Making activism a participatory, inclusive and developmental process: a research programme involving mental health service users

References

• Alston, P. 2018. “Statement on Visit to the United Kingdom, by Professor Philip Alston, United Nations Special Rapporteur on Extreme Poverty and Human Rights.” Accessed January 15 2019. https://www.ohchr.org/Documents/Issues/Poverty/EOM_GB_16Nov2018.pdf
   Google Scholar
• Al Wazni, Anderson Beckmann. 2017. “Research and Writing Is Social Justice Activism.” Smith College Studies in Social Work 87(4): 354–357. doi:10.1080/00377317.2017.1372336.
   Web of Science ®Google Scholar
• Ballinger, Claire, and Rose Wiles. 2001. “A Critical Look at Evidence-Based Practice.” British Journal of Occupational Therapy 64(5): 253–255. doi:10.1177/030802260106400507.
   Google Scholar
• Beresford, Peter. 1999. “Towards an Empowering Social Work Practice: Learning from Service Users and Their Movements.” In Shera, Wes and Wells, Lillian (eds.), Empowerment Practice in Social Work. Toronto: Canadian Scholars' Press Inc., 259–277.
   Google Scholar
• Beresford, Peter. 2013. “From ‘Other’ to Involved: User Involvement in Research: An Emerging Paradigm.” Nordic Social Work Research 3(2): 139–148. doi:10.1080/2156857X.2013.835138.
   Google Scholar
• Beresford, Peter. 2016. All Our Welfare. Towards Participatory Social Policy. Bristol, UK: Policy Press.
   Google Scholar
• Beresford, Peter. 2019. “Austerity Is Denying Patients and Care Service Users a Voice.” Accessed January 17 2019. https://www.theguardian.com/society/2019/jan/14/austerity-denying-patients-care-service-users-voice
   Google Scholar
• Brookfield, Stephen. 1987. Developing Critical Thinkers. Milton Keynes, UK: Open University Press.
   Google Scholar
• Bryant, Wendy, Adrian Tibbs, and John Clark. 2011. “Visualising a Safe Space: The Perspective of People Using Mental Health Day Services.” Disability & Society 26(5): 611–628.
   Web of Science ®Google Scholar
• Bryant, Wendy, Christine Andrews, Mary Birken, Bob Davidson, Gnanesh Gajora, and and Darren Nicholson-Jones. 2015. ““You Know People Can Get Better.” Experiences of Occupational Therapy in an Acute Mental Health Unit through the Camera Lens.” Colchester, UK: University of Essex. http://repository.essex.ac.uk/15790/1/FINAL%20report%20June%202015.pdf
   Google Scholar
• Bryant, Wendy, Christine Craik, and Elizabeth McKay. 2005. “Perspectives of Day and Accommodation Services for People with Enduring Mental Illness.” Journal of Mental Health 14(2): 109–120. doi:10.1080/09638230500073600.
   Google Scholar
• Bryant, Wendy, Geraldine Vacher, Peter Beresford, and Elizabeth McKay. 2010. “The Modernisation of Mental Health Day Services: Participatory Action Research Exploring Social Networking.” Mental Health Review Journal 15(3): 11–21. doi:10.5042/mhrj.2010.0655.
   Google Scholar
• Bryant, Wendy, Jackie, Parsonage, Adrian Tibbs, Christine Andrews, John Clark, and Lucia Franco. 2012. “Meeting in the Mist: Key Considerations in a Collaborative Research Partnership with People with Mental Health Issues.” Work 43(1): 23–31.
   PubMedGoogle Scholar
• Bryant, Wendy, Kevin Cordingley, Katherine Sims, Jasvinder Dokal-Marandi, Helen Pritchard, Vicky Stannard, and Ellen Adamako. 2016. “Collaborative Research Exploring Mental Health Service User Perspectives on Acute Inpatient Occupational Therapy.” British Journal of Occupational Therapy 79(10): 607–613. doi:10.1177/0308022616650899.
   Web of Science ®Google Scholar
• Cage, Anthea. 2007. “Occupational Therapy with Women and Children Survivors of Domestic Violence: Are We Fulfilling Our Activist Heritage? A Review of the Literature.” British Journal of Occupational Therapy 70(5): 192–198. doi:10.1177/030802260707000503.
   Google Scholar
• Chatterton, Paul, and Jenny Pickerill. 2010. “Everyday Activism and Transitions towards Post-Capitalist Worlds.” Transactions of the Institute of British Geographers 35(4): 475–490.
   Web of Science ®Google Scholar
• Cottrell, Rita P. Fleming. 2005. “The Olmstead Decision: Landmark Opportunity or Platform for Rhetoric? Our Collective Responsibility for Full Community Participation.” American Journal of Occupational Therapy 59(5): 561–568.
   PubMed Web of Science ®Google Scholar
• Couture, Stéphane. 2017. “Activist Scholarship: The Complicated Entanglements of Activism and Research Work.” Canadian Journal of Communication 42(1): 143–147.
   Web of Science ®Google Scholar
• Clayton, Peter. 2012. Octavia Hill: Social Reformer and Founder of the National Trust. Andover, Pitkin Publishers.
   Google Scholar
• Department of Health. 1983. The Mental Health Act. London: HMSO.
   Google Scholar
• Evert, Mary M. 1995. “Our Journey Together.” American Journal of Occupational Therapy 49(10): 1065–1067. doi:10.5014/ajot.49.10.1065.
   PubMed Web of Science ®Google Scholar
• Faulkner, Alison. 2017. “Survivor Research and Mad Studies: The Role and Value of Experiential Knowledge in Mental Health Research.” Disability & Society 32(4): 500–520. doi:10.1080/09687599.2017.1302320.
   Web of Science ®Google Scholar
• Faulkner, Alison. 2016. “Dilemmas of Identity and Power.” In Searching for a Rose Garden. Challenging Psychiatry, Fostering Mad Studies, edited by Russo Jasna, and Sweeney Angela. Monmouth, Wales: PCCS Books Ltd.
   Google Scholar
• Flood, Michael, Brian Martin, and Tanja Dreher. 2013. “Combining Academia and Activism: Common Obstacles and Useful Tools.” Australian Universities Review 55(1): 17–26.
   Google Scholar
• Forenza, B., and A. J. Germak. 2015. “What Ignites and Sustains Activism: Exploring Participatory Competence.” Journal of Progressive Human Services 26(3): 229–245. doi:10.1080/10428232.2015.1063349.
   Web of Science ®Google Scholar
• Fox, Jackie, and Sarah Quinn. 2012. “The Meaning of Social Activism to Older Adults in Ireland.” Journal of Occupational Science 19(4): 358–370. doi:10.1080/14427591.2012.701179.
   Google Scholar
• Frank, Gelya, and Bernard Austin Kigunda Muriithi. 2015. “Theorising Social Transformation in Occupational Science: The American Civil Rights Movement and South African Struggle against Apartheid as ‘Occupational Reconstructions’.” South African Journal of Occupational Therapy 45(1): 11–19. doi:10.17159/2310-3833/2015/v45no1a3.
   Google Scholar
• Freire, Paulo. 1996. Pedagogy of the Oppressed. Revised. New York: Continuum.
   Google Scholar
• Guajardo, Alejandro, Frank Kronenberg, and Elelwani L. Ramugondo. 2015. “Southern Occupational Therapies: Emerging Identities, Epistemologies and Practices.” South African Journal of Occupational Therapy 45(1): 3–10. doi:10.17159/2310-3833/2015/v45no1a2.
   Google Scholar
• Henderson, C., and G. Thornicroft. 2013. “Evaluation of the Time to Change Programme in England 2008-2011.” British Journal of Psychiatry 202(s55): s45–s48. doi:10.1192/bjp.bp.112.112896.
   Google Scholar
• Hubinette, Maria, Sarah Dobson, and Glenn Regehr. 2015. “Not Just ‘for’ but ‘with’: Health Advocacy as a Partnership Process.” Medical Education 49(8): 796–804. doi:10.1111/medu.12755.
   PubMed Web of Science ®Google Scholar
• Kirsh, Bonnie H. 2015. “Transforming Values into Action: Advocacy as a Professional Imperative.” Canadian Journal of Occupational Therapy 82(4): 212–223. doi:10.1177/0008417415601395.
   PubMed Web of Science ®Google Scholar
• Kramer-Roy, Debbie. 2015. “Using Participatory and Creative Methods to Facilitate Emancipatory Research with People Facing Multiple Disadvantage: A Role for Health and Care Professionals.” Disability & Society 30(8): 1207–1224. doi:10.1080/09687599.2015.1090955.
   Web of Science ®Google Scholar
• Lal, S., T. Jarus, and M. Suto. 2012. “A Scoping Review of the Photovoice Method: Implications for Occupational Therapy Research.” Canadian Journal of Occupational Therapy 79(3): 181–190. doi:10.2182/cjot.2012.79.3.8.
   PubMed Web of Science ®Google Scholar
• Laverack, Glenn. 2012. “Health Activism.” Health Promotion International 27(4): 429–434. doi:10.1093/heapro/das044.
   PubMed Web of Science ®Google Scholar
• Macdonald, Stephen J., Anne Charnock, and Jane Scutt. 2018. “Marketing ‘Madness’: Conceptualising Service User/Survivor Biographies in a Period of Deinstitutionalisation (1975–2014).” Disability & Society 33(6): 849–865. doi:10.1080/09687599.2018.1463195.
   Web of Science ®Google Scholar
• Major, Claire Howell, and Maggi Savin-Baden. 2012. An Introduction to Qualitative Research Synthesis: Managing the Information Explosion in Social Science Research. Abingdon, Routledge.
   Google Scholar
• Makdisi, Lana, Alison Blank, Wendy Bryant, Christine Andrews, Lucia Franco, and Jackie Parsonage. 2013. “Facilitators and Barriers to Living with Psychosis: An Exploratory Collaborative Study of the Perspectives of Mental Health Service Users.” British Journal of Occupational Therapy 76(9): 418–426. doi:10.4276/030802213X13782044946346.
   Web of Science ®Google Scholar
• Maria Galheigo, Sandra. 2011. “What Needs to Be Done? Occupational Therapy Responsibilities and Challenges regarding Human Rights.” Australian Occupational Therapy Journal 58(2): 60–66. doi:10.1111/j.1440-1630.2011.00922.x.
   PubMed Web of Science ®Google Scholar
• Notley, Jenny, Hannah Pell, Wendy Bryant, Mary Grove, Anna Croucher, Kevin Cordingley, and Alison Blank. 2012. “I Know How to Look after Myself a Lot Better Now’: Service User Perspectives on Mental Health in-Patient Rehabilitation.” International Journal of Therapy and Rehabilitation 19(5): 288–298. doi:10.12968/ijtr.2012.19.5.288.
   Google Scholar
• Paterson, C. 2014. “A Short History of Occupational Therapy in Mental Health.” In Creek’s Occupational Therapy and Mental Health, edited by W. Bryant, J. Fieldhouse, and K. Bannigan. 5th ed. Edinburgh: Elsevier Ltd.
   Google Scholar
• Pentland, D., S. Kantartzis, M. G. Clausen, and K. Witemyre. 2018. Occupational Therapy and Complexity: Defining and Describing Practice. London: Royal College of Occupational Therapists.
   Google Scholar
• Pollard, Nick, and Dikaios Sakellariou. 2014. “The Occupational Therapist as a Political Being/O Terapeuta Ocupacional Como um Ser Político.” Cadernos Brasileiros de Terapia Ocupacional 22(3): 643–652.
   Google Scholar
• Pollard, Nick, and Pamela Block. 2017. “Who Occupies Disability?/Quem Ocupa a Deficiência?” Cadernos Brasileiros de Terapia Ocupacional 25(2): 417–426.
   Google Scholar
• Rogers, Anne, and David Pilgrim. 2003. Mental Health and Inequality. Basingstoke, UK: Palgrave Macmillan.
   Google Scholar
• Rose, Diana. 2018. “Participatory Research: Real or Imagined.” Social Psychiatry and Psychiatric Epidemiology 53(8): 765–771.
   PubMed Web of Science ®Google Scholar
• Rose, Diana, Sarah Carr, and Peter Beresford. 2018. “Widening Cross-Disciplinary Research for Mental Health’: What Is Missing from the Research Councils UK Mental Health Agenda?” Disability & Society 33(3): 476–481. doi:10.1080/09687599.2018.1423907.
   Web of Science ®Google Scholar
• Royal College of Psychiatrists. 2012. “Achieving Parity of Esteem between Mental and Physical Health.” https://www.rcpsych.ac.uk/pdf/Parity%20of%20Esteem%20briefing%20Feb%202012.pdf
   Google Scholar
• Russo, Jasna. 2016. “Towards Our Own Framework, or Reclaiming Madness Part Two.” In Searching for a Rose Garden. Challenging Psychiatry, Fostering Mad Studies, edited by Russo Jasna, and Sweeney Angela. Monmouth, Wales: PCCS Books Ltd.
   Google Scholar
• Russo, Jasna, and Peter Beresford. 2015. “Between Exclusion and Colonisation: Seeking a Place for Mad People’s Knowledge in Academia.” Disability & Society 30(1): 153–157. doi:10.1080/09687599.2014.957925.
   Web of Science ®Google Scholar
• Smith, M. 2013. “Anti-Stigma Campaigns: Time to Change.” British Journal of Psychiatry 202(s55): s49–s50. doi:10.1192/bjp.bp.113.126813.
   Google Scholar
• Townsend, Elizabeth, and Rebecca Marval. 2013. “Can Professionals Actually Enable Occupational Justice?” Cadernos de Terapia Ocupacional da UFSCar 21(2):215–228.
   Google Scholar
• Wicks, Paul, Tessa, Richards, Simon Denegri, and Fiona Godlee. 2018. “Patients’ Roles and Rights in Research.” BMJ 362: k3193. doi: https://doi.org/10.1136/bmj.k3193.
   PubMedGoogle Scholar
• Wilcock, Ann A., and Beryl Steeden. 1999. “Reflecting the Creative Roots of the Profession.” British Journal of Occupational Therapy 62(1): 1. doi:10.1177/030802269906200101.
   Google Scholar