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Articles

Multilingual dementia care: defining the limits of translanguaging

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Pages 227-245 | Received 06 Nov 2018, Accepted 14 Jun 2019, Published online: 03 Sep 2019

References

  • Ballenger, J. F., Whitehouse, P. J., Lyketsos, C. J., Rabins, P. V., & Karlawish, J. H. T. (2009). Concepts of dementia and treatment. In J. F. Ballenger, P. J. Whitehouse, C. J. Lyketsos, P. V. Rabins., & J. H. T. Karlawish (Eds.), Treating dementia: Do we have a pill for it? (pp. 1–4). Baltimore: Johns Hopkins University Press.
  • Bayles, K. A., & Tomoeda, C. K. (2014). Cognitive-communication disorders of dementia (2nd ed.). San Diego, CA: Plural Publishing.
  • Brooker, D. (2007). Person-centred dementia care: Making services better. London: Jessica Kingsley.
  • Brown Wilson, C. (2009). Developing community in care homes through a relationship-centred approach. Health & Social Care in the Community, 17 (2), 177–186. doi: 10.1111/j.1365-2524.2008.00815.x
  • Bryden, C. (2005). Dancing with dementia. London. Jessica Kingsley.
  • Bryden, C. (2018). Will I still be me? London. Jessica Kingsley.
  • Camicioli, R. (2014). Diagnosis and differential diagnosis of dementia. In J. F. Quinn (Ed.), Dementia: Neurology in practice (pp. 1–14). Malaysia: Wiley Blackwell.
  • Carewell service. (no date). House of help and care: Baan tschuai duu lää, Care home brochure, http://www.carewell-service.com/documents/baan-tschuai-duu-laeae-brochure-de-neu.pdf.
  • Colombo, F., Llena-Nozal, A., Mercier, J., & Tjadens, F. (2011). Help wanted? Providing and paying for long-term care. OECD Health Policy Studies, https://read.oecd-ilibrary.org/social-issues-migration-health/help-wanted_9789264097759-en#page3.
  • Connolly, K. (2012). Germany ‘exporting’ old and sick to foreign care homes, Guardian, 26th December https://www.theguardian.com/world/2012/dec/26/german-elderly-foreign-care-homes
  • Coupland, J. (Ed.). (2000). Small talk. London: Routledge.
  • Davis, B. H., & Maclagan, M. (2013). ‘Aw, so how’s your day going?’: Ways that persons with dementia keep their conversational partner involved. In B. Davis, & J. Guendouzi (Eds.), Pragmatics in dementia discourse (pp. 83–116). Newcastle-upon-Tyne: Cambridge Scholars Publishing.
  • Davis, B. H., & Maclagan, M. (2017a). Care across languages. The Linguist, 56 (4), 26–27.
  • Davis, B. H., & Maclagan, M. (2017b). Challenges and experiences in training multilingual, international direct care workers in dementia care in the United States. In C. Plejert, C. Lindholm, & R. W. Schrauf (Eds.), Multilingual interaction and dementia (pp. 206–229). Bristol: Multilingual Matters.
  • Davis, B. H., & Maclagan, M. (2018). Narrative and ageing: Exploring the range of narrative types in dementia conversation. European Journal of English Studies, 22 (1), 76–90. doi: 10.1080/13825577.2018.1427198
  • de la Torre, J. C. (2016). Alzheimer’s turning point: A vascular approach to clinical prevention. Basel, Switzerland: Springer International Publishing
  • Duff, P. A., Wong, P., & Early, M. (2000). Language learning for work and life: The linguistic socialization of immigrant Canadias seeking careers in healthcare. Canadian Modern Language Review, 57 (1), 9–57.
  • Ellis, M. P., & Astell, A. J. (2011). Adaptive Interaction: A new approach to communication. Journal of Dementia Care, 19 (3), 24–26.
  • Ellis, M. P., & Astell, A. J. (2018). Adaptive interaction and dementia: How to communicate without speech. London: Jessica Kingsley.
  • Feil, N. (1992). Validation therapy with late-onset dementia populations. In G. M. M. Jones., & B. M. L. Miesen (Eds.), Care-Giving in Dementia: Research and Applications (pp. 199–218). London: Routledge.
  • Feil, N., & Altman, R. (2004). Validation theory and the myth of the therapeutic lie. American Journal of Alzheimer’s Disease and Other Dementias, 19 (2), 77–78. doi: 10.1177/153331750401900214
  • Feil, N., & de Klerk-Rubin, V. (2012). The validation breakthrough (3rd ed.). Baltimore, MD: Health Professions Press.
  • Freitas, M. I. D., Mansur, L. L., Brucki, S. M. D., Nitrini, R., & Radanovic, M. (2010). Linguistic performance in vascular dementia. Hot Topics, P4–143, e65–e66. doi: 10.1016/j.jalz.2010.08.202
  • Fukahori, H., Baba, Y., Hioki, F., Monkong, S., Intarasombat, P., & Malathum, P. (2011). Healthcare services for Japanese elderly long-staying in Thailand from the perspective of the patient and healthcare providers: A survey study. Archives of Gerontology and Geriatrics, 53(2), e168–e173. doi: 10.1016/j.archger.2010.08.007
  • George, D. R., & Whitehouse, P. J. (2014). The war (on terror) on Alzheimer’s. Dementia (London, England), 13 (1), 120–130. doi: 10.1177/1471301212451382
  • Global News. (2014). Dementia: The unspooling mind. 16x9 Global. Vancouver, Canada, https://globalnews.ca/search/unspooling%20mind/; https://www.youtube.com/watch?v=kkvIZaSfUxc
  • Goldsmith, M. (1996). Hearing the voice of people with dementia: Opportunities and obstacles. London: Jessica Kingsley.
  • Hamilton, H. E. (2008). Language and dementia: Sociolinguistic aspects. Annual Review of Applied Linguistics, 28, 91–110. doi: 10.1017/S0267190508080069
  • Hanssen, I. (2013). The influence of cultural background in intercultural dementia care: Exemplified by Sami patients. Scandinavian Journal of Caring Sciences, 27 (2), 231–237. doi: 10.1111/j.1471-6712.2012.01021.x
  • Hodges, J. R., Patterson, K., Oxbury, S., & Funnell, E. (1992). Semantic dementia: Progressive fluent aphasia with temporal lobe atrophy. Brain, 115 (6), 1783–1806. doi: 10.1093/brain/115.6.1783
  • Jacobs, E. A. & Diamond, L. C. (Eds.). (2017). Providing health care in the context of language barriers. Bristol: Multilingual Matters.
  • Jansson, G. (2014). Bridging language barriers in multilingual care encounters. Multilingua, 33 (1–2), 201–232.
  • Jones, G. M. M. (1992). A communication model for dementia. In G. M. M. Jones, & B. M. L. Miesen (Eds.), Care-giving in dementia: Research and applications (pp. 77–99). London: Routledge.
  • Juthberg, C., Eriksson, S., Norberg, A., & Sundin, K. (2010). Perceptions of conscience, stress of conscience and burnout among nursing staff in residential elder care. Journal of Advanced Nursing, 66 (8), 1708–1718. doi: 10.1111/j.1365-2648.2010.05288.x
  • Kitwood, T. (1997). Dementia reconsidered. Oxford: Oxford University Press.
  • Kolářová, K. (2015). ‘Grandpa lives in paradise now’: Biological precarity and the global economy of debility. Feminist Review, 111(1), 75–86.
  • Kunz, M., Scharmann, S., Hemmeter, U., Schepelmann, K., & Lautenbacher, S. (2007). The facial expression of pain in patients with dementia. Pain, 133(1), 221–228. doi: 10.1016/j.pain.2007.09.007
  • Lacey, A., & Foulkes, I. (2014, 5th January). Exporting Grandma to care homes abroad. BBC News, http://www.bbc.co.uk/news/health-25438325.
  • Li, W. (2018). Translanguaging as a practical theory of language. Applied Linguistics, 39 (1), 9–30.
  • Manthorpe, J., Hussein, S., & Stevens, M. (2012). Communication with migrant workers: The perspectives of people using care services in England. Practice, 24 (5), 299–314. doi: 10.1080/09503153.2012.740450
  • McLean, A. (2007). The person in dementia: A study of nursing home care in the US. Toronto: Broadview Press.
  • McMurtray, A., Saito, E., & Nakamoto, B. (2009). Language preference and development of dementia among bilingual individuals. Hawaii Medical Journal, 68 (9), 223–226.
  • Méligne, D., Fossard, M., Belliard, S., Moreaud, O., Duvignau, K., & Démonet, J. F. (2011). Verb production during action naming in semantic dementia. Journal of Communication Disorders, 44 (3), 379–391. doi: 10.1016/j.jcomdis.2010.12.001
  • Mendez, M. F., Perryman, K. M., Pontón, M. O., & Cummings, J. L. (1999). Bilingualism and dementia. The Journal of Neuropsychiatry and Clinical Neurosciences, 11 (3), 411–412. doi: 10.1176/jnp.11.3.411
  • Miesen, B. M. L. (1999). Dementia in close-up .London. Routledge.
  • Miller, J. (1990). Communication without words. In D. H. Mellor (Ed.), Ways of communicating (pp. 113–124). Cambridge: Cambridge University Press.
  • Mitchell, W. (2018). Somebody I used to know. London: Bloomsbury.
  • Moore, L. A., & Davis, B. H. (2002). Quilting narrative: Using repetition techniques to help elderly communicators. Geriatric Nursing, 23 (5), 262–266. doi: 10.1067/mgn.2002.128786
  • Neary, D., Snowden, J. S., & Mann, D. M. A. (2000). Classification and description of frontotemporal dementias. Annals of the New York Academy of Sciences, 920, 46–51. doi: 10.1111/j.1749-6632.2000.tb06904.x
  • Nolan, M., Davies, S., & Grant, G. (2001). Introduction: The changing face of health and social care. In M. Nolan, S. Davies., & G. Grant (Eds.), Working with older people and their families (pp. 1–18). Buckingham: Open University Press.
  • Obler, L. K., & De Santi, S. (2000). Eliciting language from patients with Alzheimer’s disease. In L. Menn., & N. B. Ratner (Eds.), Methods for studying language production (pp. 403–416). Mahwah, NJ: Lawrence Erlbaum.
  • Otheguy, R., García, O., & Reid, W. (2015). Clarifying translanguaging and deconstructing named languages: A perspective from linguistics. Applied Linguistics Review, 6 (3), 281–307.
  • Patterson, K. (2014). Language disorders in neurodegenerative disease: Insights into the organisation of semantic memory and language in the human brain. In L.-G. Nilsson, & N. Ohta (Eds.), Dementia and memory (pp. 170–184). Hove: Psychology Press.
  • Plejert, C., Antelius, E., Yazdanpanah, M., & Nielsen, T. R. (2015). ‘There’s a letter called ef.’ On challenges and repair in interpreter-mediated tests of cognitive functioning in dementia evaluations: A case study. Journal of Cross-Cultural Gerontology, 30 (2), 163–187. doi: 10.1007/s10823-015-9262-0
  • Plejert, C., Jansson, G., & Yazdanpanah, M. (2014). Response practices in multilingual interaction with an older Persian woman in a Swedish residential home. Journal of Cross-Cultural Gerontology, 29 (1), 1–23. doi: 10.1007/s10823-013-9217-2
  • Plejert, C., Jones, D., & Peel, E. (2017). Pathways within dementia diagnosis. In L.-C. Hydén, & E. Antelius (Eds.), Living with dementia (pp. 68–92). London: Palgrave.
  • Plejert, C., Lindholm, C., & Schrauf, R. W. (2017). Multilingual interaction and dementia. In C. Plejert, C. Lindholm, & R. W. Schrauf (Eds.), Multilingual interaction and dementia (pp. 1–22). Bristol: Multlingual Matters.
  • Quince, C. (2013). Low expectations: Attitudes on choice, care and community for people with dementia in care homes. Alzheimer’s Society, https://www.alzheimers.org.uk/sites/default/files/migrate/downloads/alzheimers_society_low_expectations_report.pdf
  • Reilly, J., Rodriguez, A. D., Lamy, M., & Neils-Strunjas, J. (2010). Cognition, language, and clinical pathological features of non-Alzheimer’s dementias: An overview. Journal of Communication Disorders, 43 (5), 438–452. doi: 10.1016/j.jcomdis.2010.04.011
  • Roberts, A., & Orange, J. B. (2013). Discourse in Lewy body spectrum disorder. In B. Davis, & J. Guendouzi (Eds.), Pragmatics in dementia discourse (pp. 147–204). Newcastle-upon-Tyne: Cambridge Scholars Publishing.
  • Rosendahl, S. P., Söderman, M., & Mazaheri, M. (2016). Immigrants with dementia in Swedish residential care: An exploratory study of the experiences of their family members and Nursing staff. BMC Geriatrics, 16 (1), 1–12.
  • Rousseaux, M., Sève, A., Vallet, M., Pasquier, F., & Mackowiak-Cordoliani, M. A. (2010). An analysis of communication in conversation in patients with dementia. Neuropsychologia, 48 (13), 3884–3890. doi: 10.1016/j.neuropsychologia.2010.09.026
  • Sabat, S. R. (2001). The experience of Alzheimer’s disease: Life through a tangled veil. Oxford: Blackwell.
  • Schwei, R. J., Del Pozo, S., Agger-Gupta, N., Alvarado-Little, W., Bagchi, A., Chen, A. H., … Jacobs, E. A. (2016). Changes in research on language barriers in health care since 2003: A cross-sectional review study. International Journal of Nursing Studies, 54, 36–44. doi: 10.1016/j.ijnurstu.2015.03.001
  • Sharp, S. (2007). Home from home: A report highlighting opportunities for improving standards of dementia care in care homes. London: Alzheimer’s Society.
  • Skills for Care (2017). The state of the adult social care sector and workforce in England. Skills for Care, https://www.skillsforcare.org.uk/Documents/NMDS-SC-and-intelligence/NMDS-SC/Analysis-pages/State-of-17/State-of-the-adult-social-care-sector-and-workforce-2017.pdf
  • Small, J., Chan, S. M., Drance, E., Globerman, J., Hulko, W., O’Connor, D., … Ho, L. (2015). Verbal and nonverbal indicators of quality of communication between care staff and residents in ethnoculturally and linguistically diverse long-term care settings. Journal of Cross-Cultural Gerontology, 30 (3), 285–304. doi: 10.1007/s10823-015-9269-6
  • Small, J. A., & Gutman, G. (2002). Recommended and reported use of communication strategies: In Alzheimer caregiving. Alzheimer Disease and Associated Disorders, 16 (4), 270–278. doi: 10.1097/00002093-200210000-00009
  • Soderlund, M., Cronqvist, A., Norberg, A., Ternestedt, B.-M., & Hansebo, G. (2016). Conversations between persons with dementia disease living in nursing homes and nurses: Qualitative evaluation of an intervention with the validation method. Scandinavian Journal of Caring Sciences, 30 (1), 37–47. doi: 10.1111/scs.12219
  • Squires, A., & Jacobs, E. A. (2016). Language and communication issues impact healthcare providers around the world. International Journal of Nursing Studies, 54, 5–6.
  • Steffener, J., & Stern, Y. (2012). Exploring the neural basis of cognitive reserve in aging. Biochimica et Biophysica Acta, 1822 (3), 467–473. doi: 10.1016/j.bbadis.2011.09.012
  • Stern, Y., Zarahn, E., Habeck, C., Holtzer, R., Rakitin, B. C., Kumar, A., … Brown, T. (2008). A common neural network for cognitive reserve in verbal and object working memory in young but not old. Cerebral Cortex, 18 (4), 959–967. doi: 10.1093/cercor/bhm134
  • Swaffer, K. (2016). What the hell happened to my brain? London: Jessica Kingsley.
  • Swain, M. (2006). Languaging, agency and collaboration in advanced language proficiency. In H. Byrnes (Ed.), Advanced language learning: The contribution of Halliday and Vygotsky (pp. 95–108). New York: Bloomsbury.
  • Taylor, R. (2007). Alzheimer’s from the inside out. Baltimore, MA: Health Professions Press Inc.
  • Timonen, V., & Doyle, M. (2010). Caring and collaborating across cultures? Migrant care workers’ relationships with care recipients, colleagues and employers. European Journal of Women’s Studies, 17 (1), 25–41. doi: 10.1177/1350506809350859
  • UNISON (2017). Residential care worker survey and residential care charter executive summary. UNISON, https://www.unison.org.uk/content/uploads/2017/06/residential-care-summary.pdf.
  • Vogler, C. M. (2015). Receiving and providing care abroad. Vienna, (MA): Universität Wien.
  • Wray, A. (2010). ‘We’ve had a wonderful, wonderful thing’: formulaic interaction when an expert has dementia. Dementia, 9 (4), 517–534. doi: 10.1177/1471301210381677
  • Wray, A. (2011). Formulaic language as a barrier to effective communication with people with Alzheimer’s disease. Canadian Modern Language Review, 67 (4), 429–458. doi: 10.3138/cmlr.67.4.429
  • Wray, A. (2012). Patterns of formulaic language in Alzheimer’s disease: Implications for quality of life. Quality in Ageing and Older Adults, 13 (3), 168–175. doi: 10.1108/14717791211264034
  • Wray, A. (forthcoming). The dynamics of dementia communication. New York: Oxford University Press.
  • Zander, R. (2017). Care facilities for elderly assisted living in Thailand. https://iglu.net/care-facilities-for-elderly-assisted-living-in-thailand/

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