Advanced search
Publication Cover
Disability & Society Volume 16, 2001 - Issue 6
Submit an article Journal homepage
1,596
Views
39
CrossRef citations to date
0
Altmetric
Original Articles

Seeing the Invisible Children and Young People Affected by Disability

Pauline Banks Strathclyde Centre for Disability Research
,
Nicola Cogan Strathclyde Centre for Disability Research
,
Susan Deeley Centre for the Child and Society, University of Glasgow
,
Malcolm Hill Centre for the Child and Society, University of Glasgow
,
Sheila Riddell Children in Scotland, University of Edinburgh, UK
&
Kay Tisdall Children in Scotland, University of Edinburgh, UK
Pages 797-814 | Published online: 01 Jul 2010

  • ABBERLEY , P. 1987 . The concept of oppression and the development of a social theory of disability . Disability, Handicap and Society , 2 : 5 – 19 .
  • ALDRIDGE , J. and BECKER , S. 1993a . Punishing children for caring: the hidden cost of young carers . Children and Society , 7 : 376 – 387 .
  • ALDRIDGE , J. and BECKER , S. 1993b . Children Who Care: inside the world of young carers , Loughbor-ough : Department of Social Science, Loughborough University .
  • AMES , J. 1999 . “ Fostering children and young people with learning disabilities ” . In Signposts in Fostering , Edited by: HILL , M. London : BAAF .
  • ANDERSON , E.M. and CLARKE , L. 1982 . Disability in Adolescence , London : Methuen .
  • BARNES , C. 1991 . Disabled People in Britain and Discrimination: a case for anti-discrimination legislation , London : Hurst & Co .
  • BARNETT , B. and PARKER , G. 1998 . The parentified child: early competence or childhood deprivation? . Child Psychology and Psychiatry Review , 3 : 146 – 166 .
  • BEAZLEY , S. and MOORE , M. 1996 . “ Family lives of hearing children with deaf parents ” . In Children's Reflections on Family Life , Edited by: MOORE , M. , SIXSMITH , J. and KNOWLES , K. London : Palmer Press .
  • BECKER , S. , ALDRIDGE , J. and DEARDEN , C. 1998 . Young Carers and their Families , Oxford : Blackwell Science .
  • BIBBY , A. and BECKER , S. 2000 . Young Carers in Their Own Words , London : Calouste Gulbenkian Foundation .
  • BOER , F. 1990 . Sibling Relationship in Middle Childhood , Leiden : DSW Press .
  • BOOTH , T. and BOOTH , W. 1994 . The use of depth interviewing with vulnerable subjects-lessons from a research study of parents with learning difficulties . Social Science and Medicine , 39 : 415 – 424 .
  • BOOTH , T. and BOOTH , W. 1998 . Growing Up with Parents who have Learning Difficiulties , London : Routledge .
  • BRYANT , B.K. 1982 . “ Sibling relationships in middle childhood ” . In Sibling Relationships: their nature and significance across the lifespan , Edited by: LAMB , M. E. and SUTTONSMITH , B. Hillsdale, NJ : Lawrence Erlbaum .
  • CENTRE FOR THE CHILD AND SOCIETY & STRATHCLYDE CENTRE FOR DISABILITY RESEARCH . 1999 . Children Affected by Disability of Another Family Member, report submitted to Renfrewshire Council , Glasgow : University of Glasgow .
  • CHRISTENSEN , P. and JAMES , A. 2000 . Research with Children , London : Palmer Press .
  • DEARDEN , C. and BECKER , S. 1998 . Young Carers in the United Kingdom , London : Carers National Association .
  • DEPARTMENT OF HEALTH . 1999 . Caring about Carers: a national strategy for carers , London : HMSO .
  • DUNN , J. and KENDRICK , C. 1982 . Siblings: love, envy and understanding , London : Grant McIntyre .
  • DYSON , L.L. 1996 . The experiences of families of children with learning disabilities: parental stress, family functioning, and sibling self-concept . Journal of Learning Disabilities , 29 : 280 – 286 .
  • FRANK , J. , TATUM , C. and TUCKER , S. 1999 . On Small Shoulders: learning from the experiences of former young carers , London : The Children's Society .
  • JAMES , A. and PROUT , A. 1998 . Constructing and Reconstructing Childhood, , 2nd edn , London : Palmer Press .
  • JAMES , A. , JENKS , C. and PROUT , A. 1998 . Theorizing Childhood , Oxford : Polity Press .
  • KAGAN , C. and LEWIS , S. 1996 . “ Families with parents who have multiple commitments ” . In Children's Reflections on Family Life , Edited by: MOORE , M. , SIXSMITH , J. and KNOWLES , K. London : Palmer Press .
  • KEITH , L. and MORRIS , J. 1996 . “ Easy targets: a disability rights perspective on the 'children as carers' debate ” . In Encounters with Strangers: feminism and disability , Edited by: MORRIS , J. London : Women's Press .
  • KIRP , D. 1982 . Professionalization as policy choice: British special education in comparative perspective . World Politics , XXXIV : 137 – 174 .
  • LAYBOURN , A. , BROWN , J. and HILL , M. 1996 . Hurting on the Inside , Aldershot : Avebury .
  • LOBATO , D.J. 1991 . Preschool siblings of handicapped children: interactions with mothers, brothers, and sisters . Research in Developmental Disabilities , 12 : 387 – 399 .
  • MACASKILL , C. 1985 . Against the Odds , London : BAAF .
  • MAYALL , B. 1994 . “ Introduction ” . In Children's Childhoods Observed and Experienced , Edited by: MAYALL , B. London : Palmer Press .
  • McHALE , S.M. and GAMBLE , W.C. 1989 . Sibling relationships of children with disabled and non-disabled brothers and sisters . Developmental Psychology , 25 : 421 – 429 .
  • MOORE , M. , SKSMITH , J. and KNOWLES , K. 1996 . Children's Reflections on Family Life , London : Palmer Press .
  • MORRIS , J. 1993 . Feminism and disability . Feminist Review , 43 : 57 – 70 .
  • NCH ACTION FOR CHILDREN . 1997 . Young Carers Research Project, report submitted to NCH Action for Children and Glasgow City Council Social Work Department South District , Glasgow : NCH Action for Children .
  • NEWSON , E. and DAVIES , J. 1994 . “ Supporting siblings of children with autism and related developmental disorders ” . In Innovation in Family Support for People with Learning Difficulties , Edited by: MITTLER , P. and MITTLER , H. Chorley : Lisieux Hall .
  • OFFICE OF POPULATION & CENSUS SURVEYS . 1989 . Disabled Adults: services, transport and employment , London : HMSO .
  • OLIVER , M. 1990 . The Politics of Disablement , London : Macmillan .
  • OLSEN , R. 1996 . Young carers: challenging the facts and politics of research into children and caring . Disability & Society , 11 : 41 – 54 .
  • OLSEN , R. and PARKER , G. 1997 . A response to Aldridge and Becker, 'Disability rights and the denial of young carers: the dangers of zero-sum arguments' . Critical Social Policy, , 50 (17) : 125 – 133 .
  • OPPENHEIM , C. 1990 . Poverty: the facts , London : Child Poverty Action Group .
  • PRINCESS ROYAL TRUST FOR CARERS . 1999 . Too Much to Take On: a report on young carers and bullying , London : Princess Royal Trust for Carers .
  • ROEYERS , H. and MYCKE , K. 1995 . Siblings of a child with autism, with mental retardation and with a normal development . Child: Care, Health and Development , 21 : 305 – 319 .
  • RUTTER , M. 1966 . Children of Sick Parents: an environmental and psychiatric study , Buckingham : Open University Press .
  • RUTTER , M. and MADGE , N. 1976 . Maternal Deprivation Reassessed, , 2nd edn , Oxford : Heinemann .
  • SCELLES , R. 1997 . The impact of a person's disability on his or her sibling . International Journal of Rehabilitation Research , 20 : 129 – 137 .
  • SHAMGAR-HANDELMAN , L. 1994 . “ To whom does childhood belong? ” . In Childhood Matters: Social Theory, Practice and Politics European Centre, Vienna , Edited by: QVORTRUP , J. , BARDY , M. , SGRITTA , G. and WINTERSBERGER , H. London : Avesbury .
  • SHAKESPEARE , T. and WATSON , N. 1998 . “ Theoretical perspectives on research with disabled children ” . In Growing Up with Disability Research Highlights in Social Work 34 , Edited by: ROBINSON , C. and STALKER , K. London : Jessica Kingsley .
  • STRATHCLYDE CENTRE FOR DISABILITY RESEARCH & CENTRE FOR THE CHILD AND SOCIETY . 1999 . The Extent, Nature and Needs of Young Carers in Easterhouse, report submitted to Greater Glasgow Health Board and Easterhouse Carers Strategy Group , Glasgow : University of Glasgow .
  • SUMMERS , C.R. 1994 . Siblings of children with a disability: a review and analysis of the empirical literature . Journal of Social Behaviour and Personality , 9 : 169 – 184 .
  • VANDELL , D.L. and BAILEY , M.D. 1992 . “ Conflicts between siblings ” . In Conflict in Child and Adolescent Development , Edited by: SCHANTZ , C.U. and HARTUP , W.W. Cambridge : Cambridge University Press .
  • WALKER , J.P. and LEE , R.E. 1998 . Uncovering strengths of children of alcoholic parents . Contemporary Family Therapy , 20 : 521 – 538 .
  • YOUNG CARERS RESEARCH GROUP . 1998 . Young Carers in the UK , Loughborough : Loughborough University .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.