References
- BBC. 2007. Treatment decisions for people who can’t give informed consent. Inside the ethics committee. Radio 4, 29 August.
- Chadwick , D.D. , Jolliffe , J. and Goldbart , J. 2003 . Adherence to eating and drinking guidelines for adults with intellectual disabilities and dysphagia . American Journal on Mental Retardation , 108 ( 3 ) : 202 – 211 .
- Cirourel , A. 1964 . Method and measurement in sociology , New York : Free Press .
- Cooper , S.-A. , Morrison , J. , Melville , C. , Finlayson , J. , Allan , L. Martin , G. 2006 . Improving the health of people with intellectual disabilities: Outcomes of a health screening programme after 1 year . Journal of Intellectual Disability Research , 50 ( 9 ) : 667 – 677 .
- Denzin , N. 1978 . The Research Act , 2nd ed , Chicago : Aldine .
- Department of Health. 2001. Valuing people: A new strategy for learning disability for the 21st century. London: Stationery Office.
- Department of Health. 2008. Health care for all: Report of the independent inquiry into access to healthcare for people with learning disabilities. London: TSO.
- Department of Health . 2009 . Valuing people now: A new three-year strategy for people with learning disabilities, ‘making it happen for everyone’ , London : Stationery Office .
- Department of Health . 2010a . Equality and excellence: Liberating the NHS , London : Stationery Office .
- Department of Health. 2010b. Six lives progress report. www.dh.gov.uk/publications.
- Department of Health . 2010c . Valuing people now: Summary report March 2009–September 2010 , London : Stationery Office .
- Department of Health . 2011 . Health and Social Care Bill 2011 , London : Stationery Office .
- Disability Rights Commission . 2005 . Equal treatment: Closing the gap , Stratford-upon-Avon : Disability Rights Commission .
- Dr Foster Intelligence. 2010. Hospital guide shows 62,800 adverse medical events reported last year as many more go unrecorded. http://www.drfosterintelligence.co.uk/newsPublications/pressReleases/HG%20National%20Press%20Release%202010.pdf (accessed January 21, 2011).
- Emerson , E. and Baines , S. 2010 . Health inequalities & people with learning disabilities in the UK: 2010 , London : Department of Health .
- Emerson , E. and Glover , G. 2010 . Health checks for people with learning disabilities: 2008/9 & 2009/10 , Lancaster : Improving Health and Lives, Learning Disability Observatory .
- Emerson , E. and Hatton , C. 2008 . Estimating future need for adult social care services for people with learning disabilities in England , Lancaster : Centre for Disability Research .
- Francis , R. 2010 . Independent inquiry into the care provided by Mid Staffordshire NHS Foundation Trust January 2005–March 2009 , Vol. 1 , London : Stationery Office .
- Goodley , D. 2011 . Disability studies: An interdisciplinary introduction , London : Sage .
- Heyman , B. , Swain , J. and Gillman , M. 2004 . Organisational simplification and secondary complexity in health services for adults with learning disabilities . Social Science & Medicine , 58 : 357 – 367 .
- Hollins, S., M.T. Attard, N. von Fraunhofer, S. McGuigan, and P. Sedgwick. 1998. Mortality in people with learning disability: Risks, causes, and death certification findings in London. Developmental Medicine and Child Neurology 40, no. 1: 50–6.
- Holstein , J.A. and Gubrium , G.F. 1997 . Active interviewing , London : Sage .
- Johnson , K. , Walmsley , J. and Wolfe , M. 2010 . People with intellectual disabilities: Towards a good life? , Bristol : The Policy Press .
- Joint Committee on Human Rights. 2008. A life like any other? Human rights of adults with learning disabilities. London: House of Lords. www.publications.parliament.uk.
- Kittay , E.F. , Jennings , B. and Wasunna , A.A. 2005 . Dependency, difference and the global ethic of longterm care . The Journal of Political Philosophy , 13 ( 4 ) : 443 – 469 .
- Krahn , G.L. , Hammond , L. and Turner , A. 2006 . A cascade of disparities: Health and health care access for people with intellectual disabilities . Mental Retardation and Developmental Disabilities Research Reviews , 12 ( 1 ) : 70 – 82 .
- Local Government Ombudsman, and Health Service Ombudsman. 2009. Six lives: The provision of public services to people with learning disabilities. London: The Stationery Office. www.ombudsman.org.uk.
- McGuigan, S.M., S. Hollins, and M. Attard. 1995. Age-specific standardized mortality rates in people with learning disability. Journal of Intellectual Disability Research 39, part 6: 527–31.
- Mencap. 2004. Treat me right: Better healthcare for people with a learning disability. London Mencap.
- Mencap . 2007 . Death by indifference. Following up the Treat Me Right! report , London : Mencap .
- Parliamentary and Health Service Ombudsman . 2011 . Care and compassion? Report of the Health Service Ombudsman on the ten investigations into NHS care of older people , London : Stationery Office .
- Power , M. 1997 . The audit society: Rituals of verification , Oxford : Oxford University Press .
- Redley , M. 2009 . Understanding the social exclusion and stalled welfare of citizens with learning disabilities . Disability & Society , 24 ( 4 ) : 489 – 501 .
- Reinders , H. 2008 . Receiving the gift of friendship , Grand Rapids : Wm. B. Eerdman .
- Ring , H. , Zia , A. , Bateman , N. , Williams , E. , Lindeman , S. and Himlok , K. 2009 . How is epilepsy treated in people with a learning disability? A retrospective observational study of 183 individuals . Seizure , 18 ( 4 ) : 264 – 268 .
- Roberts, L. 2010. Complaints to NHS top 100,000 for first time. Daily Telegraph, December 2. www.telegraph.co.uk/health/healthnews/8175437/Complaints-to-NHS-top-100000-for-the-first-time.html.
- Salvador-Carulla , L. and Saxena , S. 2009 . Intellectual disability: Between disability and clinical nosology . The Lancet , 734 ( 9704 ) : 1798 – 1799 .
- Silverman , D. 2001 . Interpreting qualitative data: Methods for analysing talk, text and interaction , 2nd ed. , London : Sage .
- Thomas , C. 2007 . Sociologies of disability and illness , Basingstoke : Palgrave .
- Turner , B. 2004 . The new medical sociology: Social forms of health and illness , New York : W.W. Norton & Co . 144–45
- World Health Organisation . 2007 . Atlas: Global resources for persons with intellectual disabilities , Geneva : WHO Press .