Paternalism to empowerment: all in the eye of the beholder?

References

• Alston, Bruce. 2017. “Towards Supported Decision-Making: Article 12 of the Convention on the Rights of Persons with Disabilities and Guardianship Law Reform.” Law in Context 35 (2): 21–43.
   Google Scholar
• Antaki, C., W. Finlay, and C. Walton. 2009. “Choices for People with Intellectual Disabilities: Official Discourse and Everyday Practice.” Journal of Policy and Practice in Intellectual Disabilities 6 (4): 260–266. doi:10.1111/j.1741-1130.2009.00230.x.
   Web of Science ®Google Scholar
• Arstein-Kerslake, Anna, Joanne Watson, Michelle Browning, Jonathan Martinis, and Peter Blanck. 2017. “Future Directions in Supported Decision-Making.” Disability Studies Quarterly 37 (1). doi:10.18061/dsq.v37i1.5070.
   Google Scholar
• Bach, Michael, and Lana Kerzner. 2010. A New Paradigm for Protecting Autonomy and the Right to Legal Capacity. Toronto: Law Commission of Ontario.
   Google Scholar
• Banik, Dan. 2009. “Legal Empowerment as a Conceptual and Operational Tool in Poverty Eradication.” Hague Journal on the Rule of Law 1 (01): 117–131. doi:10.1017/S1876404509001171.
   Google Scholar
• Bartlett, Peter. 2020. “At the Interface between Paradigms: English Mental Capacity Law and the CRPD.” Frontiers in Psychiatry 11 (881). doi:10.3389/fpsyt.2020.570735.
   Google Scholar
• Beauchamp, Tom. 2019. “The Principle of Beneficence in Applied Ethics.” In Stanford Encyclopedia of Philosophy, edited by Edward N. Zalta. Stanford, CA: Stanford University. https://plato.stanford.edu/archives/spr2019/entries/principle-beneficence/.
   Google Scholar
• Bigby, Christine, Barbara Bowers, and Ruth Webber. 2011. “Planning and Decision Making about the Future Care of Older Group Home Residents and Transition to Residential Aged Care.” Journal of Intellectual Disability Research 55 (8): 777–789. doi:10.1111/j.1365-2788.2010.01297.x.
   PubMed Web of Science ®Google Scholar
• Bigby, Christine, and Jacinta Douglas. 2020. “Supported Decision Making.” In Choice, Preference, and Disability, edited by Roger Stancliffe, Michael Wehmeyer, Karrie Shogren, and Brian Abery, 45–66. Cham, Switzerland: Springer.
   Google Scholar
• Bigby, Christine, Jacinta Douglas, Terry Carney, Shih-Ning Then, Ilan Wiesel, and Lizzie Smith. 2017. “Delivering Decision-Making Support to People with Cognitive Disability – What Has Been Learned from Pilot Programs in Australia from 2010-2015.” Australian Journal of Social Issues 52 (3): 222–240. doi:10.1002/ajs4.19.
   Web of Science ®Google Scholar
• Bigby, Christine, Jacinta Douglas, Terry Carney, Shih-Ning Then, Ilan Wiesel, and Elizabeth Smith. 2020. "Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences"
   Google Scholar
• submitted. Melbourne.
   Google Scholar
• Bowey, Laura, and Alex McGlaughlin. 2005. “Assessing the Barriers to Achieving Genuine Housing Choice for Adults with a Learning Disability: The Views of Family Carers and Professionals.” British Journal of Social Work 35 (1): 139–148. doi:10.1093/bjsw/bch167.
   Web of Science ®Google Scholar
• Bryant, Anthony, and Kathy Charmaz, eds. 2007. The Sage Handbook of Grounded Theory. Thousand Oaks, CA: Sage.
   Google Scholar
• Carney, Terry. 1982. “Civil and Social Guardianship for Intellectually Handicapped People.” Monash University Law Review 8 (4): 199–232.
   Google Scholar
• Carney, Terry. 2017. “Supported Decision-Making in Australia: Meeting the Challenge of Moving from Capacity to Capacity-Building?” Law in Context. A Socio-Legal Journal 35 (2): 44–63. doi:10.26826/law-in-context.v35i2.12.
   Google Scholar
• Carney, Terry. 2020. “People with Dementia and Other Cognitive Disabilities: Relationally Vulnerable or a Source of Agency and Care?” Elder Law Review 12 (1). https://www.westernsydney.edu.au/elr/elder_law/elder_law_review_elr/elder_law_review_vol_12_part_1.
   Google Scholar
• Carney, Terry, Shih-Ning Then, Christine Bigby, Ilan Wiesel, and Jacinta Douglas. 2019. “National Disability Insurance Scheme Decision-Making: Or When Tailor-Made Caseplanning Met Taylorism and the Algorithms?” Melbourne University Law Review 42 (3): 780–812.
   Web of Science ®Google Scholar
• Carney, Terry, Shih-Ning Then, Christine Bigby, Ilan Wiesel, Jacinta Douglas, and Elizabeth Smith. 2019. “Realising ‘Will Preferences and Rights’: Reconciling Differences on Best Practice Support for Decision-Making?” Griffith Law Review 28 (4): 357–379. doi:10.1080/10383441.2019.1690741.
   Web of Science ®Google Scholar
• Claassen, Rutger. 2018. Capabilities in a Just Society: A Theory of Navigational Agency. Cambridge: Cambridge University Press.
   Google Scholar
• Devi, Nandini, Birgit Prodinger, Andrew Pennycott, Roja Sooben, and Jerome Bickenbach. 2020. “Investigating Supported Decision-Making for Persons with Mild to Moderate Intellectual Disability Using Institutional Ethnography.” Journal of Policy and Practice in Intellectual Disabilities 17 (2): 143–156. doi:10.1111/jppi.12314.
   Web of Science ®Google Scholar
• Domingo, Pilar, and Tam O’Neil. 2014. The Politics of Legal Empowerment: Legal Mobilisation Strategies and Implications for Development. London: Overseas Development Institute.
   Google Scholar
• Douglas, Jacinta, and Christine Bigby. 2020. “Development of an Evidence-Based Practice Framework to Guide Decision Making Support for People with Cognitive Impairment.” Disability and Rehabilitation 42 (3): 434–441. doi:10.1080/09638288.2018.1498546.
   PubMed Web of Science ®Google Scholar
• Douglas, Jacinta, Christine Bigby, and Elizabeth Smith. 2020. Building Capability to Support Client Decision Making. TAC Project No: T005. Melbourne: Living with Disability Research Centre, La Trobe University.
   Google Scholar
• Dunn, M. C., I. C. H. Clare, and A. J. Holland. 2010. “Living ‘a Life Like Ours’: Support Workers’ Accounts of Substitute Decision-Making in Residential Care Homes for Adults with Intellectual Disabilities.” Journal of Intellectual Disability Research 54 (2): 144–160. doi:10.1111/j.1365-2788.2009.01228.x.
   PubMed Web of Science ®Google Scholar
• Dworkin, Gerald. 2020. “Paternalism.” In The Stanford Encyclopedia of Philosophy, edited by Edward N. Zalta. Stanford, CA::Stanford University. https://plato.stanford.edu/archives/fall2020/entries/paternalism/
   Google Scholar
• Elks, Martin A. 2020. “Remarkable Similarities in Four List Theories of a Good Life for People with Intellectual Disability.” Journal of Intellectual Disabilities 24 (3): 418–426. doi:10.1177/1744629518821792.
   PubMed Web of Science ®Google Scholar
• Flynn, Eilionoir, and Anna Arstein-Kerslake. 2014. “Legislating Personhood: Realising the Right to Support in Exercising Legal Capacity.” International Journal of Law in Context 10 (1): 81–104. doi:10.1017/S1744552313000384.
   Google Scholar
• Footer, Katherine, Michael Windle, Laura Ferguson, Jordan Hatcher, Carrie Lyons, Emma Gorin, Anne L. Stangl, Steven Golub, Sofia Gruskin, and Stefan Baral. 2018. “A Meta-Narrative Literature Synthesis and Framework to Guide Future Evaluation of Legal Empowerment Interventions.” Health and Human Rights 20 (2): 65–84.
   PubMed Web of Science ®Google Scholar
• Gómez, Laura E., Asunción Monsalve, Mª Lucía Morán, Mª Ángeles Alcedo, Marco Lombardi, and Robert L. Schalock. 2020. “Measurable Indicators of CRPD for People with Intellectual and Developmental Disabilities within the Quality of Life Framework.” International Journal of Environmental Research and Public Health 17 (14): 5123. doi:10.3390/ijerph17145123.
   PubMed Web of Science ®Google Scholar
• Harmon, Louise. 1990. “Falling off the Vine: Legal Fictions and the Doctrine of Substituted Judgment.” The Yale Law Journal 100 (1): 1–71.
   PubMed Web of Science ®Google Scholar
• Hur, Mann Hyung. 2006. “Empowerment in Terms of Theoretical Perspectives: Exploring a Typology of the Process and Components across Disciplines.” Journal of Community Psychology 34 (5): 523–540. doi:10.1002/jcop.20113.
   Web of Science ®Google Scholar
• Kanter, Arlene. 2008. “The United Nations Convention on the Rights of Persons with Disabilities and Its Implications for the Rights of Elderly People under International Law.” Georgia State University Law Review 25 (3): 527–573.
   Google Scholar
• Kjellberg, Inger, and Birgitta Jansson. 2020. “The Capability Approach in Social Work Research: A Scoping Review of Research Addressing Practical Social Work.” International Social Work. ahead of print doi 0020872819896849
   Web of Science ®Google Scholar
• Kohn, Nina A. 2021. “Legislating Supported Decision-Making.” Harvard Journal on Legislation, forthcoming. Available at SSRN: https://ssrn.com/abstract=3768684.
   Google Scholar
• Kohn, Nina A., and Jeremy A. Blumenthal. 2014. “A Critical Assessment of Supported Decision-Making for Persons Aging with Intellectual Disabilities.” Disability and Health Journal 7 (1 Suppl): S40–S43. doi:10.1016/j.dhjo.2013.03.005.
   PubMedGoogle Scholar
• Kohn, Nina A., Jeremy A. Blumenthal, and Amy T. Campbell. 2013. “Supported Decision-Making: A Viable Alternative to Guardianship?” Penn State Law Review 117 (4): 1111–1157.
   Google Scholar
• McCallum, Ron. 2020. “The United Nations Convention on the Rights of Persons with Disabilities: An Assessment of Australia’s Level of Compliance.” In Research Report. Sydney: Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability.
   Google Scholar
• McKearney, Patrick. 2020a. “Challenging Care: Professionally Not Knowing What Good Care Is.” Anthropology and Humanism 45 (2): 223–232. doi:10.1111/anhu.12302.
   Google Scholar
• McKearney, Patrick. 2020b. “What Escapes Persuasion: Why Intellectual Disability Troubles ‘Dependence’ in Liberal Societies.” Medical Anthropology 40 (2): 155–168. 1-14. doi:10.1080/0145972020.1805741.
   PubMed Web of Science ®Google Scholar
• Molin, Martin. 2020. “The Emerging Concepts of Participation and Belonging in Social Pedagogy.” Papers of Social Pedagogy 13 (1): 9–33. doi:10.5604/01.3001.0014.4350.
   Google Scholar
• OPA. 2021. Decision Time: Activating the Rights of Adults with Cognitive Disability. Victoria: Office of the Public Advocate.
   Google Scholar
• Perkins, Douglas D., and Marc A. Zimmerman. 1995. “Empowerment Theory, Research, and Application.” American Journal of Community Psychology 23 (5): 569–579. doi:10.1007/BF02506982.
   PubMed Web of Science ®Google Scholar
• Quinn, Gerard. 2020. “Legal Culture and the CRPD.” In Recognising Human Rights in Different Cultural Contexts, edited by Emily Kakoullis and Kelley Johnson, 19–44. Singapore: Palgrave Macmillan.
   Google Scholar
• Robeyns, Ingrid. 2006. “The Capability Approach in Practice.” Journal of Political Philosophy 14 (3): 351–376. doi:10.1111/j.1467-9760.2006.00263.x.
   Web of Science ®Google Scholar
• Rodham, Hillary. 1973. “Children under the Law.” Harvard Educational Review 43 (4): 487–514. doi:10.17763/haer.43.4.e14676283875773k.
   Web of Science ®Google Scholar
• Seymour, John. 1994. “Parens Patriae and Wardship Powers: Their Nature and Origins.” Oxford Journal of Legal Studies 14 (2): 159–188. doi:10.1093/ojls/14.2.159.
   Google Scholar
• Stavert, Jill. 2020. “Supported Decision-Making and Paradigm Shifts: Word Play or Real Change?” Frontiers in Psychiatry 11: 571005. doi:10.3389/fpsyt.2020.571005.
   PubMed Web of Science ®Google Scholar
• Szmukler, George. 2019. “"Capacity", "Best Interests", "Will and Preferences" and the UN Convention on the Rights of Persons with Disabilities.” World Psychiatry 18 (1): 34–41. doi:10.1002/wps.20584.
   PubMed Web of Science ®Google Scholar
• Then, Shih-Ning, Terry Carney, Christine Bigby, and Jacinta Douglas. 2018. “Supporting Decision-Making of Adults with Cognitive Disabilities: The Role of Law Reform Agencies - Recommendations, Rationales and Influence.” International Journal of Law and Psychiatry 61 (Nov/Dec): 64–75. doi:10.1016/j.ijlp.2018.09.001.
   PubMedGoogle Scholar
• White, Ben, Lindy Willmott, and Shih-Ning Then. 2018. “Adults Who Lack Capacity: Substitute Decision-Making.” In Health Law in Australia, edited by Ben White, Fiona McDonald, and Lindy Willmott, 207–270. Sydney: Thompson Reuters Lawbook Co.
   Google Scholar
• Wiesel, Ilan, Elizabeth Smith, Christine Bigby, Shih-Ning Then, Jacinta Douglas, and Terry Carney. 2020. “The Temporalities of Supported Decision-Making by People with Cognitive Disability.” Social and Cultural Geography. doi:10.1080/14649365.2020.1829689.
   PubMedGoogle Scholar