Disability and identity: the challenge of epilepsy

References

• Ali , N. , Atkin , K. , Craig , G. , Dadze‐Arthur , A. , Elliott , C. and Edwards , A. 2006 . Ethnicity, disability and work , London : Royal National Institute for the Blind .
   Google Scholar
• Barnes , C. 1999 . Disability studies: New or not‐so‐new directions . Disability & Society , 14 ( 4 ) : 577 – 80 .
   Web of Science ®Google Scholar
• Barnes , C. and Mercer , G. 1996 . Exploring the divide: Illness and disability , Leeds : The Disability Press .
   Google Scholar
• Barnes , M. 1997 . Care, communities and citizens , Harlow : Addison Wesley Longman .
   Google Scholar
• Beresford , P. 2000 . What have madness and psychiatric system survivors got to do with disability and disability studies? . Disability & Society , 15 ( 1 ) : 167 – 72 .
   Web of Science ®Google Scholar
• Beresford , P. 2007 . Review symposium . Disability & Society , 22 ( 2 ) : 217 – 23 .
   Google Scholar
• Birkett , D. April 24 2005 . “ ‘It's so upsetting when people say it's my fault ” . In The Guardian April 24 , 16 G2
   Google Scholar
• Brett , J. 2002 . The experience of disability from the perspective of parents of children with profound impairment: Is it time for an alternative model of disability? . Disability & Society , 17 ( 7 ) : 825 – 43 .
   Web of Science ®Google Scholar
• Butler , J. 1993 . Bodies that matter: On the discursive limits of sex , London : Routledge .
   Google Scholar
• Carrazana , E. , de Toledo , J. , Tatum , W. , Rivas‐Vasquez , R. , Rey , G. and Wheeler , S. 1999 . Epilepsy and religious experiences: Voodoo possession . Epilepsia , 40 : 239 – 41 .
   PubMed Web of Science ®Google Scholar
• Corker , M. 1999a . “ New disability discourse, the principle of optimisation and social change ” . In Disability discourse , Edited by: Corker , M. and French , S. Buckingham : Open University Press .
   Google Scholar
• Corker , M. 1999b . Differences, conflations and foundations: The limits to ‘accurate’ theoretical representation of disabled people's experience? . Disability & Society , 14 ( 5 ) : 627 – 42 .
   Web of Science ®Google Scholar
• Corker , M. and French , S. , eds. 1999 . Disability discourse , Buckingham : Open University Press .
   Google Scholar
• Crow , L. 1996 . “ Including all of our lives: Renewing the social model of disability ” . In Exploring the divide: Illness and disability , Edited by: Barnes , C. and Mercer , G. Leeds : The Disability Press .
   Google Scholar
• de Wolfe , P. 2002 . Private tragedy in social context? Reflections on disability, illness and suffering . Disability & Society , 17 ( 3 ) : 255 – 67 .
   Web of Science ®Google Scholar
• Fazil , Q. , Bywaters , P. , Ali , Z. , Wallace , L. and Singh , G. 2002 . Disadvantage and discrimination compounded: The experience of Pakistani and Bangladeshi parents of disabled children in the UK . Disability & Society , 17 ( 3 ) : 237 – 53 .
   Web of Science ®Google Scholar
• Finkelstein , V. 2001 . The social model repossessed , Leeds University . http://www.leeds.ac.uk/disability‐studies/archiveuk/archframe.htm
   Google Scholar
• French , S. 1993 . “ Disability, impairment or something in between ” . In Disability: A social challenge or an administrative responsibility , Edited by: Swain , J. , Finkelstein , V. , French , S. and Oliver , M. London : Sage .
   Google Scholar
• Giddens , A. 1991 . Modernity and self identity , Cambridge , , UK : Polity Press .
   Google Scholar
• Giroux , H. 1992 . Border crossings: Cultural workers and the politics of education , London : Routledge .
   Google Scholar
• Goffman , E. 1963 . Stigma: Notes on the management of spoiled identity , Englewood Cliffs , NJ : Prentice Hall .
   Google Scholar
• Gordon , B.O. and Rosenblum , K.E. 2001 . Bringing disability into the sociological frame: A comparison of disability with race, sex, and sexual orientation statuses . Disability & Society , 16 ( 1 ) : 5 – 19 .
   Web of Science ®Google Scholar
• Grewal , I. , Joy , S. , Lewis , J. , Swales , K. and Woodfield , K. 2002 . Disabled for life? Attitudes towards, and experiences of, disability in Britain , Leeds : Corporate Document Services . Department of Work and Pensions Research Report 173
   Google Scholar
• Hall , S. 1996 . “ Introduction: Who needs identity ” . In Questions of cultural identity , Edited by: Hall , S. and du Gay , P. London : Sage .
   Google Scholar
• Hevey , D. 1992 . The creatures time forgot: Photography and disability imagery , London : Routledge .
   Google Scholar
• Jacoby , A. 1994 . Felt versus enacted stigma: A concept revisited . Social Science & Medicine , 38 ( 2 ) : 269 – 74 .
   PubMed Web of Science ®Google Scholar
• Jacoby , A. , Gorry , G. , Gamble , C. and Baker , G.A. 2004 . Public knowledge, private grief: A study of public attitudes to epilepsy in the United Kingdom and implications for stigma . Epilepsia , 45 ( 11 ) : 1405 – 15 .
   PubMed Web of Science ®Google Scholar
• Jacoby , A. , Snape , D. and Baker , G.A. 2005 . Epilepsy and social identity: The stigma of a chronic neurological disorder . Lancet Neurology , 4 ( 3 ) : 171 – 8 .
   PubMed Web of Science ®Google Scholar
• Kohler Riessman , C. 2000 . Stigma and everyday resistance practices: Childless women in South India . Gender & Society , 14 ( 1 ) : 111 – 35 .
   Web of Science ®Google Scholar
• Llewellyn , A. and Hogan , K. 2000 . The use and abuse of models of disability . Disability & Society , 15 ( 1 ) : 157 – 65 .
   Web of Science ®Google Scholar
• Link , B.G. and Phelan , J.C. 2001 . Conceptualising stigma . Journal Review of Sociology , 27 : 363 – 85 .
   Web of Science ®Google Scholar
• Linton , S. 1998 . Claiming disability: Knowledge and identity , New York : New York University Press .
   Google Scholar
• McNamara , J. 1996 . “ Out of order: Madness is a feminist and a disability issue ” . In Encounters with strangers: Feminism and disability , Edited by: Morris , J. London : Women's Press .
   Google Scholar
• Mir , G. and Tovey , P. 2003 . Asian carers' experiences of medical and social care: The case of cerebral palsy . British Journal of Social Work , 33 : 465 – 79 .
   Web of Science ®Google Scholar
• Mittan , R.J. and Locke , G.E. 1986 . Fear of seizures: Epilepsy's forgotten symptom . Urban Health , 11 : 30 – 2 .
   Google Scholar
• Molloy , D. , Knight , T. and Woodfield , K. 2003 . Diversity in disability: Exploring the interactions between disability, ethnicity, age, gender and sexuality , Leeds : Corporate Document Services . Research Report 188
   Google Scholar
• Morrell , M.J. and Pedley , T.A. 2000 . “The Scarlet E”: Epilepsy is still a burden . Neurology , 54 ( 10 ) : 1882 – 3 .
   PubMed Web of Science ®Google Scholar
• Morris , J. 1991 . Pride against prejudice , London : Women's Press .
   Google Scholar
• Murphy , R.F. 1995 . “ Encounters: The body silent in America ” . In Disability and culture , Edited by: Instad , B. and Reynolds White , S. Berkeley , CA : University of California Press .
   Google Scholar
• Oliver , M. 1990 . The politics of disablement , London : Macmillan .
   Google Scholar
• Oliver , M. 1996 . Understanding disability: From theory to practice , Basingstoke : Macmillan .
   Google Scholar
• Olney , M.F. and Brockelman , K.F. 2003 . Out of the disability closet: Strategic use of perception management by select university students with disabilities . Disability & Society , 18 ( 1 ) : 35 – 50 .
   Web of Science ®Google Scholar
• Reeve , D. Encounters with strangers: Psycho‐emotional dimensions of disability in everyday life . Paper presented at the UK Disability Studies Conference . September 5 , Lancaster . http://www.disabilitystudies.net/index.php?content=23 (accessed October 10, 2007)
   Google Scholar
• Rhodes , P.J. , Small , N.A. , Ismail , H. and Wright , J.P. 2008 . Epilepsy, disability and identity among people of Pakistani origin living in Bradford, UK . Ethnicity and Health , 13 ( 1 ) : 1 – 21 .
   PubMed Web of Science ®Google Scholar
• Sayce , L. 2000 . From psychiatric patient to citizen: Overcoming discrimination and social exclusion , London : Macmillan .
   Google Scholar
• Sayce , L. 2003 . Beyond good intentions: Making anti‐discrimination strategies work . Disability & Society , 18 ( 5 ) : 625 – 42 .
   Web of Science ®Google Scholar
• Scambler , G. 1984 . “ Perceiving and coping with stigmatizing illness ” . In The experience of illness , Edited by: Fitzpatrick , R. , Hinton , J. , Newman , S. , Scambler , G. and Thompson , J. London : Tavistock .
   Google Scholar
• Scambler , G. 1989 . Epilepsy , London : Tavistock .
   Google Scholar
• Scambler , G. and Hopkins , A. 1986 . Being epileptic: Coming to terms with stigma . Sociology of Health and Illness , 8 : 26 – 43 .
   Web of Science ®Google Scholar
• Schneider , J.W. 1988 . Disability as moral experience: Epilepsy and self in routine relationships . Journal of Social Issues , 4 ( 1 ) : 63 – 78 .
   Web of Science ®Google Scholar
• Schneider , J.W. and Conrad , P. 1983 . Having epilepsy: The experience and control of illness , Philadelphia : Temple University Press .
   Google Scholar
• Shakespeare , T. 1996 . “ Disability, identity and difference ” . In Exploring the divide: Illness and disability , Edited by: Barnes , C. and Mercer , G. Leeds : The Disability Press .
   Google Scholar
• Shakespeare , T. 2006 . Disability, rights and wrongs , Abingdon : Routledge .
   Google Scholar
• Shakespeare , T. and Watson , N. 2002 . The social model of disability: An outdated ideology? . Research in Social Science and Disability , 2 : 9 – 28 .
   Google Scholar
• Small , N. 1993 . “ Dying in a public place: AIDS deaths ” . In The sociology of death , Edited by: Clark , D. Oxford : Blackwell/The Sociological Review .
   Google Scholar
• Small , N. , Ismail , H. , Rhodes , P. and Wright , J. 2005 . Evidence of cultural hybridity in responses to epilepsy amongst Pakistani Muslims living in the UK . Chronic Illness , 1 ( 2 ) : 165 – 77 .
   PubMedGoogle Scholar
• Small , N. and Rhodes , P. 2000 . Too ill to talk? User involvement and palliative care , London : Routledge .
   Google Scholar
• Stiker , H.J. 1999 . “ Using historical anthropology to think disability ” . In Disability in different cultures: Reflections on local concepts , Edited by: Holzer , B. , Vreede , A. and Weigt , G. Bielefeld : Transcript .
   Google Scholar
• Stuart , O. 1992 . Race and disability: Just double oppression? . Disability & Society , 7 ( 2 ) : 177 – 88 .
   Google Scholar
• Sutherland , A. 1981 . Disabled we stand , London : Souvenir Press .
   Google Scholar
• Sutherland , A. Coming out disabled . Paper delivered at ‘Approaches to Disability’ conference . March 19 , Durham , UK.
   Google Scholar
• Thomas , C. 1999 . Female forms: Experiencing and understanding disability , Buckingham : Open University Press .
   Google Scholar
• Thomas , C. 2004 . How is disability understood? An examination of sociological approaches . Disability & Society , 19 ( 6 ) : 569 – 83 .
   Web of Science ®Google Scholar
• Tierney , S. 2001 . A reluctance to be defined ‘disabled’. How can the social model of disability enhance understanding of anorexia? . Disability & Society , 16 ( 5 ) : 749 – 64 .
   Web of Science ®Google Scholar
• Tregaskis , C. 2002 . Social model theory: The story so far … . Disability & Society , 17 ( 4 ) : 457 – 70 .
   Web of Science ®Google Scholar
• Tregaskis , C. 2004 . Constructions of disability: Researching the interface between disabled and non‐disabled people , London : Routledge .
   Google Scholar
• Union of the Physically Impaired Against Segregation . 1976 . Fundamental principles of disability , London : Union of the Physically Impaired Against Segregation .
   Google Scholar
• Vernon , A. 1999 . The dialectics of multiple identities and the disabled people's movement . Disability & Society , 14 ( 3 ) : 385 – 98 .
   Web of Science ®Google Scholar
• Watson , N. 2002 . Well, I know this is going to sound very strange to you, but I don't see myself as a disabled person: Identity and disability . Disability & Society , 17 ( 5 ) : 509 – 27 .
   Web of Science ®Google Scholar
• Zappone , K.E. 2003 . “ Conclusion ” . In Re‐thinking identity , Edited by: Zappone , K.E. London : Joint Equality and Human Rights Forum .
   Google Scholar