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Articles

Care in the context of disability: a tool for (in)dependence and (dis)empowerment

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Pages 798-818 | Received 07 May 2020, Accepted 24 Jul 2021, Published online: 18 Aug 2021

References

  • BERA (British Educational Research Association). 2018. Ethical guidelines for educational research. 4th ed. London: BERA. https://www.bera.ac.uk/researchers-resources/publications/ethicalguidelines-for-educational-research-2018
  • Bostad, I., and H. Hanisch. 2016. “Freedom and Disability Rights: Dependence, Independence, and Interdependence.” Metaphilosophy 47 (3): 371–384. doi:10.1111/meta.12192.
  • Curran, T., M. Jones, S. Ferguson, M. Reed, A. Lawrence, N. Cull, and M. Stabb. 2021. “Disabled Young People’s Hopes and Dreams in a Rapidly Changing Society: A Co-Production Peer Research Study.” Disability & Society 36 (4): 561–578. doi:10.1080/09687599.2020.1755234.
  • Damianidou, E., and H. Phtiaka. 2018a. “Co-Operating with Parents for Equal Opportunities in Education.” International Journal about Parents in Education 10 (1): 91–102.
  • Damianidou, E., and H. Phtiaka. 2018b. “Implementing Inclusion in Disabling Settings: The Role of Teachers’ Attitudes and Practices.” International Journal of Inclusive Education 22 (10): 1078–1092. doi:10.1080/13603116.2017.1415381.
  • Ganle, J. K., R. R. Apolot, T. Rugoho, and J. Sumankuuro. 2020. “‘They Are My Future’: Childbearing Desires and Motivations among Women with Disabilities in Ghana – Implications for Reproductive Healthcare.” Reproductive Health 17 (1): 151–161. doi:10.1186/s12978-020-01000-y.
  • Gould, J. B. 2020. “Duty, Not Gratuity: The Ethics of Social Support for People with Intellectual Disabilities in the United States.” Disability & Society 1–21. doi:10.1080/09687599.2020.1787817.
  • Guerrero-Arias, B. E., A. Agudelo-Orozco, and N. A. Pava-Ripoll. 2020. “Intersectional Identity Chronotopes: Expanding the Disability Experience.” Disability & Society 35 (10): 1660–1681. doi:10.1080/09687599.2020.1719041.
  • Heger, D. 2017. “The Mental Health of Children Providing Care to Their Elderly Parent.” Health Economics 26 (12): 1617–1629. doi:10.1002/hec.3457.
  • Held, V. 2006. The Ethics of Care. New York, NY: Oxford University Press.
  • Hile, E., K. Fitzgerald, and S. Studenski. 2010. “Persistent Mobility Disability after Neurotoxic Chemotherapy.” Physical Therapy 90 (11): 1649–1659. doi:10.2522/ptj.20090405.
  • Ireland, M. J., and K. I. Pakenham. 2010. “Youth Adjustment to Parental Illness or Disability: The Role of Illness Characteristics, Caregiving, and Attachment.” Psychology, Health & Medicine 15 (6): 632–645. doi:10.1080/13548506.2010.498891.
  • Kittay, E. F. 2011. “The Ethics of Care, Dependence, and Disability.” Ratio Juris 24 (1): 49–58. doi:10.1111/j.1467-9337.2010.00473.x.
  • Kittay, E. F. 2019. Learning from My Daughter: The Value and Care of Disabled Minds. Oxford: University Press.
  • Liasidou, A. 2013. “Inclusive Education and Critical Pedagogy at the Intersections of Disability, Race, Gender and Class.” Journal for Critical Education Policy Studies 10: 168–184.
  • Malacrida, C. 2009. “Performing Motherhood in a Disablist World: Dilemmas of Motherhood, Femininity and Disability.” International Journal of Qualitative Studies in Education 22 (1): 99–117. doi:10.1080/09518390802581927.
  • Noddings, N. 2002. Starting at Home: Caring and Social Policy. Berkeley, CA: University of CA Press.
  • Oliver, M. 1989. “Disability and Dependency: A Creation of Industrial Societies.” In Disability and Dependency, edited by L. Barton. London: Falmer.
  • Oliver, M. 1990. The Politics of Disablement. Basingstoke: Macmillan.
  • Prilleltensky, O. 2003. “A Ramp to Motherhood: The Experiences of Mothers with Physical Disabilities.” Sexuality and Disability 21 (1): 21–47. doi:10.1023/A:1023558808891.
  • Qian, Y., S. McGraw, J. Henne, J. Jarecki, K. Hobby, and W.-S. Yeh. 2015. “Understanding the Experiences and Needs of Individuals with Spinal Muscular Atrophy and Their Parents: A Qualitative Study.” BMC Neurology 15: 217–240. doi:10.1186/s12883-015-0473-3.
  • Rachels, J. 1999. The Elements of Moral Philosophy. San Francisco, CA: McGraw-Hill.
  • Sagone, E. 2017. “The Role of Coping Strategies in Life Satisfaction and Psychological Well-Being: An Investigation with Deaf and Hearing Parents.” Life Span and Disability 20 (2): 273–298.
  • Sanders, K. Y. 2007. “Overprotection and Lowered Expectations of Persons with Disabilities: The Unforeseen Consequences.” Work 27: 181–188.
  • Scott, A., and C. Doughty. 2012. “Care, Empowerment and Self-Determination in the Practice of Peer Support.” Disability & Society 27 (7): 1011–1024. doi:10.1080/09687599.2012.695578.
  • Shepherd-Banigan, M., K. A. Jones, K. Wang, N. DePasquale, C. Van Houtven, and J. M. Olsen. 2020. “Mechanisms through Which a Family Caregiver Coaching Intervention Might Reduce Anxiety among Children in Military Households.” Maternal and Child Health Journal 24 (10): 1248–1258. doi:10.1007/s10995-020-02964-w.
  • Skyrme, S. 2016. “Living with Duchenne Muscular Dystrophy: Relational Autonomy and Decision-Making.” Children & Society 30 (3): 220–229. doi:10.1111/chso.12134.
  • Symeonidou, S. 2009. “Trapped in Our past: The Price We Have to Pay for Our Cultural Disability Inheritance.” International Journal of Inclusive Education 13 (6): 565–579. doi:10.1080/13603110801972069.
  • Tefera, B., M. Van Engen, J. Van der Klink, and A. Schippers. 2017. “The Grace of Motherhood: Disabled Women Contending with Societal Denial of Intimacy, Pregnancy, and Motherhood in Ethiopia.” Disability & Society 32 (10): 1510–1533. doi:10.1080/09687599.2017.1361385.
  • Townend, E., D. Tinson, J. Kwan, and M. Sharpe. 2010. “‘Feeling Sad and Useless’: An Investigation into Personal Acceptance of Disability and Its Association with Depression Following Stroke.” Clinical Rehabilitation 24 (6): 555–564. doi:10.1177/0269215509358934.
  • Traustadóttir, R., and H. B. Sigurjónsdóttir. 2008. “The ‘Mother’ behind the Mother: Three Generations of Mothers with Intellectual Disabilities and Their Family Support Networks.” Journal of Applied Research in Intellectual Disabilities 21: 331–340. doi:10.1111/j.1468-3148.2008.00450.x.
  • Tronto, J. C. 2005. “An Ethic of Care.” In Feminist Theory: A Philosophical Anthology, edited by A. E. Cudd and R. O. Andreasen, 251–263. Malden, MA: Blackwell Publishing.
  • Vlachou, A., and I. Papananou. 2015. “Disabled Students’ Narratives about Their Schooling Experiences.” Disability & Society 30 (1): 73–86. doi:10.1080/09687599.2014.982787.
  • Williams, V., B. Tarleton, P. Heslop, S. Porter, B. Sass, S. Blue, W. Merchant, and V. Mason-Angelow. 2018. “Understanding Disabling Barriers: A Fruitful Partnership between Disability Studies and Social Practices?” Disability & Society 33 (2): 157–174. doi:10.1080/09687599.2017.1401527.

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