2,555
Views
9
CrossRef citations to date
0
Altmetric
Articles

Theory, practice, and perspectives: Disability Studies and parenting children with disabilities

&
Pages 1102-1124 | Received 31 Aug 2018, Accepted 18 May 2019, Published online: 06 Jul 2019

References

  • Annamma, Subini, and Deb Morrison. 2018. “DisCrit Classroom Ecology: Using Praxis to Dismantle Dysfunctional Education Ecologies.” Teaching and Teacher Education 73: 70–80.
  • Biklen, Douglas, and Jamie Burke. 2006. “Presuming Competence.” Equity & Excellence in Education 39(2): 166–175.
  • Bosteels, Sigrid, Geert Van Hove, and Michel Vandenbroeck. 2012. “The Rollercoaster of Experiences: Becoming the Parent of a Deaf Child.” Disability & Society 27(7): 983–996. doi: 10.1080/09687599.2012.705059.
  • Brockley, Janice. 2004. “Rearing the Child Who Never Grew: Ideologies of Parenting and Intellectual Disability in American History.” In Mental Retardation in America: A Historical Reader, edited by Steven Noll and James W. Trent, Jr., 130–164. New York: New York University Press.
  • Broderick, Alicia, and Priya Lalvani. 2017. “Dysconscious Ableism: Toward a Liberatory Praxis in Teacher Education.” International Journal of Inclusive Education 21(9): 894–905. doi: 10.1080/13603116.2017.1296034.
  • Cavendish, Wendy, and David Connor. 2018. “Introduction to Special Series: Parent Voice in Educational Decision Making for Students with Learning Disabilities.” Learning Disability Quarterly 41(1): 4–6.
  • Clare, Eli. 2017. Brilliant Imperfection: Grappling with Cure. Durham, NC: Duke University Press.
  • Ellis, Carolyn. 1997. “Evocative Autoethnography: Writing Emotionally about Our Lives.” In Representation and the Text: Re-Framing the Narrative Voice, edited by William G. Tierney and Yvonne S. Lincoln, 115–139. New York: State University of New York Press.
  • Erevelles, Nirmala. 2014. “Thinking with Disability Studies.” Disability Studies Quarterly 34(2).
  • Ferguson, Philip M., and Dianne L. Ferguson. 2001. “Winks, Blinks, Squints and Twitches: Looking at Culture and Disability through our Son’s Left Eye.” Scandinavian Journal of Disability Research, 3(2): 71–90. doi: 10.1080/15017410109510777.
  • Fisher, Pamela, and Dan Goodley. 2007. “The Linear Medical Model of Disability: Mothers of Disabled Babies Resist with Counter-Narratives.” Sociology of Health and Illness 29(1): 66–81.
  • Frederick, Angela. 2017. “Risky Mothers and the Normalcy Project.” Gender & Society 31(1): 74–95.
  • Gabel, Susan. 2002. “Some Conceptual Problems with Critical Pedagogy.” Curriculum Inquiry 32(2): 177–201.
  • Gabel, Susan. 2009. “Introduction.” In Disability Studies in Education: Readings in Theory and Method, edited by Susan Gabel, 1–20. New York: Peter Lang Publishing.
  • Goodley, Dan. 2014. Dis/Ability Studies: Theorising Disableism and Ableism. New York: Routledge.
  • Harding, Sandra. 2009. “Standpoint Theories: Productively Controversial.” Hypatia 24(4): 92–19.
  • Harry, Beth. 2008. “Collaboration with Culturally and Linguistically Diverse Families: Ideal versus Reality.” Exceptional Children 74(3): 372–388.
  • Hodge, Nick, and Katherine Runswick‐Cole. 2008. “Problematising Parent–Professional Partnerships in Education.” Disability & Society 23(6): 637–647. doi: 10.1080/09687590802328543.
  • Illinois State Board of Education. 2018 May 16. “State Board Recommends Corrective Actions for Chicago Public Schools to Improve Special Education Service.” [Press release]. https://www.isbe.net/Lists/News/NewsDisplay.aspx?ID=1211
  • Itkonen, Tiina. 2007. “PL 94-142: Policy, Evolution, and Landscape Shift.” Issues in Teacher Education 16(2): 7–17.
  • Jarman, Michelle, and Alison Kafer. 2014. “Guest Editors’ Introduction: Growing Disability Studies: Politics of Access, Politics of Collaboration.” Disability Studies Quarterly 34(2).
  • Kafer, Alison. 2013. Feminist, Queer, Crip. Bloomington: Indiana University Press.
  • Kittay, Eve. 1999. “Not My Way, Sesha, Your Way, Slowly: Maternal Thinking in the Raising of a Child with Profound Intellectual Disabilities.” In Mother Troubles: Rethinking Contemporary Maternal Dilemmas, edited by Julia E. Hanigsberg and Sara Ruddick, 3–30. Boston: Beacon Press.
  • Kliewer, Chris. 2016. “Disability Studies and Young Children: Finding Relevance.” Vital Questions Facing Disability Studies in Education, edited by Scot Danforth and Susan L. Gabel, 105–116. New York: Peter Lang.
  • Kunc, Norman. 1992. “The Need to Belong: Rediscovering Maslow’s Hierarchy of Need.” In Restructuring for Caring & Effective Education: An Administrative Guide to Creating Heterogeneous Schools, edited by Richard A. Villa and Jacqueline S. Thousand, 25–39. Baltimore, MD: Paul H. Brookes Publishing.
  • Lalvani, Priya. 2015. “Disability, Stigma and Otherness: Perspectives of Parents and Teachers.” International Journal of Disability, Development and Education 62(4): 379–393.
  • Lalvani, Priya, and Chris Hale. 2015. “Squeaky Wheels, Mothers from Hell, and CEOs of the IEP: Parents, Privilege, and the ‘Fight’ for Inclusive Education.” Understanding & Dismantling Privilege 5(2): 1–20.
  • Leitner, Valerie. 2004. “Parental Activism, Professional Dominance, and Early Childhood Disability.” Disability Studies Quarterly 2(2).
  • Mingus, Mia. 2011. “Changing The Framework: Disability Justice: How Our Communities Can Move Beyond Access to Wholeness.” Leaving Evidence (blog),  February 12, 2011, (1:56 pm).
  • Murray, Pippa. 2000. “Disabled Children, Parents and Professionals: Partnership on Whose Terms?” Disability & Society 15(4):683–98. doi: 10.1080/09687590050058251
  • National Council on Disability. 2018. “The Segregation of Students with Disabilities.” https://ncd.gov/publications/2018/individuals-disabilities-education-act-report-series-5-report-briefs
  • Nielsen, Kim E. 2009. The Radical Lives of Helen Keller. New York: NYU Press.
  • Noguera, Pedro. 2003. City Schools and the American Dream: Reclaiming the Promise of Public Education. New York: Teachers College Press.
  • Ong-Dean, Colin. 2009. Distinguishing Disability: Parents, Privilege, and Special Education. Chicago: University of Chicago Press.
  • Rapp, R. 2001. “Enabling Disability: Rewriting Kinship, Reimagining Citizenship.” Public Culture 13(3): 533–56. doi: 10.1215/08992363-13-3-533
  • Rix, Jonathan, and Alice Paige-Smith. 2008. “A Different Head? Parental Agency and Early Intervention.” Disability & Society 23(3): 211–221. doi: 10.1080/09687590801953952.
  • Runswick-Cole, Katherine. 2008. “Between a Rock and a Hard Place: Parents’ Attitudes to the Inclusion of Children with Special Educational Needs in Mainstream and Special Schools.” British Journal of Special Education 34(3): 174–180.
  • Ryan, Sara, and Katherine Runswick-Cole. 2008. “Repositioning Mothers: Mothers, Disabled Children and Disability Studies.” Disability and Society 23(3): 199–210.
  • Sauer, Janet S. and Priya Lalvani 2017. “From Advocacy to Activism: Families, Communities, and Collective Change.” Journal of Policy and Practice in Intellectual Disabilities 14(1): 51–8. doi: 10.1111/jppi.12219
  • Sousa, Amy C. 2011. “From Refrigerator Mothers to Warrior‐Heroes: The Cultural Identity Transformation of Mothers Raising Children with Intellectual Disabilities.” Symbolic Interaction 34(2): 220–243.
  • Super, Gia, and Kelly Vaughan. 2018. “Special Education, Role of the Family in.” In Disability in American Life: An Encyclopedia of Concepts, Policies and Controversies, edited by Tamar Heller, Sarah Parker Harris, Carol J. Gill, and Robert Gould, 627–630. Santa Barbara, CA: ABC-CLIO.
  • Syracuse University Disability Cultural Center (SUDCC). 2014. “An Introductory Guide to Disability Language and Empowerment.” Accessed 31 December 2018. http://sudcc.syr.edu/LanguageGuide/#faq-3
  • Valle, Jan. 2011. “Down The Rabbit Hole: A Commentary About Research On Parents And Special Education.” Learning Disabilities Quarterly 34(3): 183–190. 
  • United States Department of Education. 2000. “A Guide to the Individualized Education Program.” https://www2.ed.gov/parents/needs/speced/iepguide/index.html#process
  • Valle, Jan, and Susan Gabel. 2010. “The Sirens of Normative Mythology: Mother Narratives of Engagement and Resistance. In The Myth of the Normal Curve, edited by Curt Dudley-Marling and Alex Gurn, 187–204. New York: Peter Lang.
  • Valle, Jan W. 2009. What Mothers Say about Special Education: From the 1960s to the Present. New York: Palgrave Macmillan.
  • Waitoller, Federico R, and Elizabeth B. Kozleski. 2013. “Working in Boundary Practices: Identity Development and Learning in Partnerships for Inclusive Education.” Teaching and Teacher Education 31:35–45. doi: 10.1016/j.tate.2012.11.006
  • Waitoller, Federico R., and Kathleen A. King Thorius. 2016. “Cross-Pollinating Culturally Sustaining Pedagogy and Universal Design for Learning: Toward an Inclusive Pedagogy That Accounts for Disability.” Harvard Education Review 86(3): 366–389.
  • Ware, Linda. 2002. “A Moral Conversation on Disability: Risking the Personal in Educational Contexts.” Hypatia 17(3): 143–172.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.