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Original Articles

‘Sometimes labels need to exist’: exploring how young adults with Asperger’s syndrome perceive its removal from the Diagnostic and Statistical Manual of Mental Disorders fifth edition

, ORCID Icon, &
Pages 589-608 | Received 24 Jul 2018, Accepted 25 Jul 2019, Published online: 14 Aug 2019

References

  • American Psychiatric Association. 1994. Diagnostic and Statistical Manual of Mental Disorders. 4th ed. Washington, DC: Author.
  • American Psychiatric Association. 2013. Diagnostic and Statistical Manual of Mental Disorders. 5th ed. Washington DC: Author.
  • Baines, A. D. 2012. “Positioning, Strategizing, and Charming: How Students with Autism Construct Identities in Relation to Disability.” Disability & Society 27(4): 547–561. doi:10.1080/09687599.2012.662825.
  • Benford, P., and P. Standen. 2009. “The Internet: A Comfortable Communication Medium for People with Asperger Syndrome (as) and High Functioning Autism (HFA)?” Journal of Assistive Technologies 3(2): 44–53. doi:10.1108/17549450200900015.
  • Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 4(2): 77–101. doi:10.1191/1478088706qp063oa.
  • Brosnan, M., and E. Mills. 2016. “The Effect of Diagnostic Labels on the Affective Responses of College Students towards Peers with ‘Asperger’s Syndrome’ and ‘Autism Spectrum Disorder.” Autism 20(4): 388–394. doi:10.1177/1362361315586721.
  • Calzada, L. R., N. Pistrang, and W. P. Mandy. 2012. “High-Functioning Autism and Asperger’s Disorder: Utility and Meaning for Families.” Journal of Autism and Developmental Disorders 42(2): 230–243. doi:10.1007/s10803-011-1238-5.
  • Davidson, J., and V. L. Henderson. 2010. “Coming Out’ on the Spectrum: Autism, Identity and Disclosure.” Social & Cultural Geography 11(2): 155–170. doi:10.1080/14649360903525240.
  • Giles, D. C. 2013. “DSM-V Is Taking Away Our Identity’: The Reaction of the Online Community to the Proposed Changes in the Diagnosis of Asperger’s Disorder.” Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 18(2): 179–195. doi:10.1177/1363459313488006.
  • Gillman, M., B. Heyman, and J. Swain. 2000. “What’s in a Name? The Implications of Diagnosis for People with Learning Difficulties and Their Family Carers.” Disability & Society 15(3): 389–409. doi:10.1080/713661959.
  • Hazen, E. P., C. J. McDougle, and F. R. Volkmar. 2013. “Changes in the Diagnostic Criteria for Autism in DSM-5: Controversies and Concerns.” The Journal of Clinical Psychiatry 74(07): 739–740. doi:10.4088/JCP.13ac08550.
  • Hurlburt, K., and L. Chalmers. 2002. “Adults with Autism Speak out: Perceptions of Their Life Experiences.” Focus on Autism and Other Developmental Disabilities 17: 103–111. doi:10.1177/10883576020170020501.
  • Kenny L., C. Hattersley, B. Molins, C. Buckley, C. Povey, and E. Pellicano. 2016. “Which Terms Should Be Used to Describe Autism? Perspectives from the UK Autism Community.” Autism 20: 442–462.
  • Kite, D. M., J. Gullifer, and G. A. Tyson. 2013. “Views on the Diagnostic Labels of Autism and Asperger’s Disorder and the Proposed Changes in the DSM.” Journal of Autism and Developmental Disorders 43(7): 1692–1700. doi:10.1007/s10803-012-1718-2.
  • Kvale, S., and S. Brinkmann. 2009. Interviews: Learning the Craft of Qualitative Interviewing. London: Sage.
  • Linhorst, D. M. 2002. “A Review of the Use and Potential of Focus Groups in Social Work Research.” Qualitative Social Work: Research and Practice 1(2): 208–228. doi:10.1177/1473325002001002620.
  • McPartland, J. C., B. Reichow, and F. R. Volkmar. 2012. “Sensitivity and Specificity of Proposed DSM-5 Diagnostic Criteria for Autism Spectrum Disorder.” Journal of the American Academy of Child & Adolescent Psychiatry 51(4): 368–383. doi:10.1016/j.jaac.2012.01.007.
  • O’Dell, L., H. Bertilsdotter Rosqvist, F. Ortega, C. Brownlow, and M. Orsini. 2016. “Critical Autism Studies: Exploring Epistemic Dialogues and Intersections, Challenging Dominant Understandings of Autism.” Disability & Society 31(2): 166–179.
  • Ohan, J. L., S. E. Ellefson, and P. W. Corrigan. 2015. “Brief Report: The Impact of Changing from DSM-IV ‘Asperger’s’ to DSM-5 ‘Autistic Spectrum Disorder’ Diagnostic Labels on Stigma and Treatment Attitudes.” Journal of Autism and Developmental Disorders 45(10): 3384–3389. doi:10.1007/s10803-015-2485-7.
  • Ritvo, E. R. 2012. “Postponing the Proposed Changes in DSM 5 for Autistic Spectrum Disorder until New Scientific Evidence Adequately Supports Them.” Journal of Autism and Developmental Disorders 42(9): 2021–2022. doi:10.1007/s10803-012-1613-x.
  • Rogers, C. L., L. Goddard, E. L. Hill, L. A. Henry, and L. Crane. 2016. “Experiences of Diagnosing Autism Spectrum Disorder: A Survey of Professionals in the United Kingdom.” Autism 20(7): 820–831. doi:10.1177/1362361315611109.
  • Ruddle, A., O. Mason, and T. Wykes. 2011. “A Review of Hearing Voices Groups: Evidence and Mechanisms of Change.” Clinical Psychology Review 31(5): 757–766. doi:10.1016/j.cpr.2011.03.010.
  • San Lio, F., M. B. Petrosino, and E. Aguglia. 2014. “EPA-1755–High-Functioning Autism and Asperger’s Syndrome in Adults: Still an Open Question in DSM-5.” European Psychiatry 29: 1. doi:10.1016/S0924-9338(14)78885-6.
  • Singh, J. S. 2011. “The Vanishing Diagnosis of Asperger’s Disorder.” In Sociology of Diagnosis. Vol. 12 of Advances in Medical Sociology. edited by P. J. McGann and D. J. Hutson, 237–259. Bingley: Emerald Group Publishing Limited.
  • Smith Myles, B., and R. L. Simpson. 2002. “Asperger Syndrome: An Overview of Characteristics.” Focus on Autism and Other Developmental Disabilities 17(3): 132–137. doi:10.1177/10883576020170030201.
  • Spillers, J. L., L. M. Sensui, and K. F. Linton. 2014. “Concerns about Identity and Services among People with Autism and Asperger’s regarding DSM–5 Changes.” Journal of Social Work in Disability & Rehabilitation 13(3): 247–260. doi:10.1080/1536710X.2014.912186.
  • Thornicroft, G., N. Mehta, S. Clement, S. Evans-Lacko, M. Doherty, D. Rose, M. Koschorke, et al. 2016. “Evidence for Effective Interventions to Reduce Mental-Health-Related Stigma and Discrimination.” The Lancet 387(10023): 1123–1132. doi:10.1016/S0140-6736(15)00298-6.
  • Timimi, S. 2013. “No More Psychiatric Labels: Campaign to Abolish Psychiatric Diagnostic Systems Such as ICD and DSM (CAPSID).” Self & Society 40(4): 6–14. doi:10.1080/03060497.2013.11084297.
  • Tsai, L. Y. 2013. “Asperger’s Disorder Will Be Back.” Journal of Autism and Developmental Disorders 43(12): 2914–2942.
  • Volkmar, F R., A. Klin, B. Siegel, P. Szatmari, C. Lord, M. Campbell, B. J. Freeman, et al. 1994. “Field Trial for Autistic Disorder in DSM-IV.” The American Journal of Psychiatry 151(9): 1361–1367.
  • Woods, R. 2017. “Exploring How the Social Model of Disability Can Be Re-Invigorated for Autism: In Response to Jonathan Levitt.” Disability and Society 32(7): 1090–1095. doi:10.1080/09687599.2017.1328157.

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