3,425
Views
84
CrossRef citations to date
0
Altmetric
Articles

Service user/survivor-led research in mental health: epistemological possibilities

Pages 773-789 | Received 05 Apr 2016, Accepted 13 Apr 2017, Published online: 16 May 2017

References

  • Bereford, P., M. Nettle, and E. Perring. 2010. Towards a Social Model of Madness and Distress. London: Joseph Rowntree Foundation.
  • Beresford, P., and R. J. Menzies. 2014. “Developing Partnerships to Resist Psychiatry within Academia.” In Psyschiatry Disrupted: Theorising Resistance and Crafting the (R)Evolution, edited by B. Burstow, B. A. LeFrançois, and S. Diamond, 77–95. Montreal & Kingston: McGill-Queen’s University Press.
  • Beresford, P., and J. Wallcraft. 1997. “Psychiatric System Survivors and Emancipatory Research: Issues, Overlaps and Differences.” In Doing Disability Research, edited by C. Barnes and G. Mercer, 67–87. Leeds: The Disability Press / University of Leeds.
  • Bhabha, H. 1984. “Of Mimicry and Man: The Ambivalence of Colonial Discourse.” October 28: 125–133.10.2307/778467
  • Breggin, P. R. 2007. Brain-Disabling Treatments in Psychiatry: Drugs, Electroshock, and the Psychopharmaceutical Complex. New York: Springer Publishing Company.
  • Burstow, B. 2015. Psychiatry and the Business of Madness: An Ethical and Epistemological Accounting. New York: Palgrave MacMillan.10.1057/9781137503855
  • Burstow, B., B. A. LeFrançois, and S. Diamond. 2014. Psychiatry Disrupted: Theorizing Resistance and Crafting the (R) Evolution. Montreal & Kingston: McGill-Queen’s University Press.
  • Butterfield, H. 1965. The Whig Interpretation of History. New York: WW Norton & Company.
  • Campbell, J. 2009. “Methods.” In Handbook of Service User Involvement in Research, edited by J. Wallcraft, B. Schrank and M. Amering, 113–138. Chichester: Wiley-Blackwell.10.1002/9780470743157.ch9
  • Church, K., and D. Reville. 1988. “User Involvement in Mental Health Services in Canada: A Work in Progress.” In Report of Common Concerns: International Conference on User Involvement in Mental Health Services. London: East Sussex Social Services, Brighton Health Authority and MIND.
  • Clay, S. 2005. On Our Own, Together: Peer Programs for People with Mental Illness. Vanderbilt: Vanderbilt University Press.
  • Collins, P. H. 2002. Black Feminist Thought: Knowledge, Consciousness, and the Politics of Empowerment. New York and London: Routledge.
  • Costa, L., J. Voronka, D. Landry, J. Reid, B. Mcfarlane, D. Reville, and K. Church. 2012. ““ Recovering Our Stories”: A Small Act of Resistance.” Studies in Social Justice 6 (1): 85–101.
  • Crenshaw, K. 1991. “Mapping the Margins: Intersectionality, Identity Politics, and Violence against Women of Color.” Stanford Law Review 43 (6): 1241–1299.10.2307/1229039
  • Fanon, F. 1967. Black Skin, White Masks [1952]. New York: Paladin.
  • Faulkner, A. 2005. “Institutional Conflict: The State of Play in Adult Acute Psychiatric Wards.” The Journal of Adult Protection 7 (4): 6–12.10.1108/14668203200500020
  • Faulkner, A., and J. Kalathil. 2012. The Freedom to be, the Chance to Dream: Preserving User-Led Peer Support in Mental Health. London: Together for Mental Wellbeing.
  • Faulkner, A., and S. Layzell. 2000. Strategies for Living: A Report of User-Led Research into People’s Strategies for Living with Mental Distress. London: Mental Health Foundation.
  • Fernando, S., and F. Keating. 2008. Mental Health in a Multi-Ethnic Society: A Multidisciplinary Handbook. London and New York: Routledge.
  • Foucault, M. 1967. Madness and Civilisation: A History of Insanity in the Age of Reason. London: Penguin.
  • Foucault, M. 2013. History of Madness. London and New York: Routledge.
  • Fraser, N. 2013. Fortunes of Feminism: From State-Managed Capitalism to Neoliberal Crisis. London and New York: Verso Books.
  • Fraser, N., and A. Honneth. 2003. Redistribution or Recognition?: A Political-Philosophical Exchange. London and New York: Verso Books.10.1002/9780470756119
  • Fricker, M. 2007. Epistemic Injustice: Power and the Ethics of Knowing. Oxford: Oxford University Press.10.1093/acprof:oso/9780198237907.001.0001
  • Friedan, B. 2010. The Feminine Mystique. New York: WW Norton & Company.
  • Hall, S., and P. Du Gay. 1996. Questions of Cultural Identity. London: Sage.
  • Haraway, D. 1988. “Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective.” Feminist Studies 14 (3): 575–599.10.2307/3178066
  • Haraway, D., and T. Goodeve. 2013. How like a Leaf: An Interview with Donna Haraway. London and New York: Routledge.
  • Harding, S. (1991). “Strong Objectivity and Socially Situated Knowledge.” In Whose Science? Whose Knowledge?, edited by Sandra Harding, 138-163. New York: Cornell University Press.
  • Harding, S. 2004. “Introduction: Standpoint Theory as a Site of Political, Philosophic, and Scientific Debate.” In The Feminist Standpoint Theory Reader: Intellectual and Political Controversies, edited by S. Harding, 1–16. London and New York: Routledge.
  • Harding, S. 2008. Sciences from below: Feminisms, Postcolonialities, and Modernities. Duke University Press: Duke University.10.1215/9780822381181
  • Healy, D. 1997. The Antidepressant Era. Harvard: Harvard University Press.
  • hooks, b. 1982. Ain’t I a Woman: Black Women and Feminism. London: Pluto Press.
  • Jones, N. 2015. “Reflections: The Community Life of Objects.” In Re-Visioning Psychiatry: Cultural Phenomenology, Critical Neuroscience, and Global Mental Health, edited by Laurence J. Kirmayer, Robert Lemelson, and Constance A. Cummings, 168–175. New York: Cambridge University Press.10.1017/CBO9781139424745
  • Jones, N., and R. Brown. 2012. “The Absence of Psychiatric C/S/X Perspectives in Academic Discourse: Consequences and Implications.” Disability Studies Quarterly 33 (1).
  • Jones, N., and T. Kelly. 2015. “Inconvenient Complications: On the Heterogeneities of Madness and Their Relationship to Disabilities.” In Madness, Distress and the Politics of Disablement, edited by H. Spandler, J. Anderson, and B. Sapey, 43–56. Bristol: Policy Press.
  • Kalathil, J. 2008. Dancing to Our Own Tunes: Reassessing Black and Minority Ethnic Mental Health Service User Involvement. London: National Survivor User Network in collaboration with Catch-a-Fiya.
  • Kalathil, J. (2010). “Beyond Tokenism: Participation of Mental Health Service Users from Racialised Groups in Mainstream User Involvement Initiatives.” Agenda 34: 16–18.
  • Kalathil, J., R. Bhakta, O. Daniel, D. Joseph, and P. Trivedi. 2011. Recovery and resilience: African, African-Caribbean and South Asian women’s Narratives of Recovering from Mental Distress. London: Mental Health Foundation.
  • King, C. 2016. “Whiteness in Psychiatry: The Madness of European Misdiagnoses.” In Searching for a Rose Garden: Challenging Psychiatry, Fostering Mad Studies, edited by J. Russo and A. Sweeney, 69–76. Monmouth: PCCS Books.
  • Kuhn, T. S. 2012. The Structure of Scientific Revolutions. Chicago, IL: University of Chicago Press.10.7208/chicago/9780226458144.001.0001
  • Lewis, L. 2015. “Recognition Politics as a Human Rights Perspective on Service Users’ Experiences of Involvement in Mental Health Services.” In Mental Health Service Users in Research: Critical Sociological Perspectives, edited by P. Staddon, 87–104. Bristol: Policy Press.
  • McCall, L. 2005. “The Complexity of Intersectionality.” Signs 30 (3): 1771–1800.10.1086/426800
  • Menzies, R. J., B. A. LeFrançois, and G. Reaume. 2013. Mad Matters: A Critical Reader in Canadian Mad Studies. Toronto: Canadian Scholars Press.
  • Miller, P., and N. Rose. 2008. Governing the Present. Cambridge: Polity Press.
  • Murray, R. M. 2016. “Mistakes I have Made in My Research Career.” Schizophrenia Bulletin, p.sbw165.
  • Murray, R. M., D. Quattrone, S. Natesan, J. van Os, M. Nordentoft, O. Howes, M. Di Forti, and D. Taylor. 2016. “Should Psychiatrists Be More Cautious about the Long-Term Prophylactic Use of Antipsychotics?” The British Journal of Psychiatry 209 (5): 361–365.10.1192/bjp.bp.116.182683
  • Patterson, S., J. Trite, and T. Weaver. 2014. “Activity and Views of Service Users Involved in Mental Health Research: UK Survey.” The British Journal of Psychiatry 205 (1): 68–75.10.1192/bjp.bp.113.128637
  • Perkins, A. M., and P. J. Corr. 2005. “Can Worriers be Winners? The Association between Worrying and Job Performance.” Personality and Individual Differences 38 (1): 25–31.10.1016/j.paid.2004.03.008
  • Rose, D. 2001. Users’ Voices: The Perspectives of Mental Health Service Users on Community and Hospital Care. London: Sainsbury Centre for Mental Health.
  • Rose, D. 2014. “Patient and Public Involvement in Health Research: Ethical Imperative and/or Radical Challenge?” Journal of Health Psychology 19 (1): 149–158.10.1177/1359105313500249
  • Rose, D. 2015. “The Contemporary State of Service-User-Led Research.” The Lancet. Psychiatry 2 (11): 959–960.10.1016/S2215-0366(15)00435-6
  • Rose, D. 2016. “Book Review.” Critical and Radical Social Work 4 (3): 433–441.
  • Rose, D. forthcoming. “Renewing Epistemologies: Service User Knowledge.” In Social Policy First Hand, edited by P. Beresford and S. Carr. Bristol: Policy Press.
  • Russo, J., and P. Beresford. 2015. “Between Exclusion and Colonisation: Seeking a Place for Mad People’s Knowledge in Academia.” Disability & Society 30 (1): 153–157.10.1080/09687599.2014.957925
  • Russo, J., and A. Sweeney, eds. 2016. Searching for a Rose Garden: Challenging Psychiatry, Fostering Mad Studies. Monmouth: PCCS Books.
  • Scott, J. W. 1991. “The Evidence of Experience.” Critical Inquiry 17 (4): 773–797.10.1086/448612
  • Spandler, H., J. Anderson, and B. Sapey. 2015. Madness, Distress and the Politics of Disablement. Bristol: Policy Press.
  • Spivak, G. C. 1988. “Can the Subaltern Speak?” In Marxism and the Interpretation of Culture, edited by Cary Nelson, 271–313. London: MacMillan Education.10.1007/978-1-349-19059-1
  • Staddon, P. 2015. Mental Health Service Users in Research: Critical Sociological Perspectives. Bristol: Policy Press.
  • Still, A., and I. Velody. 1992. “Introduction.” In Rewriting the History of Madness: Studies in Foucault’s Histoire De La Folie, edited by A. Still and I. Velody, 1-16. London and New York: Routledge.10.4324/9780203208274
  • Sweeney, A., P. Beresford, A. Faulkner, M. Nettle, and D. Rose. 2009. This is Survivor Research. Ross-on-Wye: PCCS Books.
  • Watney, S. 1997. Policing Desire: Pornography, AIDS and the Media, London: A&C Black.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.