Social impact of participatory health research: collaborative non-linear processes of knowledge mobilization

References

• Abma, T. A. 2005. “Responsive Evaluation: Its Meaning and Special Contribution to Health Promotion.” Evaluation and Program Planning 28 (3): 279–289.https://doi.org/10.1016/j.evalprogplan.2005.04.003
   Web of Science ®Google Scholar
• Abma, T. A. , and V. Baur . 2012. “Seeking Connections, Creating Movement. The Power of Altruistic Action.” HCA: Journal of Health Philosophy and Policy 22 (4): 366–384. doi:https://doi.org/10.1007/s/10728-012-0222-3.
   Google Scholar
• Abma, T. A. , and J. Broerse . 2010. “Patient Participation as Dialogue: Setting Research Agendas.” Health Expectations 13 (2): 160–173.https://doi.org/10.1111/hex.2010.13.issue-2
   PubMed Web of Science ®Google Scholar
• Abma, T. A. , H. Leyerzaph , and E. Landeweer . 2016. “Responsive Evaluation in the Interference Zone between System and Lifeworld.” American Journal for Evaluation : 1–14. doi:https://doi.org/10.1177/1098214016667211.
   Google Scholar
• Adelman, C. 1993. “Kurt Lewin and the Origins of Action Research.” Educational Action Research 1 (1): 7–24.https://doi.org/10.1080/0965079930010102
   Google Scholar
• Barnett, S. , J. Cuculick , L. DeWindt , K. Matthews , and E. Sutter . Forthcoming. “National Center for Deaf Health Research: CBPR with deaf communities.” In Community-Based Participatory Research for Health: Advancing Social and Health Equity . 3rd ed., edited by N. Wallerstein , B. Duran , J. Oetzel , and M. Minkler , Hoboken, NJ: Wiley.
   Google Scholar
• Barreto, J.-M. 2012. “Epistemologies of the South and Human Rights: Santos and the Quest for Global and Cognitive Justice.” Indiana Journal of Global Legal Studies 21 (2): 395–422.
   Google Scholar
• Brett, J. , S. Staniszewska , C. Mockford , S. Herron-Marx , J. Hughes , C. Tysall , and R. Suleman . 2014. “Mapping the Impact of Patient and Public Involvement on Health and Social Care Research: A Systematic Review.” HEX 17 (5): 637–650.
   Google Scholar
• Campbell, H. , D. Vanderhoven . 2016. Knowledge That Matters. Realising the Potential of Co-production. Manchester, NH : N8 Research Partnership. Accessed March 22. http://www.n8research.org.uk/view/5163/Final-Report-Co-Production-2016-01-20.pdf
   Google Scholar
• Canadian Institute of Health Research . 2016. Accessed September 21. http://www.cihr-irsc.gc.ca/e/29418.html#2
   Google Scholar
• Cook, T. 1998. “The Importance of Mess in Action Research.” Educational Action Research 6 (1): 93–109.https://doi.org/10.1080/09650799800200047
   Google Scholar
• Cook, T. 2009. “The Purpose of Mess in Action Research: Building Rigour Though a Messy Turn.” Educational Action Research 17 (2): 277–291.https://doi.org/10.1080/09650790902914241
   Google Scholar
• Cook, T. , J. Boote , N. Buckley , C. Turnock , and S. Vougioukalou . 2012. Embedding Research Impact: Assessing Participatory Research Impact and Legacy . Case Study and Final Report. JISC/NCCPE. http://repository.jisc.ac.uk/5116.
   Google Scholar
• Cornwall, A. 2008. “Unpacking ‘Participation’ Models, Meaning and Practices.” Community Development Journal 43 (3): 269–283.
   Google Scholar
• Cropper, S. , A. Porter , G. Williams , S. Carlisle , R. Moore , M. O’Neill , C. Roberts , and H. Snooks . 2010. Community Health and Wellbeing. Action Research on Inequalities . Bristol: Policy Press.
   Google Scholar
• Devia, C. , E. Baker , S. Sanchez Youngman , E. Barnidge , M. Golub , F. Motton , M. Muhammad , C. Ruddock , B. Vicuña , and N. Wallerstein . 2017. “Advancing System and Policy Changes for Social and Racial Justice: Comparing a Rural and Urban Community-based Participatory Research Partnership in the U.S.” International Journal for Equity in Health 16: 182. doi:https://doi.org/10.1186/s12939-016-0509-3.
   PubMed Web of Science ®Google Scholar
• Donovan, C. , L. Butler , A. J. Butt , T. H. Jones , and S. R. Hanney . 2014. “Evaluation of the Impact of National Breast Cancer Foundation-funded Research.” The Medical Journal of Australia 200 (4): 214–218.https://doi.org/10.5694/mja13.10798
   PubMed Web of Science ®Google Scholar
• Fals-Borda, O. , and M. Rahman , ed. 1991. Action and Knowledge. Breaking the Monopoly with Participatory Action Research . New York : Apex.https://doi.org/10.3362/9781780444239
   Google Scholar
• Feyerabend, P. 1975. Against Method: Outline of an Anarchistic Theory of Knowledge . London: Verso.
   Google Scholar
• Freire, P. 1970. Pedagogy of the Oppressed . New York : Herder & Herder.
   Google Scholar
• Freire, P. 1973. “Extension or Communication.” In Education for Critical Consciousness , edited by Louise Bigwood , and Margaret Marshal , New York : The Seabury Press. http://www.seedbed.org/wp-content/uploads/2013/09/Freire-Extension-or-Communication.pdf.
   Google Scholar
• Freire, P. 1982. “Creating Alternative Research Methods: Learning to Do It by Doing It.” In Creating Knowledge: A Monopoly? Participatory Research in Development , edited by B. Hall , A Gillette , and R. Tandon , vol. 1. 29–37. New Delhi: Society for Participatory Research in Asia.
   Google Scholar
• Fricker, M. , ed. 2001. Epistemic Injustice: Power and the Ethics of Knowing . New York : Oxford University Press.
   Google Scholar
• Golub, M. , M. Charlop , A. E. Groisman-Perelstein , C. Ruddock , and N. Calman . 2010. “Got Low-fat Milk? How a Community-based Coalition Changed School Milk Policy in New York City.” Fam Community Health 34: S44–53.
   Web of Science ®Google Scholar
• Greene, J. C. 1988. “Stakeholder Participation and Utilization in Program Evaluation.” Evaluation Review 12 (2): 91–116.https://doi.org/10.1177/0193841X8801200201
   Web of Science ®Google Scholar
• Greenhalgh, T. , and N. Fahy . 2015. “Research Impact in the Community-based Health Sciences: An Analysis of 162 Case Studies from the 2014 UK Research Excellence Framework.” BMC Medicine 13 (1).
   Web of Science ®Google Scholar
• Guba, E. G. , and Y. S. Lincoln . 1989. Fourth Generation Evaluation . Beverly Hills (CA): Sage.
   Google Scholar
• Habermas, J. 2003. Truth and Justification . Cambridge, MA: The MIT Press.
   Google Scholar
• Harris, J. , L. Croot , J. Thompson , and J. Springett . 2016. “How Stakeholder Participation Can Contribute to Systematic Reviews of Complex Interventions.” Journal of Epidemiology and Community Health 70 (2): 207–214.https://doi.org/10.1136/jech-2015-205701
   PubMed Web of Science ®Google Scholar
• Heron, J. 1996. Co-Operative Inquiry: Research in the Human Condition . London: Sage.
   Google Scholar
• HEFCE (Higher Education Funding Council for England) . 2015. REF Impact . Accessed March 22, 2016. http://www.hefce.ac.uk/rsrch/REFimpact/.
   Google Scholar
• ICPHR (International Collaboration for Participatory Health Research) . 2013. Position Paper 1: What is Participatory Health Research? Version: Mai 2013 . Berlin: International Collaboration for Participatory Health Research.
   Google Scholar
• Kaplan, S. A. , C. Ruddock , M. Golub , J. Davis , R. Foley, Sr. , C. Devia , R. Rosen , et al . 2009. “Stirring up the Mud: Using a Community-based Participatory Approach to Address Health Disparities through a Faith-Based Initiative.” Journal of Health Care for the Poor and Underserved 20 (4): 1111–1123.https://doi.org/10.1353/hpu.0.0221
   PubMed Web of Science ®Google Scholar
• Kemmis, S. , and R. McTaggart . 1986. The Action Research Planner . Geelong: Deakin University Press.
   Google Scholar
• Lavis, J. , J. Robertson , C. Woodside , C. McLeod , and J. Abelson . 2003. “How Can Research Organizations More Effectively Transfer Research Knowledge to Decision Makers?” Milbank Quarterly 81: 221–248.https://doi.org/10.1111/milq.2003.81.issue-2
   PubMed Web of Science ®Google Scholar
• Lewin, K. 1948. Resolving Social Conflicts . New York : Harper.
   Google Scholar
• Lucero, J. , N. Wallerstein , B. Duran , M. Alegria , E. Greene-Moton , B. Israel , S. Kastelic , et al . 2016. “Development of a Mixed Methods Investigation of Process and Outcomes of Community Based Participatory Research.” Journal of Mixed Methods . doi:https://doi.org/10.1177/1558689816633309.
   Google Scholar
• Muhammad M. , N. Wallerstein , A. Sussman , M. Avila , and L. Belone . 2014. Reflections on Researcher Identity and Power: The Impact of Positionality on Community Based Participatory Research (CBPR) Processes and Outcomes, Critical Sociology . Published first online 30 May 2014. doi:https://doi.org/10.1177/0896920513516025.
   Google Scholar
• National Health and Medical Research Council . 2002. Summary Statement on Consumer and Community Participation in Health and Medical Research National Health & Medical Research Council Consumers . Canberra: Health Forum of Australia.
   Google Scholar
• Nowotny, H. , P. Scott , and M. Gibbons . 2003. “Introduction: Mode 2’Revisited: The New Production of Knowledge.” Minerva 41 (3): 179–194.https://doi.org/10.1023/A:1025505528250
   Web of Science ®Google Scholar
• Oetzel, J. , B. Duran , A. Sussman , C. Pearson , M. Magarati , D. Khodyakov , and N. Wallerstein . Forthcoming. “Evaluation of CBPR Partnerships and Outcomes: Lessons and Tools from the Research for Improved Health Study.” In Community-based Participatory Research for Health: Advancing Social and Health Equity . 3rd ed., edited by N. Wallerstein , B. Duran , J. Oetzel , M Minkler , Hoboken, NJ: Wiley.
   Google Scholar
• Oetzel, J. , C. Zhou , B. Duran , C. Pearson , M. Magarati , and N. Wallerstein . 2015. “Establishing the Psychometric Properties of Constructs in a Community-based Participatory Research Conceptual Model.” American Journal of Health Promotion 29 (5): e188–e202.https://doi.org/10.4278/ajhp.130731-QUAN-398
   PubMed Web of Science ®Google Scholar
• Penfield, T. , M. J. Baker , R. Scoble , and M. C. Wykes . 2013. “Assessment, Evaluations, and Definitions of Research Impact: A Review.” Research Evaluation rvt021: 1–12.
   Google Scholar
• Piggot-Irvine, E. , W. Rowe , and L. Ferkins . 2015. “Conceptualizing Indicator Domains for Evaluating Action Research.” Educational Action Research 23 (4): 545–566.https://doi.org/10.1080/09650792.2015.1042984
   Web of Science ®Google Scholar
• Reason, P. , ed. 1998. Human Inquiry in Action . London: Sage.
   Google Scholar
• SS&HRC (Social Sciences and Humanities Research Council) . 2016. Accessed 24 March 2016. http://www.sshrc-crsh.gc.ca/funding-financement/programs-programmes/definitions-eng.aspx#km-mc
   Google Scholar
• Somekh, B. 2002. “Inhabiting Each Other’s Castles: Towards Knowledge and Mutual Growth through Collaboration.” In Theory and Practice in Action Research: Some International Perspectives , edited by C. Day , J. Elliott , B. Somekh , and R. Winter , 79–104. Oxford: Symposium Books.
   Google Scholar
• Stenhouse, L. 1975. An Introduction to Curriculum Research and Development . London: Heinemann.
   Google Scholar
• Stewart, R. J. , J. Caird , K. Oliver , and S. Oliver . 2012. “Patients’ and Clinicians’ Research Priorities.” Health Expectations 14 (4): 439–448.
   Web of Science ®Google Scholar
• Thomson, P. 2015. “Action Research with/against Impact.” Educational Action Research 23 (3): 309–311.https://doi.org/10.1080/09650792.2015.1062235
   Web of Science ®Google Scholar
• Van De Ven, A.H. , and P. E. Johnson . 2006. “Knowledge for Theory and Practice.” Academy of Management Review 31 (4): 802–821.https://doi.org/10.5465/AMR.2006.22527385
   Web of Science ®Google Scholar
• Wallerstein, N. , and E. Auerbach . 2004. Problem-posing at Work: Popular Educators Guide . Edmonton: Grass Roots Press.
   Google Scholar
• Wallerstein, N. , and B. Duran . 2006. “Using Community Based Participatory Research to Address Health Disparities.” Health Promotion Practice 7 (3): 312–323.https://doi.org/10.1177/1524839906289376
   PubMedGoogle Scholar
• Wallerstein, N. , and B. Duran . Forthcoming. “The Theoretical, Historical and Practical Roots of CBPR.” In Community Based Participatory Research for Health: Advancing Social and Health Equity . 3rd ed., edited by N. Wallerstein , B. Duran , J. Oetzel , and M. Minkler . Hoboken, NJ: Wiley.
   Google Scholar
• Wallerstein, N. , B. Duran , J. Oetzel , and M. Minkler . Forthcoming. Community-based Participatory Research for Health: Advancing Social and Health Equity . 3rd ed. Hoboken, NJ: Wiley.
   Google Scholar
• Wallerstein, N. , J. Oetzel , B. Duran , G. Tafoya , L. Belone , and R. Rae . 2008. “What Predicts Outcomes in CBPR?” In 2008 Community Based Participatory Research for Health: Process to Outcomes . 2nd ed., edited by M. Minkler , and N. Wallerstein , 371–392. San Francisco, CA: Jossey Bass.
   Google Scholar
• Walshe, K. , and H. T. Davies . 2013. “Health Research, Development and Innovation in England from 1988 to 2013: From Research Production to Knowledge Mobilization.” Journal of Health Services Research & Policy 18: 1–12.https://doi.org/10.1177/1355819613502011
   PubMed Web of Science ®Google Scholar
• Weiss, C. H. 1979. “The Many Meanings of Research Utilization.” Public Administration Review 39: 426–431.https://doi.org/10.2307/3109916
   Web of Science ®Google Scholar