1,315
Views
3
CrossRef citations to date
0
Altmetric
Articles

Exploring the experiences of independent advocates and parents with intellectual disabilities, following their involvement in child protection proceedings

ORCID Icon &
Pages 1456-1478 | Received 03 Apr 2020, Accepted 24 Jan 2021, Published online: 16 Feb 2021

References

  • Batson, C. D., and L. L. Shaw . 1991. “Evidence for Altruism: Toward a Pluralism of Prosocial Motives.” Psychological Inquiry 2 (2): 107–122. doi:10.1207/s15327965pli0202_1.
  • Bauer, A., G. Wistow, J. Dixon, and M. Knapp. 2014. “Investing in Advocacy for Parents with Learning Disabilities: What is the Economic Argument?” British Journal of Learning Disabilities 43 (1): 66–74.
  • Baum, S., and J. Burns. 2007. “Mothers with Learning Disabilities: Experiences and Meanings of Losing Custody of Their Children.” Tizard Learning Disability Review 12 (3): 3–14. doi:10.1108/13595474200700018.
  • Belsky, J. 1984. “The Determinants of Parenting: A Process Model.” Child Development 55 (1): 83–96. doi:10.2307/1129836.
  • Bernard, S. 2007. “Parents with Learning Disabilities – the Assessment of Parenting Ability.” Advances in Mental Health and Learning Disabilities 1 (3): 14–18. doi:10.1108/17530180200700026.
  • Booth, T., and W. Booth. 2004. Parents with Learning Difficulties: Child Protection and the Courts. A Report to the Nuffield Foundation on Grant No. CPF/00151/G Sheffield University, Department of Sociological Studies. http://www.supportedparenting.com/projects/NuffieldReport.pdf.
  • Booth, T., and W. Booth. 1999. “Parents Together: Action Research and Advocacy Support for Parents with Learning Difficulties.” Health & Social Care in the Community 7 (6): 464–474. doi:10.1046/j.1365-2524.1999.00214.x.
  • Booth, T., and W. Booth. 2000. “Against the Odds: Growing up with Parents Who Have Learning Difficulties.” Mental Retardation 38 (1): 1–14. doi:10.1352/0047-6765(2000)038<0001:ATOGUW>2.0.CO;2.
  • Booth, T., and W. Booth. 2005. “Parents with Learning Difficulties in the Child Protection System: Experiences and Perspectives.” Journal of Intellectual Disabilities: JOID 9 (2): 109–129. doi:10.1177/1744629505053922.
  • Booth, T., W. Booth, and D. McConnell. 2005a. “Care Proceedings and Parents with Learning Difficulties: Comparative Prevalence and Outcomes in an English and Australian Court Sample.” Child & Family Social Work 10 (4): 353–360. doi:10.1111/j.1365-2206.2005.00378.x.
  • Booth, T., W. Booth, and D. McConnell. 2005b. “The Prevalence and Outcomes of Care Proceedings Involving Parents with Learning Difficulties in the Family Courts.” Journal of Applied Research in Intellectual Disabilities 18 (1): 7–17. doi:10.1111/j.1468-3148.2004.00204.x.
  • Burnham, J. 1993. “Systemic supervision: the evolution of reflexivity in the context of the supervisory relationship.” Human System 4 (19): 349–381. doi:10.1111/jar.12296.
  • Callow, E., M. Tahir, and M. Feldman. 2017. “Judicial Reliance on Parental IQ in Appellate-Level Child Welfare Cases Involving Parents with Intellectual and Developmental Disabilities.” Journal of Applied Research in Intellectual Disabilities : JARID 30 (3): 553–562. doi:10.1111/jar.12296.
  • Chapman, M., S. Bannister, J. Davies, S. Fleming, C. Graham, A. Mcmaster, A. Seddon, A. Wheldon, and B. Whittell. 2012. “Speaking up about Advocacy: Findings from a Partnership Research Project.” British Journal of Learning Disabilities 40 (1): 71–80. doi:10.1111/j.1468-3156.2011.00688.x.
  • Cheng, B. H., and J. M. McCarthy . 2013. “Managing Work, Family, and School Roles: Disengagement Strategies Can Help and Hinder.” Journal of Occupational Health Psychology 18 (3): 241–251. doi:10.1037/a0032507.
  • Cohen, S., and T. A. Wills. 1985. “Stress, Social Support, and the Buffering Hypothesis.” Psychological Bulletin 98 (2): 310–357. doi:10.1037/0033-2909.98.2.310.
  • Collings, S., and G. Llewellyn. 2012. “Children of Parents with Intellectual Disability: Facing Poor Outcomes or Faring Okay?” Journal of Intellectual & Developmental Disability 37 (1): 65–82. doi:10.3109/13668250.2011.648610.
  • Collins, M. E., K. Cooney, and S. Garlington. 2012. “Compassion in Contemporary Social Policy: Applications of Virtue Theory.” Journal of Social Policy 41 (2): 251–269. doi:10.1017/S004727941100078X.
  • Cox, R., B. Stenfert Kroese, and R. Evans . 2015. “Solicitors’ Experiences of Representing Parents with Intellectual Disabilities in Care Proceedings: Attitudes, Influence and Legal Processes.” Disability & Society 30 (2): 284–298. doi:10.1080/09687599.2015.1005730.
  • Department for Education and Skills and Department of Health. 2007. Good Practice Guidance on Working with Parents with a Learning Disability. London: The Stationary Office.
  • Department of Health Home Office and Department for Education and Employment. 2006. Working Together to Safeguard Children: A Guide to Inter-Agency Working to Safeguard and Promote the Welfare of Children. London: The Stationary Office.
  • English, S. 2010. “The Importance of Specialist Advocacy Services for Parents with Learning Disabilities.” Learning Disability Practice 13 (1): 25–27. doi:10.7748/ldp2010.02.13.1.25.c7542.
  • Featherstone, B., C. Fraser, C. Ashley, and P. Ledward. 2011. “Advocacy for Parents and Carers Involved with Children’s Services: Making a Difference to Working in Partnership?” Child & Family Social Work 16 (3): 266–275.
  • Feldman, M. A., and M. Aunos. 2011. Comprehensive, Competence-Based Parenting Assessment for Parents with Learning Difficulties and Their Children. Kingston, New York: NADD Press.
  • Feldman, M. A., J. Varghese, J. Ramsay, and D. Rajska. 2002. “Relationships between Social Support, Stress and Mother-Child Interactions in Mothers with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 15 (4): 314–323. doi:10.1046/j.1468-3148.2002.00132.x.
  • Fernandez, S., and T. Moldogaziev. 2015. “Employee Empowerment and Job Satisfaction in the US Federal Bureaucracy: A Self-Determination Theory Perspective.” The American Review of Public Administration 45 (4): 375–401. doi:10.1177/0275074013507478.
  • Forrester, D., S. Kershaw, H. Moss, and L. Hughes. 2008. “Communication Skills in Child Protection: How Do Social Workers Talk to Parents?” Child & Family Social Work 13: 41–51.
  • Granqvist, P., T. Forslund, M. Fransson, L. Springer, and L. Lindberg. 2014. “Mothers with Intellectual Disability, Their Experiences of Maltreatment, and Their Children’s Attachment Representations: A Small-Group Matched Comparison Study.” Attachment & Human Development 16 (5): 417–436. doi:10.1080/14616734.2014.926946.
  • Howe, D. 2006. “Disabled Children, Maltreatment and Attachment.” British Journal of Social Work 36 (5): 743–760. doi:10.1093/bjsw/bch419.
  • Human Rights Act. 1998. Her Majesty’s Stationery Office.
  • Jones, L., M. A. Bellis, S. Wood, K. Hughes, E. McCoy, L. Eckley, G. Bates, C. Mikton, T. Shakespeare, and A. Officer. 2012. “Prevalence and Risk of Violence against Children with Disabilities: A Systematic Review and Meta-Analysis of Observational Studies.” The Lancet 380 (9845): 899–907. doi:10.1016/S0140-6736(12)60692-8.
  • LaLiberte, T., K. Piescher, N. Mickelson, and M. H. Lee. 2017. “Child Protection Services and Parents with Intellectual and Developmental Disabilities.” Journal of Applied Research in Intellectual Disabilities : JARID 30 (3): 521–532. doi:10.1111/jar.12323.
  • Larkin, M., and A. Thompson. 2011. “Interpretative Phenomenological Analysis.” In Qualitative Research Methods in Mental Health and Psychotherapy: An Introduction for Students and Practitioners, edited by D. Harper and A. Thompson. (pp 101–116). Oxford: Wiley.
  • Lightfoot, E., and S. DeZelar. 2016. “The Experiences and Outcomes of Children in Foster Care Who Were Removed Because of a Parental Disability.” Children and Youth Services Review 62: 22–28. doi:10.1016/j.childyouth.2015.11.029.
  • Llewellyn, G. 2013. “Parents with Intellectual Disability and Their Children: Advances in Policy and Practice.” Journal of Policy and Practice in Intellectual Disabilities 10 (2): 82–85. doi:10.1111/jppi.12033.
  • Lyubomirsky, S., L. Sousa, and R. Dickerhoof. 2006. “The Costs and Benefits of Writing, Talking, and Thinking about Life’s Triumphs and Defeats.” Journal of Personality and Social Psychology 90 (4): 692–708. doi:10.1037/0022-3514.90.4.692.
  • MacIntyre, G., and A. Stewart. 2012. “For the Record: The Lived Experience of Parents with a Learning Disability – A Pilot Study Examining the Scottish Perspective.” British Journal of Learning Disabilities 40 (1): 5–14. doi:10.1111/j.1468-3156.2010.00669.x.
  • Mayes, R., and G. Llewellyn. 2009. “What Happens to Parents with Intellectual Disability following Removal of Their Child in Child Protection Proceedings?” Journal of Intellectual & Developmental Disability 34 (1): 92–95. doi:10.1080/13668250802688348.
  • McCarthy, M., C. Bates, P. Triantafyllopoulou, S. Hunt, and K. M. Skillman. 2019. “ “Put Bluntly, They Are Targeted by the Worst Creeps Society Has to Offer": Police and Professionals’ Views and Actions Relating to Domestic Violence and Women with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities : JARID 32 (1): 71–81. doi:10.1111/jar.12503.
  • McConnell, D., and G. Llewellyn. 2000. “Disability and Discrimination in Statutory Child Protection Proceedings.” Disability & Society 15 (6): 883–895. doi:10.1080/713662015.
  • McConnell, D., and G. Llewellyn. 2002. “Stereotypes, Parents with Intellectual Disability and Child Protection.” Journal of Social Welfare and Family Law 24 (3): 297–317. doi:10.1080/09649060210161294.
  • McGaw, S., and T. Newman. 2005. What Works for Parents with Learning Disabilities? Ilford: Barnado’s.
  • Murphy, G., and M. A. Feldman. 2002. “Parents with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 15 (4): 281–284. doi:10.1046/j.1468-3148.2002.00139.x.
  • Nussbaum, M. C. 2001. Upheavals of Thought: The Intelligence of Emotions. Cambridge: Cambridge University Press.
  • Proctor, S. N., and S. T. Azar. 2013. “The Effect of Parental Intellectual Disability Status on Child Protection Service Worker Decision Making.” Journal of Intellectual Disability Research : JIDR 57 (12): 1104–1116.
  • Rostill-Brookes, H., M. Larkin, A. Toms, and C. Churchman. 2011. “A Shared Experience of Fragmentation: Making Sense of Foster Placement Breakdown.” Clinical Child Psychology and Psychiatry 16 (1): 103–127. doi:10.1177/1359104509352894.
  • Sigurjónsdóttir, H. B., and J. G. Rice. 2017. “ ‘Framed’: Terminating the Parenting Rights of Parents with Intellectual Disability in Iceland.” Journal of Applied Research in Intellectual Disabilities : JARID 30 (3): 543–552. doi:10.1111/jar.12301.
  • Slayter, E. M., and J. Jensen. 2019. “Parents with Intellectual Disabilities in the Child Protection System.” Children and Youth Services Review 98: 297–304. doi:10.1016/j.childyouth.2019.01.013.
  • Smith, J. A., and M. Osborn. 2003. “Interpretative Phenomenological Analysis.” In Qualitative Psychology. A Practical Guide to Research Methods, edited by J. A. Smith, 51–79. London: Sage Publications.
  • Smith, J. A., P. Flowers, and M. Larkin. 2009. Interpretative Phenomenological Analysis: Theory, Method and Research. London: Sage Publications.
  • Stenfert Kroese, B., H. Hussein, C. Clifford, and N. Ahmed . 2002. “Social Support Networks and Psychological Well‐Being of Mothers with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 15 (4): 324–340. doi:10.1046/j.1468-3148.2002.00128.x.
  • Sterling, J. D. 1998. Determinants of Parenting in Women with Mental Retardation. Ann Arbor, MI: The Fielding Institute.
  • Tarleton, B. 2008. “Specialist Advocacy Services for Parents with Learning Disabilities Involved in Child Protection Proceedings.” British Journal of Learning Disabilities 36 (2): 134–139. doi:10.1111/j.1468-3156.2007.00479.x.
  • Tarleton, B., and S. Porter . 2012. “Crossing No Man’s Land: A Specialist Support Service for Parents with Learning Disabilities.” Child & Family Social Work 17 (2): 233–243. doi:10.1111/j.1365-2206.2012.00833.x.
  • Tarleton, B., L. Ward, and J. Howarth. 2006. Finding the Right Support. A Review of Issues and Positive Practice in Supporting Parents with Learning Difficulties and Their Children. London: Baring Foundation.
  • Tugade, M. M., B. L. Fredrickson, and L. Feldman Barrett. 2004. “Psychological Resilience and Positive Emotional Granularity: Examining the Benefits of Positive Emotions on Coping and Health.” Journal of Personality 72 (6): 1161–1190. doi:10.1111/j.1467-6494.2004.00294.x.
  • Wade, C., G. Llewellyn, and J. Matthews . 2015. “Parent Mental Health as a Mediator of Contextual Effects on Parents with Intellectual Disabilities and Their Children.” Clinical Psychologist 19 (1): 28–38. doi:10.1111/cp.12055.
  • Ward, L. 2010. “Supporting Parents, Supporting Families: Changing Approaches to Parents with Intellectual Disability.” Advances in Mental Health and Intellectual Disabilities 4 (2): 38–43. doi:10.5042/amhid.2010.0319.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.