The embodied experience of episodic disability among women with multiple sclerosis

References

• Banks , M. 2003 . “ Preface ” . In Women with visible and invisible disabilities , Edited by: Banks , M.E. and Kaschak , E. xxi – xxxix . New York : The Haworth Press .
   Google Scholar
• Campbell, F. K. 2009. The project of ableism. In Contours of ableism: The production of disability and abledness, 3–16. New York: Palgrave, MacMillan.
   Google Scholar
• Canadian Working Group on HIV and Rehabilitation. 2006. Report on the national summit on the episodic disabilities project. http://www.hivandrehab.ca.
   Google Scholar
• Colligan , S. 2004 . “ Why the intersexed shouldn't be fixed: Insights from queer theory and disability studies ” . In Gendering disability , Edited by: Smith , B.G. and Hutchison , B. 45 – 60 . New Brunswick , NJ : Rutgers University Press .
   Google Scholar
• Crow , L. 1996 . “ Including all our lives: Renewing the social model of disability ” . In Exploring the divide: Illness and disability , Edited by: Barnes , C. and Mercer , G. 55 – 73 . Leeds : The Disability Press .
   Google Scholar
• Driedger , D. 2003 . In sickness and employment: Women living and working with chronic illness . Resources for Feminist Research , 30 ( 1/2 ) : 125 – 32 .
   Google Scholar
• Driedger , D. and Owen , M. 2008 . Dissonant disabilities: Women with chronic illnesses explore their lives , Toronto : Canadian Scholars' Press .
   Google Scholar
• Fitzgerald , M.H. 2000 . ‘You look so well'. The multiple facets of hidden disabilities . Disability Studies Quarterly , 20 ( 3 ) : 254 – 8 .
   Google Scholar
• Garland-Thomson , R. 2002 . Integrating disability, transforming feminist theory . NWSA , 14 ( 3 ) : 1 – 32 .
   Google Scholar
• Goffman , I. 1963 . Stigma: Notes on the management of spoiled identity , Englewood Cliffs , NJ : Prentice-Hall .
   Google Scholar
• Government of Canada. 2003. Listening to Canadians: A first view of the future of the Canada Pension Plan Disability Program. The Fifth Report of the Standing Committee on Human Resources Development and the Status of Persons with Disabilities. Ottawa, Ontario, Canada.
   Google Scholar
• Hughes , B. 2005 . “ What can a Foucauldian analysis contribute to disability theory? ” . In Foucault and the government of disability , Edited by: Tremain , S. 78 – 92 . Ann Arbor : University of Michigan Press .
   Google Scholar
• Hughes , B. and Paterson , K. 1997 . The social model of disability and the disappearing body: Towards a sociology of impairment . Disability & Society , 12 ( 3 ) : 325 – 40 .
   Web of Science ®Google Scholar
• Imrie , R. 2004 . Demystifying disability: A review of the international classification of functioning, disability and health . Sociology of Health and Illness , 26 ( 3 ) : 287 – 305 .
   PubMed Web of Science ®Google Scholar
• Ironside , P.M. , Scheckel , M. , Wessels , C. , Bailey , M.E. , Powers , S. and Seeley , D.K. 2003 . Experiencing chronic illness: Cocreating new understandings . Qualitative Health Research , 13 ( 2 ) : 171 – 83 .
   PubMed Web of Science ®Google Scholar
• Jackson, J.E. 2005. Stigma, liminality and chronic pain: Mind-body borderlands. American Ethnologist 32, no: 3, 332–53.
   Google Scholar
• Jones, M. 1997. Gee, you don’t look handicapped. http://www.ragged-edge-mag.com/archive/look.htm (accessed December 4, 2003).
   Google Scholar
• Jung , K.E. 2002 . Chronic illness and educational equity: The politics of visibility . NWSA , 14 ( 3 ) : 178 – 200 .
   Google Scholar
• Khayatt , D. 2002 . Toward a queer identity . Sexualities , 5 ( 4 ) : 487 – 501 .
   Google Scholar
• Lightman, E., A. Vick, D. Herd, and A. Mitchell. 2009. ‘Not disabled enough': Episodic disabilities and the Ontario Disability Support Program. Disability Studies Quarterly 29, no. 3. www.dsq-sds.org.
   Google Scholar
• MacKenzie , C. and Scully , J.L. 2007 . Moral imagination, disability and embodiment . Journal of Applied Philosophy , 24 ( 4 ) : 335 – 51 .
   Google Scholar
• McRuer , R. 2006 . Crip theory: Cultural signs of queerness and disability , New York : New York University Press .
   Google Scholar
• Mendelson , C. 2006 . Managing a medically and socially complex life: Women living with lupus . Qualitative Health Research , 16 ( 7 ) : 982 – 97 .
   PubMed Web of Science ®Google Scholar
• Merleau-Ponty , M. 1962 . The phenomenology of perception , London : Routledge and Keagan Paul .
   Google Scholar
• Moss , P. 2000 . Not quite abled and not quite disabled: Experiences of being ‘in-between' ME and the academy . Disability Studies Quarterly , 20 ( 3 ) : 287 – 93 .
   Google Scholar
• Moss , P. 2008 . “ Edging embodiment and embodying categories: Reading bodies marked with myalgic encephalomyelitis as a contested illness ” . In Contesting illness: Processes and practices , Edited by: Moss , P. and Teghtsoonian , K. 158 – 80 . Toronto : University of Toronto Press .
   Google Scholar
• Moss , P. and Dyck , I. 2002 . Women, body, illness: Spaces and identity in the everyday lives of women with chronic illness , Lanham , MD : Rowman and Littlefield Publishers .
   Google Scholar
• O'Connor , P. 2002 . Multiple sclerosis: The facts you need , Toronto : Key Porter Books .
   Google Scholar
• Oliver , M. 1990 . The politics of disablement , London : MacMillan .
   Google Scholar
• Peters , S.L. 1993 . Having a disability ‘sometimes' . Canadian Women Studies , 13 ( 4 ) : 26 – 9 .
   Google Scholar
• Price , J. and Shildrick , M. 1998 . “ Uncertain thoughts on the dis/abled body ” . In Vital signs: Feminist reconfigurations of the bio/logical body , Edited by: Shildrick , M. and Price , J. 224 – 49 . Edinburgh : Edinburgh University Press .
   Google Scholar
• Prince , M. 2009 . Absent citizens: Disability politics and policy in Canada , Toronto : University of Toronto Press .
   Google Scholar
• Register , C. 1999 . The chronic illness experience. Embracing the imperfect life , Center City , MN : Hazelden Publishing .
   Google Scholar
• Rodwell , M.K. 1998 . Social work constructivist research , New York : Garland Publishing .
   Google Scholar
• Sandahl , C. 2003 . Queering the crip or cripping the queer? Intersections of queer and crip identities in solo autobiographical performance . GLQ: A Journal of Lesbian and Gay Studies , 9 ( 1/2 ) : 25 – 56 .
   Web of Science ®Google Scholar
• Scott-Dixon , K. 2006 . Trans/forming feminisms: Trans-feminist voices speak out , Toronto : Sumach Press .
   Google Scholar
• Shakespeare, T. 2008. Disability: Suffering, social oppression, or complex predicament? In The contingent nature of life, ed. M. Duwell., C. Rehmann-Sutter, and D. Mieth, 235–46. Berlin: Springer Science and Business Media.
   Google Scholar
• Shakespeare , T. and Watson , N. 2001 . The social model of disability: An outdated ideology? . Research in Social Science and Disability , 2 : 9 – 28 .
   Google Scholar
• Sherry , M. 2004 . Overlaps and contradictions between queer theory and disability studies . Disability and Society , 19 ( 7 ) : 769 – 83 .
   Web of Science ®Google Scholar
• Shildrick , M. 2009 . Dangerous discourses of disability, subjectivity and sexuality , New York : Palgrave MacMillan .
   Google Scholar
• Siebers , T. 2001 . Disability in theory: From social constructionism to the new realism of the body . American Literary History , 13 ( 4 ) : 737 – 54 .
   Web of Science ®Google Scholar
• Siebers , T. 2008 . Disability theory , Ann Arbor : University of Michigan Press .
   Google Scholar
• Stocker , S.S. 2001 . Problems of embodiment and problematic embodiment . Hypatia , 16 ( 3 ) : 30 – 55 .
   Google Scholar
• Stone , S.D. 1993 . Must disability always be visible? The meaning of disability for women . Canadian Women Studies , 13 ( 4 ) : 11 – 15 .
   Google Scholar
• Stone , S.D. 1995 . The myth of bodily perfection . Disability and Society , 10 ( 4 ) : 413 – 24 .
   Web of Science ®Google Scholar
• Stone , S.D. 2005 . Reactions to invisible disability: The experiences of young women survivors of hemorrhagic stroke . Disability and Rehabilitation , 27 ( 6 ) : 293 – 304 .
   PubMed Web of Science ®Google Scholar
• Sveilich , C. 2005 . Just fine: Unmasking concealed chronic illness and pain , Austin , TX : Avid Reader Press .
   Google Scholar
• Thomas , C. 2007 . Sociologies of disability and illness: Contested ideas in disability studies and medical sociology , London : Palgrave MacMillan .
   Google Scholar
• Titchkosky , T. 2003 . Disability, self, and society , Toronto : University of Toronto Press .
   Google Scholar
• van Manen , M. 1997 . Researching lived experience. Human science for an action sensitive pedagogy , Toronto : Althouse Press .
   Google Scholar
• Vick, A. 2007. (Un)Settled bodies: A visual phenomenology of four women living with (in)visible disabilities. PhD diss., University of Toronto.
   Google Scholar
• Vick , A. and Lightman , E. 2010 . Barriers to employment among women with complex episodic disabilities . Journal of Disability Policy Studies , 21 ( 2 ) : 70 – 80 .
   Web of Science ®Google Scholar
• Vickers , M.H. 2001 . Work and unseen chronic illness: Silent voices , London : Routledge .
   Google Scholar
• Watson , N. 2002 . Well, I know this is going to sound very strange to you, but I don't see myself as a disabled person: Identity and disability . Disability & Society , 17 ( 5 ) : 509 – 27 .
   Web of Science ®Google Scholar
• Wendell , S. 1996 . The rejected body , New York : Routledge .
   Google Scholar
• Wendell , S. 2001 . Unhealthy disabled: Treating chronic illnesses as disabilities . Hypatia , 16 : 17 – 33 .
   Google Scholar