3,264
Views
53
CrossRef citations to date
0
Altmetric
Articles

From symptom recognition to services: how South Asian Muslim immigrant families navigate autism

, &
Pages 797-811 | Received 23 Jul 2009, Accepted 12 Apr 2010, Published online: 17 Nov 2010

References

  • Banks , R.A. 2005 . “ Sensitivity to cultural and linguistic diversity in early intervention family information gathering ” . In Appropriate screening, assessment, and family information gathering , 37 – 56 . Frederick, CO : Sopris Press .
  • Carrillo , J.E. , Green , A.R. and Betancourt , J. 1999 . Cross‐cultural primary care: A patient‐based approach . Annals of Internal Medicine , 130 : 829 – 34 .
  • Chan , S. 1986 . “ Parents of exceptional Asian children ” . In Exceptional Asian children and youth , Edited by: Kitano , M.K. and Chin , P.C. 36 – 53 . VA : Council for Exceptional Children .
  • Cooper‐Patrick , L. , Gallo , J. , Thi Vu , H. , Powe , N. , Nelson , C. and Ford , D. 1999 . Race, gender, and partnership in the patient‐physician relationship . Journal of the American Medical Association , 282 : 583 – 9 .
  • Dyches , T. , Wilder , L. , Sudweeks , R. , Obiakor , F. and Algozzine , B. 2004 . Multicultural issues in autism . Journal of Autism and Developmental Disabilities , 34 : 211 – 22 .
  • Futagi , Y. and Yamamoto , Y. 2002 . Disclosure of a diagnosis of childhood autism and parents’ acceptance of the disability . Brain and Development , 34 : 336 – 42 .
  • Gabel , S. 2004 . South Asian Indian cultural orientations toward mental retardation . Mental Retardation , 42 : 12 – 25 .
  • Glaser , B. and Strauss , A. 1967 . The discovery of grounded theory: Strategies for qualitative research , New York : Hawthorne .
  • Goin‐Kochel , R.P. and Myers , B.J. 2005 . Congenital versus regressive onset of autism spectrum disorders: Parents’ beliefs about causes . Focus on Autism and Developmental Disorders , 20 : 169 – 79 .
  • Gray , D.E. 1993 . Negotiating autism: Relations between parents and treatment staff . Social Science and Medicine , 36 : 1037 – 46 .
  • Gray , D.E. 1995 . Lay conception of autism: Parents’ explanatory models . Medical Anthropology , 16 : 99 – 118 .
  • Happe , F. 1995 . Autism: An introduction to psychological theory , Cambridge : Harvard University Press .
  • Harry , B. and Kalyanpur , M. 1994 . Cultural underpinnings of special education: Implications for professional interactions with culturally diverse families . Disability and Society , 9 : 145 – 66 .
  • Hasnat , M.J. and Graves , P. 2000 . Disclosure of developmental disability: A study of parent satisfaction and the determinants of satisfaction . Journal of Pediatric Child Health , 36 : 32 – 5 .
  • Hastings , R. and Johnson , E. 2001 . Stress in UK families conducting intensive home‐based behavioural intervention for their young child with autism . Journal of Autism and Developmental Disorders , 31 : 327 – 36 .
  • Hatton , C. , Akram , Y. , Shah , R. , Robertson , J. and Emerson , E. 2004 . Supporting South Asian families with a child with severe disabilities , London : Jessica Kingsley .
  • Hatton , C. , Emerson , E. , Kirby , S. , Kotwal , H. , Baines , S. , Hutchinson , C. , Dobson , C. and Marks , B. 2010 . Majority and minority ethnic family careers of adults with intellectual disabilities: Perceptions of challenging behavior and family impact . Journal of Applied Research in Intellectual Disabilities , 23 : 63 – 74 .
  • Hertz‐Picciotto , I. and Delwiche , L. 2009 . The rise in autism and the role of age in diagnosis . Epidemiology , 20 : 84 – 90 .
  • Hutton , A.M. and Caron , S.L. 2005 . Experiences of families with children with autism in rural New England . Focus on Autism and Other Developmental Disabilities , 20 : 180 – 9 .
  • Jegatheesan , B. 2005 . Ways of being in home and community: Language socialization of children with autism in multilingual South Asian immigrant families , University of Illinois at Urbana‐Champaign . Unpublished doctoral dissertation
  • Jegatheesan , B. 2010 . Cross‐cultural issues in parent‐professional interactions: A qualitative study of perceptions of Asian American families of children with developmental disabilities . Research and Practice for Persons with Severe Disabilities , 34 : 123 – 36 .
  • Jegatheesan , B. , Miller , P. and Fowler , S. 2010 . Autism from a religious perspective: A study of parental beliefs in South Asian Muslim immigrant families . Focus on Autism and Other Developmental Disabilities , 25 : 98 – 109 .
  • Kohler , F.W. 1999 . Examining the services received by young children with autism and their families: A survey of parent responses . Focus on Autism and Other Developmental Disabilities , 14 : 150 – 8 .
  • Lincoln , Y.S. and Guba , E.G. 1985 . Naturalistic inquiry , Newbury Park , CA : Sage .
  • Lingam , R. , Simmons , A. , Andrews , N. , Miller , E. , Stowe , J. and Taylor , B. 2003 . Prevalence of autism and parentally reported triggers in North East London population . Archives of Disease in Childhood , 88 : 666 – 70 .
  • Mandell , D.S. and Novak , M. 2005 . The role of culture in families’ treatment decisions for children with autism spectrum disorders . Mental Retardation and Developmental Disabilities , 11 : 110 – 15 .
  • Nissenbaum , M.S. , Tollefson , N. and Reese , R.M. 2002 . The interpretative conference: Sharing a diagnosis of autism with families . Focus on Autism and other Developmental Disabilities , 17 : 30 – 43 .
  • Pavri , S. 2001 . Developmental delay or cultural differences? Developing effective child find practices for young children from culturally and linguistically diverse families . Young Exceptional Children , 4 : 2 – 9 .
  • Peterson , C. , Luze , G. , Eshbaugh , E. , Jeon , H.Y. and Kantz , K. 2007 . Enhancing parent–child interactions through home visiting: Promising practice or unfulfilled promise? . Journal of Early Intervention , 29 : 119 – 40 .
  • Quine , L. and Rutter , D.R. 1994 . First diagnosis of severe mental and physical disability: A study of doctor–parent communication . Journal of Child Psychology and Psychiatry , 35 : 1273 – 87 .
  • Schall , C. 2000 . Family perspectives on raising a child with autism . Journal of Child and Family Studies , 9 : 409 – 23 .
  • Sharpley , C.F. , Bitsika , V. and Efremidis , B. 1997 . Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism . Journal of Intellectual and Developmental Disability , 22 : 19 – 28 .
  • Smith , B. , Chung , M.C. and Vostanis , P. 1994 . The path to care in autism: Is it better now? . Journal of Autism and Developmental Disorders , 24 : 551 – 64 .
  • The National Autistic Society . 2005 . The impact of autism on the family http://www.nas.org.uk/nas/jsp/polopoly.jsp?d307&a33427viewprint
  • Welterlin , A. and LaRue , R. 2007 . Serving the needs of immigrant families of children with autism . Disability and Society , 22 : 747 – 60 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.