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Articles

Consumer‐directed personal assistance and ‘care’: perspectives of workers and ventilator users

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Pages 317-330 | Received 16 Apr 2008, Accepted 01 Jul 2008, Published online: 14 Apr 2009

References

  • Aronson , J. and Neysmith , S.M. 1996 . ‘You’re not just in there to do the work’: Depersonalizing policies and the exploitation of home care workers’ labor . Gender and Society , 10 ( 1 ) : 59 – 77 .
  • Brooks , D. , Gibson , B.E. and DeMatteo , D. 2008 . Perspectives of personal support workers and ventilator‐users on training needs . Patient Education and Counseling , 71 : 244 – 50 .
  • Chattoo , S. and Ahmad , W.I.U. 2008 . The moral economy of selfhood and caring: Negotiating boundaries of personal care as embodied moral practice . Sociology of Health & Illness , 30 ( 4 ) : 550 – 64 .
  • Church , K. , Diamond , T. and Voronka , J. 2004 . In profile: Personal support workers in Canada , Toronto : RBC Institute for Disability Studies Research and Education, Riyerson University .
  • Crossley , N. 1995 . Merleau‐Ponty, the elusive body and carnal sociology . Body and Society , 1 ( 1 ) : 43 – 63 .
  • Danemark , B. , Ekstrom , M. , Jakobsen , L. and Karlsson , J.C. 2002 . Explaining society , London : Routledge .
  • Fraser , N. 1989 . Unruly practices: Power, discourses and gender in contemporary social theory , Cambridge , , UK : Polity .
  • Fraser , N. and Gordon , L. 1994 . Dependency demystified: Inscriptions of power in a keyword of the welfare state . International Studies in Gender, State and Society , 1 ( 1 ) : 4 – 31 .
  • Gibson , B.E. 2006 . Disability, connectivity and transgressing the autonomous body . Journal of Medical Humanities , 27 ( 3 ) : 187 – 96 .
  • Glendinning , C. , Halliwell , S. , Jacobs , S. , Rummery , K. and Tyrer , J. 2000 . New kinds of care, new kinds of relationships: How purchasing services affects relationships in giving and receiving personal assistance . Health and Social Care in the Community , 8 ( 3 ) : 201 – 11 .
  • Kincheloe , J.L. and McLaren , P. 2000 . “ Rethinking critical theory and qualitative research ” . In Handbook of qualitative research , Edited by: Denzin , N.K. and Lincoln , Y.S. 279 – 313 . Thousand Oaks , CA : Sage .
  • Korczyk , S. 2004 . Long‐term workers in five countries: Issues and options , Washington, DC : AARP Public Policy Institute .
  • Krogh , K. and Ennis , M. 2005 . A national snapshot of home support from the consumer perspective. Enabling people with disabilities to participate in policy analysis and community development , Winnipeg , , Canada : Council of Canadians with Disabilities .
  • Marquis , R. and Jackson , R. 2000 . Quality of life and quality of service relationships: Experiences of people with disabilities . Disability & Society , 15 ( 3 ) : 411 – 25 .
  • Martinez , Kathy . 2003 . “ Independent living in the U.S. & Canada ” . Independent Living Institute . http://www.independentliving.org/docs6/martinez2003.html
  • McLaughlin , J. 2006 . Conceptualising intensive caring activities: The changing lives of families with young disabled children . Sociological Research Online , 11 ( 1 ) http://www.socresonline.org.uk/11/1/mclaughlin.html
  • Meyer , M. , Donelly , M. and Weerakoon , P. 2007 . ‘They’re taking the place of my hands’: Perspectives of people using personal care . Disability & Society , 22 ( 6 ) : 595
  • Morris , J. 1997 . Care or empowerment? A disability rights perspective . Social Policy and Administration , 31 ( 1 ) : 54 – 60 .
  • Morris , J. 2004 . Independent living and community care: A disempowering framework . Disability & Society , 19 ( 5 ) : 427 – 42 .
  • National Council on Disability . 2004 . Consumer directed health care: How well does it work? , Washington, DC : National Council on Disability .
  • Price , Janet and Shildrick , Margrit . 1998 . “ Uncertain thoughts on the dis/abled body ” . In Vital signs , Edited by: Shildrick , M. and Price , J. Edinburgh : Edinburgh University Press .
  • Saxton , M. , Curry , M.A. , Powers , L.E. , Maley , S. , Eckels , K. and Gross , J. 2001 . ‘Bring my scooter so I can leave you’: A study of disabled women handling abuse by personal assistance providers . Violence Against Women , 7 ( 4 ) : 393 – 417 .
  • Shildrick , Margrit and Price , Janet . 2002 . “ Bodies together: Touch, ethics and disability ” . In Disability/postmodernity: Embodying disability theory , Edited by: Corker , M. and Shakespeare , T. 63 – 75 . London : Continuum .
  • Skär , L. and Tamm , M. 2001 . My assistant and I: Disabled children’s and adolescents’ roles and relationships to their assistants . Disability & Society , 16 ( 7 ) : 917 – 31 .
  • The Roeher Institute . 2001 . Disability related support arrangements: Policy options and implications for women’s equality , Ottawa , , Canada : Status of Women Canada .
  • Thomas , C. 1993 . De‐constructing concepts of care . Sociology , 27 ( 4 ) : 649 – 69 .
  • Watson , N. , McKie , L. , Hughes , B. , Hopkins , D. and Gregory , S. 2004 . (Inter)dependence, needs and care: The potential for disability and feminist theorists to develop an emancipatory model . Sociology , 38 ( 2 ) : 331 – 50 .

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