Rights to research: utilising the Convention on the Rights of Persons with Disabilities as an inclusive participatory action research tool

References

• Albrecht , G.L. , Seelman , K.D. and Bury , M. 2001 . Handbook of disability studies , Thousand Oaks , CA : Sage Publications .
   Google Scholar
• Atkinson , D. and Williams , F. 1990 . Know me as I am: An anthology of prose, poetry and art by people with learning difficulties , London : Hodder & Stroughton .
   Google Scholar
• Barnes, C. 2003. Disability studies: What’s the point? Notes for a verbal presentation at the Disability studies: Theory policy and practice conference, 4 September, in University of Lancaster. http://www.leeds.ac.uk/disability-studies/archiveuk/Barnes/What’sthepoint.pdf (accessed June 12, 2012).
   Google Scholar
• BBC News. 2008. Vulnerable people ‘denied rights’. One Minute World News. http://news.bbc.co.uk/2/hi/uk_news/7280577.stm (accessed June, 22 2012).
   Google Scholar
• Bezmez , D. and Yardimci , S. 2010 . In search of disability rights: Citizenship and Turkish disability organizations . Disability & Society , 25 : 603 – 615 .
   Web of Science ®Google Scholar
• Booth , T. and Booth , W. 2003 . In the frame: Photovoice and mothers with learning difficulties . Disability & Society , 18 : 431 – 42 .
   Web of Science ®Google Scholar
• Campbell , F.K. 2009 . Contours of ableism: The production of disability and abledness , Basingstoke : Palgrave Macmillan .
   Google Scholar
• Chappell, A.L. 1998. Still out in the cold: People with learning difficulties and the social model of disability. In The disability reader: Social science perspectives, 211–20. London: Continuum.
   Google Scholar
• Colchester Borough Council. 2007. Celebrating photovoice. August 16, archived news item. Colchester: Colchester Borough Council. http://www.colchester.gov.uk/news_det.asp?id=5834&sec_id=1134 (accessed August 16, 2007).
   Google Scholar
• Curry , T.J. and Strauss , R.H. 1994 . A little pain never hurt anybody: A photo-essay on the normalization of sport injuries . Sociology of Sport Journal , 11 : 195 – 208 .
   Web of Science ®Google Scholar
• Deci , E.L. and Ryan , R. 1985 . Intrinsic motivation and self-determination in human behavior , New York : Plenum Publishing .
   Google Scholar
• Donnelly , J. 2007 . International human rights , 3rd ed. , Boulder , CO : Westview Press .
   Google Scholar
• Evernden, J. 2008. The ‘You’re Welcome’ project: Designing an age-friendly public domain. Paper presented at the The International Federation on Ageing 9th Global Conference, in Montreal, Canada. http://www.ilcnsw.asn.au/assets/2008_DesigningAnAgeFriendlyPublicDomain.pdf (accessed June, 22 2012).
   Google Scholar
• Fredman, S. 2005. Disability equality and the existing anti-discrimination paradigm – European discrimination law. In Disability rights in Europe: From theory to practice, 199–218. Oxford: Hart Publishing.
   Google Scholar
• Freire , P. 1985 . The politics of education: Culture, power and liberation , Hadley : Bergin & Garvey .
   Google Scholar
• Freire, P. 1996. Pedagogy of the oppressed. 12th ed. New York: Continuum Publishing. (Orig. pub. 1970.)
   Google Scholar
• Freire , P. and Macedo , D. 1987 . Reading the word and the world , London : Routledge and Kegan Paul .
   Google Scholar
• French, P., and R. Kayess. 2008. Deadly currents beneath calm waters: Persons with disability and the right to life in Australia. In Disabled people and the right to life: The protection and violation of disabled people’s most basic human rights, 57–84. Oxford: Routledge.
   Google Scholar
• Gaventa , J. 1988 . Participatory research in North America . Convergence , 24 : 19 – 28 .
   Google Scholar
• Goggin, G. 2009. Personal communication from Professor Gerard Goggin. Journalism and Media Research Centre, University of New South Wales, July 6.
   Google Scholar
• Heap , M. , Lorenzo , T. and Thomas , J. 2009 . ‘We’ve moved away from disability as a health issue, it’s a human rights issue’: Reflecting on 10 years of the right to equality in South Africa . Disability & Society , 24 : 857 – 868 .
   Google Scholar
• Hudson, P. 2009. Blind fury: Vote veto by vision impaired. Sydney Morning Herald, April 5, p. 18.
   Google Scholar
• Jurkowski , J.M. 2008 . Photovoice as participatory action research tool for engaging people with intellectual disabilities in research and program development . American Association on Intellectual and Developmental Disabilities , 46 : 1 – 11 .
   Google Scholar
• Jurkowski , J.M. and Paul-Ward , A. 2007 . Photovoice with vulnerable populations: Addressing disparities in health promotion among people with intellectucal disabilities . Health Promotion Practice , 8 : 358 – 365 .
   PubMedGoogle Scholar
• Kayess , R. and French , P. 2008 . Out of darkness into light? Introducing the Convention on the Rights of Persons with Disabilities . Human Rights Law Review , 8 : 1 – 34 .
   Google Scholar
• Massie, B. 2006. Achieving equality and social justice – A future without disability? Speech, January 30. http://www.leeds.ac.uk/disability-studies/archiveuk/Barnes/Bertmassie.pdf (accessed September 14, 2009).
   Google Scholar
• McTaggart , R. 1994 . Participatory action research: Issues in theory and practice . Educational Action Research , 2 : 313 – 337 .
   Google Scholar
• Megret , F. 2008 . The disabilities convention: Human rights of persons with disabilities or disability rights? . Human Rights Quarterly , 30 : 494 – 516 .
   Web of Science ®Google Scholar
• National People with Disabilities and Carer Council. 2009. Shut out: The experiences of people with disabilities and their families in Australia. National Disability Strategy Consultation Report. http://www.fahcsia.gov.au/sa/disability/pubs/policy/community_consult/Documents/NDS_report.pdf (accessed June 12, 2012).
   Google Scholar
• Nirje, B.A. 1972. The right to self determination. In The principle of normalization in human services, 176–93. Toronto: National Institute on Mental Retardation.
   Google Scholar
• Ollerton, J. 2011. Rights, camera, action! A collaborative exploration of social barriers to self-determination with people labelled with learning difficulties. Unpublished PhD thesis, University of Western Sydney, New South Wales, Australia.
   Google Scholar
• Ollerton , J. and Kelshaw , C. 2011 . “ Rights, camera, action! Creative inclusive participatory action research ” . In Creative spaces for qualitative researching: Living research , Edited by: Higgs , J. , Titchen , A. , Horsfall , D. and Bridges , D. 267 – 80 . Rotterdam : Sense .
   Google Scholar
• Ollerton, J., M. Kirkwood, R. Boyle, and J. Roberts. 2009a. Photo-voice. A tool for finding a voice. Paper presented at the PhotoVoices Conference, September 24, in University of Western Sydney, Hawkesbury/Richmond campus.
   Google Scholar
• Ollerton, J., M. Kirkwood, R. Boyle, and J. Roberts. 2009b. Photo-voice. A tool for voicing the findings. Paper presented at the PhotoVoices Conference, September 24, in University of Western Sydney, Hawkesbury/Richmond campus.
   Google Scholar
• Ollerton, J., M. Kirkwood, R. Boyle, and J. Roberts. 2009c. Rights, camera, action: The Penrith photo-voice inclusive participatory action research. Paper presented at the Disability Studies Conference, June 26, in University of NSW, Kensington, Australia.
   Google Scholar
• Parsons , I. 1999 . Cripples, coons, fags and fems , Geelong : Villamanta Publishing Service .
   Google Scholar
• Penrith Photo-Voice Project. 2010. Penrith photo-voice project. http://www.penrithphoto-voice.net (accessed October 10, 2010).
   Google Scholar
• Redley , M. 2008 . Citizens with learning disabilities and the right to vote . Disability & Society , 23 : 375 – 384 .
   Web of Science ®Google Scholar
• Roets , G. and Goedgeluck , M. 2007 . Daisies on the road: Tracing the political potential of our postmodernist, feminist approach to life story research . Qualitative Inquiry , 13 : 85 – 112 .
   Web of Science ®Google Scholar
• Smith , L. , Rosenzweig , L. and Schmidt , M. 2010 . Best practice in reporting participatory action research: Embracing both the forest and the trees . The Counselling Psychologist , 38 : 1115 – 1138 .
   Web of Science ®Google Scholar
• Smith , P. 1999 . Food truck’s party hat . Qualitative Inquiry , 5 : 244 – 261 .
   Google Scholar
• The Allen Group. 2009. Review of the disability standards for accessible public transport: Final report. http://www.infrastructure.gov.au/transport/disabilities/review/files/ACG_DTR_Report.pdf (accessed December 18, 2011).
   Google Scholar
• United Nations. 1948. Universal Declaration of Human Rights. Geneva: United Nations. http://www.un.org/en/documents/udhr/index.shtml (accessed June 22, 2012).
   Google Scholar
• United Nations. 1998. Human rights and the United Nations. United Nations Cyberschoolbus. http://www.un.org/cyberschoolbus/humanrights/about/history.asp (accessed June 22, 2012).
   Google Scholar
• United Nations. 2006a. Article 9 – Accessibility. Convention on the Rights of Persons With Disabilities. http://www.un.org/disabilities/default.asp?id=269 (accessed June 22, 2012).
   Google Scholar
• United Nations. 2006b. The Convention on the Rights of Persons with Disabilities, Convention in full. New York: United Nations. http://www.un.org/disabilities/convention/conventionfull.shtml (accessed June 22, 2012).
   Google Scholar
• United Nations. 2008. Backgrounder: Disability treaty closes a gap in protecting human rights. In Enable. New York: United Nations. http://www.un.org/disabilities/default.asp?id=476 (accessed June 22, 2012).
   Google Scholar
• United Nations. 2009. UN at a glance. Geneva: United Nations. http://www.un.org/en/aboutun/index.shtml (accessed June 22, 2012).
   Google Scholar
• United Nations. 2010a. Convention and optional protocol signatures and ratifications. Latest developments. In Enable, New York: United Nations. http://www.un.org/disabilities/countries.asp?navid=12&pid=166 (accessed March 10, 2010).
   Google Scholar
• United Nations. 2010b. Frequently asked questions regarding the convention on the rights of persons with disabilities. Why is it necessary to have a convention on the rights of persons with disabilities? In Enable. New York: United Nations. http://www.un.org/disabilities/default.asp?id=151 (accessed June 22, 2012).
   Google Scholar
• Wadsworth, Y.J. 1998. Paper 2 What is participatory action research? Action Research International. http://www.scu.edu.au/schools/gcm/ar/ari/p-ywadsworth98.html (accessed July 8, 2010).
   Google Scholar
• Walmsley , J. 2001 . Normalisation, emancipatory research and inclusive research in learning disability . Disability & Society , 16 : 187 – 205 .
   Web of Science ®Google Scholar
• Walmsley , J. and Johnson , K. 2003 . Inclusive research with people with learning difficulties: Past, present and futures , London : Jessica Kingsley Publishers .
   Google Scholar
• Wang , C. 1999 . Photovoice. A participatory action research strategy applied to women’s health . Journal of Women’s Health , 8 : 185 – 192 .
   PubMed Web of Science ®Google Scholar
• Wang , C. and Burris , M. 1997 . Photovoice. Concept, methodology and use for participatory needs assessment . Health Education & Behavior , 24 : 369 – 387 .
   PubMed Web of Science ®Google Scholar
• Wehmeyer , M.L. 1999 . A functional model of self-determination: Describing development and implementing instruction . Focus on Autism and Other Developmental Disabilities , 14 : 53 – 62 .
   Google Scholar
• Weinberg , D. 2007 . Habermas, rights, and the learning disabled citizen . Social Theory Health , 5 : 70 – 87 .
   Google Scholar
• Williams , V. and Heslop , P. 2005 . Mental health support needs of people with a learning difficulty: A medical or a social model? . Disability & Society , 20 : 231 – 245 .
   Web of Science ®Google Scholar
• Williams , V. , Ponting , L. , Ford , K. and Rudge , P. 2009 . Skills for support: Personal assistants and people with learning disabilities . British Journal of Learning Disabilities , 38 : 59 – 67 .
   Web of Science ®Google Scholar
• Woolrych , R. 2004 . Empowering images: Using photovoice with tenants with special needs . Housing, Care and Support , 7 : 31 – 35 .
   Google Scholar