Quirky kids: fathers’ stories of embracing diversity and dismantling expectations for normative play with their children with autism spectrum disorder

References

• Avdi, E., C. Griffin, and S. Brough. 2000. “Parents’ Construction of the ‘Problem’ during Assessment and Diagnosis of Their Child for an Autistic Spectrum Disorder.” Journal of Health Psychology 5 (2): 241–254. doi:10.1177/135910530000500214.
   PubMedGoogle Scholar
• Broderick, A., and A. Ne’eman. 2008. “Autism as Methaphor: Narrative and Counter Narrative.” International Journal of Inclusive Education 12: 459–476. doi:10.1080/13603110802377490.
   Web of Science ®Google Scholar
• Brotherson, S. E., D. C. Dollahite, and A. Hawkins. 2005. “Generative Fathering and the Dynamics of Connection between Fathers and Their Children.” Fathering 3 (1): 1–28.10.3149/fth.0301.1
   Google Scholar
• Bumiller, B. 2008. “Quirky Citizens: Autism, Gender, and Reimagining Disability.” Signs: Journal of Women in Culture and Society  33 (4): 967–991.
   Web of Science ®Google Scholar
• Childress, D. 2011. “Play Behaviours of Parents and Their Young Children with Disabilities.” Topics in Early Childhood Special Education 31: 112–120.10.1177/0271121410390526
   Web of Science ®Google Scholar
• Coyl-Shepherd, D. D., and C. Hanlon. 2013. “Family Play and Leisure Activities: Correlates of Parents' and Children's Socio-Emotional Well-Being.” International Journal of Play 2 (3): 254–272. doi:10.1080/21594937.2013.855376.
   Google Scholar
• Coyne, Phyllis. 2014. “Autism Spectrum Disorder: Challenges and Strengths for Recreation Participation.” In Supporting Individuals with Autism Spectrum Disorder in Recreation, edited by Phyllis Coyne and Anne Fullerton, 13–43. Urbana: Sagemore Publishing.
   Google Scholar
• Dunn, W. 2001. “The Sensations of Everyday Life: Empirical, Theoretical, and Pragmatic Considerations.” American Journal of Occupational Therapy 55: 608–620. doi:10.5014/ajot.55.6.608.
   PubMed Web of Science ®Google Scholar
• Dunn, Winnie, K.P. Koenig, J. Cox, D. Sabata, E. Pope, L. Foster, and A. Blackwell. 2013. “Harnessing Strengths: Daring to Celebrate Everyone’s Unique Contributions.” Developmental Disabilities Special Interest Section Quarterly Newsletter, American Occupational Therapy Association, Inc. 36 (1): 1–4.
   Google Scholar
• Emira, M., and D. Thompson. 2011. “In the Quest for Their Trust: The Perceptions of Families on Accessing Leisure Services for Disabled Children.” Leisure Studies 30 (1): 33–48. doi:10.1080/102614367.2010.506648.
   Web of Science ®Google Scholar
• Ewick, P., and S. Silbey. 1995. “Subversive Stories and Hegemonic Tales: Towards a Sociology of Narrative.” Law & Society Review 29 (2): 197–226.
   Web of Science ®Google Scholar
• Feely, M. 2016. “Disability Studies after the Ontological Turn: A Return to the Material World and Material Bodies without a Return to Essentialism.” Disability & Society 31 (7): 863–883. doi: 10.1080/09687599.2016.1208603.
   Web of Science ®Google Scholar
• Fisher, P., and D. Goodley. 2007. “The Linear Medical Model of Disability: Mothers of Disabled Babies Resist with Counter-Narratives.” Sociology of Health Illness 29 (1): 66–81. doi:10.1111/j.1467-9566.2007.00518.x.
   PubMed Web of Science ®Google Scholar
• Freund, P. 2001. “Bodies, Disability and Spaces: The Social Model and Disabling Spatial Organisations.” Disability & Society 16 (5): 689–706. doi:10.1080/09687590120070079.
   Web of Science ®Google Scholar
• Goddard, J. A., R. Lehr, J. C. Lapadat. 2000. “Parents of Children with Disabilities: Telling a Different Story.” Canadian Journal of Counselling 34: 273–289.
   Google Scholar
• Goodley, D. 2013. “Dis/Entangling Critical Disability Studies.” Disability & Society 28 (5): 631–644.10.1080/09687599.2012.717884
   Web of Science ®Google Scholar
• Goodley, Dan, and K. Runswick-Cole. 2010. “Emancipating Play: Dis/Abled Children, Development and Deconstruction.” Disability & Society 25 (4): 499–512. doi:10.1080/09687591003755914.
   Web of Science ®Google Scholar
• Harrington, M. 2009. “Sports Mad, Good Dads: Australian Fathering through Leisure and Sport Practices.” In Fathering through Sport and Leisure, edited by Tess Kay, 51–72. New York: Routledge.
   Google Scholar
• Hodge, N., and K. Runswick-Cole. 2013. “‘They Never Pass Me the Ball’: Exposing Ableism through the Leisure Experiences of Disabled Children, Young People and Their Families.” Children’s Geographies 11 (3): 311–325. doi:10.1080/14733285.2013.812275.
   Web of Science ®Google Scholar
• Hughes, Bill, and K .Paterson. 2010. “The Social Model of Disability and the Disappearing Body: Towards a Sociology of Impairment.” Disability & Society  12 (3): 325–340. doi: 10.1080/09687599727209.
   Google Scholar
• Imrie, R. 2000. “Disability and Discourses of Mobility and Movement.” Environment and Planning 32: 1641–1656.10.1068/a331
   Web of Science ®Google Scholar
• Jeanes, R., and J. Magee. 2011. “Come on My Son! Examining Fathers, Masculinity and ‘Fathering through Football’.” Annals of Leisure Research 14 (2-3): 273–288. doi:10.1080/11745398.2011.616483.
   Google Scholar
• Jeanes, R., and J. Magee. 2012. “‘Can We Play on the Swings and Roundabouts?’: Creating Inclusive Play Spaces for Disabled Young People and Their Families.” Leisure Studies 31 (2): 193–210. doi:10.1080/02614367.2011.589864.
   Web of Science ®Google Scholar
• Jones, D. B. 2003. “’Denied from a Lot of Places’. Barriers to Participation in Community Recreation Programs Encountered by Children with Disabilities in Maine: Perspectives of Parents.” Leisure/Loisir 28: 49–69. doi:10.1080/14927713.2003.9649939.
   Web of Science ®Google Scholar
• Jordan, Rita. 2016. “Social Play and Autistic Spectrum Disorders.” Autism 7 (4): 347–360.
   Google Scholar
• Kasari, C., Y. Hang, and S. Patterson. 2013. “Pretending to Play or Playing to Pretend: The Case of Autism.” American Journal of Play 6 (1): 124–135.
   PubMedGoogle Scholar
• Kay, T. 2009. “The Landscape of Fathering.” In Fathering through Sport and Leisure, edited by Tess Kay, 7–22. New York: Routledge.
   Google Scholar
• Keller, T., J. Ramisch, and M. Carolan. 2014. “Relationships of Children with Autism Spectrum Disorders and Their Fathers.” The Qualitative Report 19: 1–15.
   Google Scholar
• Kernan, K. 2007. Play as a Context for Early Learning and Development.” the Early Childhood Curriculum Framework. Dublin: National Council for Curriculum and Assessment.
   Google Scholar
• Kitchen, R. 1998. “'Out of Place', 'Knowing One's Place': Space, Power and the Exclusion of Disabled People.” Disability and Society 13: 343–356.10.1080/09687599826678
   Web of Science ®Google Scholar
• Koenig-Kellas, J. 2015. “Narrative Theories: Making Sense of Interpersonal Communication.” In Engaging Theories in Interpersonal Communication: Multiple Perspective, edited by D. O. Braithwaite and P. Schrodt, 253–266. Thousand Oaks: Sage Publications.
   Google Scholar
• Koenig, K. P., and L. H. Williams. 2017. “Characterization and Utilization of Preferred Interests: A Survey of Adults on the Autism Spectrum.” Occupational Therapy in Mental Health 33 (2):1–12. doi: 10.1080/0164212X.2016.1248877.
   Web of Science ®Google Scholar
• Marks, D. 1999. Disability: Controversial Debates and Psychosocial Perspectives. London: Routledge.
   Google Scholar
• McLaughlin, J. D. Goodley, E.  Clavering, and P.  Fisher. 2008. Families Raising Disabledchildren: Enabling Care and Social Justice. London: Palgrave.
   Google Scholar
• Mitchell, J., and B. Lashewicz. 2015. “More than a Pal: The Generative Leisure Work of Fathers Raising Children with Autism Spectrum Disorder.” Fathering 13 (2): 130–145.
   Google Scholar
• Mitchell, J. 2017. Just Fun or Fundamental: Fathers’ Narratives of Leisure with Their Children with Autism Spectrum Disorder. PhD diss.: University of Calgary.
   Google Scholar
• O’Dell, L., H. Rosqvist, F. Ortega, Brownlow, and M. Orsini. 2016. “Critical Autism Studies: Exploring Epistemic Dialogues and Intersections, Challenging Dominant Understandings of Autism.” Disability & Society 31 (2): 166–179. doi: 10.1080/09687599.2016.1164026.
   Web of Science ®Google Scholar
• Phoenix, C., and B. Smith. 2011. “Telling a (Good?) Counterstory of Aging: Natural Body Building Meets the Narrative of Decline.” The Journals of Gerontology: Series B 66B (5): 628–639. doi: 10.1093/geronb/gbr077
   Google Scholar
• Pisula, E. 2008. “Interactions of Fathers and Their Children with Autism.” Polish Psychological Bulletin 39 (1): 35–41. doi:10.2478/v10059-008-0005-8.
   Google Scholar
• Polkinghorne, D. 1995. “Narrative Configuration in Qualitative Analysis”.” International Journal of Qualitative Studies in Education 8 (1): 5–23. doi:10.1080/0951839950080103.
   Google Scholar
• Potter, Carol. 2016a. “I Accept My Son for Who He is – He Has Incredible Character and Personality’: Fathers’ Positive Experiences of Parenting Children with Autism.” Disability & Society 31 (7): 948–965. doi: 10.1080/09687599.2016.1216393.
   Web of Science ®Google Scholar
• Potter, Carol. 2016b. “ Father Involvement in the Care, Play, and Education of Children with Autism.” Journal of Intellectual & Developmental Disability 42 (4): 375–384. doi: 10.3109/13668250.2016.1245851.
   Web of Science ®Google Scholar
• Renshaw, P., J. Choo, and E. Emerald. 2014. “Diverse Disability Identities: The Accomplishment of ‘Child with a Disability’ in Everyday Interaction between Parents and Teachers.” International Journal of Educational Research 63: 47–58.10.1016/j.ijer.2012.09.002
   Web of Science ®Google Scholar
• Riessman, C. K. 2001. “Analysis of Personal Narratives.” In Handbook of Interviewing, edited by J. F. Gubrium and J. A. Holstein, 695–710. Thousand Oaks: Sage Publications.
   Google Scholar
• Riessman, C. 2008. Narrative Methods for the Human Sciences. Los Angeles, CA: Sage Publications.
   Google Scholar
• Runswick-Cole, K. 2014. “‘Us’ and ‘Them’: The Limits and Possibilities of a ‘Politics of Neurodiversity’ in Neoliberal times.” Disability & Society 29 (7): 1117–1129. doi:10.1080/09687599.2014.910107.
   Web of Science ®Google Scholar
• Robison, J. 2007. Look Me in the Eye: My Life with Asperger’s. New York: Three Rivers Press.
   Google Scholar
• Roggman, L., L. Boyce, G. Cook, K. Christiansen, and D. Jones. 2004. “Playing with Daddy: Social Toy Play, Early Head Start, and Developmental Outcomes.” Fathering 2 (1): 83–108.
   Google Scholar
• Scorgie, K., L. Wilgosh, and D. Sobsey. 2004. “The Experience of Transformation in Parents of Children with Disabilities: Theoretical Considerations.” Developmental Disabilities Bulletin 32 (1): 84–110.
   Google Scholar
• Silberman, S. 2015. NeuroTribes: The Legacy of Autism and the Future of Neurodiversity. New York: Penguin Random House.
   Google Scholar
• Smith, B., and A. Sparkes. 2008. “Narrative and Its Potential Contribution to Disability Studies.” Disability & Society 23 (1): 17–28. doi:10.1080/09687590701725542.
   Web of Science ®Google Scholar
• Smith, B., and A. Sparkes. 2009a. “Narrative Inquiry in Sport and Exercise Psychology: What Can It Mean, and Why Might We Do It?” Psychology of Sport and Exercise 10: 1–11.10.1016/j.psychsport.2008.01.004
   Web of Science ®Google Scholar
• Smith, B., and Sparkes, A. 2009b. “Narrative Analysis and Sport and Exercise Psychology: Understanding Lives in Diverse Ways.” Psychology of Sport and Exercise 10: 279–288.10.1016/j.psychsport.2008.07.012
   Web of Science ®Google Scholar
• Smith, B., and A. Sparkes 2012. Making Sense of Words and Stories in Qualitative Research: Strategies for Consideration. In Measurment in Sport and Exercise Psychology, edited by G. Tennenbaum., R.C. Eklund, and A. Kamata, 119-–129. Windsor: Human Kinetics.
   Google Scholar
• Stagnitti, K. 2004. “Understanding Play: The Implications for Play Assessment.” Australian Occupational Therapy Journal 51: 3–12.10.1046/j.1440-1630.2003.00387.x
   Google Scholar
• Thompson, D., and M. Emira. 2011. “‘They Say Every Child Matters, but They Don’t’: An Investigation into Parental and Carer Perceptions of Access to Leisure Facilities and Respite Care for Child and Young People with Autistic Spectrum Disorder (ASD) or Attention Deficit, Hyperactivity Disorder (ADHD).” Disability and Society 26 (1): 65–78. doi:10.1080/09687599.2011.529667.
   Web of Science ®Google Scholar
• Toth, K., J. Munson, A.N. Meltzoff, and G. Dawson. 2006. “Early Predictors of Communication Development in Young Children with Autism Spectrum Disorder: Joint Attention, Imitation, and Toy Play.” Journal of Autism and Developmental Disorders 36: 993–1005.10.1007/s10803-006-0137-7
   PubMed Web of Science ®Google Scholar
• Vygotsky, L. 1978. Mind in Society: The Development of Higher Psychological Processes. Cambridge: Harvard University Press.
   Google Scholar
• Walker, N. 2012. “Throw Away the Master’s Tools: Liberating Ourselves from the Pathology Paradigm.” In Loud Hands: Autistic People Speaking, edited by J. Bascom, 225–237. Washington, DC: The Autistic Press.
   Google Scholar
• Walker, N. 2014, September 14. Neurodiversity: Some Basic Terms and Definitions [Web Blog Post]. http://neurocosmopolitanism.com/neurodiversity-some-basic-terms-definitions/
   Google Scholar
• Whitebread, D., M. Basilio, M. Kuvalja and M. Verma. 2012. The Importance of Play: A report on the value of children’s play with a series of policy recommendations. Toy Industries of Europe.
   Google Scholar
• Winter, Penni. 2012. “Loud Hands and Loud Voices.” In Loud Hands: Autistic People Speaking, edited by Julia Bascom, 115–128. Washington, DC: The Autistic Press.
   Google Scholar
• Winter-Messiers, M. 2007. “From Tarantulas to Toilet Brushes: Understanding the Special Interest Areas of Children and Youth with Asperger Syndrome.” Remedial and Special Education 28: 140–152.10.1177/07419325070280030301
   Web of Science ®Google Scholar
• Wolfberg, P. 2009. Play and Imagination in Children with Autism. 2nd ed. New York: Teachers College Press.
   Google Scholar