Childhood adversity, resilience, and autism: a critical review of the literature

References

• American Psychological Association. 2008. "Children and Trauma: An Update for Mental Health Professionals. "American Psychological Association. https://www.apa.org/pi/families/resources/update.pdf
   Google Scholar
• American Psychological Association. n.d. “Building Your Resilience.” Accessed 6 October 2020. http://www.apa.org/topics/resilience
   Google Scholar
• Autism Self-Advocacy Network. 2019. “Our Motto: What is ‘Nothing about Us Without Us?’” https://autisticadvocacy.org/about-asan/position-statements/
   Google Scholar
• Autism Self-Advocacy Network. n.d. “Research and Data Collection (Position Statement).” Accessed 6 October 2020. https://autisticadvocacy.org/about-asan/position-statements/
   Google Scholar
• Avdagic, E., C. Wade, M. McDonald, D. McCormack, P. Dakin, M. Macvean, L. Hayes, and T. Phan. 2018. “Resilience in Young Children: A Delphi Study to Reach Consensus on Definitions, Measurement and Interventions to Build Resilience.” Early Child Development and Care 190 (13): 2066–2077. doi:10.1080/03004430.2018.1556211.
   Google Scholar
• Baron‐Cohen, S. 2017. “Editorial Perspective: Neurodiversity–a Revolutionary Concept for Autism and Psychiatry.” Journal of Child Psychology and Psychiatry 58 (6): 744–747. doi:10.1111/jcpp.12703.
   PubMed Web of Science ®Google Scholar
• Bellis, M. A., K. Hughes, K. Ford, K. A. Hardcastle, C. A. Sharp, S. Wood, L. Homolova, and A. Davies. 2018. “Adverse Childhood Experiences and Sources of Childhood Resilience: A Retrospective Study of Their Comorbid Relationships with Child Health and Educational Attendance.” BMC Public Health 18 (1): 1–12. doi:10.1186/s12889-018-5699-8.
   Web of Science ®Google Scholar
• Berg, K. L., C. Shiu, K. Acharya, B. C. Stolbach, and M. E. Msall. 2016. “Disparities in Adversity among Children with Autism Spectrum, Disorder: A Population-Based Study.” Developmental Medicine & Child Neurology 58 (11): 1124–1131. doi:10.1111/dmcn.13161.
   PubMed Web of Science ®Google Scholar
• Bright, M. A., C. Knapp, M. S. Hinojosa, S. Alford, and B. Bonner. 2016. “The Comorbidity of Physical, Mental, and Developmental Conditions Associated with Childhood Adversity: A Population Based Study.” Maternal and Child Mental Health Journal 20 (4): 843–853. doi:10.1007/s10995-015-1915-7.
   PubMed Web of Science ®Google Scholar
• Cage, E., G. Bird, and L. Pellicano. 2016. “I Am Who I Am’: Reputation Concerns in Adolescents on the Autism Spectrum.” Research in Autism Spectrum Disorders 25 (May): 12–23. doi:10.1016/j.rasd.2016.01.010.
   Web of Science ®Google Scholar
• Centres for Disease Control and Prevention. 2020. “Data & Statistics on Autism Spectrum Disorder.” https://www.cdc.gov/ncbddd/autism/data.html
   Google Scholar
• Chown, N., J. Robinson, L. Beardon, J. Downing, L. Hughes, J. Leatherland, K. Fox, L. Hickman, and D. MacGregor. 2017. “Improving Research about Us, with Us: A Draft Framework for Inclusive Autism Research.” Disability & Society 32 (5): 720–734. doi:10.1080/09687599.2017.1320273.
   Web of Science ®Google Scholar
• Convention on the Rights of Persons with Disabilities. 2006. “Article 24 Education.” United Nations. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/article-24-education.html
   Google Scholar
• Felitti, V. J., R. F. Anda, D. Nordenberg, D. F. Williamson, A. M. Spitz, V. Edwards, M. P. Koss, and J. S. Marks. 1998. “Relationship of Childhood Abuse and Household Dysfunction to Many of the Leading Causes of Death in Adults: The Adverse Childhood Experiences (ACE) Study.” American Journal of Preventative Medicine 14 (4): 245–258. doi:10.1016/S0749-3797(98)00017-8.
   PubMed Web of Science ®Google Scholar
• Gartland, D., E. Riggs, S. Muyeen, R. Giallo, T. O. Afifi, H. MacMillian, H. Herrman, E. Bulford, and S. J. Brown. 2019. “What Factors Are Associated with Resilient Outcomes in Children Exposed to Social Adversity? A Systematic Review.” BMJ Open 9 (4): e024870. doi:10.1136/bmjopen-2018-024870.
   PubMed Web of Science ®Google Scholar
• Grant, M. J., and A. Booth. 2009. “A Typology of Reviews: An Analysis of 14 Review Types and Associated Methodologies.” Health Information and Libraries Journal 26: 91–108. doi:10.1111/j.1471-1842.2009.00848.x.
   PubMed Web of Science ®Google Scholar
• Guest, J. D., and J. H. Ohrt. 2018. “Utilizing Child-Centered Play Therapy with Children Diagnosed with Autism Spectrum Disorder and Endured Trauma: A Case Example.” International Journal of Play Therapy 27 (3): 157–165. doi:10.1037/pla0000074.
   Google Scholar
• Herrman, H., D. E. Stewart, N. Diaz-Granados, E. L. Berger, B. Jackson, and T. Yuen. 2011. “What is Resilience?” The Canadian Journal of Psychiatry 56 (5): 258–265. doi:10.1177/070674371105600504.
   PubMed Web of Science ®Google Scholar
• Hodge, N. 2013. “Counselling, Autism and the Problem of Empathy.” British Journal of Guidance & Counselling 41 (2): 105–116. doi:10.1080/03069885.2012.705817.
   Web of Science ®Google Scholar
• Hoover, D. W., and E. M. Romero. 2019. “The Interactive Trauma Scale: A Web-Based Measure for Children with Autism.” Journal of Autism and Developmental Disorders 49 (4): 1686–1692. doi:10.1007/s10803-018-03864-3.
   PubMed Web of Science ®Google Scholar
• Hughes, K., M. Bellis, K. A. Hardcastle, D. Sethi, A. Butchart, C. Mikton, L. Jones, and M. P. Dunne. 2017. “The Effect of Multiple Adverse Childhood Experiences on Health: A Systematic Review and Meta-Analysis.” The Lancet Public Health 2 (8): e356. doi:10.1016/S2468-2667(17)30118-4.
   PubMed Web of Science ®Google Scholar
• Im, D. S. 2016. “Trauma as a Contributor to Violence in Autism Spectrum Disorder.” The Journal of the American Academy of Psychiatry and the Law 44 (2): 184–192. http://jaapl.org/.
   PubMed Web of Science ®Google Scholar
• Jensen-Doss, A., E. A. Youngstrom, J. K. Youngstrom, N. C. Feeny, and R. L. Findling. 2014. “Predictors and Moderators of Agreement between Clinical and Research Diagnoses for Children and Adolescents.” Journal of Consulting and Clinical Psychology 82 (6): 1151–1162. doi:10.1037/a0036657.
   PubMed Web of Science ®Google Scholar
• Joshi, G., C. Petty, J. Wozniak, A. Henin, R. Fried, M. Galdo, M. Kotarski, S. Walls, and J. Biederman. 2010. “The Heavy Burden of Psychiatric Comorbidity in Youth with Autism Spectrum Disorders: A Large Comparative Study of a Psychiatrically Referred Population.” Journal of Autism and Developmental Disorders 40 (11): 1361–1370. doi:10.1007/s10803-010-0996-9.
   PubMed Web of Science ®Google Scholar
• Kerns, C. M., C. J. Newschaffer, and S. J. Berkowitz. 2015. “Traumatic Childhood Events and Autism Spectrum Disorder.” Journal of Autism and Developmental Disorders 45 (11): 3475–3486. doi:10.1007/s10803-015-2392-y.
   PubMed Web of Science ®Google Scholar
• Kisiel, C., T. Fehrenbach, L. Small, and J. S. Lyons. 2009. “Assessment of Complex Trauma Exposure, Responses, and Service Needs among Children and Adolescents in Child Welfare.” Journal of Child & Adolescent Trauma 2 (3): 143–160. doi:10.1080/19361520903120467.
   Google Scholar
• Lai, M. C., C. Kassee, R. Besney, S. Bonato, L. Hull, W. Mandy, P. Szatmari, and S. H. Ameis. 2019. “Prevalence of Co-Occurring Mental Health Diagnoses in the Autism Population: A Systematic Review and Meta-Analysis.” The Lancet Psychiatry 6 (10): 819–829. doi:10.1016/S2215-0366(19)30289-5.
   PubMed Web of Science ®Google Scholar
• Liu, S. R., M. Kia‐Keating, K. Nylund‐Gibson, and M. L. Barnett. 2020. “Co‐Occurring Youth Profiles of Adverse Childhood Experiences and Protective Factors: Associations with Health, Resilience, and Racial Disparities.” American Journal of Community Psychology 65 (1–2): 173–186. doi:10.1002/ajcp.12387.
   PubMed Web of Science ®Google Scholar
• Mackay, B. A., I. M. Shochet, and J. A. Orr. 2017. “A Pilot Randomised Controlled Trial of a School-Based Resilience Intervention to Prevent Depressive Symptoms for Young Adolescents with Autism Spectrum Disorder: A Mixed Methods Analysis.” Journal of Autism and Developmental Disorders 47 (11): 3458–3478. doi:10.1007/s10803-017-3263-5.
   PubMed Web of Science ®Google Scholar
• Madden, J. M., M. D. Lakoma, F. L. Lynch, D. Rusinak, A. Owen-Smith, K. J. Coleman, V. P. Quinn, V. M. Yau, Y. X. Qian, and L. A. Croen. 2017. “Psychotropic Medication Use among Insured Children with Autism Spectrum Disorder.” Journal of Autism and Developmental Disorders 47 (1): 144–154. doi:10.1007/s10803-016-2946-7.
   PubMed Web of Science ®Google Scholar
• McCrimmon, A. W., R. L. Matchullis, and A. A. Altomare. 2016. “Resilience and Emotional Intelligence in Children with High-Functioning Autism Spectrum Disorder.” Developmental Neurorehabilitation 19 (3): 154–161. doi:10.3109/17518423.2014.927017.
   PubMed Web of Science ®Google Scholar
• Mehtar, M., and N. M. Mukaddes. 2011. “Posttraumatic Stress Disorder in Individuals with Diagnosis of Autistic Spectrum Disorders.” Research in Autism Spectrum Disorders 5 (1): 539–546. doi:10.1016/j.rasd.2010.06.020.
   Web of Science ®Google Scholar
• Milton, D. E. 2014. “Autistic Expertise: A Critical Reflection on the Production of Knowledge in Autism Studies.” Autism 18 (7): 794–802. doi:10.1177/1362361314525281.
   PubMed Web of Science ®Google Scholar
• Milton, D. E., and M. Bracher. 2013. “Autistics Speak but Are They Heard?” Medical Sociology Online 7 (2): 61–69. https://www.britsoc.co.uk/files/MSo-Volume-7-Issue-2.pdf#page=63.
   Google Scholar
• Milton, D., R. Mills, and L. Pellicano. 2012. “Ethics and Autism: Where is the Autistic Voice? Commentary on Post et al.” Journal of Autism and Developmental Disorders 44 (10): 2650–2651. doi:10.1007/s10803-012-1739-x.
   Web of Science ®Google Scholar
• Moore, K. A., and A. N. Ramirez. 2016. “Adverse Childhood Experience and Adolescent Well-Being: Do Protective Factors Matter?” Child Indicators Research 9 (2): 299–316. doi:10.1007/s12187-015-9324-4.
   Web of Science ®Google Scholar
• National Institute of Mental Health. 2015. “Autism Spectrum Disorder Fact Sheet” https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Autism-Spectrum-Disorder-Fact-Sheet
   Google Scholar
• National Symposium on Neurodiversity at Syracuse University. n.d. “What is Neurodiversity?” Accessed 6 October 2020. https://neurodiversitysymposium.wordpress.com/what-is-neurodiversity/
   Google Scholar
• O’Dell, L., H. Bertilsdotter Rosqvist, F. Ortega, C. Brownlow, and M. Orsini. 2016. “Critical Autism Studies: Exploring Epistemic Dialogues and Intersections, Challenging Dominant Understandings of Autism.” Disability & Society 31 (2): 166–179. doi:10.1080/09687599.2016.1164026.
   Web of Science ®Google Scholar
• Pellicano, L. 2014. “A Future Made Together: New Directions in the Ethics of Autism Research.” Journal of Research in Special Educational Needs 14 (3): 200–204. doi:10.1111/1471-3802.12070_5.
   Google Scholar
• Pellicano, E., A. Dinsmore, and T. Charman. 2014. “Views on Researcher-Community Engagement in Autism Research in the United Kingdom: A Mixed-Methods Study.” PLoS One 9 (10): 1–11. doi:10.1371/journal.pone.0109946.
   Web of Science ®Google Scholar
• Pellicano, E., and M. Stears. 2011. “Bridging Autism, Science and Society: Moving toward an Ethically Informed Approach to Autism Research.” Autism Research 4 (4): 271–282. doi:10.1002/aur.201.
   PubMed Web of Science ®Google Scholar
• Pfeffer, R. D. 2016. “Childhood Victimization in a National Sample of Youth with Autism Spectrum Disorders.” Journal of Policy and Practice in Intellectual Disabilities 13 (4): 311–319. doi:10.1111/jppi.12203.
   Web of Science ®Google Scholar
• Rigles, B. 2017. “The Relationship between Adverse Childhood Events, Resiliency and Health among Children with Autism.” Journal of Autism and Developmental Disorders 47 (1): 187–202. doi:10.1007/s10803-016-2905-3.
   PubMed Web of Science ®Google Scholar
• Ripamonti, L. 2016. “Disability, Diversity, and Autism: Philosophical Perspectives on Health.” The New Bioethics 22 (1): 56–70. doi:10.1080/20502877.2016.1151256.
   PubMed Web of Science ®Google Scholar
• Robinson, A. 2018. “Emotion-Focused Therapy for Autism Spectrum Disorder: A Case Conceptualization Model for Trauma-Related Experiences.” Journal of Contemporary Psychotherapy 48 (3): 133–143. doi:10.1007/s10879-018-9383-1.
   PubMed Web of Science ®Google Scholar
• Rowley, E., S. Chandler, G. Baird, E. Simonoff, A. Pickles, T. Loucas, and T. Charman. 2012. “The Experience of Friendship, Victimization and Bullying in Children with an Autism Spectrum Disorder: Associations with Child Characteristics and School Placement.” Research in Autism Spectrum Disorders 6 (3): 1126–1134. doi:10.1016/j.rasd.2012.03.004.
   Web of Science ®Google Scholar
• Ryan, S., J. Lai, and J. Weiss. 2018. “Mental Health Service Use among Youth with Autism Spectrum Disorder: A Comparison of Two Age Groups.” Journal of Developmental & Behavioral Pediatrics 39 (1): 20–28. doi:10.1097/DBP.0000000000000500.
   PubMed Web of Science ®Google Scholar
• Schneider, M., J. VanOrmer, and K. Zlomke. 2019. “Adverse Childhood Experiences and Family Resilience among Children with Autism Spectrum Disorder and Attention-Deficit/Hyperactivity Disorder.” Journal of Developmental & Behavioral Pediatrics 40 (8): 573–580. doi:10.1097/DBP.0000000000000703.
   PubMed Web of Science ®Google Scholar
• Silberman, S. 2015. NeuroTribes: The Legacy of Autism and the Future of Neurodiversity. New York: Avery.
   Google Scholar
• Soke, G. N., M. J. Maemer, D. Christensen, M. KurziusSpencer, and L. A. Schieve. 2018. “Prevalence of Co-Occurring Medical and Behavioral Conditions/Symptoms among 4- and 8-Year-Old Children with Autism Spectrum Disorder in Selected Areas of the United States in 2010.” Journal of Autism and Developmental Disorders 48 (8): 2663–2676. doi:10.1007/s10803-018-3521-1.
   PubMed Web of Science ®Google Scholar
• Stadnick, N., C. Chlebowski, M. Baker-Ericzén, M. Dyson, A. Garland, and L. Brookman-Frazee. 2017. “Psychiatric Comorbidity in Autism Spectrum Disorder: Correspondence between Mental Health Clinician Report and Structured Parent Interview.” Autism 21 (7): 841–851. doi:10.1177/1362361316654083.
   PubMed Web of Science ®Google Scholar
• Storch, E. A., M. L. Sulkowski, J. Nadeau, A. B. Lewin, E. B. Arnold, P. J. Mutch, A. M. Jones, and T. K. Murphy. 2013. “The Phenomenology and Clinical Correlates of Suicidal Thoughts and Behaviors in Youth with Autism Spectrum Disorders.” Journal of Autism and Developmental Disorders 43 (10): 2450–2459. doi:10.1007/s10803-013-1795-x.
   PubMed Web of Science ®Google Scholar
• Taylor, J. L., and K. O. Gotham. 2016. “Cumulative Life Events, Traumatic Experiences, and Psychiatric Symptomatology in Transition-Aged Youth with Autism Spectrum Disorder.” Journal of Neurodevelopmental Disorders 8 (1): 1–11. doi:10.1186/s11689-016-9160-y.
   PubMed Web of Science ®Google Scholar
• Thakur, D., V. Rajamoorthy, P. Joshi, M. Kempton, and J. Heckmatt. 2017. “G493 Adverse Childhood Experiences (ACE) and Other Correlates in Children Presenting for Autism Spectrum Disorder (ASD) Diagnosis.” Archives of Disease in Childhood 102: A195. doi:10.1136/archdischild-2017-313087.485.
   Google Scholar
• U.S. Department of Education, National Center for Education Statistics. 2019. “Digest of Education Statistics, 2018.” https://nces.ed.gov/programs/digest/d18/ch_2.asp
   Google Scholar
• Van der Kolk, B. A. 2005. “Developmental Trauma Disorder: Toward a Rational Diagnosis for Children with Complex Trauma Histories.” Psychiatric Annals 35 (5): 401–408. doi:10.3928/00485713-20050501-06.
   Web of Science ®Google Scholar
• Vasa, R. A., L. Hagopian, and L. G. Kalb. 2020. “Investigating Mental Health Crisis in Youth with Autism Spectrum Disorder.” Autism Research 13 (1): 112–121. doi:10.1002/aur.2224.
   PubMed Web of Science ®Google Scholar
• Wijnhoven, L. A., H. Niels-Kessels, D. H. Creemers, A. A. Vermulst, R. Otten, and R. C. Engels. 2019. “Prevalence of Comorbid Depressive Symptoms and Suicidal Ideation in Children with Autism Spectrum Disorder and Elevated Anxiety Symptoms.” Journal of Child & Adolescent Mental Health 31 (1): 77–84. doi:10.2989/17280583.2019.1608830.
   PubMed Web of Science ®Google Scholar
• Wood, J. J., and K. D. Gadow. 2010. “Exploring the Nature and Function of Anxiety in Youth with Autism Spectrum Disorders.” Clinical Psychology: Science and Practice 17 (4): 281–292. doi:10.1111/j.1468-2850.2010.01220.x.
   Web of Science ®Google Scholar