547
Views
2
CrossRef citations to date
0
Altmetric
Articles

Two’s company, three’s a crowd: disabled people, their carers and their partners

Pages 272-284 | Received 01 Feb 2017, Accepted 27 Oct 2017, Published online: 10 Nov 2017

References

  • Adams, T. E. 2012. “The Joys of Autoethnography.” Qualitative Communication Research 12 (1): 181–194.
  • Barnes, C. 2007. “‘Direct Payments’ for Personal Assistants for Disabled People: A Key to Independent Living?.” Independentliving. Org. http://www.independentliving.org/docs7/barnes20070605.html%5Cnpapers2://publication/uuid/62BCF4B5-0148-4E26-AC2F-187572279CB9.
  • Bérubé, M. 1996. Life as We Know It: A Father, a Family, and an Exceptional Child. New York: Vintage Books.
  • Brewer, J. 2000. Ethnography. Buckingham: Open University Press.
  • Congdon, M. J. 2014. “What’s Wrong with Me ?: an Autoethnographic Investigation of the Co-Cultural Communicative Practices of Living with Tourette Syndrome during Adolescence.” The Qualitative Report 19 (50): 1–25.
  • Duffy, M. 2011. Making Care Count: A Century of Gender, Race, and Paid Care Work. New Jersey: Rutgers University Press.
  • Earle, S. 1999. “Facilitated Sex and the Concept of Sexual Need : Disabled Students and Their Personal Assistants.” Disability & Society 14 (3): 309–323. doi: 10.1080/09687599926163
  • Ellis, C. 1991. “Sociological Introspection and Emotional Experience.” Symbolic Interaction 14 (1): 23–50.10.1525/si.1991.14.issue-1
  • Ellis, C., and A. Bochner. 2000. “Autoethnography, Personal Narrative, Reflexivity: Researcher as Subject.” In The Handbook of Qualitative Research. 2nd ed., edited by N. Lincoln and Y. Lincoln, 733–768. Thousand Oaks, CA: SAGE.
  • Finch, J., and J. Mason. 1993. “Negotiating Family Obligations.” The Sociological Review 38: 219–246.
  • Gabel, S., and S. Peters. 2004. “Presage of a Paradigm Shift? Beyond the Social Model of Disability toward Resistance Theories of Disability.” Disability & Society 19 (6): 585–600. doi: 10.1080/09687590500059408
  • Galvin, R. 2004. “Challenging the Need for Gratitude: Comparisons between Paid and Unpaid Care.” Journal of Sociology 40 (2): 137–155. doi: 10.1177/1440783304043453
  • Garland-Thomson, R. 2005. “Feminist Disability Studies.” Signs: Journal of Woman in Culture and Society 30 (2): 1557–1587. doi: 10.1353/ftr.0.0031
  • Glendinning, C., S. Halliwell, S. Jacobs, K. Rummery, and J. Tyrer. 2000. “New Kinds of Care, New Kinds of Relationships: How Purchasing Services Affects Relationships in Giving and Receiving Personal Assistance.” Health & Social Care in the Community 8 (3): 201–211.10.1046/j.1365-2524.2000.00242.x
  • Glesne, C., and A. Peshkin. 1992. Becoming Qualitative Researchers: An Introduction. White Plains, NY: Longman.
  • Heron, C. 1998. Working with Carers. London: Jessica Kingsley.
  • Hughes, B. 2009. “Disability Activisms: Social Model Stalwarts and Biological Citizens.” Disability & Society 24 (6): 677–688. doi: 10.1080/09687590903160118
  • Johnson, H. M. 2005. Too Late to Die Young: Nearly True Tales from a Life. New York: Farrar, Straus, and Giroux.
  • Kittay, E. F., B. Jennings, and A. Wasunna. 2005. “Dependency, Difference and the Global Ethic of Long-Term Care.” Journal of Political Philosophy 13 (4): 443–469.10.1111/jopp.2005.13.issue-4
  • Linton, S. 2005. “What is Disability Studies?” PMLA 120 (2): 518–522.
  • Linton, S. 2007. My Body Politic: A Memoir. Michigan: University of Michigan Press.
  • Loeb, M., A. H. Eide, J. Jelsma, M. K. Toni, and S. Maart. 2008. “Poverty and Disability in Eastern and Western Cape Provinces, South Africa.” Disability & Society 23 (4): 311–321. doi: 10.1080/09687590802038803
  • Lourens, H. 2016. “Driving in Unheard Silence: Disability and the Politics of Shutting up.” Journal of Health Psychology. doi: 10.1177/1359105316643856
  • McKinney, E. L. 2013. “The Experiences of People with Disabilities during Their Integartion and Retention into Employment in South Africa.” Unpublished PhD thesis, University of Cape Town.
  • Merrill, B., and L. West. 2009. Using Biographical Methods in Social Research. London: SAGE.10.4135/9780857028990
  • Morris, J. 1997. “Care of Empowerment? A Disability Rights Perspective.” Social Policy & Administration 31 (1): 54–60.10.1111/1467-9515.00037
  • Neville-Jan, A. 2004. “Selling Your Soul to the Devil: An Autoethnography of Pain, Pleasure and the Quest for a Child.” Disability & Society 19 (2): 113–127. doi: 10.1080/0968759042000181758
  • Oliver, M. 1996. Defining Impairment and Disability: Issues at Stake. 3 vols. Edited by G. M. Colin. Leeds: The Disability Press.
  • Oliver, M. 2013. “The Social Model of Disability: Thirty Years on.” Disability & Society 28 (7): 1024–1026.10.1080/09687599.2013.818773
  • Reed-Danahay, D. 1997. “Introduction.” In Auto/Ethnography: Rewriting the Self and the Social, edited by D. Reed-Danahay, 1–17. New York: Berg.
  • Reeve, D. 2000. “Oppression within the Counselling Room.” Disability & Society 15 (4): 669–682.10.1080/09687590050058242
  • Richards, R. 2016. “Saying the Word: Voice and Silence in an Autoethnography about Chronic Illness.” Stellenbosch Papers in Linguistics plus 49: 233–247. doi: 10.5842/49-0-660
  • Rock, P. 1998. “Food for Thought. the Carer’s Movement: Dangers Ahead.” Accessed November 2003. http://www.leeds.ac.uk/disability-studies/archiveuk/archframe.htm
  • Shakespeare, T. 2000. Help. Birmingham, AL: Venture Press.
  • Shakespeare, T., K. Gillespie-Sells, and D. Davies. 1996. The Sexual Politics of Disability: Untold Desires. London: Cassell.
  • Shakespeare, T., and N. Watson. 2002. “The Social Model of Disability: An Outdated Ideology?” Research in Social Science and Disability 2: 9–28. doi:10.1016/S1479-3547(01)80018-X.
  • Swain, J., and S. French. 2000. “Towards an Affirmation Model of Disability.” Disability & Society 15 (4): 569–582. doi: 10.1080/09687590050058189
  • Swartz, L. 2011. “Race, Gender and the Impossibilities of Care.” Medical Humanities 38 (1): 34–37. doi: 10.1136/medhum-2011-010073
  • Swartz, L. 2015. “Care and the Luxury of Trauma: A South African Story.” Palliative & Supportive Care 3 (2): 399–404. doi: 10.1017/S147895151400042X
  • Ungerson, C. 1999. “Personal Assistants and Disabled People: An Examination of a Hybrid Form of Work and Care.” Work, Employment and Society 3 (4): 583–600.10.1177/09500179922118132
  • Watermeyer, B. 2008. “Conceptualising the Psycho‐Emotional Aspects of Disability and Impairment: The Distortion of Personal and Psychic Boundaries.” Disability & Society 23 (6): 599–610. doi: 10.1080/09687590802328477
  • Watson, N., L. McKie, B. Hughes, D. Hopkins, and S. Gregory. 2004. “(Inter) Dependence, Needs and Care: The Potential for Disability and Feminist Theorists to Develop an Emancipatory Model.” Sociology 38 (2): 331–350.10.1177/0038038504040867
  • Watt, D. 2007. “On Becoming a Qualitative Researcher: The Value of Reflexivity.” The Qualitative Report 12 (1): 82–101. http://www.nova.edu/ssss/QR/QR12-1/watt.pdf.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.