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Articles

Making decisions together? Exploring the decision-making process in an inclusive research project

Pages 454-475 | Received 06 Jul 2017, Accepted 12 Oct 2017, Published online: 03 Nov 2017

References

  • Aldridge, J. 2012. “The Participation of Vulnerable Children in Photographic Research.” Visual Studies 27 (1): 48–58.10.1080/1472586X.2012.642957
  • Antaki, C., W. Finlay, E. Sheridan, T. Jingree, and C. Walton. 2006. “Producing Decisions in Service-User Groups for People with an Intellectual Disability: Two Contrasting Facilitator Styles.” Mental Retardation 44 (1): 1–58.
  • Arscott, K., D. Dagnan, and B. S. Kroese. 1999. “Assessing the Ability of People with a Learning Disability to Give Informed Consent to Treatment.” Psychological Medicine 29 (6): 1367–1375.10.1017/S0033291799008715
  • Berlant, L. 2006. “Cruel Optimism.” Differences: A Journal of Feminist Cultural Studies 17 (3): 20–36.
  • Bogdan, R., and S. Taylor. 1982. Inside out: The Social Meaning of Mental Retardation. Toronto: University of Toronto.10.3138/9781442632196
  • Booth, T., and W. Booth. 1996. “Sounds of Silence: Narrative Research with Inarticulate Subjects.” Disability & Society 11 (1): 55–70.10.1080/09687599650023326
  • Brookes, I., S. Archibald, K. McInnes, B. Cross, B. Daniel, and F. Johnson. 2012. “Finding the Words to Work Together: Developing a Research Design to Explore Risk and Adult Protection in Co-Produced Research.” British Journal of Learning Disabilities 40 (2): 143–151.10.1111/bld.2012.40.issue-2
  • Buettgen, A., J. Richardson, K. Beckham, M. Ward and M. Riemer. 2012. “We Did It Together: A Participatory Action Research Study on Poverty and Disability.” Disability & Society 27 (5): 603–616.
  • Chapman, R. 2005. The Role of the Self-Advocacy Support-Worker in UK People First Groups: Developing Inclusive Research. Milton Keynes: The Open University.
  • Chapman, R., and N. McNulty. 2004. “Building Bridges? The Role of Research Support in Self-Advocacy.” British Journal of Learning Disabilities 32 (2): 77–85.10.1111/bld.2004.32.issue-2
  • Clark, A., and N. Emmel. 2010. “Using Walking Interviews ESCR National Centre for Research Methods, Realities Toolkit #3.” Economic & Social Research Council. 1–6.
  • Department of Health. 2005. Independence, Well-Being and Choice: Our Vision for the Future of Social Care for Adults in England. UK: Department of Health.
  • Dias, J., M. Eardley, E. Harkness, C. Brownlee-Chapman, and R. Chapman. 2011. “Keeping Wartime Memory Alive: An Oral History Project about the Wartime Memories of People with Learning Difficulties in Cumbria.” Disability & Society 27 (1): 37–41.
  • Dingwall, R. 1980. “Orchestrated Encounters: An Essay in the Comparative Analysis of Speech-Exchange Systems.” Sociology of Health and Illness 2 (2): 151–173.10.1111/1467-9566.ep10487779
  • Dowse, L. 2009. “‘Some People Are Never Going to Be Able to Do That’. Challenges for People with Intellectual Disability in the 21st Century.” Disability & Society 24 (5): 571–584.10.1080/09687590903010933
  • Ellis, L. 2017. “Reclaiming Kith: Weaving Belongingness into Community.” In Disability and Rurality: Identity, Gender and Belonging, edited by K. Soldatic and K. Johnson, 215–232. Oxon: Routledge.
  • Finlay, W., and E. Lyons. 2002. “Acquiescence in Interviews with People Who Have Mental Retardation.” Mental Retardation 40 (1): 14–29.10.1352/0047-6765(2002)040<0014:AIIWPW>2.0.CO;2
  • Finlay, W., C. Walton, and C. Antaki. 2008. “Promoting Choice and Control in Residential Services for People with Learning Disabilities.” Disability & Society 23 (4): 349–360.10.1080/09687590802038860
  • Goodley, D. 1996. “Tales of Hidden Lives: A Critical Examination of Life History Research with People Who Have Learning Difficulties.” Disability & Society 11 (3): 333–348.10.1080/09687599627642
  • Goodley, D., and M. Rapley. 2002. “Changing the Subject: Postmodernity and People with ‘Learning Difficulties'.” In Disability/Postmodernity: Embodying Disability Theory, edited by T. Shakespeare and M. Corker, 27–142. London: Continuum International Publishing Group Ltd.
  • Hammersley, M. 2002. “Discourse Analysis: A Bibliographical Guide.” English, April.
  • Heal, L. W., and C. K. Sigelman. 1995. “Response Biases in Interviews of Individuals with Limited Mental Ability.” Journal of Intellectual Disability Research: JIDR 39 4: 331–340.10.1111/j.1365-2788.1995.tb00525.x
  • Heritage, J. 1995. “Conversation Analysis: Methodological Aspects.” In Aspects of Oral Communication, edited by U. M. Quasthoff, 391–418. New York: Walter de Gruyer.
  • Heritage, J. 2010. “Conversation Analysis: Practices and Methods.” In Qualitative Research: Theory, Method and Practice, edited by D. Silverman, 208–230. London: Sag.
  • Houtkoop-Steenstra, H., and C. Antaki. 1997. “Creating Happy People by Asking Yes-No Questions.” Research on Language & Social Interaction 30 (4): 37–41.
  • Jenkinson, J. 1993. “Who Shall Decide? The Relevance of Theory and Research to Decision-Making by People with an Intellectual Disability.” Disability & Society 8 (4): 361.10.1080/02674649366780351
  • Keyes, S. E., and T. Brandon. 2012. “Mutual Support: A Model of Participatory Support by and for People with Learning Difficulties.” British Journal of Learning Disabilities 40 (3): 222–228.
  • Levinson, J. 2005. “The Group Home Workplace and the Work of Know-How.” Human Studies 28 (1): 57–85.10.1007/s10746-005-3597-4
  • Matikka, L. M., and H. T. Vesala. 1997. “Acquiescence in Quality-of-Life Interviews with Adults Who Have Mental Retardation.” Mental Retardation 35 (2): 75–82.10.1352/0047-6765(1997)035<0075:AIQIWA>2.0.CO;2
  • Michell, B. 2012. “Checking up on Des: My Life My Choice’s Research into Annual Health Checks for People with Learning Disabilities in Oxfordshire.” British Journal of Learning Disabilities 40 (2): 152–161.10.1111/bld.2012.40.issue-2
  • Parmenter, T. R. 2001. “Intellectual Disabilities – Quo Vadis?” In Handbook of Disability Studies, edited by G. L. Albrecht, K. Seelman, and M. Bury, 267–296. Thousand Oaks, CA: Sage Publications.
  • Pilnick, A., J. Clegg, E. Murphy, and K. Almack. 2010. “Questioning the Answer: Questioning Style, Choice and Self-Determination in Interactions with Young People with Intellectual Disabilities.” Sociology of Health & Illness 32 (3): 415–436.10.1111/j.1467-9566.2009.01223.x
  • Ramirez, S. Z. 2005. “Evaluating Acquiescence to Yes – No Questions in Fear Assessment of Children with and without Mental Retardation.” Journal of Developmental and Physical Disabilities 17 (4): 337–343.10.1007/s10882-005-6617-4
  • Rapley, M. 2004. The Social Construction of Intellectual Disability. Cambridge: Cambridge University Press.10.1017/CBO9780511489884
  • Rapley, M., and C. Antaki. 1996. “A Conversation Analysis of the ‘Acquiescence’ of People with Learning Disabilities.” Journal of Community and Applied Social Psychology 6: 207–227.
  • Rapley, M., and C. Antaki. 1998. “‘What Do You Think about …?’: Generating Views in an Interview.” Text – Interdisciplinary Journal for the Study of Discourse 18 (4): 587–608.
  • Redley, M., and D. Weinberg. 2007. “Learning Disability and the Limits of Liberal Citizenship: Interactional Impediments to Political Empowerment.” Sociology of Health & Illness 29 (5): 767–786.
  • Rodgers, J. 1999. “Trying to Get It Right: Undertaking Research Involving People with Learning Difficulties.” Disability & Society 14 (4): 421–433.10.1080/09687599926046
  • Rolph, S. 1999. “The History of Community Care for People with Learning Difficulties in Norfolk 1930-1980: The Role of Two Hostels.” Unpublished PhD Thesis, Open University, Milton Keynes.
  • Sacks, H. 1995a. Lectures on Conversation. Edited by G. Jefferson. Malden: Cambridge: Blackwell Publishing.10.1002/9781444328301
  • Sacks, H. 1995b. Lectures on Conversation Volume II. Cambridge: Blackwell Publishing.10.1002/9781444328301
  • Schelly, D. 2008. “Problems Associated with Choice and Quality of Life for an Individual with Intellectual Disability: A Personal Assistant’s Reflexive Ethnography.” Disability & Society 23 (7): 719–732.10.1080/09687590802469206
  • Shewan, L., K. Mckenzie, E. Quayle, and C. Rowan. 2014. “A Qualitative Exploration of the Identities of Parents with a Learning Disability.” British Journal of Learning Disabilities 42 (1): 17–24.10.1111/bld.2014.42.issue-1
  • Sigelman, C. K., E. C. Budd, C. L. Spanhel, and C. L. Schoenrock. 1981a. “Asking Questions of Retarded Persons: A Comparison of Yes–No and Either–Or Formats.” Applied Research in Mental Retardation 2 (4): 347–357.
  • Sigelman, C. K., E. C. Budd, C. L. Spanhel, and C. L. Schoenrock. 1981b. “When in Doubt, Say Yes: Acquiescence in Interviews with Mentally Retarded Persons.” Mental Retardation 19 (2): 53–58.
  • Sims, D., and S. S. Cabrita Gulyurtlu. 2013. “A Scoping Review of Personalisation in the UK: Approaches to Social Work and People with Learning Disabilities.” Health & Social Care in the Community: 1–9. http://www.ncbi.nlm.nih.gov/pubmed/23647660
  • Smyth, C. M., and D. Bell. 2006. “From Biscuits to Boyfriends: The Ramifications of Choice for People with Learning Disabilities.” British Journal of Learning Disabilities 34: 227–236.10.1111/bld.2006.34.issue-4
  • Tilly, L. 2008. “Living in Sandwell: An Exploratory Study into the Key Issues and Challenges That Affect a Small Group of People with Mild Learning Disabilities.” Mental Health and Learning Disabilities Research and Practice 5: 224–239.10.5920/mhldrp.2008.52224
  • Townson, L., S. Macauley, E. Harkness, A. Docherty, J. Dias, M. Eardley, and R. Chapman. 2007. “Research Project on Advocacy and Autism.” Disability & Society 22 (5): 523–536.10.1080/09687590701427669
  • United Nations General Assembly. 2006. Final Report of the Ad Hoc Committee on a Comprehensive and Integral International Convention on the Protection and Promotion of the Rights and Dignity of Persons with Disabilities a /61/611.
  • Williams, V. 1999. “Researching Together.” British Journal of Learning Disabilities 27: 48–51.10.1111/bld.1999.27.issue-2
  • Williams, V. 2002. Being Researchers with the Label of Learning Difficulty: An Analysis of Talk in a Project Carried out by a Self-Advocacy Research Group. Milton Keynes: The Open University.
  • Williams, V., L. Ponting, and K. Ford. 2009. “‘I Do like the Subtle Touch’: Interactions between People with Learning Difficulties and Their Personal Assistants.” Disability & Society 24 (7): 815–828.10.1080/09687590903283407
  • Williams, V., L. Ponting, K. Ford, and P. Rudge. 2010. “Skills for Support: Personal Assistants and People with Learning Disabilities.” British Journal of Learning Disabilities 38 (1): 59–67.10.1111/bld.2010.38.issue-1
  • Wistow, R., and J. Schneider. 2003. “Users’ Views on Supported Employment and Social Inclusion: A Qualitative Study of 30 People in Work.” British Journal of Learning Disabilities 31: 166–173.10.1111/bld.2003.31.issue-4
  • Yacoub, E., and I. Hall. 2009. “The Sexual Lives of Men with Mild Learning Disability: A Qualitative Study.” British Journal of Learning Disabilities 37 (1): 5–11.10.1111/bld.2009.37.issue-1

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