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Disability & Society Volume 35, 2020 - Issue 7
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Who gets to study whom: survivor research and peer review processes

Angela SweeneyPopulation Health Research Institute, St George’s, University of London, London, UK; Correspondence[email protected]
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Peter BeresfordProfessor of Citizen Participation, University of Essex, Colchester, UK; ;Social Policy, Brunel University, London, UKView further author information
Pages 1189-1194 | Received 19 Jul 2019, Accepted 16 Aug 2019, Published online: 30 Sep 2019

References

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  • Beresford, P. 2003. It's Our Lives: A Short Theory of Knowledge, Distance and Experience. London: OSP for Citizens Press in Association with Shaping Our Lives.
  • Building User Survivor Research Capacity Leadership 2018. Open Letter to Lancet Psychiatry. Available from: https://usersurvivorresearch.wordpress.com/2018/12/06/open-letter-to-lancet-psychiatry/ Accessed April 2019.
  • Carr, S. 2019. “I Am Not Your Nutter’: A Personal Reflection on Commodification and Comradeship in Service User and Survivor Research.” Disability & Society 1–14. doi:10.1080/09687599.2019.1608424.
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  • Faulkner, A. 2004. The Ethics of Survivor Research: Guidelines for the Ethical Conduct of Research Carried out by Mental Health Service Users and Survivors. Bristol: The policy press on Behalf of the Joseph Rowntree Foundation.
  • King, C. 2016. “Whiteness in Psychiatry: The Madness of European Misdiagnoses.” In Chapter 8 in Searching for a Rose Garden: Challenging Psychiatry, Fostering Mad Studies, edited by J Russo and A Sweeney. Monmouth: PCCS Books.
  • Liegghio, M. 2013. “A Denial of Being: Psychiatrization as Epistemic Violence.” In Mad matters: A Critical Reader in Canadian Mad Studies, edited by B. A. LeFrançois, R. Menzies, and G. Reaume, 122–9. Toronto, ON: Canadian Scholars’ Press.
  • Oliver, M. 1992. “Changing the Social Relations of Research Production.” Disability, Handicap and Society 7 (2): 101–15. doi:10.1080/02674649266780141.
  • Ormerod, E., P. Beresford, S. Carr., et al. 2018. Manifesto of the Survivor Researcher Network: Mental Health Knowledge Built by Service Users and Survivors. London: NSUN.
  • Prior, L. 2003. “Belief, Knowledge and Expertise: The Emergence of the Lay Expert in Medical Sociology.” Sociology of Health & Illness 25:41–57. doi:10.1111/1467-9566.00339.
  • Rose, D. 2003. “Having a Diagnosis is a Qualification for the Job.” BMJ (Clinical Research ed.) 326 (7402):1331doi:10.1136/bmj.326.7402.1331.
  • Rose, D. 2009. “Collaboration.” In Chapter 12 in Handbook of Service User Involvement in Mental Health Research, edited by J Wallcraft, B Schrank and M Amering, 169–80. Oxford, Hoboken, NJ: Wiley.
  • Russo, J. 2012. “Survivor-Controlled Research: A New Foundation for Thinking about Psychiatry and Mental Health.” Forum: Qualitative Social Research, 13 (1) Art 8.
  • Russo, J., and P. Beresford. 2015. “Between Exclusion and Colonisation: Seeking a Place for Mad People’s Knowledge in Academia.” Disability & Society 30 (1):153–7. doi:10.1080/09687599.2014.957925.
  • Sweeney, A. 2016. “Why Mad Studies Needs Survivor Research and Survivor Research Needs Mad Studies.” Intersectionalities 5 (3): 36–61.
  • Tyrer, P. 2002. Commentary: research into mental health services needs a new approach. Psychiatric Bulletin 26: 406–407.

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