Navajo and autism: the beauty of harmony

References

• Applequist , K.L. and Bailey , D.B. Jr. 2000 . Navajo caregivers’ perceptions of early intervention services . Journal of Early Intervention , 23 ( 1 ) : 47 – 61 .
   Web of Science ®Google Scholar
• Bagatell , N. 2010 . From cure to community: Transforming notions of autism . Ethos , 38 ( 1 ) : 33 – 55 .
   Web of Science ®Google Scholar
• Begay, H.G., and C.J. Maker. 2007. When geniuses fail: Na-Dene’ (Navajo) conception of giftedness in the e yes of the holy deities. In Conceptions of giftedness: Sociocultural perspectives, ed. S.N. Phillipson and M. McCann, 127–68. Mahwah, NJ: Lawrence Eribaum Associates
   Google Scholar
• Brickman , P. , Rabinowitz , V.C. , Karuza , J. Jr , Coates , D. , Cohn , E. and Kidder , L. 1982 . Models of helping and coping . American Psychologist , 37 ( 4 ) : 368 – 384 .
   Web of Science ®Google Scholar
• Broderick , A.A. and Ne’eman , A. 2008 . Autism as metaphor: Narrative and counter-narrative . International Journal of Inclusive Education , 12 ( 5 ) : 459 – 476 .
   Web of Science ®Google Scholar
• Brownlow , C. 2010 . Re-presenting autism: The construction of ‘NT Syndrome’ . Journal of Medical Humanities , 31 ( 3 ) : 243 – 255 .
   PubMedGoogle Scholar
• Bumiller , K. 2008 . Quirky citizens: Autism, gender, and reimagining disability . Signs: Journal of Women and Culture in Society , 33 ( 4 ) : 967 – 991 .
   Web of Science ®Google Scholar
• Campbell , J. , Gilmore , L. and Cuskelly , M. 2003 . Changing student teachers’ attitudes towards disability and inclusion . Journal of Intellectual and Developmental Disability , 28 ( 4 ) : 369 – 379 .
   Web of Science ®Google Scholar
• Carrese , J.A. and Rhodes , L.A. 2000 . Bridging cultural differences in medical practice – the case of discussing negative information with Navajo patients . Journal of General Internal Medicine , 15 ( 2 ) : 92 – 96 .
   PubMed Web of Science ®Google Scholar
• Causton-Theoharis , J. , Ashby , C. and Cosier , M. 2009 . Islands of loneliness: Exploring social interactions through the autobiographies of individuals with autism . Intellectual & Developmental Disability , 47 ( 2 ) : 84 – 96 .
   PubMed Web of Science ®Google Scholar
• Chambres , P. , Auxiette , C. , Vansingle , C. and Gil , S. 2008 . Adult attitudes toward behaviors of a six-year-old boy with autism . Journal of Autism and Developmental Disorders , 38 ( 7 ) : 1320 – 1327 .
   PubMed Web of Science ®Google Scholar
• Chirkov , V. , Ryan , R.M. , Kim , Y. and Kaplan , U. 2003 . Differentiating autonomy from individualism and independence. A self-determination theory perspective on internalization of cultural orientations and well-being . Journal of Personality and Social Psychology , 84 ( 1 ) : 97 – 110 .
   PubMed Web of Science ®Google Scholar
• Connors , J.L. and Donnellan , A.M. 1993 . Citizenship and culture: The role of disabled people in Navajo society . Disability and Society , 8 ( 3 ) : 265 – 280 .
   Google Scholar
• Connors, J.L., and A.M. Donnellan. 1998. Walk in beauty: Western perspectives on disability and Navajo family/cultural resilience. In Resilience in Native American and immigrant families, Vol. 2, ed. H.I. McCubbin, E.A. Thompson, A.I. Thompson, and J.E. Fromer, 159–182. Thousand Oaks, CA: Sage.
   Google Scholar
• Csordas , T.J. , Storck , M.J. and Strass , M. 2008 . Diagnosis and distress in Navajo healing . The Journal of Nervous and Mental Disease , 196 ( 8 ) : 585 – 595 .
   PubMed Web of Science ®Google Scholar
• Davidson , J. and Henderson , V.L. 2010 . ‘Coming out’ on the spectrum: Autism, identity and disclosure . Social & Cultural Geography , 11 ( 2 ) : 155 – 170 .
   Web of Science ®Google Scholar
• Davidson , J. and Smith , M. 2009 . Autistic autobiographies and more-than-human emotional geographies . Environment and Planning D: Society and Space , 27 : 898 – 916 .
   Web of Science ®Google Scholar
• Deyhle , D. 1998 . From break dancing to heavy metal – Navajo youth, resistance, and identity . Youth & Society , 30 ( 1 ) : 3 – 31 .
   Web of Science ®Google Scholar
• Deyhle , D. 1995 . Navajo youth and Anglo racism: Cultural integrity and resistance . Harvard Educational Review , 65 ( 3 ) : 403 – 444 .
   Web of Science ®Google Scholar
• Dole , C. and Csordas , T.J. 2003 . Trials of Navajo youth: Identity, healing, and the struggle for maturity . Ethos , 31 ( 3 ) : 357 – 384 .
   Web of Science ®Google Scholar
• Donnellan , A.M. 1984 . The criterion of the least dangerous assumption . Behavior Disorders , 9 ( 2 ) : 141 – 150 .
   Google Scholar
• Donnellan , A.M. 1999 . Invented knowledge and autism: Highlighting our strengths and expanding the conversation . Journal of the Association for Persons with Severe Handicaps , 24 ( 3 ) : 230 – 236 .
   Google Scholar
• Frankland , H.C. , Turnbull , A.P. , Wehmeyer , M.L. and Blackmountain , L. 2004 . An exploration of the self-determination construct and disability as it relates to the Diné (Navajo) culture . Education and Training in Developmental Disabilities , 39 ( 3 ) : 191 – 205 .
   Web of Science ®Google Scholar
• Grinker , R.R. 2007 . Unstrange minds: Remapping the world of autism , New York : Basic Books .
   Google Scholar
• Hedley , D. and Young , R. 2006 . Social comparison processes and depressive symptoms in children and adolescents with Asperger syndrome . Autism , 10 ( 2 ) : 139 – 153 .
   PubMed Web of Science ®Google Scholar
• Helt , M. , Kelley , E. , Kinsbourne , M. , Pandey , J. , Boorstein , H. , Herbert , M. and Fein , D. 2008 . Can children with autism recover? If so, how? . Neuropsychology Review , 18 ( 4 ) : 339 – 366 .
   PubMed Web of Science ®Google Scholar
• House , J.S. , Landis , K.R. and Umberson , D. 1988 . Social relationships and health . Science , 241 ( 4865 ) : 540 – 545 .
   PubMed Web of Science ®Google Scholar
• Humphrey , N. and Lewis , S. 2008 . ‘Make me normal’: The views and experiences of pupils on the autistic spectrum in mainstream secondary schools . Autism , 12 ( 1 ) : 23 – 46 .
   PubMed Web of Science ®Google Scholar
• Hurlbutt , K. and Chalmers , L. 2002 . Adults with autism speak out: Perception of their life experiences. 2002 . Focus on Autism and Other Developmental Disabilities , 17 ( 2 ) : 103 – 111 .
   Google Scholar
• Jacobs , B. , Roffenbender , J. , Collmann , J. , Cherry , K. , Bitsoi , L.L. , Bassett , K. and Evans , C.H. 2010 . Bridging the divide between genomic science and indigenous peoples . Journal of Law, Medicine & Ethics , 38 ( 3 ) : 684 – 696 .
   PubMed Web of Science ®Google Scholar
• Joe , J.R. 1982 . Cultural influences on Navajo mothers with disabled children . American Indian Quarterly , 6 ( 1 ) : 170 – 197 .
   Google Scholar
• Jones , M.D. and Galliher , R.V. 2007 . Ethnic identity and psychosocial functioning in Navajo adolescents . Journal of Research on Adolescence , 17 ( 4 ) : 683 – 696 .
   Web of Science ®Google Scholar
• Kagitcibasi , C. 2005 . Autonomy and relatedness in cultural context: Implications for self and family . Journal of Cross-Cultural Psychology , 36 ( 4 ) : 403 – 422 .
   Web of Science ®Google Scholar
• Kahn-John , M. 2010 . Concept analysis of Dine Hozho, a Dine wellness philosophy . Advances in Nursing Science , 33 ( 2 ) : 113 – 125 .
   PubMed Web of Science ®Google Scholar
• Kim , C. and Kwok , Y.S. 1998 . Native use of native healers . Archives of Internal Medicine , 158 ( 20 ) : 2245 – 2249 .
   PubMedGoogle Scholar
• Krauss , M.W. , Seltzner , M.M. and Jacobson , H.T. 2005 . Adults with autism living at home or in non-family settings: Positive and negative aspects of residential status . Journal of Intellectual Disability Research , 49 ( 2 ) : 111 – 124 .
   PubMed Web of Science ®Google Scholar
• Lachapelle , Y. , Wehmeyer , M.L. , Haelewyck , M.C. , Courbois , Y. , Keith , K.D. , Schlock , R. , Verdugo , M.A. and Walsh , P.N. 2005 . The relationship between quality of life and self-determination: An international study . Journal of Intellectual Disability , 49 ( 10 ) : 740 – 744 .
   Google Scholar
• Lamphere , L. 2007 . Migration, assimilation and the cultural construction of identity: Navajo perspectives . Ethnic and Racial Studies , 30 ( 6 ) : 1132 – 1151 .
   Web of Science ®Google Scholar
• Lee , T.S. 2009 . Language, identity, and power: Navajo and Pubelo young adults’ perspectives and experiences with competing language ideologies . Journal of Language Identity and Education , 8 ( 5 ) : 307 – 320 .
   Web of Science ®Google Scholar
• Lewton , E.L. and Bydone , V. 2000 . Identity and healing in three Navajo religious traditions: Sa’ah naaghai bik’eh hozho . Medical Anthropology , 14 ( 4 ) : 476 – 497 .
   Web of Science ®Google Scholar
• Luther , E.H. , Canham , D.L. and Young Cureton , V. 2005 . Coping and social support for parents of children with autism . Journal of School Nursing , 21 ( 1 ) : 40 – 47 .
   PubMedGoogle Scholar
• Matson , J.L. and Neal , D. 2009 . Diagnosing high incidence autism spectrum disorders in adults . Research in Autism Spectrum Disorders , 3 ( 3 ) : 581 – 589 .
   Web of Science ®Google Scholar
• McMahon , W.M. , Baty , B.J. and Botkin , J. 2006 . Genetic counseling and ethical issues for autism . American Journal of Medical Genetics Part C , 142C ( 1 ) : 52 – 57 .
   PubMed Web of Science ®Google Scholar
• Milshtein , S. , Yirmiya , N. , Oppenheim , D. , Koren-Karie , N. and Levi , S. 2010 . Resolution of the diagnosis among parents of children with autism spectrum disorder: Associations with child and parent characteristics . Journal of Autism and Developmental Disorders , 40 ( 1 ) : 89 – 99 .
   PubMed Web of Science ®Google Scholar
• Müller , E. , Schuler , A. and Yates , G.B. 2008 . Social challenges and supports from the perspective of individuals with Asperger syndrome and other autism spectrum disabilities . Autism , 12 ( 2 ) : 173 – 190 .
   PubMed Web of Science ®Google Scholar
• Patson , P. 2007 . Constructive functional diversity: A new paradigm beyond disability and impairment . Disability and Rehabilitation , 29 ( 20–21 ) : 1625 – 1633 .
   PubMed Web of Science ®Google Scholar
• Powell , M. 2002 . Rhetorics of survivance. How American Indians use writing . College Composition and Communication , 53 ( 3 ) : 396 – 434 .
   Web of Science ®Google Scholar
• Robertson, S.M. 2010. Neurodiversity, quality of life, and autistic adults: Shifting research and professional focuses onto real-life challenges. Disability Studies Quarterly 30, no. 1. http://www.dsq-sds.org/article/view/1069/1234.
   Google Scholar
• Ryan , R.M. and Deci , E.L. 2000 . Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being . American Psychologist , 55 ( 1 ) : 68 – 78 .
   PubMed Web of Science ®Google Scholar
• Saragovi , C. , Koestner , R. , Di Dio , L. and Aube , J. 1997 . Agency communion and well-being: Extending Helgeson’s (1994) model . Journal of Personality and Social Psychology , 73 ( 3 ) : 593 – 609 .
   Web of Science ®Google Scholar
• Schoepfle , M. , Burton , M. and Begishe , K. 1984 . Navajo attitudes toward development and change: A unified ethnographic and survey approach to an understanding of their future . American Anthropologist , 86 ( 4 ) : 885 – 904 .
   Web of Science ®Google Scholar
• Schwartz , B. 2000 . Self-determination: The tyranny of freedom . American Psychologist , 55 ( 1 ) : 79 – 88 .
   PubMed Web of Science ®Google Scholar
• Shapiro , J.P. 1993 . No pity: People with disabilities forging a new civil rights movement , New York : Times Books .
   Google Scholar
• Shields , C.M. 1999 . Learning from students about representation, identity, and community . Educational Administration Quarterly , 35 ( 1 ) : 106 – 129 .
   Web of Science ®Google Scholar
• Tregaskis, C. 2002. Social model theory: The story so far … Disability & Society 17, 4: 457–70.
   Google Scholar
• Waller , M.A. and Patterson , S. 2002 . Natural helping and resilience in a Dine (Navajo) community . Families in Society:The Journal of Contemporary Human Services , 83 ( 1 ) : 73 – 84 .
   Web of Science ®Google Scholar
• Ward , M.J. and Meyer , R.N. 1999 . Self-determination for people with developmental disabilities and autism: Two self-advocates’ perspectives . Focus on Autism and Other Developmental Disabilities , 14 ( 3 ) : 133 – 139 .
   Google Scholar
• Watson , D. and Clark , L.A. 2006 . Clinical diagnosis at the crossroads . Clinical Psychology: Science and Practice , 13 ( 3 ) : 210 – 215 .
   Web of Science ®Google Scholar
• Wehmeyer , M.L. , Kelchner , K. and Richards , S. 2006 . Essential characteristics of self-determined behavior of individuals with mental retardation . American Journal on Mental Retardation , 100 ( 6 ) : 632 – 642 .
   Google Scholar
• Wilson , J. 1998 . The Earth shall weep: A history of Native America , New York : Atlantic Monthly Press .
   Google Scholar
• Woodgate , R.L. , Ateah , C. and Secco , L. 2008 . Living in a world of our own: The experience of parents who have a child with autism . Qualitative Health Research , 18 ( 8 ) : 1075 – 1083 .
   PubMed Web of Science ®Google Scholar
• Zhang , D. , Landmark , L. , Grenwelge , C. and Montoya , L. 2010 . Culturally diverse parents’ perspectives on self-determination . Education and Training in Autism and Developmental Disabilities , 45 ( 2 ) : 175 – 186 .
   Web of Science ®Google Scholar