311.https://doi.org/10.1080/09650792.2015.1062235
- Trickett, E. 2011. “Community-based Participatory Research as Worldview or Instrumental Strategy: Is It Lost in Translation(al) Research?” American Journal of Public Health. 101 (8): 1353–1355.https://doi.org/10.2105/AJPH.2011.300124
- Tritter, J. 2009. “Revolution or Evolution: The Challenges of Conceptualizing Patient and Public Involvement in a Consumerist World.” Health Expectations 12 (3): 275–287.https://doi.org/10.1111/hex.2009.12.issue-3
- Wadsworth, Y. 1998. What is Participatory Research? Action Research International. Accessed November. www.scu.edu.au/schools/gam/ar/p_ywadsworth
- Wallerstein, N. , J. Oetzel , B. Duran , G. Tafoya , L. Belone , and R. Ray . 2008. “What Predicts Outcomes in CBPR?” In Community Based Participatory/Research for health: Process to Outcomes . 2nd ed., edited by M. Minkler and N. Wallerstein , 371–392. San Fancisco, CA: Jossey Bass.
- Wiek, A. , S. Talwar , M. OShea , and J. Robinson . 2014. “Toward a Methodological Scheme for Capturing Societal Effects of Participatory Sustainability Research.” Research Evaluation 23 (2): 117–132.https://doi.org/10.1093/reseval/rvt031