789
Views
30
CrossRef citations to date
0
Altmetric
Original Articles

Experiential knowledge challenges ‘normality’ and individualized citizenship: towards ‘another way of being’

Pages 283-298 | Published online: 02 May 2007

References

  • Askhim , O. 2003 . Empowerment as guidance for professional social work: an act of balancing on a slack rope . European Journal of Social Work , 6 (3) : 229 – 240 .
  • Avdi , E. , Griffin , C. and Brough , S. 2000 . Parents’ constructions of professional knowledge, expertise and authority during assessment and diagnosis of their child for an autistic spectrum disorder . British Journal of Medical Psychology , 73 (3) : 327 – 338 .
  • Baker , D. L. 2006 . Neurodiversity, neurological disability and the public sector: notes on the autism spectrum . Disability and Society , 21 (1) : 15 – 29 .
  • Barnes , C. 1998 . “ The social model of disability: a sociological phenomenon ignored by sociologists? ” . In The disability reader , Edited by: Shakespeare , T. London : Cassell .
  • Baron‐Cohen , S. , Tager‐Flusberg , H. and Cohen , D. J. , eds. 1993 . Understanding other minds: perspectives from Autism , Oxford, UK : Oxford University Press .
  • Beresford , B. 1995 . Expert opinions: a national survey of parents caring for a severely disabled child , Bristol, UK : The Policy Press in association with the Joseph Rowntree Association .
  • Billington , T. 2006 . Working with autistic children and young people: sense, experience and the challenges for services, policies and practices . Disability and Society , 21 (1) : 1 – 13 .
  • Boxall , K. 2004 . Research and the production of knowledge about learning disability , University of Manchester . Ph.D. thesis
  • Busby , H. , Williams , G. and Rogers , A. 1997 . “ Bodies of lay knowledge: lay and biomedical understandings of musculoskeletal disorders ” . In The sociology of medical science and technology , Edited by: Elston , M. A. Oxford, UK : Blackwell .
  • Carpenter , B. 2000 . Sustaining the family: meeting the needs of families with children with disabilities . British Journal of Special Education , 27 (3) : 135 – 144 .
  • Carr , D. 1986 . Time, narrative and history , Bloomington, IN : Indiana University Press .
  • Corker , M. and French , S. 1999 . “ Reclaiming discourse in disability studies ” . In Disability discourse , Edited by: Corker , M. Buckingham, UK : Open University Press .
  • Cushing , P. and Lewis , T. 2002 . Negotiating mutuality and agency in care‐giving relationships with women with intellectual disabilities . Hypatia , 17 (3) : 173 – 193 .
  • Department for Education and Skills . 2003 . Every child matters , London : DfES .
  • Department of Health . 2004 . Choosing health: making healthy choice easier , London : Department of Health .
  • Diprose , R. 2002 . Corporeal generosity , New York : SUNY Press .
  • du Gay , P. 2000 . “ Entrepreneurial governance and public management: the anti‐bureaucrats ” . In New managerialism. New welfare , Edited by: Clarke , J. , Gewirtz , S. , McLaughlin , E. and E. London : Sage .
  • Dworkin , R. 1993 . Life’s dominion: an argument about abortion, euthanasia, and individual freedom , New York : Knopf .
  • Ezzy , D. 2000 . Illness narrative: time, hope and HIV . Social Science and Medicine , 50 : 605 – 617 .
  • Fairclough , N. 2000 . New Labour, new language? , London : Routledge .
  • Finkelstein , V. 1991 . “ Disability: an administrative challenge? ” . In Social work: disabled people and disabling environments , Edited by: Oliver , M. London : Jessica Kingsley .
  • Fisher , P. and Goodley , D. 2007 . The linear medical model of disability: mothers of disabled babies resist with counter‐narratives . Sociology of Health and Illness , 29 (1) : 66 – 81 .
  • Frank , A. W. 1995 . The wounded storyteller. Body, illness and ethics , Chicago, IL : University of Chicago Press .
  • Fraser , N. 1997 . Justice interruptus: critical reflections on the ‘postsocialist’ condition , London : Routledge .
  • Gewirtz , S. 2001 . Cloning the Blairs: New Labour’s programme for the re‐socialization of working‐class parents . Journal of Education Policy , 16 (4) : 365 – 378 .
  • Giddens , A. 1998 . The third way: the renewal of social democracy , Cambridge, UK : Polity Press .
  • Gillies , V. 2005a . Meeting parents’ needs? Discourses of ‘support’ and ‘inclusion’ in family policy . Critical Social Policy , 25 (1) : 70 – 90 .
  • Gillies , V. 2005b . Raising the ‘meritocracy’: parenting and the individualization of social class . Sociology , 39 (5) : 835 – 853 .
  • Glendinning , C. 1983 . Unshared care: parents and their disabled children , London : Routledge and Kegan Paul .
  • Goodley , D. and Rapley , M. 2002 . “ Changing the subject: postmodernity and people with ‘learning difficulties’ ” . In Disability/postmodernity. Embodying disability theory Edited by: Corker , M. and Shakespeare , T. (London Continuum)
  • Goodley , D. and Tregaskis , C. 2006 . Storying disability and impairment: retrospective accounts of disabled family life . Qualitative Health Research , 16 (5) : 630 – 646 .
  • Gur‐Ze’ev , I. , Masschelein , J. and Blake , N. 2001 . Reflectivity, reflection and counter‐education . Studies in Philosophy and Education , 20 : 93 – 106 .
  • Hanisberg , J. and Ruddick , S. , eds. 1999 . Mother troubles: rethinking contemporary maternal dilemmas , Boston, MA : Beacon Press .
  • Happe , F. 1999 . Understanding assets and deficits in autism: why success is more interesting than failure . The Psychologist , 12 (1) : 530 – 546 .
  • Home Office . 1998 . Supporting Families , London : HMSO .
  • Kittay , E. 1999 . “ Not my way, Sesha, your way slowly: ‘maternal thinking’ in the raising of a child with profound intellectual disabilities ” . In Mother troubles: rethinking contemporary maternal dilemmas , Edited by: Hanisberg , J. and Ruddick , S. Boston, MA : Beacon Press .
  • Kittay , E. 2002 . Love’s labour revisited . Hypatia , 17 (3) : 237 – 250 .
  • Lloyd , M. 2001 . The politics of disability and feminism: discord or synthesis? . Sociology , 35 (4) : 714 – 728 .
  • Lyotard , J. F. 1984 . The postmodern condition. A report on knowledge , Manchester, UK : Manchester University Press .
  • Ling , T. 2000 . “ Unpacking partnership: the case of health care ” . In New managerialism. New welfare , Edited by: Clarke , J. , Gewirtz , S. and McLaughlin , E. London : Sage .
  • Maclean , M. 2002 . “ The Green Paper Supporting families 1998 ” . In Analysing families: morality and rationality in policy and practice , Edited by: Carling , A. , Duncan , S. and Edwards , R. London : Routledge .
  • Masschelein , J. and Simons , M. 2002 . An adequate education in a globalised world? A note on immunisation against being together . Journal of Philosophy of Education , 36 (4) : 589 – 608 .
  • McDonald , R. 2004 . Individual identity and organisational control: empowerment and modernisation in a Primary Care Trust . Sociology of Health and Illness , 26 (7) : 925 – 950 .
  • McRuer , R. and Wilkerson , A. L. 2003 . Introduction, Desiring dDisability: queer theory meets disability studies . GLQ: A Journal of Lesbian & Gay Studies , 9 (1/2) : 1 – 23 .
  • Monaghan , L. 1999 . Challenging medicine? Body building, drugs and risk . Sociology of Health and Illness , 21 (6) : 707 – 734 .
  • Morris , J. 1996 . Encounters with strangers: feminism and disability , London : The Women’s Press .
  • Munro , E. 2004 . The impact of audit on social work practice . British Journal of Social Work , 34 : 1075 – 1095 .
  • Murray , P. 2003 . Reflections on living with illness, impairment and death . Disability and Society , 18 (4) : 523 – 526 .
  • Newman , J. 2000 . “ Beyond the new public management? Modernising public services ” . In New managerialism. New welfare , Edited by: Clarke , J. , Gewirtz , S. and McLaughlin , E. London : Sage .
  • Oliver , M. 1990 . The politics of disablement , Basingstoke, UK : Macmillan .
  • Parton , N. 2005 . Safeguarding childhood—early intervention and surveillance in a late modern society , London : Macmillan .
  • Pollitt , C. 1993 . Managerialism and the public sector , Oxford, UK : Basil Blackwell .
  • Poole , L. 2000 . “ Health care: New Labour’s NHS ” . In New managerialism. New welfare , Edited by: Clarke , J. , Gewirtz , S. and McLaughlin , E. London : Sage .
  • Plummer , K. 1983 . Documents of life: an introduction to the problems and literature of a humanistic method , London : George Allen & Unwin .
  • Radley , A. 1994 . Making sense of illness: the social psychology of health and disease , London : Sage .
  • Read , J. 2000 . Disability, the family and society. Listening to mothers , Buckingham, UK : Open University Press .
  • Ricoeur , P. 1992 . Oneself as another , Chicago, IL : University of Chicago Press .
  • Robertson , C. 2001 . Autonomy and identity: the need for new dialogues in education and welfare . Support for Learning , 16 (3) : 122 – 127 .
  • Roll‐Petterson , L. 2001 . Parents talk about how it feels to have a child with a cognitive disability . European Journal of Special Needs Education , 16 (1) : 1 – 14 .
  • Rose , N. 1999 . Powers of freedom: reframing political thought , Cambridge, UK : Cambridge University Press .
  • Rosenthal , G. 1993 . “ Reconstruction of life stories: principles of selection in generating stories for narrative biographical interviews ” . In The narrative study of lines , Edited by: Josselson , R. and Lieblich , A. Vol. 1 , Newbury Park, CA : Sage .
  • Rössler , B. 2002 . Problems with autonomy . Hypatia , 17 (4) : 143 – 162 .
  • Samson , C. 1995 . “ Madness and psychiatry ” . In Medical power and social knowledge , Edited by: Turner , B. S. London : Sage .
  • Sevenhuijsen , S. 1998 . Citizenship and the ethics of care , London : Routledge .
  • Sevenhuijsen , S. 2000 . Caring in the third way: the relation between obligation, responsibility and care in third way discourse . Critical Social Policy , 20 (1) : 5 – 37 .
  • Swain , J. and French , S. 2000 . Towards an affirmation of disability . Disability and Society , 15 (4) : 569 – 582 .
  • Taylor , C. 1989 . Sources of the self: the making of modern identity , Cambridge, MA : Harvard University Press .
  • Thomas , C. 2001 . “ Feminism and disability: the theoretical and political significance of the personal and the experiential ” . In Disability politics and the struggle for change , Edited by: Barton , L. London : David Fulton .
  • Traustadottir , R. 1991 . Mothers who care. Gender, disability, and family life . Journal of Family Issues , 12 (2) : 211 – 228 .
  • Traustadottir , R. 1995 . “ A mother’s work is never done: constructing a ‘normal’ famly life ” . In The variety of community experience , Edited by: Taylor , S. J. , Bogdan , R. and Luufyya , Z. M. Baltimore : Paul H. Brookes .
  • Tronto , J. 1993 . Moral boundaries: a political argument for an ethic of care , London : Routledge .
  • Walker , M. U. 1998 . Moral understandings. A feminist study in ethics , New York : Routledge Chapman & Hall .
  • Walmsely , J. 2001 . Normalisation, emancipatory research and inclusive research in learning disability . Disability and Society , 16 (2) : 187 – 205 .
  • Waltz , M. 2005 . Reading case studies of people with autistic spectrum disorders: a cultural studies approach to issues of disability representation . Disability and Society , 20 : 421 – 435 .
  • Watson , M. , McKie , L. , Hughes , B. , Hopkins , D. and Gregory , S. 2004 . (Inter)Dependence, needs and care: the potential for disability and feminist theorists to develop an emancipatory model . Sociology , 38 (2) : 331 – 350 .
  • Williams , F. 1999 . Good‐enough principles for welfare . Journal of Social Policy , 28 (4) : 667 – 687 .
  • Williams , F. 2002 . The presence of feminism in the future of welfare . Economy and Society , 31 (4) : 502 – 519 .
  • Wolfensberger , W. 1972 . Principle of normalization in human services , Toronto, , Canada : National Institute on Mental Retardation through Leonard Crainford .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.