‘She will know that her mother’s doing something for her’: women with intellectual disabilities assuming the mother identity

References

• Abrams, Laura S., and Laura Curran. 2011. “Maternal Identity Negotiations Among Low-Income Women with Symptoms of Postpartum Depression.” Qualitative Health Research 21 (3): 373–385. doi:10.1177/1049732310385123.
   PubMed Web of Science ®Google Scholar
• Aunos, Marjorie, Georgette Goupil, and Maurice Feldman. 2004. “Mothers with Intellectual Disabilities Who Do or Do Not Have Permanent Custody of Their Children.” Journal on Developmental Disabilities 10 (2): 65–80.
   Google Scholar
• Baum, Sandra, and Jan Burns. 2007. “Mothers with Learning Disabilities: Experiences and Meanings of Losing Custody of Their Children.” Tizard Learning Disability Review 12 (3): 3–14.
   Google Scholar
• Bemiller, Michelle. 2010. “Mothering from a Distance.” Journal of Divorce & Remarriage 51 (3): 169–184. doi:10.1080/10502551003597824.
   Google Scholar
• Booth, Tim, and Wendy Booth. 2005. “Parents with Learning Difficulties in the Child Protection System. Experiences and Perspectives.” Journal of intellectual disabilities 9 (2): 109–129. doi:10.1177/1744629505053922.
   PubMedGoogle Scholar
• Booth, Tim, and Wendy Booth. 2006. “The Uncelebrated Parent: Stories of Mothers with Learning Difficulties Caught in the Child Protection Net.” British Journal of Learning Disabilities 34 (2): 94–102.
   Google Scholar
• Brantlinger, Ellen, Robert Jimenez, Janette Klinger, Marleen Pugach, and Virginia Richardson. 2005. “Qualitative Studies in Special Education.” Exceptional Children 71: 195–207.
   Web of Science ®Google Scholar
• Chen, Chih-Hsuan, and Bih-Ching Shu. 2012. “The Process of Perceiving Stigmatization: Perspectives from Taiwanese Young People with Intellectual Disability.” Journal of Applied Research in Intellectual Disabilities 25 (3): 240–251. doi:10.1111/j.1468-3148.2011.00661.x.
   PubMed Web of Science ®Google Scholar
• Corbin, Juliet, and Anselm Strauss. 2008. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory 3rd ed. Thousand Oaks, CA: Sage Publications, Inc.
   Google Scholar
• ČSÚ (Český Statistický Úřad; in English: Czech Statistical Bureau). Obecná míra nezaměstnanosti v ČR a krajích. (in English: General unemployment rate in the Czech Republic and regions). Accessed 7 July 2016. https://www.czso.cz/csu/czso/obecna_mira_nezamestnanosti_v_cr_a_krajich
   Google Scholar
• DJ (Department of Justice). (2012). Act No. 89/2012 Coll., Civil Code.
   Google Scholar
• DLSA (Department of Labour and Social Affairs). (1963). Act No. 94/1963 Coll., Family Law
   Google Scholar
• Douglas, Heather, and Paul Harpur. 2016. “Intellectual Disabilities, Domestic Violence and Legal Engagement.” Disability & Society 31 (3): 305–321. doi:10.1080/09687599.2016.1167673
   Web of Science ®Google Scholar
• Engwall, K. 2004. “Implications of Being Diagnosed as a “Feeble-Minded Woman”.” In Gender and Disability Research in the Nordic Countries, edited by Kristiansen Kristjana, and Rannveig Traustadóttir, 75–95. Lund, Sweden: Studentlitteratur.
   Google Scholar
• Feldman, Maurice, David McConnell, and Marjorie Aunos. 2012. “Parental Cognitive Impairment, Mental Health, and Child Outcomes in a Child Protection Population.” Journal of Mental Health Research in Intellectual Disabilities 5 (1): 66–90. doi:10.1080/19315864.2011.587632.
   Web of Science ®Google Scholar
• Frawley, Patsy, and Nathan J. Wilson. 2016. “Young People with Intellectual Disability Talking about Sexuality Education and Information.” Sexuality and Disability 34: 469–484. doi:10.1007/s11195-016-9460-x.
   Web of Science ®Google Scholar
• Gajardo, Consuelo, and Teresa Oteíza. 2017. “The Ideological Construction of Mother Identity in the Discourse of Four Women of the Lower Socio-Economic Group from Santiago, Chille.” Discourse & Society 28 (2): 142–161.
   Web of Science ®Google Scholar
• Granqvist, Pehr, Tommie Forslund, Mari Fransson, Lydia Springer, and Lene Lindberg. 2014. “Mothers with Intellectual Disability, Their Experiences of Maltreatment, and Their Children’s Attachment Representations: A Small-Group Matched Comparison Study.” Attachment & Human Development 16 (5): 417–436. doi:10.1080/14616734.2014.926946.
   PubMed Web of Science ®Google Scholar
• Gubrium, Jaber G., and James A. Holstein. (2001). “Introduction: Trying Times, Troubled Selves.” In Institutional Selves: Troubled Identities in a Postmodern World, edited by Jaber G. Gubrium, and Holstein James A, pp. 1–20. New York, NY: Oxford University Press.
   Google Scholar
• Hays, Sharon. 1996. The Cultural Contradictions of Motherhood. New Haven, CT: Yale University Press.
   Google Scholar
• Hindmarsh, Gabrielle, Gwyneth Llewellyn, and Eric Emerson. 2015. “Mothers with Intellectual Impairment and Their 9-month-old Infants.” Journal of Intellectual Disability Research 59: 541–550. doi:10.1111/jar.12306.
   PubMed Web of Science ®Google Scholar
• Höglund, Berit, and Margareta Larsson. (2013). “Struggling for Motherhood with an Intellectual Disability. A Qualitative Study of Women’s Experiences in Sweden.” Midwifery 29 (6): 698–704. doi:10.1016/j.midw.2012.06.014.
   PubMed Web of Science ®Google Scholar
• Hughes, Judy, Chau Shirley, and Lisa Vokrri. (2015). “Mothers’ Narratives of Their Involvement with Child Welfare Services.” Affilia: Journal of Women and Social Work 31 (3): 344–358. doi:10.1177/0886109915574579.
   Web of Science ®Google Scholar
• IASSID SIRG on Parents and Parenting (2008). “Parents Labelled with Intellectual Disability: Position of the IASSID SIRG on Parents and Parenting with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 21: 296–307. doi:10.1111/j.1468-3148.2008.00435.x.
   Web of Science ®Google Scholar
• Johnston, Deirdre, D., and Debra H. Swanson. 2007. “Cognitive Acrobatics in the Construction of Worker-Mother Identity. Sex Roles 57: 447–459. doi:10.1007/s11199-007-9267-4
   Web of Science ®Google Scholar
• Kozáková, Zdena. 2013. “Rodičovství osob s mentálním postižením.” (in English: Parenthood of people with intellectual disabilities.) In Postihnutie a sexualita (in English: Disability and Sexuality), edited by Mandzáková, S. L., Marková, D., & Horňák. L., 181–211. Prešovská univerzita v Prešově: Prešov.
   Google Scholar
• Mayes, Rachel, and Gwyneth Llewellyn. 2012. “Mothering Differently: Narratives of Mothers with Intellectual Disability Whose Children Have Been Compulsorily Removed.” Journal of Intellectual and Developmental Disability 37 (2): 121–130. doi:10.3109/13668250.2012.673574.
   PubMed Web of Science ®Google Scholar
• Mayes, Rachel, Gwyneth Llewellyn, and David McConnell. 2006. “Misconception: The Experience of Pregnancy for Women with Intellectual Disabilities.” Scandinavian Journal of Disability Research 8 (2–3): 120–131. doi:10.1080/15017410600774178.
   Google Scholar
• Mayes, Rachel, Gwyneth Llewellyn, and David McConnell. 2011. ““That’s Who I Choose to Be”: The Mother Identity for Women with Intellectual Disabilities.” Women's Studies International Forum 34 (2): 112–120. doi:10.1016/j.wsif.2010.11.001.
   Web of Science ®Google Scholar
• McCarthy, Michelle. 2014. “Women with Intellectual Disability: Their Sexual Lives in the 21st Century.” Journal of Intellectual and Developmental Disability 39 (2): 124–131. doi:10.3109/13668250.2014.894963
   Web of Science ®Google Scholar
• McConnell, David, and Hanna Sigurjónsdórttir. 2010. “Caught in the Child Protection Net.” In Parents with Intellectual Disabilities: Past, Present and Futures, edited by Gwyneth Llewellyn, Rannveig Traustadóttir, David McConnell, and Hanna Bjorg Sigurjónsdórttir, 171–187. Chichester: John Wiley & Sons Ltd.
   Google Scholar
• Meppelder, Marieke, Marja W. Hodes, Sabina Kef, and Carlo Schuengel. 2015. “Parenting Stress and Child Behaviour Problems Among Parents with Intellectual Disabilities: The Buffering Role of Resources.” Journal of Intellectual Disability Research 59 (7): 664–677. doi:10.1111/jir.12170.
   PubMed Web of Science ®Google Scholar
• Monsen, Karen, A. Sanders, Fang Yu, David Radosevich, and Joni Geppert. 2011. “Family Home Visiting Outcomes for Mothers With and Without Intellectual Disabilities.” Journal of Intellectual Disability Research 55 (5): 484–499. doi:10.1111/j.1365-2788.2011.01402.x.
   PubMedGoogle Scholar
• Mužáková, Monika. 2009. Fenomén slabomyslnosti v kontextu lidských práv. (in English: The phenomenon of feeblemindedness in the context human rights). PhD dissertation. Prague: Charles University, Faculty of Education.
   Google Scholar
• Mužáková, Monika. 2016. Byly to naše děti. O fenoménu lásky a sounáležitosti s rodiči a jejich dětmi s mentálním postižením v každodennosti totality. (in English: They were our children. The phenomenon of love and belonging, and parents and their children with intellectual disabilities in the everydayness of totalitarianism). Prague: Charles University, Faculty of Education.
   Google Scholar
• Pestka, Katrina, and Sarah Wendt. 2014. “Belonging: Women Living with Intellectual Disabilities and Experiences of Domestic Violence.” Disability & Society 29 (7): 1031–1045. doi:10.1080/09687599.2014.902358.RIS (a) (Regional Information Service). Dolní Podluží. Accessed 7 July 2016 http://www.risy.cz/cs/vyhledavace/obce/detail?Zuj=562432
   Google Scholar
• RIS (b) (Regional Information Service). Jiřetín pod Jedlovou. Accessed 7 July 2016 http://www.risy.cz/cs/vyhledavace/obce/detail?zuj=562572&zsj=061000
   Google Scholar
• Starke, Mikaela. 2010. “Encounters with Professionals: Views and Experiences of Mothers with Intellectual Disability.” Journal of Intellectual Disability 14 (1): 9–19. doi:10.1117/1744629510373052.
   PubMedGoogle Scholar
• Starke, Mikaela. 2011. “Descriptions of Children’s Needs and Parenthood Among Mothers with Intellectual Disability.” Scandinavian Journal of Disability Research 13 (4): 283–298. doi:10.1080/15017419.2010.507374.
   Google Scholar
• Strnadová, Iva, and David Evans. 2012. “Subjective Quality of Life of Women with Intellectual Disabilities: The Role of Perceived Control Over Own Life in Self-Determined Behaviour.” Journal of Applied Research in Intellectual Disability 25 (1), 71–79. doi:10.1111/j.1468-3148.2011.00646.x
   PubMed Web of Science ®Google Scholar
• Strnadová, Iva, and David Evans. 2015. “Older Women with Intellectual Disabilities: Overcoming Barriers to Autonomy.” Journal of Policy and Practice in Intellectual Disabilities 12 (1), 12–19. doi:10.1111/jppi.12097
   Web of Science ®Google Scholar
• Strnadová, Iva, Jana Bernoldová, Zdeňka Adamčíková, and Jan Klusáček. 2017a. “Good Enough Support? Exploring the Attitudes, Knowledge and Experiences of Practitioners in Social Services and Child Welfare Working with Mothers with Intellectual Disability.” Journal of Applied Research in Intellectual Disabilities 30 (3): 563–572. doi:10.1111/jar.12307
   PubMed Web of Science ®Google Scholar
• Strnadová, Iva, Jana Bernoldová, Zdeňka Adamčíková, and Jan Klusáček. 2017b. “Medical Personnel’s Knowledge, Attitudes, and Experiences of Mothers with Intellectual Disability.” Journal of Intellectual & Developmental Disability. doi:10.3109/13668250.2017.1294248
   PubMed Web of Science ®Google Scholar
• Strnadová, Iva, Therese M. Cumming, Marie Knox, Trevor Parmenter, and Hee M. Lee. 2015. “Perspectives on Life, Well-being, and Ageing by Older Women with Intellectual Disabilities.” Journal of Intellectual & Developmental Disability 40 (3): 275–285. doi:10.3109/13668250.2015.1043873
   Web of Science ®Google Scholar
• Tangir, Gali, Orna Cohen, and Einat Peled. 2017. “The Construction of Maternal Identity Among Nonresidential Mothers in Israel.” Affilia: Journal of Women and Social Work 32 (4): 517–530. doi:10.1177/0886109917708967.
   Web of Science ®Google Scholar
• Tarleton, Beth, Linda Ward, and Joyce Howarth. 2006. Finding the Right Support? A Review of Issues and Positive Practice in Supporting Parents with Learning Difficulties and Their Children. London: The Baring Foundation.
   Google Scholar
• Tarleton, Beth, and Sue Porter. 2012. “Crossing No Man’s Land: A Specialist Support Service for Parents with Learning Disabilities.” Child and Family Social Work 17: 233–243. doi:10.1111/j.1365-2206.2012.00833.x.
   Web of Science ®Google Scholar
• Tilley, Elizabeth, Jan Walmsley, Sarah Earle, and Dorothy Atkinson, D. 2012. “‘The Silence is Roaring’: Sterilization, Reproductive Rights and Women with Intellectual Disabilities.” Disability & Society 27 (3): 413–426. doi:10.1080/09687599.2012.654991.
   Web of Science ®Google Scholar
• Topinka, Daniel, Ondřej Molin, Jiří Poslt, Jan Zadina, Pavel Kliment, Helena Topinková, Petra Glasnáková, and Barbora Šolková. 2013. Mapy rozložení ohrožení dětí a rodin v ČR. (in English: Child and family thread distribution maps). SocioFackor s.r.o: Ostrava. Accessed 7 July 2016 http://www.mpsv.cz/files/clanky/15675/SOCDEM_ANALYZA_OHROZENE_DETI.pdf
   Google Scholar
• Wilkinson, Joanne, Deb Dreyfus, D. Bowen, and Barbara Bokhour. 2013. “Patient and Provider Views on the Use of Medical Services by Women with Intellectual Disabilities.” Journal of Intellectual Disability Research 57 (11): 1058–1067.
   PubMed Web of Science ®Google Scholar
• Willems, Dick L., J. N. De Vries, J. Isarin, & Hans (J. S.) Reinders. 2007. “Parenting by Persons with ID: An Explorative Study in the Netherlands.” Journal of Intellectual Disability Research 51: 537–544. doi:10.1111/j.1365-2788.2006.00924.x.
   PubMed Web of Science ®Google Scholar
• Wilson, Suzzane, Karen McKenzie, Ethel Quayle, and George C. Murray. 2013. “The Postnatal Support Needs of Mothers with an Intellectual Disability.” Midwifery 29 (6): 592–598. doi:10.1016/j.midw.2012.05.002.
   PubMed Web of Science ®Google Scholar