http://orcid.org/0000-0001-8905-6411
References
- Barnes, Colin. 2003. “What a Difference a Decade Makes: Reflections on Doing ‘Emancipatory’ Disability Research.” Disability & Society 18 (1): 3–17.10.1080/713662197
- Beresford, Peter. 2000a. “Service Users’ Knowledges and Social Work Theory: Conflict or Collaboration?” The British Journal of Social Work 30 (4): 489–503.10.1093/bjsw/30.4.489
- Beresford, Peter. 2000b. “What Have Madness and Psychiatric System Survivors Got to Do with Disability and Disability Studies?” Disability & Society 15 (1): 167–172.10.1080/09687590025838
- Beresford, Peter. 2009. “User-Controlled Research.” In Handbook of Service User Involvement in Mental Health Research, edited by J. Wallcraft, B. Schrank, and M. Amering, 181–197. West Sussex, UK: Wiley-Blackwell.10.1002/9780470743157.ch13
- Beresford, Peter, and Jan Wallcraft. 1997. “Psychiatric System Survivors and Emancipatory Research: Issues, Overlaps and Differences.” In Doing Disability Research, edited by C. Barnes and G. Mercer, 66–87. Leeds, UK: Disability Press.
- Church, Kathryn, and David Reville. 1989. “User Involvement in the Mental Health Field in Canada.” Canada’s Mental Health 37 (2): 22–25.
- Church, Kathryn, and David Reville. 1991, October. Users Designing the Future’: Demystifying the Politics of Psychiatric Consumer/Survivor Participation. Unpublished report. Developed for the Secretary of State of Canada Disabled Persons Participation Program.
- Coney, Sandra. 2004. Effective Consumer Voice and Participation for New Zealand. Wellington: New Zealand Guidelines Group.
- Dawson, Sandra, and Jijian Voronka. 2012. “Diversity in Peer Engagement in at Home/Chez Soi: Types of Research Involvement.” Poster Presentation For Critical Inquiries in Mental Health Inequities: Exploring Methodologies for Social Justice, Vancouver, BC, Centre for the Study of Gender, Social Inequities and Mental Health. http://www.socialinequities.ca/wordpress/wp-content/uploads/2012/06/Dawson-CI-2012-Poster.pdf
- Faulkner, Alison. 2004. The Ethics of Survivor Research: Guidelines for the Ethical Conduct of Research Carried out by Mental Health Service Users and Survivors. Bristol, UK: Policy Press, on behalf of the Joseph Rowntree Foundation.
- Faulkner, Alison, and Vicky Nicholls. 2003. “User-Led Research: Towards a Radically Different Mental Health System.” http://www.critpsynet.freeuk.com/Faulkner.htm
- Ingram, Richard A. 2016. “Doing Mad Studies: Making (Non)Sense Together.” Intersectionalities 5 (3): 11–17.
- McKeown, Mick, Lisa Malihi-Shoja, and Soo Downe. 2010. Service User and Carer Involvement in Education for Health and Social Care. West Sussex, UK: Blackwell Publishing.10.1002/9781444323764
- Mills, China. 2011. “Live and Let Die: Global Mental Health and Critical Disability Studies.” In Distress or Disability? Proceedings of a symposium held at Lancaster University, 15-16 November 2011, edited by Jill Anderson, Bob Sapey, and Helen Spandler, 57–61. Lancaster: Centre for Disability Research, Lancaster University.
- Mills, China. 2014. Decolonizing Global Mental Health: The Psychiatrization of the Majority World. London: Routledge.
- Mills, China, and Suman Fernando. 2014. “Globalizing Mental Health or Pathologizing the Global South? Mapping the Ethics, Theory and Practice of Global Mental Health.” Disability and the Global South 1 (2): 188–202.
- Morrison, Linda Joy. 2005. Talking back to Psychiatry: The Psychiatric Consumer/Survivor/Ex-Patient Movement. New York: Routledge.
- Oliver, Mike. 1992. “Changing the Social Relations of Research Production?” Disability, Handicap & Society 7 (2): 101–114.10.1080/02674649266780141
- Parker, Ian. (1992) 2004. “Discovering Discourses, Tackling Texts.” In Critical Strategies for Social Research, edited by W. K. Carroll, 252–261. Toronto: Canadian Scholars’ Press.
- Parker, Ian. 1990. “Discourse: Definitions and Contradictions.” Philosophical Psychology 3 (2): 189–202.
- Parker, Ian. 2004. “Discourse Analysis.” In A Companion to Qualitative Research, edited by U. Flick, E. von Kardorff, and I. Steinke, 308–312. London, UK: Sage Publications.
- Pelletier, Jean-Francois, Alain Lesage, Andre Delorme, Ann C. Macaulay, Jonathan Salsberg, Catherine Valle, and Larry Davidson. 2011. “User-Led Research: A Global and Person-Centered Initiative.” International Journal of Mental Health Promotion 13 (1): 4–12.10.1080/14623730.2011.9715645
- Rose, Diana, and Peter Beresford. 2009. “Introduction.” In This is Survivor Research, edited by Angela Sweeney, Peter Beresford, Alison Faulkner, Mary Nettle and Diana Rose, 3–10. Ross-on-Wye, UK: PCCS Books.
- Russo, Jasna. 2012. “Survivor-Controlled Research: A New Foundation for Thinking about Psychiatry and Mental Health. Forum: Qualitative.” Social Research 13 (1): Art. 8. http://www.qualitative-research.net/index.php/fqs/article/view/1790
- Russo, Jasna, and Peter Beresford. 2015. “Between Exclusion and Colonisation: Seeking a Place for Mad People’s Knowledge in Academia.” Disability & Society 30 (1): 153–157.10.1080/09687599.2014.957925
- Spandler, Helen, Jill Anderson, and Bob Sapey. 2015. Madness, Distress and the Politics of Disablement. Bristol, UK: Policy Press.10.1332/policypress/9781447314578.001.0001
- Sweeney, Angela. 2009. “So What is Survivor Research?” In This is Survivor Research, edited by Angela Sweeney, Peter Beresford, Alison Faulkner, Mary Nettle, and Diana Rose, 22–37. Ross-on-Wye, UK: PCCS Books.
- Sweeney, Angela. 2013. “Sociology and Survivor Research: An Introduction.” In Mental Health Service Users in Research: Critical Sociological Perspectives, edited by Patsy Staddon, 1–9. Bristol, UK: Policy Press.
- Sweeney, Angela. 2016. “Why Mad Studies Needs Survivor Research and Survivor Research Needs Mad Studies.” Intersectionalities 5 (3): 36–61.
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- Turner, Michael, and Peter Beresford. 2005. User Controlled Research: Its Meanings and Potential – Final Report. London: Shaping Our Lives and Centre for Citizen Participation, Brunel University. Commissioned by INVOLVE.
- Wykes, Til. 2003. “Blue Skies in the Journal of Mental Health? Consumers in Research.” Journal of Mental Health 12 (1): 1–6.10.1080/09638230021000058247
Appendix. Selected projects
- Church, Kathryn. 1996. “Beyond ‘Bad Manners’: The Power Relations of ‘Consumer Participation’ in Ontario’s Community Mental Health System.” Canadian Journal of Community Mental Health 15 (12): 27–44.
- Coltman, Linda, Susan Gapka, Dawnmarie Harriott, Michael Koo, Jenna Reid, and Alex Zsager. 2015. “Understanding Community Integration in a Housing-First Approach: Toronto at Home/Chez Soi Community-Based Research.” Intersectionalities: A Global Journal of Social Work Analysis, Research, Polity, and Practice 4 (2): 39–50.
- de Wolff, Alice in consultation with Pedro Cabezas, Linda Chamberlain, Aldo Cianfarani, Phillip Dufresne, Peter Lye, Dennis Morency, Bradley Mulder, Esther Mwange, and Mark Shapiro. 2009. “The Creation of ‘We Are Neighbours’: Participatory Research and Recovery.” Canadian Journal of Community Mental Health 28 (2): 61–72.
- del Barrio, Rodriguez, Celine Cyr Lourdes, Lisa Benisty, and Pierrette Richard. 2013. “Autonomous Medication Management (GAM): New Perspectives on Well-Being, Quality of Life and Psychiatric Medication.” Ciência & Saúde Coletiva 18 (10): 2879–2887.
- Gumpp, Ruth for Consumers for Knowledge Exchange and Research (CONKER). 2009. Hope and Fear: Consumers, Psychiatric Medications and the Therapeutic Relationship. Vancouver, BC: CONKER Mental Illness. http://www.psyrehab.ca/files/documents/Hope%20and%20Fear-%20CONKER%20Report%20September%202009.pdf
- Habitat Services and the Ontario Council of Alternative Businesses. 2010, May. Breaking Ground: Peer Support for Congregate Living Settings. Toronto, ON: Wellesley Institute. http://www.wellesleyinstitute.com/wp-content/uploads/2010/05/Breaking_Ground_final_final_report.pdf
- Mental Health “Recovery” Study Working Group. 2009, January. Mental Health “Recovery”: Users and Refusers. Toronto, ON: Wellesley Institute. http://www.wellesleyinstitute.com/wp-content/uploads/2011/11/Mental_Health-_Recovery.pdf
- Morrow, Marina with Monika Chappell. 1999. Hearing Women’s Voices: Mental Health Care for Women. Vancouver, BC: British Columbia Centre of Excellence for Women’s Health. http://bccewh.bc.ca/wp-content/uploads/2012/05/1999_Hearing-Womens-Voices.pdf
- Newberry, D. Jason, and Allan D. Strong. 2009. “Beyond Mental Health Maintenance: An Evaluation Framework Driven by Recovery-Focused Outcomes.” Canadian Journal of Community Mental Health 28 (2): 73–94.
- O’Hagan, Mary, Celine Cyr, and Heather McKee and Robyn Priest. 2010. Making the Case for Peer Support: Report to the Mental Health Peer Support Project Committee of the Mental Health Commission of Canada. Ottawa: Mental Health Commission of Canada.
- Ontario Council of Alternative Businesses. 2009. Not for Lack of Trying: Barriers to Employment and the Unrealized Potential of Psychiatric Survivors Living in Boarding Homes. Toronto, ON: Wellesley Institute.
- Reid, Jenna, and Jennifer Poole. 2013. “Mad Students in the Social Work Classroom? Notes from the Beginnings of an Inquiry.” Journal of Progressive Human Services 24 (3): 209–222.
- Shimrat, Irit. 2002, September. What Women Want: The Vancouver/Richmond Mental Health Network Society Safe House Project. Vancouver: Status of Women Canada, BC/Yukon Division.
- Voronka, Jijian, Deborah Wise Harris, Jill Grant, Janina Komaroff, Dawn Boyle, and Arianna Kennedy. 2014. “Un/Helpful Help and Its Discontents: Peer Researchers Paying Attention to Street Life Narratives to Inform Social Work Policy and Practice.” Social Work in Mental Health 12 (3): 249–279.
UK projects (6)
- Faulkner, Alison, and Sarah Layzell. 2000. Strategies for Living: A Summary Report of User-Led Research into People’s Strategies for Living with Mental Distress. London: Mental Health Foundation.
- Middleton, Hugh, Rebecca Shaw, Ron Collier, Aimie Purser, and Brian Ferguson. 2011. “The Dodo Bird Verdict and the Elephant in the Room: A Service User-Led Investigation of Crisis Resolution and Home Treatment.” Health Sociology Review 20 (2): 147–156.
- Pitt, Liz, Martina Kilbride, Sarah Nothard, Mary Welford, and Anthony P. Morrison. 2007. “Researching Recovery from Psychosis: A User-Led Project.” Psychiatric Bulletin 31 (2): 55–60.
- Rose, Diana. 2003. “Partnership, Co-Ordination of Care and the Place of User Involvement.” Journal of Mental Health 12 (1): 59–70.
- Russo, Jasna, and Diana Rose. 2013. “‘But What If Nobody’s Going to Sit down and Have a Real Conversation with You?” Service User/Survivor Perspectives on Human Rights.” Journal of Public Mental Health 12 (4): 184–192.
- Taylor, Sue, Stephen Abbott, and Sally Hardy. 2012. “The Inform Project: A Service User-Led Research Endeavor.” Archives of Psychiatric Nursing 26 (6): 448–456.