Inclusive (social) citizenship and persons with dementia

References

• Alper, Meryl. 2018. “Inclusive Sensory Ethnography: Studying New Media and Neurodiversity in Everyday Life.” New Media & Society 20 (10): 3560–3579. doi:10.1177/1461444818755394
   Web of Science ®Google Scholar
• Antelius, E. 2017. “Dementia in the Age of Migration: Cross Cultural Perspectives.” In Living with Dementia: Relations, Responses and Agency in Everyday Life. London: Palgrave Macmillan.
   Google Scholar
• Asplund, Kjell, Sari Wallin, and Fredrik Jonsson. 2012. “Use of Public Transport by Stroke Survivors with Persistent Disability.” Scandinavian Journal of Disability Research 14 (4): 289–299. doi:10.1080/15017419.2011.640408.
   Google Scholar
• Baldwin, Clive. 2008. “Narrative(,) Citizenship and Dementia: The Personal and the Political.” Journal of Aging Studies 22 (3): 222–228. doi:10.1016/j.jaging.2007.04.002.
   Web of Science ®Google Scholar
• Bailey, C., Clarke C. L., Gibb C., Haining S., Wilkinson H., and S. Tiplady. 2013. “Risky and resilient life with dementia: review of and reflections on the literature.” Health, Risk & Society 15 (5): 390–401. doi:10.1080/13698575.2013.82146.
   Web of Science ®Google Scholar
• Bantry White, Eleanor, and Paul Montgomery. 2015. “Dementia, Walking Outdoors and Getting Lost: Incidence, Risk Factors and Consequences from Dementia-Related Police Missing-Person Reports.” Aging & Mental Health 19 (3): 224–230. doi:10.1080/13607863.2014.924091.
   PubMed Web of Science ®Google Scholar
• Bartlett, R. 2016. “Scanning the Conceptual Horizons of Citizenship.” Dementia (London, England) 15 (3): 453–461. doi:10.1177/1471301216644114.
   PubMedGoogle Scholar
• Bartlett, R., and T. Brannelly. 2019. Life at Home for People with a Dementia. London. Routledge.
   Google Scholar
• Beard, Renée L. 2016. Living with Alzheimer’s: Managing Memory Loss, Identity and Illness. New York: New York University Press.
   Google Scholar
• Beard, Renée L., Jenny Knauss, and Don Moyer. 2009. “Managing Disability and Enjoying Life: How We Reframe Dementia through Personal Narratives.” Journal of Aging Studies 23 (4): 227–235. doi:10.1016/j.jaging.2008.01.002.
   Web of Science ®Google Scholar
• Beckett, Angharad E. 2005. “Reconsidering Citizenship in the Light of the Concerns of the UK Disability Movement.” Citizenship Studies 9 (4): 405–421. doi:10.1080/13621020500211412.
   Google Scholar
• Behuniak, Susan M. 2010. “Toward a Political Model of Dementia: Power as Compassionate Care.” Journal of Aging Studies 24 (4): 231–240. doi:10.1016/j.jaging.2010.05.003.
   Web of Science ®Google Scholar
• Bhatt, Jem, Asst Adelina Comas-Herrera, Francesco D. Amico, Nicolas Farina, Sophie Gaber, Prof Martin Knapp, Maximilian Salcher-Konrad, et al. 2019. “World Alzheimer Report 2019 Attitudes to Dementia.”
   Google Scholar
• Bjørkløf, Guro Hanevold, Anne Sofie Helvik, Tanja Louise Ibsen, Elisabeth Wiken Telenius, Ellen Karine Grov, and Siren Eriksen. 2019. “Balancing the Struggle to Live with Dementia: A Systematic Meta-Synthesis of Coping.” BMC Geriatrics 19 (1): 295. doi:10.1186/s12877-019-1306-9.
   PubMed Web of Science ®Google Scholar
• Boyle, Geraldine. 2008. “The Mental Capacity Act 2005: Promoting the Citizenship of People with Dementia?” Correspondence 16: 529–537. doi:10.1111/j.1365-2524.2007.00775.x.
   Google Scholar
• Boyle, Geraldine. 2014. “Recognising the Agency of People with Dementia.” Disability & Society 29 (7): 1130–1144. doi:10.1080/09687599.2014.910108.
   Web of Science ®Google Scholar
• Brittain, Katherine, Lynne Corner, Louise Robinson, and John Bond. 2010. “Ageing in Place and Technologies of Place: The Lived Experience of People with Dementia in Changing Social, Physical and Technological Environments.” Sociology of Health & Illness 32 (2): 272–287. doi:10.1111/j.1467-9566.2009.01203.x.
   PubMed Web of Science ®Google Scholar
• Brorsson, Anna, Annika Öhman, Malcolm Cutchin, Louise Nygård, Anna Brorsson, Annika Öhman, Malcolm Cutchin, and Louise Nygård. 2013. “Managing Critical Incidents in Grocery Shopping by Community-Living People with Alzheimer’s disease.” Scandinavian Journal of Occupational Therapy 20 (4): 292–301. doi:10.3109/11038128.2012.752031.
   PubMed Web of Science ®Google Scholar
• Brorsson, Anna, Annika Öhman, Stefan Lundberg, and Louise Nygård. 2011. “Accessibility in Public Space as Perceived by People with Alzheimer’s Disease.” Dementia 10 (4): 587–602. doi:10.1177/1471301211415314.
   Google Scholar
• Brown, Rebecca T., Cyrus Ahalt, Michael A. Steinman, Kelly Kruger, and Brie A. Williams. 2014. “Police on the Front Line of Community Geriatric Health Care: Challenges and Opportunities.” Journal of the American Geriatrics Society 62 (11): 2191–2198. doi:10.1111/jgs.13093.
   PubMed Web of Science ®Google Scholar
• Cahill, C. 2018. Dementia and Human Rights. Bristol: Policy Press.
   Google Scholar
• Corazon, Sus Sola, Marie Christoffersen Gramkow, Dorthe Varning Poulsen, Victoria Linn Lygum, Gaochao Zhang, and Ulrika Karlsson Stigsdotter. 2019. “I Would Really like to Visit the Forest, but It is Just Too Difficult: A Qualitative Study on Mobility Disability and Green Spaces.” Scandinavian Journal of Disability Research 20 (1): 1–13. doi:10.16993/sjdr.50.
   Google Scholar
• Doughty, Karolina. 2013. “Walking Together: The Embodied and Mobile Production of a Therapeutic Landscape.” Health & Place 24: 140–146. doi:10.1016/j.healthplace.2013.08.009.
   PubMed Web of Science ®Google Scholar
• Duggan, S., T. Blackman, A. Martyr, and P. Van Schaik. 2008. “The Impact of Early Dementia on Outdoor Life: A ‘Shrinking World?”Dementia 7 (2): 191–204. doi:10.1177/1471301208091158.
   Google Scholar
• Dwyer, P. 2002. “Making Sense of Social Citizenship: Some User Views on Welfare Rights and Responsibilities.” Critical Social Policy 22 (2): 273–299. doi:10.1177/02610183020220020601.
   Google Scholar
• Dwyer, P. 2010. Understanding Social Citizenship: Themes and perspectives for policy and practice. Bristol: Policy Press.
   Google Scholar
• Eriksen, Siren, Anne Sofie Helvik, Lene Kristin Juvet, Kirsti Skovdahl, Linn Hege Førsund, and Ellen Karine Grov. 2016. “The Experience of Relations in Persons with Dementia: A Systematic Meta-Synthesis.” Dementia and Geriatric Cognitive Disorders 42 (5–6): 342–368. doi:10.1159/000452404.
   PubMed Web of Science ®Google Scholar
• Evans, James, and Phil Jones. 2011. “The Walking Interview: Methodology, Mobility and Place.” Applied Geography 31 (2): 849–858. doi:10.1016/j.apgeog.2010.09.005.
   Web of Science ®Google Scholar
• Førsund, Linn Hege, Ellen Karine Grov, Anne Sofie Helvik, Lene Kristine Juvet, Kirsti Skovdahl, and Siren Eriksen. 2018. “The Experience of Lived Space in Persons with Dementia: A Systematic Meta-Synthesis.” BMC Geriatrics 18 (1): 1–27. doi:10.1186/s12877-018-0728-0.
   PubMedGoogle Scholar
• Giarelli, Guido, and Elena Spina. 2014. “Self-Help/Mutual Aid as Active Citizenship Associations: A Case-Study of the Chronically Ill in Italy.” Social Science & Medicine (1982) 123: 242–249. doi:10.1016/j.socscimed.2014.08.034.
   PubMed Web of Science ®Google Scholar
• Gilmour, Jean A., and Tula Brannelly. 2010. “Representations of People with Dementia - Subaltern, Person, Citizen.” Nursing Inquiry 17 (3): 240–247. doi:10.1111/j.1440-1800.2009.00475.x.
   PubMed Web of Science ®Google Scholar
• Goodley, Dan, Rebecca Lawthom, Kirsty Liddiard, Katherine Runswick-Cole, Dan Goodley, Rebecca Lawthom, Kirsty Liddiard, and Katherine Runswick. 2019. “Provocations for Critical Disability Studies.” Disability & Society 34 (6): 972–997. doi:10.1080/09687599.2019.1566889.
   Web of Science ®Google Scholar
• Graham, Ruth. 2004. “Cognitive Citizenship: Access to Hip Surgery for People with Dementia.” Health (London, England: 1997) 8 (3): 295–310. doi:10.1177/1363459304043466.
   PubMed Web of Science ®Google Scholar
• Häkli, Jouni. 2018. “The Subject of Citizenship – Can There Be a Posthuman Civil Society?” Political Geography 67: 166–175. doi:10.1016/j.polgeo.2017.08.006.
   Web of Science ®Google Scholar
• Hamraie, Aimi. 2013. “Designing Collective Access: A Feminist Disability Theory of Universal Design.” Disability Studies Quarterly 33 (4): 13–15. doi:10.18061/dsq.v33i4.3871.
   Google Scholar
• Hicks, B., A. Innes, and S. Nyman. 2019. “Experiences of Rural Life among Community-Dwelling Older Men with Dementia and Their Implications for Social Inclusion.” Dementia: The International Journal of Social Research and Practice. doi:10.1177/1471301219887586.
   Web of Science ®Google Scholar
• Imrie, Rob, and Marion Kumar. 1998. “Focusing on Disability and Access in the Built Environment.” Disability & Society 13 (3): 357–374. doi:10.1080/09687599826687.
   Web of Science ®Google Scholar
• Iwarsson, S., and A. Ståhl. 2003. “Accessibility, Usability and Universal Design—Positioning and Definition of Concepts Describing Person-Environment Relationships.” Disability and Rehabilitation 25 (2): 57–66. doi:10.1080/dre.25.2.57.66.
   PubMed Web of Science ®Google Scholar
• Jenkins, Nicholas. 2017a. “I’d Rather Be a Cyborg than an ‘Individual’ with Dementia.” In Graz 2017 International Conference, Graz, Austria.
   Google Scholar
• Jenkins, Nicholas. 2017b. “No Substitute for Human Touch? Towards a Critically Posthumanist Approach to Dementia Care.” Ageing and Society 37 (7): 1484–1498. doi:10.1017/S0144686X16000453.
   Web of Science ®Google Scholar
• Keady, John, Sarah Campbell, Helen Barnes, Richard Ward, Xia Li, Caroline Swarbrick, Simon Burrow, and Ruth Elvish. 2012. “Neighbourhoods and Dementia in the Health and Social Care Context: A Realist Review of the Literature and Implications for UK Policy Development.” Reviews in Clinical Gerontology 22 (2): 150–163. doi:10.1017/S0959259811000268.
   Google Scholar
• Kerpershoek, Liselot, Marjolein de Vugt, Claire Wolfs, Hannah Jelley, Martin Orrel, Bob Woods, Astrid Stephan, et al. 2016. “Access to Timely Formal Dementia Care in Europe: Protocol of the Actifcare (Access to Timely Formal Care) Study.” BMC Health Services Research 16 (1): 423. doi:10.1186/s12913-016-1672-3.
   PubMed Web of Science ®Google Scholar
• Keyes, Sarah E., Charlotte L. Clarke, Catherine E. Gibb, Sarah E. Keyes, Charlotte L. Clarke, and Catherine E. Gibb. 2019. “Living with Dementia, Interdependence and Citizenship : Narratives of Everyday Decision-Making.” Disability & Society 34 (2): 296–319. doi:10.1080/09687599.2018.1528970.
   Web of Science ®Google Scholar
• Koning, Anouk de, Rivke Jaffe, and Martijn Koster. 2015. “Citizenship Agendas in and beyond the Nation-State: (En)Countering Framings of the Good Citizen.” Citizenship Studies 19 (2): 121–127. doi:10.1080/13621025.2015.1005940.
   Web of Science ®Google Scholar
• Kontos, Pia, Karen Lee Miller, and Alexis P. Kontos. 2017. “Relational Citizenship: Supporting Embodied Selfhood and Relationality in Dementia Care.” Sociology of Health & Illness 39 (2): 182–198. doi:10.1111/1467-9566.12453.
   PubMed Web of Science ®Google Scholar
• Kottorp, A., Nygård L., Hedman A., Öhman A., Malinowsky C., Rosenberg L., and C. Ryd. 2016. “Access to and use of everyday technology among older people: An occupational justice issue – but for whom?.” Journal of Occupational Science 23 (3): 382–388. doi:10.1080/14427591.2016.1151457.
   Web of Science ®Google Scholar
• Kus7enbach, Margarethe. 2003. “Street Phenomenology.” Ethnography 4 (3): 455–485. doi:10.1177/146613810343007.
   Google Scholar
• Lid, Inger Marie. 2015. “Vulnerability and Disability: A Citizenship Perspective.” Disability & Society 30 (10): 1554–1567. doi:10.1080/09687599.2015.1113162.
   Web of Science ®Google Scholar
• Lister, Ruth. 2007. “Inclusive Citizenship: Realizing the Potential1.” Citizenship Studies 11 (1): 49–61. doi:10.1080/13621020601099856.
   Google Scholar
• Moriarty, By Jo, Nadira Sharif, and Julie Robinson. 2011. “Black and Minority Ethnic People with Dementia and Their Access to Support and Services.” Dementia, March.
   Google Scholar
• Nedlund, Ann-Charlotte, and Jonas Nordh. 2015. “Crafting Citizen(Ship) for People with Dementia: How Policy Narratives at National Level in Sweden Informed Politics of Time from 1975 to 2013.” Journal of Aging Studies 34: 123–133. doi:10.1016/j.jaging.2015.06.003.
   PubMed Web of Science ®Google Scholar
• Netz, Sabine, Sarah Lempp, Kristine Krause, and Katharina Schramm. 2019. “Claiming Citizenship Rights through the Body Multiple.” Citizenship Studies 23 (7): 637–651. doi:10.1080/13621025.2019.1651041.
   Web of Science ®Google Scholar
• Nind, Melanie, and Jane Seale. 2009. “Concepts of Access for People with Learning Difficulties: Towards a Shared Understanding.” Disability & Society 24 (3): 273–287. doi:10.1080/09687590902789446.
   Web of Science ®Google Scholar
• Nolan, Mike, Tony Ryan, Pam Enderby, and David Reid. 2002. “Towards a More Inclusive Vision of Dementia Care Practice and Research.” Dementia 1 (2): 193–211. doi:10.1177/147130120200100206.
   Google Scholar
• O’Connor, Deborah, Alison Phinney, and Wendy Hulko. 2010. “Dementia at the Intersections: A Unique Case Study Exploring Social Location.” Journal of Aging Studies 24 (1): 30–39. doi:10.1016/j.jaging.2008.08.001.
   Web of Science ®Google Scholar
• Odzakovic, Elzana, Agneta Kullberg, Ingrid Hellström, Andrew Clark, Sarah Campbell, Kainde Manji, Kirstein Rummery, John Keady, and Richard Ward. 2019. “It’s Our Pleasure, We Count Cars Here’: An Exploration of the ‘Neighbourhood-Based Connections’ for People Living Alone with Dementia.” Ageing and Society :1–26. doi:10.1017/s0144686x19001259.
   PubMed Web of Science ®Google Scholar
• Phinney, Alison, Elizabeth Kelson, Jennifer Baumbusch, Deborah O’Connor, and Barbara Purves. 2016. “Walking in the Neighbourhood: Performing Social Citizenship in Dementia.” Dementia (London, England) 15 (3): 381–394. doi:10.1177/1471301216638180.
   PubMedGoogle Scholar
• Pols, Jeannette. 2016. “Analyzing Social Spaces: Relational Citizenship for Patients Leaving Mental Health Care Institutions.” Medical Anthropology 35 (2): 177–192. doi:10.1080/01459740.2015.1101101.
   Google Scholar
• Ribot, Jesse C., and Nancy Lee Peluso. 2009. “A Theory of Access*.” Rural Sociology 68 (2): 153–181. doi:10.1111/j.1549-0831.2003.tb00133.x.
   Web of Science ®Google Scholar
• Roach, P., and N. Drummond. 2014. “‘It’s Nice to Have Something to Do’: Early-Onset Dementia and Maintaining Purposeful Activity.” Journal of Psychiatric and Mental Health Nursing 21 (10): 889–895. doi:10.1111/jpm.12154.
   PubMed Web of Science ®Google Scholar
• Robinson, L., D. Hutchings, L. Corner, T. Finch, J. Hughes, K. Brittain, and J. Bond. 2007. “Balancing Rights and Risks: Conflicting Perspectives in the Management of Wandering in Dementia.” Health, Risk & Society 9 (4): 389–406. doi:10.1080/13698570701612774.
   Web of Science ®Google Scholar
• Stack, Trevor. 2012. “Beyond the State? Civil Sociality and Other Notions of Citizenship.” Citizenship Studies 16 (7): 871–885. doi:10.1080/13621025.2012.716197.
   Web of Science ®Google Scholar
• Steel, Emily J., and Gunnel Janeslätt. 2017. “Drafting Standards on Cognitive Accessibility: A Global Collaboration.” Disability and Rehabilitation. Assistive Technology 12 (4): 385–389. doi:10.1080/17483107.2016.1176260.
   PubMed Web of Science ®Google Scholar
• Stephan, Astrid, Anja Bieber, Louise Hopper, Rachael Joyce, Kate Irving, Orazio Zanetti, Elisa Portolani, et al. 2018. “Barriers and Facilitators to the Access to and Use of Formal Dementia Care: Findings of a Focus Group Study with People with Dementia, Informal Carers and Health and Social Care Professionals in Eight European Countries.” BMC Geriatrics 18 (1): 1–16. doi:10.1186/s12877-018-0816-1.
   PubMedGoogle Scholar
• Takkac, Mehmet, and Ahmet Selcuk Akdemir. 2012. “Training Future Members of the World with an Understanding of Global Citizenship.” Procedia - Social and Behavioral Sciences 47: 881–885. doi:10.1016/j.sbspro.2012.06.751.
   Google Scholar
• Timmermans, S., and I. Tavory. 2012. “Theory Construction in Qualitative Research: From Grounded Theory to Abductive Analysis.” Sociological Theory 30 (3): 167–186. doi:10.1177/0735275112457914.
   Web of Science ®Google Scholar
• Ursin, G., and A. T. Lotherington. 2018. Citizenship as Distributed Achievement : Shaping New Conditions for an Everyday Life with Dementia. 20: 62–71.
   Google Scholar
• Ward, Richard, Andrew Clark, Sarah Campbell, Barbara Graham, Agneta Kullberg, Kainde Manji, Kirstein Rummery, and John Keady. 2018. “The Lived Neighborhood: Understanding How People with Dementia Engage with Their Local Environment.” International Psychogeriatrics 30 (6): 867–880. doi:10.1017/S1041610217000631.
   PubMed Web of Science ®Google Scholar
• Webb, Joseph. 2017. “Conversation Takes Two : Understanding Interactions with People with Dementia.” Disability & Society 32 (7): 1102–1105. doi:10.1080/09687599.2017.1321225.
   Web of Science ®Google Scholar
• Weston, J. 2002. “Supported Employment and People with Complex Needs.” Journal of Social Work 2 (1): 83–104. doi:10.1177/146801730200200106.
   Google Scholar
• White, Eleanor Bantry, and Paul Montgomery. 2014. “Electronic Tracking for People with Dementia: An Exploratory Study of the Ethical Issues Experienced by Carers in Making Decisions about Usage.” Dementia (London, England) 13 (2): 216–232. doi:10.1177/1471301212460445.
   PubMedGoogle Scholar
• Yalçin-Heckmann, Lale. 2011. “Introduction: Claiming Social Citizenship.” Citizenship Studies 15 (3–4): 433–439. doi:10.1080/13621025.2011.564806.
   Web of Science ®Google Scholar
• Yalon-Chamovitz, Shira, Ruth Shach, Ornit Avidan-Ziv, and Michal Tenne Rinde. 2015. “The Call for Cognitive Ramps.” Work (Reading, MA) 53 (2): 455–456. doi:10.3233/WOR-152244.
   PubMedGoogle Scholar