Gender, sexuality and relationships for young Australian women with intellectual disability

References

• Abbott, D. 2015. “Love in a Cold Climate: Changes in the Fortunes of LGBT Men and Women with Learning Disabilities?” British Journal of Learning Disabilities 43(2): 100–105. doi:10.1111/bld.12131
   Web of Science ®Google Scholar
• Abbott, D., and J. Burns. 2007. “What’s Love Got to Do with It? Experiences of Lesbian, Gay, and Bisexual People with Intellectual Disabilities in the United Kingdom and the Views of the Staff Who Support Them.” Sexuality Research and Social Policy 4(1): 27–39. doi:10.1525/srsp.2007.4.1.27
   Google Scholar
• Abbott, D., and J. Howarth. 2005. Secret Loves, Hidden Lives? Exploring Issues for People with Learning Disabilities Who Are Gay, Lesbian and Bisexual. Bristol: The Policy Press.
   Google Scholar
• Angrosino, M., and L. Zagnoli. 1992. “Gender Constructs and Social Identity: Implications for Community-Based Care of Retarded Adults.” In Gender Constructs and Social Issues, edited by T. Whitehead and B. Reid. (pp. 40–69). Urbana, IL: University of Illinois Press.
   Google Scholar
• Atkinson, D., McCarthy, M., Walmsley, J., Cooper, M., Rolph, S., Aspis, S., … Ferris, G. eds. 2000. Good Times, Bad Times: Women with Learning Difficulties Telling Their Stories. Kidderminster, England: BILD.
   Google Scholar
• Barron, K. 2004. “Womanhood and Disability: Oppression under Scrutiny.” In Gender and Disability Research in the Nordic Countries, edited by R. Traustadadottir and K. Kristiansen. (pp. 347–364). Lund, Sweden: Studentlitteratur.
   Google Scholar
• Bernert, D. 2011. “Sexuality and Disability in the Lives of Women with Intellectual Disabilities.” Sexuality and Disability 29(2): 129–141. doi:10.1007/s11195-010-9190-4
   Web of Science ®Google Scholar
• Bjornsdottir, K., and R. Traustadóttir. 2010. “Stuck in the Land of Disability? The Intersection of Learning Difficulties, Class, Gender and Religion.” Disability & Society 25(1): 49–62. doi:10.1080/09687590903363340
   Web of Science ®Google Scholar
• Booth, T., and W. Booth. 2003. “In the Frame: Photovoice and Mothers with Learning Difficulties.” Disability & Society 18(4): 431–442. doi:10.1080/0968759032000080986
   Web of Science ®Google Scholar
• Booth, T., and W. Booth. 2005. “Parents with Learning Difficulties in the Child Protection System: Experences and Perspectives.” Journal of Intellectual Disabilities 9(2): 109–129. doi:10.1177/1744629505053922
   PubMedGoogle Scholar
• Brown, H. 1994. “‘An Ordinary Sexual Life?’: A Review of the Normalisation Principle as It Applies to the Sexual Options of People with Learning Disabilities.” Disability & Society 9(2): 123–44. doi: doi:10.1080/09687599466780181
   Google Scholar
• Brown, H., N. Plourde, H. Ouellette Kuntz, S. Vigod, and V. Cobigo. 2016. “Brief Report: Cervical Cancer Screening in Women with Intellectual and Developmental Disabilities Who Have Had a Pregnancy.” Journal of Intellectual Disability Research 60(1): 22–27. doi:10.1111/jir.12225
   PubMed Web of Science ®Google Scholar
• Brown, H., and H. Smith. 1992. “Assertion, not Assimilation: A Feminist Perspective on the Normalisation Principle.” In Normalisation: A Reader for the Nineties, edited by H. Brown and H. Smith, 149–171. New York: Routledge.
   Google Scholar
• Burns, J., and D. Davies. 2011. “Same-Sex Relationships and Women with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 24(4): 351–360. doi:10.1111/j.1468-3148.2010.00609.x
   Web of Science ®Google Scholar
• Butler, J. 1990. Gender Trouble: Feminism and the Subversion of Identity. London: Routledge.
   Google Scholar
• Carlson, L. 2001. “Cognitive Ableism and Disability Studies: Feminist Reflections on the History of Mental Retardation.” Hypatia 16(4): 124–146. doi:10.1111/j.1527-2001.2001.tb00756.x
   Google Scholar
• Carlson, L. 2005. “Docile Bodies, Docile Minds: Foucauldian Reflections on Mental Retardation. In Foucault and the Government of Disability, edited by S. Tremain, 133–152. Ann Arbor: University of Michigan Press.
   Google Scholar
• Carlson, L. 2010. The Faces of Intellectual Disability: Philosophical Reflections. Bloomington, IN: Indiana University Press.
   Google Scholar
• Chapman, R., S. Ledger, L. Townson, and D. Docherty. 2015. Sexuality and Relationships in the Lives of People with Intellectual Disabilities: Standing in My Shoes. London: Jessica Kingsley.
   Google Scholar
• Clements, J., I. Clare, and L. A. Ezelle. 1995. “Real Men, Real Women, Real Lives? Gender Issues in Learning Disabilities and Challenging Behaviour.” Disability & Society 10(4): 425–435. doi:10.1080/09687599550023435
   Web of Science ®Google Scholar
• Cocks, E., and D. Stehlik. 1996. “History of Services.” In Disability: A Guide for Health Professionals, edited by J. Annison, J. Jenkinson, W. Sparrow, and E. Bethicine, 8–33. Victoria, BC: Nelson ITP.
   Google Scholar
• Conder, J. 2014. “The Body Image of Women with Intellectual Disability.” Unpublished doctoral diss., University of Otago, New Zealand.
   Google Scholar
• Conder, J., B. F. Mirfin-Veitch, and S. Gates. 2015. “Risk and Resilience Factors in the Mental Health and Well-Being of Women with Intellectual Disability.” Journal of Applied Research in Intellectual Disabilities 28(6): 572–583. doi:10.1111/jar.12153
   PubMed Web of Science ®Google Scholar
• Didi, A., K. Soldatic, C. Frohmader, and L. Dowse. 2016. “Violence against Women with Disabilities: Is Australia Meeting Its Human Rights Obligations?” Australian Journal of Human Rights 22(1): 159–177. doi:10.1080/1323-238X.2016.11882162
   Google Scholar
• Ditchman, N., A. B. Easton, E. Batchos, S. Rafajko, and N. Shah. 2017. “The Impact of Culture on Attitudes toward the Sexuality of People with Intellectual Disabilities.” Sexuality and Disability 35(2): 245–260. doi:10.1007/s11195-017-9484-x
   Web of Science ®Google Scholar
• Foucault, M. 1980. Power/Knowledge: Selected Interviews and Other Writings 1972-77. New York: Harvester Press.
   Google Scholar
• Foucault, M. 1998. The History of Sexuality: An Introduction. Vol. 1. Melbourne, Australia: Penguin Group.
   Google Scholar
• Frawley, P., S. Dyson, S. Robinson, and J. Dixon. 2015. What Does It Take? Developing Informed and Effective Tertiary Responses to Violence and Abuse of Women and Girls with Disabilities in Australia: State of Knowledge Report. Sydney, NSW: ANROWS. http://www.anrows.org.au/publications/landscapes/what-does-it-take-developing-informed-and-effective-tertiary-responses
   Google Scholar
• Frederick, A. 2017. “Risky Mothers and the Normalcy Project: Women with Disabilities Negotiate Scientific Motherhood.” Gender & Society 31(1): 74–95. doi:10.1177/0891243216683914
   Web of Science ®Google Scholar
• Frohmader, C. 2014. Gender Blind, Gender Neutral. Hobart: Women with Disabilities Australia.
   Google Scholar
• Frohmader, C., and H. Meekosha. 2012. “Recognition, Respect and Rights: Women with disabilities in a Globalised World.” In Disability and Social Theory: New Developments and Directions, edited by D. Goodley, B. Hughes, and L. Davis, 287–307. New York: Palgrave Macmillan.
   Google Scholar
• Garland-Thomson, R. 2005. “Feminist Disability Studies.” Signs: Journal of Women in Culture and Society 30(2): 1557–1587. doi: http://dx.doi.org/10.1086/423352
   Web of Science ®Google Scholar
• Gill, M. 2015. Already Doing It: Intellectual Disability and Sexual Agency. Minneapolis: University of Minnesota Press.
   Google Scholar
• Gilmore, L., and L. Malcolm. 2014. “Best for Everyone Concerned” or “Only as a Last Resort”? Views of Australian Doctors about Sterilisation of Men and Women with Intellectual Disability.” Journal of Intellectual & Developmental Disability 39(2): 177–187. doi:10.3109/13668250.2013.877125
   Web of Science ®Google Scholar
• Goodey, C. F. 2011. A History of Intelligence and ‘Intellectual Disability’. The Shaping of Psychology in Early Modern Europe. Famham: Ashgate Publishing.
   Google Scholar
• Goodley, D., and M. Moore. 2000. “Doing Disability Research: Activist Lives and the Academy.” Disability & Society 15(6): 861–882. doi:10.1080/713662013
   Web of Science ®Google Scholar
• Hall, K. 2015. “New Conversations in Feminist Disability Studies: Feminism, Philosophy, and Borders.” Hypatia 30(1): 1–12. doi:10.1111/hypa.12136
   Web of Science ®Google Scholar
• Hollomotz, A. 2011. Learning Difficulties and Sexual Vulnerability: A Social Approach. London: Jessica Kingsley.
   Google Scholar
• Johnson, K. 1998. Deinstitutionalising Women: An Ethnographic Study of Institutional Closure. Cambridge: Cambridge University Press.
   Google Scholar
• Jones, T. 2009. “The Queer Joys of Sexless Marriage: Coupled Citizenship’s Hot Bed!” Sextures 1(1): 1–25.
   Google Scholar
• Kittay, E. F. 2005. “At the Margins of Moral Personhood.” Ethics 116(1): 100–131.
   PubMed Web of Science ®Google Scholar
• Lenhart, A., K. Purcell, A. Smith, and K. Zickuhr. 2010. Social Media & Mobile Internet Use among Teens and Young Adults. Washington, DC: Pew Internet and American Life Project.
   Google Scholar
• Löfgren-Mårtenson, L., Molin, M., & Sorbring, E. (2018). H@ssles and Hopes on the Internet: What Professionals have encounter in Dealing with Internet Use and Sexuality among Youths with Intellectual Disabilities. International Papers of Social Pedagogy 8(1): 66–82.
   Google Scholar
• Mayes, R., G. Llewellyn, and D. McConnell. 2011. ““That’s Who I Choose to Be”: The Mother Identity for Women with Intellectual Disabilities.” Women’s Studies International Forum 34(2): 112–120. doi:10.1016/j.wsif.2010.11.001
   Web of Science ®Google Scholar
• McCarthy, M. 2014. “Women with Intellectual Disability: Their Sexual Lives in the 21st Century.” Journal of Intellectual & Developmental Disability 39(2): 124–131. doi:10.3109/13668250.2014.894963
   Web of Science ®Google Scholar
• McConnell, D., M. Feldman, and M. Aunos. 2017. “Parents and Parenting with Intellectual Disabilities: An Expanding Field of Research.” Journal of Applied Research in Intellectual Disabilities 30(3): 419–422. doi:10.1111/jar.12362
   PubMed Web of Science ®Google Scholar
• McGarry, A., B. Stenfert Kroese, and R. Cox. 2015. “How Do Women with an Intellectual Disability Experience the Support of a Doula during Their Pregnancy, Childbirth and after the Birth of Their Child?” Journal of Applied Research in Intellectual Disabilities 29(1): 21–33. doi:10.1111/jar.12155
   PubMed Web of Science ®Google Scholar
• Merrells, J., A. Buchanan, and R. Waters. 2019. ““We Feel Left out”: Experiences of Social Inclusion from the Perspective of Young Adults with Intellectual Disability.” Journal of Intellectual & Developmental Disability 44(1): 13–22. doi:10.3109/13668250.2017.1310822
   Web of Science ®Google Scholar
• Mitra, M. 2017. “Postpartum Health of Women with Intellectual and Developmental Disabilities: A Call to Action.” Journal of Women’s Health 26(4): 303–304.
   PubMed Web of Science ®Google Scholar
• Noonan, A., and M. Taylor Gomez. 2010. “Who’s Missing? Awareness of Lesbian, Gay, Bisexual and Transgender People with Intellectual Disability.” Sexuality and Disability 29(2): 175–180. doi:10.1007/s11195-010-9175-3
   Web of Science ®Google Scholar
• O’Shea, A. 2016. “‘Just a Rare Girl’: Gender and Disability in Life Stories Produced with Young Women with Disabilities.” PhD, La Trobe University.
   Google Scholar
• Parkes, G., and I. Hall. 2006. “Gender Dysphoria and Cross-Dressing in People with Intellectual Disability: A Literature Review.” Mental Retardation 44(4): 260–271. doi:10.1352/0047-6765(2006)44[260:GDACIP]2.0.CO;2.
   PubMedGoogle Scholar
• Pebdani, R. N. 2016. “Attitudes of Group Home Employees towards the Sexuality of Individuals with Intellectual Disabilities.” Sexuality and Disability 34(3): 329–339. doi:10.1007/s11195-016-9447-7
   Web of Science ®Google Scholar
• Ramasamy, V., F. Rillotta, and J. Alexander. 2017. “Experiences of Adults with Intellectual Disability Who Identify as Lesbian, Gay, Bisexual, Transgender, Queer or Questioning, Intersex or Asexual: A Systematic Review Protocol.” JBI Database of Systematic Reviews and Implementation Reports 15(9): 2234–2241. doi:10.11124/jbisrir-2016-003339
   PubMedGoogle Scholar
• Richardson, S. L., and Z. Stoneman. 2019. “It Takes a Sister: Sisterhood and Black Womanhood in Families of People with Intellectual and Developmental Disabilities.” Disability & Society 34(4): 607–628. doi:10.1080/09687599.2018.1555451
   Web of Science ®Google Scholar
• Rogers, C. 2009. “(S)Excerpts from a Life Told: Sex, Gender and Learning Disability.” Sexualities 12(3): 270–88. doi:10.1177/1363460709103891
   Web of Science ®Google Scholar
• Runswick-Cole, K., and K. Liddiard. 2016. “The DisHuman Child AU–Goodley, Dan.” Discourse: Studies in the Cultural Politics of Education 37(5): 770–784. doi:10.1080/01596306.2015.1075731
   Web of Science ®Google Scholar
• Rushbrooke, E., C. Murray, and S. Townsend. 2014. “The Experiences of Intimate Relationships by People with Intellectual Disabilities: A Qualitative Study.” Journal of Applied Research in Intellectual Disabilities 27(6): 531–541. doi:10.1111/jar.12091
   PubMed Web of Science ®Google Scholar
• Singer, P. 2009. “Speciesism and Moral Status.” Metaphilosophy 40(3-4): 567–581. doi:10.1111/j.1467-9973.2009.01608.x
   Web of Science ®Google Scholar
• Stoffelen, J., D. Schaafsma, G. Kok, and L. Curfs. 2018. “Views on Sex Using the Nominal Group Technique to Explore Sexuality and Physical Intimacy in Individuals with Intellectual Disabilities.” Sexuality and Disability 37(2): 227–244. doi:10.1007/s11195-018-9550-z
   Web of Science ®Google Scholar
• Strnadová, I., T. M. Cumming, M. Knox, T. R. Parmenter, and H. M. Lee. 2015. “Perspectives on Life, Wellbeing, and Ageing by Older Women with Intellectual Disability.” Journal of Intellectual and Developmental Disability 40(3): 275–285. doi:10.3109/13668250.2015.1043873
   Web of Science ®Google Scholar
• Taylor, A. 2015. “The Discourse of Pathology: Reproducing the Able Mind through Bodies of Color.” Hypatia 30(1): 181–198. doi:10.1111/hypa.12123
   Web of Science ®Google Scholar
• Tepper, M. S. 2000. “Sexuality and Disability: The Missing Discourse of Pleasure.” Sexuality and Disability 18(4): 283–290. doi:10.1023/A:1005698311392
   Web of Science ®Google Scholar
• Thomas, C. 2006. “Disability and Gender: Reflections on Theory and Research.” Scandinavian Journal of Disability Research 8(2-3): 177–185. doi:10.1080/15017410600731368
   Google Scholar
• Thompson, D., K. Fisher, C. Purcal, C. Deeming, and P. Sawrikar. 2012. Community Attitudes to People with Disability. Scoping Project Working Papers Series. Sydney: Social Policy Research Centre, Disability Studies and Research Centre, University of New South Wales.
   Google Scholar
• Traustadóttir, R., and K. Johnson. 2000. Women with Intellectual Disabilities: Finding a Place in the World. London: Jessica Kingsley.
   Google Scholar
• Traustadóttir, R., and H. B. Sigurjónsdóttir. 2008. “The ‘Mother’ behind the Mother: Three Generations of Mothers with Intellectual Disabilities and Their Family Support Networks.” Journal of Applied Research in Intellectual Disabilities 21(4): 331–340. doi:10.1111/j.1468-3148.2008.00450.x
   Web of Science ®Google Scholar
• Tremain, S. 2002. “On the Subject of Impairment.” In Disability/Postmodernity: Embodying Disability Theory, edited by M. Corker and T. Shakespeare, 32–47. London: Continuum.
   Google Scholar
• Triska, A. M. 2018. Sexuality and Intellectual Disabilities: A Guide for Professionals. New York: Routledge.
   Google Scholar
• Truesdale-Kennedy, M., L. Taggart, and S. McIlfatrick. 2011. “Breast Cancer Knowledge among Women with Intellectual Disabilities and Their Experiences of Receiving Breast Mammography.” Journal of Advanced Nursing 67(6): 1294–1304. doi:10.1111/j.1365-2648.2010.05595.x
   PubMed Web of Science ®Google Scholar
• Vehmas, S. 2019. “Persons with Profound Intellectual Disability and Their Right to Sex.” Disability & Society 34(4): 519–539. doi:10.1080/09687599.2018.1545110
   Web of Science ®Google Scholar
• Voronka, J. 2019. “The Mental Health Peer Worker as Informant: Performing Authenticity and the Paradoxes of Passing.” Disability & Society 34(4): 564–582.
   Web of Science ®Google Scholar
• Walmsley, J., and J. Downer. 1997. “Shouting the Loudest: Self Advocacy, Power and Diversity.” In Empowerment in Everyday Life, edited by P. Ramcharan, G. Roberts, G. Grant, and J. Borland, 35–47. London: Jessica Kingsley.
   Google Scholar
• Walmsley, J., and K. Johnson. 2003. Inclusive Research with People with Learning Difficulties: Past, Present and Future. London: Jessica Kingsley.
   Google Scholar
• Welsby, J., and D. Horsfall. 2011. “Everyday Practices of Exclusion/Inclusion: Women Who Have an Intellectual Disability Speaking for Themselves?” Disability & Society 26(7): 795–807. doi:10.1080/09687599.2011.618731
   Web of Science ®Google Scholar
• Williams, F. 1992. “Women with Learning Difficulties Are Women Too.” In Women, Oppression and Social Work (pp. 149–168). edited by M. Langan and L. Day. London: Routledge.
   Google Scholar
• Wilson, N., and P. Frawley. 2016. “Transition Staff Discuss Sex Education and Support for Young Men and Women with Intellectual and Developmental Disability.” Journal of Intellectual & Developmental Disability 41(3): 209–221. doi:10.3109/13668250.2016.1162771
   Web of Science ®Google Scholar
• Wolfensberger, W. 1972. The Principle of Normalisation in Human Services. Toronto: National Institute on Mental Retardation.
   Google Scholar
• Wolfensberger, W. 1983. “Social Role Valorization: A Proposed New Term for the Principle of Normalization.” Mental Retardation 21(6): 234–239.
   PubMedGoogle Scholar
• Women with Disabilities Australia. 2015. “Response to the National Disability Insurance Scheme (NDIS) Framework for Information, Linkages and Capacity Building Consultation Paper.” http://wwda.org.au/papers/subs/subs2011/ Accessed12 December 2018.
   Google Scholar
• Wong, S. 2002. “At Home with Down Syndrome and Gender.” Hypatia 17(3): 89–117. doi:10.1111/j.1527-2001.2002.tb00943.x
   PubMedGoogle Scholar
• Xu, X., S. W. McDermott, J. R. Mann, J. W. Hardin, C. B. Deroche, D. D. Carroll, and E. A. Courtney-Long. 2017. “A Longitudinal Assessment of Adherence to Breast and Cervical Cancer Screening Recommendations among Women with and without Intellectual Disability.” Preventive Medicine 100: 167–172. doi:10.1016/j.ypmed.2017.04.034
   PubMed Web of Science ®Google Scholar