Recasting ‘harm’ in support: Misrecognition between people with intellectual disability and paid workers

References

• Antaki, C. 2018. “Supporting Adults with Intellectual Disabilities by Protecting Their Footing in a Challenging Conversational Task.” Journal of Interactional Research in Communication Disorders 9 (1): 98–113. doi:10.1558/jircd.36199.
   Web of Science ®Google Scholar
• Antaki, C., and A. Kent. 2012. “Telling People What to Do (and, Sometimes, Why): Contingency, Entitlement and Explanation in Staff Requests to Adults with Intellectual Impairments.” Journal of Pragmatics 44 (6-7): 876–877. doi:10.1016/j.pragma.2012.03.014.
   Web of Science ®Google Scholar
• Araten-Bergman, T., and C. Bigby. 2020. “Violence Prevention Strategies for People with Intellectual Disabilities: A Scoping Review.” Australian Social Work : 1–16. doi:10.1080/0312407X.2020.1777315.
   Web of Science ®Google Scholar
• Banks, S. 2016. “Knowing Me, Knowing You’: Disability Support Worker as Emotional Mediator?” Sexualities 19 (5-6): 659–676. doi:10.1177/1363460715620565.
   Web of Science ®Google Scholar
• Clark, J. 2012. “Using Diamond Ranking as Visual Cues to Engage Young People in the Research Process.” Qualitative Research Journal 12 (2): 222–237. doi:10.1108/14439881211248365.
   Google Scholar
• Cortis, N., G. Meagher, S. Chan, R. Davidson, and T. Fattore. 2013. Building an Industry of Choice: service Quality, Workforce Capacity and Consumer-Centred Funding in Disability Care. Sydney: Social Policy Research Centre, University of New South Wales.
   Google Scholar
• Finlay, W. M. L., C. Walton, and C. Antaki. 2008. “Promoting Choice and Control in Residential Services for People with Learning Disabilities.” Disability & Society 23 (4): 349–360. doi:10.1080/09687590802038860.
   Web of Science ®Google Scholar
• Fisher, K. R., S. Robinson, K. Neale, A. Graham, K. Johnson, L. Davy, and E. C. Hall. 2021. “Impact of Organisational Practices on the Relationships between Young People with Disabilities and Paid Social Support Workers.” Journal of Social Work 21 (6): 1377–1398. doi:10.1177/1468017320954351.
   Web of Science ®Google Scholar
• Fleming, Pádraic, Sinead McGilloway, Marian Hernon, Mairead Furlong, Siobhain O’Doherty, Fiona Keogh, and Tim Stainton. 2019. “Individualised Funding Interventions to Improve Health and Social Care Outcomes for People with a Disability: A Mixed-Methods Systematic Review.” Campbell Systematic Reviews 15 (1-2). doi:10.4073/csr.2019.3.
   PubMedGoogle Scholar
• Flynn, S. 2020. “Theorizing Disability in Child Protection: Applying Critical Disability Studies to the Elevated Risk of Abuse for Disabled Children.” Disability & Society 35 (6): 949–971. doi:10.1080/09687599.2019.1669433.
   Web of Science ®Google Scholar
• Fyson, R., and A. Patterson. 2020. “Staff Understandings of Abuse and Poor Practice in Residential Settings for Adults with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities : JARID 33 (3): 354–363. doi:10.1111/jar.12677.
   PubMed Web of Science ®Google Scholar
• Graham, A., M. A. Powell, N. Thomas, and D. Anderson. 2017. “Reframing ‘Well-Being’ in Schools: The Potential of Recognition.” Cambridge Journal of Education 47 (4): 439–455. doi:10.1080/0305764X.2016.1192104.
   Web of Science ®Google Scholar
• Graham, A., M. A. Powell, and J. Truscott. 2016. “Facilitating Student Well-Being: Relationships Do Matter.” Educational Research 58 (4): 366–383. doi:10.1080/00131881.2016.1228841.
   Web of Science ®Google Scholar
• Häkli, J., R. Korkiamäki, and K. P. Kallio. 2018. “Positive Recognition’ as a Preventive Approach in Child and Youth Welfare Services.” International Journal of Social Pedagogy 7 (1): 5. doi:10.14324/111.444.ijsp.2018.v7.1.005.
   Google Scholar
• Hastings, R. P., D. Gillespie, S. Flynn, R. McNamara, Z. Taylor, R. Knight, E. Randell, et al. 2018. “ Who’s challenging who training for staff empathy towards adults with challenging behaviour: cluster randomised controlled trial.” Journal of Intellectual Disability Research : JIDR 62 (9): 798–813. doi:10.1111/jir.12536.
   PubMed Web of Science ®Google Scholar
• Honneth, A. 1995. The Struggle for Recognition: The Moral Grammar of Social Conflicts. Cambridge: Polity Press.
   Google Scholar
• Honneth, A. 2004. “Recognition and Justice: Outline of a Plural Theory of Justice.” Acta Sociologica 47 (4): 351–364. doi:10.1177/0001699304048668.
   Web of Science ®Google Scholar
• Hughes, Rosemary B., Susan Robinson-Whelen, Dora Raymaker, Emily M. Lund, Mary Oschwald, Marsha Katz, Albert Starr, Elesia Ashkenazy, Laurie E. Powers, Christina Nicolaidis, Partnering with People with Disabilities to Address Violence Consortium 2019. “The Relation of Abuse to Physical and Psychological Health in Adults with Developmental Disabilities.” Disability and Health Journal 12 (2): 227–234. doi:10.1016/j.dhjo.2018.09.007.
   PubMed Web of Science ®Google Scholar
• Ikaheimo, H. 2015. “Conceptualizing Causes for Lack of Recognition: Capacities, Costs and Understanding.” Studies in Social and Political Thought 25 (2): 25–42. doi:10.20919/sspt.25.2015.45.
   Google Scholar
• Keesler, J. M. 2016. “ Trauma-informed Day Services for Individuals with Intellectual/Developmental Disabilities: Exploring Staff Understanding and Perception within an Innovative Programme .” Journal of Applied Research in Intellectual Disabilities : JARID 29 (5): 481–492. doi:10.1111/jar.12197.
   PubMed Web of Science ®Google Scholar
• Kildahl, A. N., S. B. Helverschou, T. L. Bakken, and H. W. Oddli. 2020. “If we Do Not Look for It, we Do Not See It”: Clinicians’ Experiences and Understanding of Identifying Post‐Traumatic Stress Disorder in Adults with Autism and Intellectual Disability.” Journal of Applied Research in Intellectual Disabilities 33 (5): 1119–1132. . doi:10.1111/jar.12734.
   PubMed Web of Science ®Google Scholar
• Krnjacki, Lauren, Eric Emerson, Gwynnyth Llewellyn, and Anne M. Kavanagh. 2016. “Prevalence and Risk of Violence against People with and without Disabilities: Findings from an Australian Population-Based Study.” Australian and New Zealand Journal of Public Health 40 (1): 16–21. doi:10.1111/1753-6405.12498.
   PubMed Web of Science ®Google Scholar
• Marshall, G., K. Winter, and D. Turney. 2020. “Honneth and Positive Identity Formation in Residential Care.” Child & Family Social Work 25 (4): 733–741. doi:10.1111/cfs.12749.
   Web of Science ®Google Scholar
• McNally, P., L. Taggart, and M. Shevlin. 2021. “Trauma Experiences of People with an Intellectual Disability and Their Implications: A Scoping Review.” Journal of Applied Research in Intellectual Disabilities : Jarid 34 (4): 927–949. doi:10.1111/jar.12872.
   PubMed Web of Science ®Google Scholar
• Moskos, M., and L. Isherwood. 2019. “Individualised Funding and Its Implications for the Skills and Competencies Required by Disability Support Workers in Australia.” Labour & Industry: a Journal of the Social and Economic Relations of Work 29 (1): 34–51. doi:10.1080/10301763.2018.1534523.
   Web of Science ®Google Scholar
• National Disability Strategy (NDS) 2011. National Disability Strategy 2010–2020. Canberra: Commonwealth Government. Retrieved from www.dss.gov.au/our-responsibilities/disability-and-carers/publications-articles/policy-research/.national-disability-strategy-2010-2020.
   Google Scholar
• Neale, J. 2016. “Iterative Categorization (IC): A Systematic Technique for Analysing Qualitative Data.” Addiction (Abingdon, England) 111 (6): 1096–1106. doi:10.1111/add.13314.
   PubMed Web of Science ®Google Scholar
• Overmars-Marx, T., F. Thomese, and X. Moonen. 2018. “Photovoice in Research Involving People with Intellectual Disabilities: A Guided Photovoice Approach as an Alternative.” Journal of Applied Research in Intellectual Disabilities : JARID 31 (1): e92–e104. doi:10.1111/jar.12329.
   PubMed Web of Science ®Google Scholar
• Paulsen, V., and N. Thomas. 2017. “The Transition to Adulthood from Care as a Struggle for Recognition.” Child and Family Social Work, 23, 163–170. doi:10.1111/jar.12329.
   Web of Science ®Google Scholar
• Porter, T., T. Shakespeare, and A. Stockl. 2020. “Performance Management: A Qualitative Study of Relational Boundaries in Personal Assistance.” Sociology of Health & Illness 42 (1): 191–206. doi:10.1111/1467-9566.12996.
   PubMed Web of Science ®Google Scholar
• Porter, T., T. Shakespeare, and A. Stockl. 2021. “Trouble in Direct Payment Personal Assistance Relationships.” Work, Employment and Society: 095001702110169. doi:10.1177/09500170211016972.
   Web of Science ®Google Scholar
• Richards, Leisa, Ben Williams, Phillip Przybylak, and Samantha Flynn. 2018. “The Experiences of People with Learning Disabilities in co-Produced Challenging Behaviour Training.” Learning Disability Practice 21 (4): 28–35. doi:10.7748/ldp.2018.e1909.
   Google Scholar
• Robinson, S. 2013. Preventing the Emotional Abuse and Neglect of People with Intellectual Disability: Stopping Insult and Injury. London: Jessica Kingsley Publishers.
   Google Scholar
• Robinson, S. 2015. “Preventing Abuse of Children and Young People with Disability under the National Disability Insurance Scheme: A Brave New World?” Australian Social Work 68 (4): 469–482. doi:10.1080/0312407X.2014.950977.
   Web of Science ®Google Scholar
• Robinson, S. 2018. “Safety and Harm in School: Promoting the Perspectives of Students with Intellectual Disability.” Journal of Research in Special Educational Needs 18 (S1): 48–58. doi:10.1111/1471-3802.12417.
   Google Scholar
• Robinson, S., and A. Graham. 2019. “Promoting the Safety of Children and Young People with Intellectual Disability: Perspectives and Actions of Families and Professionals.” Children and Youth Services Review 104: 104404. doi:10.1016/j.childyouth.2019.104404.
   Web of Science ®Google Scholar
• Robinson, S., and A. Graham. 2021. “Feeling Safe, Avoiding Harm: Safety Priorities of Children and Young People with Disability and High Support Needs.” Journal of Intellectual Disabilities 25 (4): 583–602. doi:10.1177/1744629520917496.
   PubMed Web of Science ®Google Scholar
• Robinson, S., A. Graham, K. R. Fisher, K. Neale, L. Davy, K. Johnson, and E. Hall. 2021. “Understanding Paid Support Relationships: Possibilities for Mutual Recognition between Young People with Disability and Their Support Workers.” Disability & Society 36 (9): 1423–1448. doi:10.1080/09687599.2020.1794797.
   Web of Science ®Google Scholar
• Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability 2020. https://disability.royalcommission.gov.au/
   Google Scholar
• Taylor, C. 1994. The Politics of Recognition. In Multiculturalism: Examining the Politics of Recognition. Amy Gutmann (Ed.), pp.25–73. Princeton University Press.
   Google Scholar
• Turney, D. 2012. “A Relationshop-Based Approach to Engaging Involuntary Clients: The Contribution of Recognition Theory.” Child & Family Social Work 17 (2): 149–159. doi:10.1111/j.1365-2206.2012.00830.x.
   Web of Science ®Google Scholar
• White, C., E. Holland, D. Marsland, and P. Oakes. 2003. “The Identification of Environments and Cultures That Promote the Abuse of People with Intellectual Disabilities: A Review of the Literature.” Journal of Applied Research in Intellectual Disabilities 16 (1): 1–9. doi:10.1046/j.1468-3148.2003.00147.x.
   Web of Science ®Google Scholar
• Williams, V., L. Ponting, and K. Ford. 2009. “I Do like the Subtle Touch’: interactions between People with Learning Difficulties and Their Personal Assistants.” Disability & Society 24 (7): 815–828. doi:10.1080/09687590903283407.
   Google Scholar